EQ-CL Framework Quick Reference Guide V1.1 June 2014 EQ-CL Quick Reference Guide Contents 1. Introduction 3 2. Version Control Log 3 3. Primary Support Reason 4 4. Route of access 8 5. Significant Event 9 6. Reported Health Conditions 11 7. Sequels to requests for support 12 8. Sequels to short term care to maximise independence 14 9. Sequels to reviews 16 2 Copyright © 2014, Health and Social Care Information Centre. All rights reserved. EQ-CL Quick Reference Guide 1. Introduction This EQ-CL Quick Reference Guide is intended as a resource for use by councils and partner organisations during their implementation of the new ‘Zero Based Review’ data collections. The guide has been developed by the EQ-CL working group and provides readymade summaries of the new data items which can be utilised, free of charge, in local materials. The Quick Reference Guide is based on the following principles. The guide does not contain any new guidance, but instead compiles existing guidance material from both the EQ-CL guidance and further relevant detail found in guidance for the collections covered by the framework. It is presented in a format that is intended to be suitable for use as reference material by operational staff who will need to understand the new data items The material is free from HSCIC branding and is made available in .docx format, in tables that can be directly copy and pasted from this document. Councils are free to make amendment to the material to reflect local terminology or recording requirements. Councils are free to add any local branding to the material. We anticipate further development of this document and as such it does not yet contain every element of the EQ-CL framework. We welcome suggestions or requests for further content. The Quick Reference Guide will be updated to reflect any changes made to EQ-CL and associated material due to future development of the collections covered by EQ-CL. A version control log will be maintained in this regard. Councils and partner organisations are asked to credit the HSCIC in their finalised material. The full 2014/15 EQ-CL guidance and guidance for collections covered by the EQ-CL framework is available here. We welcome feedback on the Quick Reference Guide or suggestions for further content. Please contact us via our dedicated mailbox: eqcl.hscic@hscic.gov.uk 2. Version Control Log Date Version Comment May 2014 V1.0 First version, based on EQ-CL guidance v1.3 June 2014 V1.1 Document rereleased as .docx Amendment to page 7 to correct incorrect heading to ‘Social Support’ Copyright © 2014, Health and Social Care Information Centre. All rights reserved. 3 EQ-CL Quick Reference Guide 3. Primary Support Reason Physical Support “I need help because there are physical things I find difficult to do on my own” Access and Mobility only Personal Care Support Access and mobility only refers to services provided to allow clients to live as independently as possible to perform day to day tasks. Examples of these could include: Getting in and out of chairs and beds Getting up and down stairs A 24 hour response service Personal care support refers to services provided to support clients with the following: Physical assistance in connection with: Eating and drinking Toileting Washing and bathing Dressing Oral Care The care of skin, hair and nails Personal care support can also include, where needed prompting and supervision with the above tasks Personal care support may include support with access and mobility In the event of a client having both Access and Mobility and Personal Care Support requirements, their Primary Support Reason should be recorded as ‘Personal Care Support’ 4 Copyright © 2014, Health and Social Care Information Centre. All rights reserved. EQ-CL Quick Reference Guide Sensory Support “I need help because there are things I can’t see / hear well enough on my own” Support for visual impairment Support for hearing impairment These are services provided to assist clients living with visual impairment. These are services provided to assist clients with tasks that are made difficult because of hearing difficulties. Examples of the types of support offered could include: Rehabilitation Training in practical and coping skills Equipment and adaptations Mobility and safer travel Support with memory and cognition Examples of the types of support offered could include: Support for dual impairment These are service for clients with a combination of hearing and visual impairments as defined above Rehabilitation Training in practical and coping skills Equipment and adaptations “I need help because my memory or understanding make it difficult to do certain things on my own” Relates to support and services for clients with conditions affecting their thinking, knowing, awareness and remembering processes. The types of processes requiring support for the client are: Day-to-day memory Planning Language Attention Visuospatial skills The degree of impairment requiring support can range from very subtle to very severe. Support with memory and cognition is associated most often with conditions such as dementia or physical causes such as an acquired brain injury. Copyright © 2014, Health and Social Care Information Centre. All rights reserved. 