Department of Nursing – Emergency /Medical Specialty Directorate Mater Misericordiae University Hospital Ltd., Dublin 7 Job Description Location: Grade: Reports to /Accountable to: Accountable to: CNM2/CNS in Inflammatory Bowel Disease ( Gastroenterology Nursing) Mater Misericordiae University Hospital – GI Unit CNM2/CNS Grade Directorate Nurse Manager Emergency/Medical Specialties Directorate Professionally Director of Nursing Purpose of the post: The CNM2/CNS in Inflammatory Bowel Disease (IBD).Gastroenterology will demonstrate an advanced level of knowledge and skills to improve the quality of patient care.The post holder will support the ongoing development of the Gastroenterology service and be responsible for ensuring the delivery of specialist nursing within the service. The CNM2/CNS in Inflammatory Bowel Disease (IBD) will focus primarily on patients with Inflammatory Bowel Disease (IBD).The CNM2/CNS will co-ordinator care and liaise between patients, families Medical Consultant and the multidisciplinary team Telephone advice may be given to clients on how to manage their condition. Individual cases are discussed at monthly Combined Inflammatory Bowel Disease Clinics and treatment plans are devised. Responsibilities: The CNM2/CNS will be responsible for the development of excellence in the provision of nursing care through the implementation of clinical standards of practice and establishing competency standards for staff members. The CNM2/CNS demonstrates a firm knowledge base and clinical expertise, functions as a clinical resource, conducts and facilitates patient care consultation, and provides resources to assess the impact of appropriate practice on patient outcomes. This specialist practice will encompass a major clinical focus, which comprises of assessment, planning, delivery and evaluation of care given to patients with IBD and their families in the department. The specialist nurse will work closely with medical and para-medical colleagues and may make alterations in prescribed clinical options along agreed protocol driven guidelines. The approach to management of patients with IBD is adapting to involve the use of specific biologic agents These specific agents require the development and management of pre-screening protocols, preadministration education, close monitoring of patients to include progression and regression of disease activity and to observe for and manage adverse events to medication. Patients receiving complex and potent therapeutic treatments require continuous monitoring, support and education Co-ordinating blood testing and maintaining accurate documentation is required for each patient as Leucopenia and Neutropenia are potential side effects that require skilled monitoring. The CNM2/CNS has responsibility as advocate, health promoter and clinical expert to enhance professional standards of care. Other Responsibilities: Assistance at the High Risk Colon Cancer Screening Clinic. Aims: Identify at risk cohorts and offer appropriate and evidence based management. Prevention of CRC through colonoscopic removal of adenomatous polyps, the precursor to these cancers. Early detection of CRC, which greatly increases the potential for cure. Establish a database of high-risk individuals and families, so that we can review data, critically evaluate outcomes and validate the efficacy of screening for CRC. Provide health promotion and information on cancer prevention in general. Clinical Focus: Direct Care Serves as a reliable source of information on the latest treatment of patients with IBD whilst supporting cost-effective, safe nursing practices. Collaborates with the multidisciplinary team using the nursing process to integrate the nursing perspective into a comprehensive plan of care for the patients/family with Gastroenterology diseases. Identifies and prioritizes nursing care needs for a select population of patients/families. Conducts comprehensive, holistic wellness and illness assessments using established or innovative evidence-based techniques, tools, and methods. Act as a patient advocate through communication, negotiation and representation of the patient’s values and decisions in collaboration with other professionals and community resource providers. Provide advice and health education as appropriate with the aim of achieving self-management of medication, diet, smoking cessation and lifestyle modifications. Identifying health promotion priorities in the area of specialist practice. Designs and evaluates innovative evidence based educational programs for patients, families, and staff. Identifies, collects, and analyzes data that serve as a basis for program design and outcome measurement. Establishes methods to evaluate and document nursing interventions. Evaluates the impact of nursing interventions on fiscal and human resources In-Direct Care Create and revise nursing policies, protocols and procedures using evidence-based information to achieve the highest quality standards for patient care. Work