Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 REFERENCE ON PATIENT BEHAVIOUR Section 1: Cultural Norms and Conventions Sex and Reproduction, Pregnancy, Care for Children and Health Seeking Behaviours The following socio – cultural norms and conventions relating to reproductive health, pregnancy and post natal care, inform and influence patient behaviour affecting access to use and uptake of clinic based primary health services. The tables below: 1] state the topic; 2] make a summative statement on the common practice and then 3] detail the actions, knowledge , beliefs and attitudes that inform patient behaviour. Reference Tables: Traditional healers / treatment Traditional healers and traditional medicines/treatments are used for MCH . Women tend to receive information and services from both traditional and modern medicine provided by traditional healers , clinic and private doctors. It was reported in OR Tambo that the use of traditional medication by pregnant women is causing illnesses such as elevated blood pressure, hypertension, and oedema (BlackSash). Women will use traditional meds and herb during their pregnancy despite knowing that these can be dangerous (FAMSA) Last month of pregnancy some pregnant women use rituals/herbal medications with the belief that they are or be bewitched. They do so to protect their newborns. Some of them want to bring their traditional medication to the MWH (Northwest). While there is concern about THs referring, THs are concerned with the issues of counter-referral, particularly of ToP clients from the health facilities to traditional healers for ritual cleansing (IPAS evaluation). The concern for many rural people (especially the older generation) with traditional meds is not their safety, but that they are being mixed with modern meds (wives in EC) One of the problems with increased education is that many women have taken onboard the lesson that one should not take these medicines if one is HIV+. Now, women fear the stigma of being seen as HIV+ if they don’t take them. Teens seek services from traditional healers who were easily accessible in their communities, are open until late and do not ask questions or 1|Page Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 conduct any tests (e.g., HIV, like the clinics) (Mindset, Gert Sibande). o Stories were told of pregnant teenagers consulting traditional healers requesting specific medication and because traditional healer did not do any tests, they gave the teenagers the medication not knowing that they were assisting the pregnant teenagers to commit abortions (Mindset, Gert Sibande). Depression Both men and women experience depression as a response to a range of sexual practices. For women (aged 15-26), having depressive symptoms is associated with having experienced one or more incidents of physical or sexual IPV and dating a partner three or more years older, as well as a greater likelihood over the following 12 months of having transactional sex and experiencing further IPV (Nduna 2010). For men (also aged 15-26), depressive symptoms are associated with having had transactional sex, not using a condom or doing so incorrectly at last intercourse, and having raped a stranger or acquaintance; there was some evidence suggesting that they were also associated with having perpetrated more than one episode of physical or sexual IPV. Men who reported baseline depressive symptoms were at greater likelihood of not using a condom or doing so incorrectly at last intercourse 12 months later (Nduna 2010). Violence is a social norm that has implications for women’s voice and self advocacy in respect to reproduction and pregnancy. . Between July and September 2013 a total of 325 rapes were recorded in the uMgungundlovu district, and of those 106 were rapes of girls under 12 (Black Sash). o There are some reports that men are socialized to use violence as a corrective measure and a symbol of ‘love’ – to discipline a partner is to show love and will result in greater love and respect. It feels so good to hit someone you love, she just loves you more (Male participant, 19 – 25, Umbumbulu) (Listening to Voices) Families affected by GVB usually do not seek any form of assistance (including medical attention) until the last stages of the pregnancy (FAMSA). Women in abusive relationships are seen as less able to communicate with their partners (CADRE). Gender Based Violence Sex workers have particular practices related to reproductive health and family planning. Sex Workers The majority of the sex workers reported that they did not discuss their family planning, pregnancy and healthcare needs with anyone (Gert Sibande FGD, Black Sash) They instead reported that they inserted foreign objects in their vaginas before having sex with clients to prevent pregnancy in the event that condoms burst during sex. “I put it [cotton wool] in my private part so that if the condom tears his sperms are going to be stuck on this cotton wool then I pull it out and throw it in the toilet.” Sex worker, Kinross, Govan Mbeki (Mindset) 2|Page Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 Vulnerable Groups Majority of OVC are cared for inter-generationally –ie. by grandmothers In John Taolo Gaetsewe district in N. Cape, DSD estimates that grandmothers rear 60% of the OVCs (Sarraounia) Men and sexual There is evidence of culturally determined attitudes and behaviour for men and sexual /reproductive health. /reproductive health What are boys being taught at initiation schools about men and their responsibilities towards women (from Hendrietta Bogopane Zulu, MP, Deputy Minister, DWCPD)? Absence of father in boy’s SRH decisions: according to Mindset FDGs, Younger men up to age 25 years old reported that they only received support from their mothers who gave them advice on taking care of babies and financial support when needed. When boys get sick because of circumcision, the male relatives consult each other and exclude the mother. Why are communities not enforcing anti-statutory rape laws against men who impregnate girls under 16? Fathers need to be more involved in PMTCT In FAMSA dialogues, Community Care Workers also stated that men had said to them that they were focused on finding employment and that if the issues did not involve potential employment, they would not be present. When compared to teenage