5 EQ-CL Quick Reference Guide Learning Disability Support “I need help because I find it difficult to learn how do new things on my own” Relates to support and services provided to assist individuals with understanding new or complex information and learning and applying new skills. Learning disability support covers a very wide spectrum. The following are examples of the types of support that may be offered: Help to keep safe and free from harm and neglect Assistance to live independently Support with social and education activities Help with communication Support for work or training An individual may have a learning disability but may not be recorded under this Primary Support Reason if the primary reason for support is identified at assessment as one of the other classifications. Mental Health Support “I need help because my psychological / emotional state makes it difficult for me to do certain things on my own” Relates to support for mental health and mental illnesses. Examples of the types of support provided include: 6 Support with living independently in the clients own home, or having support to improve their home Support to go out (perhaps with a personal assistant) Support to keep motivation Provision of someone to confide in, to talk over problems Support to travel independently Copyright © 2014, Health and Social Care Information Centre. All rights reserved. EQ-CL Quick Reference Guide Social Support Substance misuse support These are services provided to clients experiencing regular excessive consumption and / or dependence on drugs, alcohol or both in combination. Examples of the types of support offered could include: Asylum seeker support These are services provided to registered asylum seekers. Examples of the types of support offered could include: Community drug and alcohol services Rehabilitation Harm reduction interventions Supported access to health, housing or education services Language / interpreter support Providing advice and information Access to legal advice Copyright © 2014, Health and Social Care Information Centre. All rights reserved. Support for social isolation / other This includes support provide with the intention of reducing the social isolation of individuals, such as sitting and befriending services. The sub-class should also be used to capture any support services that do not easily fit within any other primary support reason sub-classes. It is not anticipated that many clients will be reported in this sub-class 7 EQ-CL Quick Reference Guide 4. Route of access Route of access Route of access describes the circumstances around the clients need for support. Planned entry - transition Describes the process of change for young people with disabilities as they move from childhood to adulthood. This period may involve additional interdisciplinary work and planning between involved agencies (for example: collaboration may occur between a children’s social care service and an adult social care service within some councils). Discharge from hospital These are requests relating to clients who are being referred for support following a planned or an emergency admission to hospital. Diversion from hospital services This relates to requests for support relating to clients who are being referred as a means of preventing admission to hospital. Diversion will include some kinds of falls prevention and falls response services, as well as reablement type services aimed at avoiding hospital admission. It is intended to pick up those referrals made specifically to prevent admission to hospital. Community / other route These are requests from clients (or on behalf of clients) based in the community, residential / nursing care or any other route of access. 8 Copyright © 2014, Health and Social Care Information Centre. All rights reserved. EQ-CL Quick Reference Guide 5. Significant Event Significant event describes the circumstances that have led to an unplanned review of the clients needs Significant event Hospital episode (planned) Even when a hospital admission or treatment was known about in advance, the result of medical treatment may be unexpected and result in a request for a review. If Hospital episode (unplanned) an unexpected admission to hospital or treatment in hospital is required, this may result in the care needs of a client changing when they are due to return home. Emergency related to carer Sudden changes in the capacity or ability of the carer to provide support to the client may result in an unplanned review of the client being required. This may be a temporary issue relating to the carer, but the council is required to review the client to cover the gap in support. Change of residence This may include clients who move within the community (for example from their own home to extra care housing) and moves to / from residential and nursing care. Some examples; if a care home deregisters, these new circumstances may prompt a reassessment of client care needs. Alternatively, if a client has moved into residential or nursing care this change may trigger an unexpected, unplanned review. The council may have no knowledge of the client prior to the move, and may be requested to provide care management support on a temporary or on-going basis even if the client meets the costs of the care. It is important to note that this category as the cause of a review. Essentially, if a change in residence triggers the review, then choose this option. Safeguarding concern A safeguarding alert may trigger an unplanned review of the client’s social care needs. Copyright © 2014, Health and Social Care Information Centre. All rights reserved. 9 EQ-CL Quick Reference Guide Fall This is often a significant event for older and frail clients, although it may be even the risk of a fall that triggers the review. Bereavement Bereavement may result in increased care needs for clients and although this may occur in addition to other causes, it should be chosen if it appears to be the most important factor. Change in client condition In some cases the reason may simply be that the client’s health has deteriorated, without any specific event occurring. The increase in support needs then prompts contact with the council resulting in an unplanned review. Other accident / incident Where none of the above categories apply, this category will capture all other triggers of an unplanned review. 