with Nurse Manager and other members of the Gastroenterology service to develop nurse led initiatives that promote best patient outcomes. Lead clinical practice and quality improvement initiatives in the Gastroentrology service.. Work with the CNM to create a nursing care environment that stimulates continuous self-learning, reflective practice, feeling of ownership and demonstration of responsibility and accountability. The Gastroenterology Nurse Specialist acts as a point of telephone contact for patients with IBD. Work collaboratively with the primary care provider and the consultant Gastroenterologist in providing immediate treatment.. Assist / Mentor nurses to acquire new skills, develop their careers and effectively incorporate evidence into practice. Audit of current nursing practice and evaluation of improvements in the quality of patient care are essential. Record statistics of patient care and maintain accurate records of activity levels. Provide information on current activity and present needs and future trends. Examine indicators for quality development and monitoring Patient/Client Advocate Attend multidisciplinary meetings and accurately represent the patients views and requirements. Offer honest choices regarding treatment options to patients with inflammatory bowel disease in conjunction with the consultant Gastroenterologist. Active participation with patient support groups, particularly the Irish Society for Colitis and Crohn’s (ISCC) and the European Federation of Crohn’s and Colitis Association (EFCCA) in the development of pan European patient education programmes. Facilitate patient participation in decision-making process. Consult with other units and health care professionals to improve care. Educational Role: Promotes self-care and wellness through patient education. Communicate with relatives and significant others in order that the patient will have an understanding of their condition thereby increasing compliance. Develop a structured education programme for patients and their families to take into account learning styles, teaching styles, needs assessment and barriers to learning. Participate in the educational needs of student nurses combining their nursing theory with clinical practice in Gastroenterology care and those nurses’ also undertaking postgraduate courses. Be alert to the learning needs of staff nurses, in order to promote the importance of continued education, especially in a specialised area such as Gastroenterology. Participate in in-service education programmes for all nurses pre and post registration and other allied students. Demonstrate high standards of practice in specialist area and utilise skills to educate others thus promoting good clinical practice. Tutoring nursing staff to develop in-depth knowledge about specific Gastroenterology topics. Provide leadership and clinical expertise to nursing personnel by acting as a role model, demonstrating skilled nursing practice, and acting as a resource person to nursing and clinical staff within the hospital and the community. In conjunction with other members of the Gastroenterology team identify, initiate, develop, co-ordinate and participate in new educational initiatives for staff development. To organise and facilitate Gastroenterology study days/workshops within the hospital Demonstrate a high level of interest in advances in the clinical management of gastrointestinal illnesses. Attend study days that have a general as well as an advanced practice focus. The clinical nurse specialist must keep up to date with current research to ensure evidence based practice and research utilisation, must contribute to nursing research, which is relevant to his/her area of practice. Consultant Provide Nurse leadership in the specialist Gastroenterology area. Exercise high levels of judgement, discretion and decision making in the clinical area To enhance the quality, efficiency and effectiveness of care for patients who present with gastrointestinal disorders Provide a confidential and private consultation for patients, protecting patient confidentiality at all times. Monitor and improve standards of care and develop practice by active involvement in advanced clinical practice, undertaking audits and conducting research. Consult and be a consultant to other nurses including students, General Practitioners. Practice Nurses, Public Health Nurses and other health care professionals within and outside the hospital. Be a source of clinical expertise and professional advice and act as a specialist resource. Recommend improvements in the service. Work and co-ordinate in a collaborative, co-operative manner by influencing other health care professionals and other relevant internal and external agencies. To Maintain high professional standards within acceptable protocols and national legislation Help to create amicable working relationships within the multidisciplinary team. Promote a courteous and helpful attitude toward staff, patients and relatives of