10 Copyright © 2014, Health and Social Care Information Centre. All rights reserved. EQ-CL Quick Reference Guide 6. Reported Health Conditions Reported health conditions Reported health conditions are health conditions that are relevant to the clients social care needs Data on clients’ health conditions is not something that has previously been reported within a national social care data collection. The following interim approach to obtaining information about clients’ Reported Health Conditions is recommended where direct evidence is not available from health records: 1. When assessing a client, social work staff should ask about any relevant long term (chronic) Reported Health Conditions. 2. If the client (or carer) discloses any Reported Health Conditions that are relevant to the provision of care, the social worker should then ask if these have been formally diagnosed by a health professional. 3. If the answer is yes, the condition should be recorded. If no (i.e. the condition hasn’t been formally diagnosed by a doctor or health professional) then it should not. It should be stressed that Reported Health Conditions that have no relevance to the client’s social care needs should not be recorded. The reported health conditions are shown in the table below: Chronic Obstructive Pulmonary Disease Long Term Health condition – Physical Cancer Acquired Physical Injury HIV / AIDS Other Stroke Long Term Health condition Neurological Parkinson’s Motor Neurone Disease Acquired Brain Injury Other Copyright © 2014, Health and Social Care Information Centre. All rights reserved. 11 EQ-CL Quick Reference Guide Visually impaired Sensory Impairment Hearing impaired Other Learning Disability Learning, Developmental or Intellectual Disability Autism (excluding Asperger Syndrome / High Functioning Autism) Asperger Syndrome / High Functioning Autism Other Dementia Mental Health Condition Other Reported health conditions are categorised by classification (the left column) and subclass (the right column). The sub-class ‘other’ should be utilised for conditions within each classification that do not fit within the other sub-classes 7. Sequels to requests for support Sequels to requests for support Sequels to requests for support describe what happened after a new client made a request to the council for support Short term care to maximise independence Support provided that is intended to be time limited, with the intention of maximising the independence of the individual and reducing / eliminating need for ongoing support by the council Long term support – nursing care Nursing will apply to those clients who live in registered care homes where nursing services are also provided. Long term support – residential care Residential will apply to those clients who live in registered care homes, even if they are in receipt of some community based services. Long term support - community Community will apply to those who live independently (including those in small group homes, sheltered housing or warden supported accommodation) who receive home or community based services. 12 Copyright © 2014, Health and Social Care Information Centre. All rights reserved. EQ-CL Quick Reference Guide End of life End of life care is considered to be any episode of social care support provided as part of palliative care, and which is intended to support the individual until the care is no longer required. While the period of this support may be short, it falls outside the definition for ‘short term support’, both because the time period for the provision of the support may not be known, and because there is no expectation to review any need for further service at the end of the period. Ongoing low level support Should be used where a Local Authority decides to provide an ongoing service such as the provision of a minicom line / telecare, but no other service needs have been identified. Such services will be based in the community. All equipment and adaptations (including those with ongoing costs for maintenance and safety checks) should be included in this category as described above. This category doesn’t suggest services are limited or ‘minor’ in scope but it does suggest that they may continue ‘in the background’ supporting clients with minimal attention required by the local authority. Short term support - other Includes all episodes of support provided that are intended to be time limited without intending to maximise independence / reduce the need for ongoing support. An example of this might be a short term intervention for a younger adult with impaired mobility recovering from an operation, who is expected to make a full recovery without any additional intervention. Emergency support provided for all new clients should be included in this category, while emergency support provided to existing clients should be excluded, as this will be part of ongoing Long Term support. Universal services / signposted to other services A ‘universal service’ is any service or support (other than those above) for which there is no test of eligibility and no requirement for review. Signposting indicates that the client will not be supported by the CASSR and there is no universal service which will help them. Details are therefore given of other organisations (e.g. in the voluntary sector) that might be able to provide assistance. No services provided (any reason) The client may have low-level needs which cannot be supported by the CASSR and there is no universal service which will help them This will also apply if the client dies or for some reason the process of assessing needs is terminated (if just temporarily suspended, wait until the assessment process has re-started and reached a conclusion before entering data here). Selecting this sequel should not be seen as reflecting negatively on the local authority but more about the nature of the request for support or client circumstances Where multiple sequels occur for the client you should choose the sequel that appears highest in the above table Copyright © 2014, Health and Social Care Information Centre. All rights reserved. 