patients. Assess own educational needs in relation to role and to promote personal and professional development Audit & Research: The nurse specialist must keep up to date with current relevant research to ensure evidence-based practice and research utilisation. The nurse specialist must contribute to nursing research, which is relevant to his/her particular area of practice. Actively participates in clinical audits and the implementation of findings to improve clinical practice. Support clinical research, which provides for evidence based practice. To keep abreast of new developments in technology, treatment and care and to initiate research where appropriate. Policies and Procedures: The Clinical Nurse Specialist must be conversant with and adhere to hospital policies – example: A. Health, Safety and Welfare at Work legislation B. Hospital Fire Policy C. Hospital Infection Control Policies D. Data Protection and Freedom of Information Legislation E. Hospital Grievance and Disciplinary Procedures F. Risk Management Policies This is an outline of this post and is subject to review. The scope of the Clinical Nurse Specialist may change following further deliberations of the Nursing and Midwifery Board. The successful applicant may have to undertake additional duties and responsibilities from time to time as requested by the Director of Nursing through the Directorate Nurse Manager. Appendix 1 PROCESS FOR MANAGING PATIENTS WITH IBD Patients are referred to G.I Clinic Review by Doctor and IBD Nurse IBD Proforme is completed IBD chart compiled Contact details if IBD Nurse given to patients should they require advice Yes Patient’s details added to database Patients with severe/ non-responsive disease attend IBD Clinic Colonoscopy Does the Patient require colonoscopy? Yes No Follow up review in clinic organised Does the patient need treatment? Yes Treatment regime discussed with patient. All pre-treatment screening planned. Appendix 2 Name Dose Route Duration Monitor Prednisolone 40mg OD (+ calcichew 1 OD) 1g TDS 800mg TDS 2-2.5mg/kg ? 1/2 dose x 1week po Reduce by 5mg/week po Po po Long term Long term Medium-Long term 1-1.5mg/kg ? 1/2 dose x 1week Methotrexate Active:25mg weekly Maintenance: 15mg weekly Mycophenolate 15mg/kg/day Mofetil Infliximab 5mg/kg po Medium-long term Dexa < 3/12 first attack then yearly if further dosing Renal 6/12 Renal 6/12 Pre Tx: TPMT, LFT TPMT: Normal - std dose Hetero – 50% dose Homo – C/I FBC weekly x 1/12 FBC monthly x 2/12 Then quarterly ?6-TG levels As for Imuran im/sc Medium-long term po Cyclosporin UC only 2-4mg/kg daily iv Medium-long term Fistulating CD0,2,6 weeks Luminal CD- 8 weekly x 1yr UC - ?single dose 1 week Cyclosporin UC only ?2mg/kg daily ?PCP prophylaxsis 400mg TDS 500mg BD po 6 months; bridge to imuran po po Pouchitis: 1 week Pouchitis: 1 week Pentasa Asacolon Imuran 6-MP Flagyl Ciproxin iv Pre Tx: LFT if abnormal – Liver Bx FBC >1.5g - ?? Pre Tx: CXR ,Mantaux Pre Tx: Renal, Cholesterol,LFT, CyA level daily (200-300ng/ml), renal daily Pre Tx: Renal, Cholesterol,LFT Renal, LFT, CyA level weekly Appendix 3 Total Number of Patients on Infliximab Total Num bers of patients on Inflixim ab 2006 Number 25 20 15 10 5 0 01-Jan Feb-06 Mar-06 Apr-06 May-06 Jun-06 Jul-06 Aug-06 Sep-06 Oct-06 Nov-06 Dec-06 Month Total No of patients on Inflixim ab 2007 Number 40 30 20 10 0 Jan-07 Feb-07 Mar-07 Apr-07 May-07 Jun-07 Jul-07 Aug-07 Sep-07 Oct-07 Nov-07 Dec-07 Month Appendix 4 Total Number of patients on Humira Total No of Patients On Humira 2007 12 10 Number 8 6 4 2 0 Jan-07 Feb-07 Mar-07 Apr-07 May-07 Jun-07 Jul-07 Aug-07 Sep-07 Oct-07 Nov-07 Dec-07 Oct-08 Nov-08 Month Number of Patients on Humira 2008 20 18 16 Number 14 12 10 8 6 4 2 0 Jan-08 Feb-08 Mar-08 Apr-08 May-08 Jun-08 Jul-08 Aug-08 Sep-08 Dec-08 Month Total Number of Patients on Humira 2009 45 40 35 Number 30 25 20 15 10 5 0 Jan-09 Feb-09 Mar-09 Apr-09 May-09 Jun-09 Jul-09 MOnth Aug-09 Sep-09 Oct-09 Nov-09 Dec-09 Department of Nursing Division of Medicine Mater Misericordiae University Hospital Ltd., Dublin 7 Person Specification Clinical Nurse Manager /Specialist in Inflammatory Bowel Disease Nursing JOB TITLE Clinical Nurse Manager/Specialist in Inflammatory Bowel Disease Nursing GRADE Equivalent to Clinical Nurse Manager 2 WHOLE TIME 39 hours per week REPORTS TO Directorate Nurse Manager ACCOUNTABLE TO Professionally to the Director of Nursing ESSENTIAL QUALIFICATIONS & EXPERIENCE: Presently registered in the General Division of Live Register of Nurses maintained by The Irish Nursing and Midwifery Board (or eligible to be so registered) Have a minimum of 5 years full time post-registration experience in acute medical and surgery nursing and a further of 2 years full time equivalent in Gastroenterology nursing, and demonstrate evidence based practice in the speciality Be educated to Post Graduate Diploma level or above in Gastroenterology Nursing. Have proven clinical and professional managerial ability, leadership, communication and organisation skills