13 EQ-CL Quick Reference Guide 8. Sequels to short term care to maximise independence Sequels to short term care to maximise independence Sequels to short term care to maximise independence describe what happened after the client received the care Early cessation of service – not leading to long term support This should be used where the period of short term support was cut short in an unplanned way (e.g. because of a health issue, client moving out of the local area etc.) where this does not result in long term support provision by the council Early cessation of service – leading to long term support This is used if a client’s short term support ceased unexpectedly before the planned end date and this resulted in provision of long term services. Long term support – any setting This is used if the client goes on to receive long term care Ongoing low level support Should be used where a Local Authority decides to provide an ongoing service such as the provision of a minicom line / telecare, but no other service needs have been identified. Such services will be based in the community. All equipment and adaptations (including those with ongoing costs for maintenance and safety checks) should be included in this category as described above. This category doesn’t suggest services are limited or ‘minor’ in scope but it does suggest that they may continue ‘in the background’ supporting clients with minimal attention required by the local authority. Short term support other Includes all episodes of support provided that are intended to be time limited without intending to maximise independence / reduce the need for ongoing support. An example of this might be a short term intervention for a younger adult with impaired mobility recovering from an operation, who is expected to make a full recovery without any additional intervention. Emergency support provided for all new clients should be included in this category, while emergency support provided to existing clients should be excluded, as this will be part of ongoing Long Term support. 14 Copyright © 2014, Health and Social Care Information Centre. All rights reserved. EQ-CL Quick Reference Guide A ‘universal service’ is any service or support (other than those above) No services provided for which there is no test of eligibility and no requirement for review. – universal services / Signposting indicates that the client will not be supported by the CASSR signposted to other and there is no universal service which will help them. Details are services therefore given of other organisations (e.g. in the voluntary sector) that might be able to provide assistance. This category applies to clients for whom it can be identified that they or No services provided their carer(s) intend to purchase support privately and are withdrawing – needs identified from assistance offered by the council, including care planning support, but self funding annual reviews etc. No services provided – needs identified but support declined No services provided – no identified needs Where multiple sequels occur for the client you should choose the sequel that appears highest in the above table Copyright © 2014, Health and Social Care Information Centre. All rights reserved. 15 EQ-CL Quick Reference Guide 9. Sequels to reviews Sequels to reviews Sequels to reviews describe what happened after the client received a review of their social care needs Change in setting Move to nursing care Choose this if a community based client is now moving to registered nursing care. If the client is already in residential care, then record this as level of long term support increased rather than as a change in setting. Move to residential care As above but for registered homes that do not offer nursing care. Move to community Where a client is reviewed in a residential setting but the conclusion is that they will move back into the community (including cases where a home is going to be deregistered and the client will continue to live there) then this option applies. Moves to supported living arrangements from registered care homes will also be captured here if the move is the outcome of a review. Short term support to maximise independence Support provided that is intended to be time limited, with the intention of maximising the independence of the individual and reducing / eliminating need for ongoing support by the council. No change in setting Level of long term support increased If a client is already in residential care and moves to nursing care then record this as level of long term support increased rather than as a change in setting No change in long term support Despite a change in client circumstances, the review does not result in changes to long term support being made Level of long term support decreased In some cases, unplanned reviews may reveal that not all the support being provided was actually needed and reductions are made. All long term support temporarily suspended Changes in client circumstances may result in a suspension of care, such as when the review prompts an emergency hospital admission. 16 Copyright © 2014, Health and Social Care Information Centre. All rights reserved. EQ-CL Quick Reference Guide All long term support ended This may apply either if a client dies immediately following review, or if the change in circumstances results in the client being supported through other means (e.g. by family, by private provision). This includes cases where funding is taken over by the NHS and end of life Where multiple sequels occur for the client you should choose the sequel that appears highest in the above table Copyright © 2014, Health and Social Care Information Centre. All rights reserved. 17 EQ-CL Quick Reference Guide Copyright © 2014 Health and Social Care Information Centre. All rights reserved. You may re-use the text of this document (not including logos) free of charge in any format or medium, under the terms of the Open Government Licence. To view this licence, visit www.nationalarchives.gov.uk/doc/open-government-licence/ 18 Copyright © 2014, Health and Social Care Information Centre. All rights reserved.