girls, teenage boys appeared to be more concerned about contracting sexually transmitted diseases than they were about preventing teenage pregnancy (Mindset, GS). Men leave their wives/partners if they find out they have HIV, which is also linked to their scrutinizing feeding practices with infants as sign of HIV status (Listening to voices, KZN). Men reluctant to accept responsibility with partner becomes pregnant, claiming she could have other partners (Listening to Voices, KZN) Womanhood Culture frames a particular understanding of womanhood information attitudes and behaviour to reproduction (CADRE). Maturity defined by life events rather than chronological age (defining women)—this is relevant to child-headed households Having a child and proving your fertility are important Hiding one’s own pain from children and others and getting over things were both mentioned as part of being dignified. Also, women look for outside (the home) help, ostensibly not like men. Women’s groups mentioned as important levers for social change (e.g., stokvels, caregiver groups). Sexual preference and norms include dry sex, early debut and intergenerational and transactional sex. Sexual and reproductive practices General: Using various substances to facilitate ‘dry sex’ or as aphrodisiacs, such as ‘kuber’ or ‘snuff,’ which is not usually accompanied by the use of contraceptives or condoms (KZN; defining women, also from CADRE) Beliefs about being a ‘hot’ or a ‘cold’ woman contributed to women following practices to facilitate dry sex and ‘hot’ sex – which resulted in the nonuse of contraceptives, and of condoms (defining women; KZN only??). You need more direct contact to feel the “heat.” From CADRE research, in KZN at least there is the perception that it is now common for younger girls (11-13) to have sex and fall pregnant. Because 3|Page Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 of the danger posed by abortion, some parents opt to allow them to have the baby. Girls will pretend to be a virgin to the husband’s family, yet she and her husband know that they have been practicing sex long before marriage (from Free State respondent). There are such strong pressures on women to give birth regardless of work or marital status. For married women, the pressure is such that if they don’t fall pregnant, families will encourage men to to find other partners (Free State respondent). Early sexual debut: The age they recommended for adolescent girls was 13 years because at that age some of them were already sexually active (Mindset, Gert Sibande) Intergenerational and transactional sex: Reference in KZN to “Kati and Ubisi game” which ostensibly means when older men buy younger women alcohol in exchange for sex. ( Sugar daddies force sex if girls refuse (Listening to Voices) Incest: A mother kept quiet about her daughter’s pregnancy, because she knew that the father was her husband, and knowing that the husband is the breadwinner she did not want to risk losing him (FAMSA case story). Health seeking behaviour / Health seeking and presentation behaviour is informed and influenced by age status. It must be disaggregated. presentation at facilities Teenagers: The pregnant teenagers prefer to receive sexual and reproduction information from the internet because it is easily accessible (Mindset, GS). Women discuss their sexual and reproductive health needs and problems with older friends, mother, religious leaders and traditional and spiritual leaders (Gert Sibande). Most parents are against their teenage girls being in relationships and since most teenagers live with their parents they need permission from their parents to leave home to seek services from health facilities. This makes it difficult for the teenagers to seek sexual and reproductive services from health facilities (Mindset, GS). Teenagers presentation at clinic (needing friends for support) There was a tendency for parents to put blame on the friends of their adolescent children when they fell pregnant (Mindset). Teenagers presentation at clinic (needing friends for support) There was a tendency for parents to put blame on the friends of their adolescent children when they fell pregnant (mindset) Women: Women presenting alone without partner IYDSA, conflicting messages around integrated service delivery (e.g., sometimes HIV patients prefer a separate facility). Zithulele have found that transport delays are a major factor if women not seeking to delivery in hospital. Additionally, rural women have to save to cover the cost of transport and if they come too hospital too soon it is a costly mistake and they may not return. Having a referral but being denied service because of wait list (especially around ToP)—driving girls/women to illegal providers Women presenting alone without partner IYDSA, conflicting messages around integrated service delivery (e.g., sometimes HIV patients prefer a separate facility). In uMgungundlovu older women reported avoiding ANC and PNC as they don’t want to be in the queues at the clinic with younger girls, as they are reportedly being ridiculed by these young girls who are telling these women they are too old to be pregnant (Black Sash). 4|Page Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 Section 2: Patient Behaviour and the Continuum of Care in MCH Patient behaviour is detailed and organised according to the five time cycle elements of the continuum of care for MCH provided by WHO ie. 1] adolescence and before pregnancy; 2] pregnancy; 3] birth , 4] postal natal and; 5] motherhood. The tables below organise each topic and associated behaviour according to the different stages of the continuum of care. Reference Tables: ADOLESCENCE AND BEFORE PREGHANCY Family planning 5|Page Myths/perceptions around use of FP methods, mostly injectibles: o Changes in body shape (CADRE) o Changes in weight (CADRE) o Changes in menstrual cycle (prolonged, irregular or absent menstruation) (CADRE) o Contraceptives can cause permanent infertility (CADRE) o Female contraceptives have side effects on males, e.g. hip pain (CADRE). o IUDs can be felt by men o Injection causes body to become like jelly, or leads to swelling from water retention (Mindset, GS). o Use of injection will make it impossible to conceive later (Mindset, GS). o Injection causes excess vaginal wetness leading to charges of infidelity or less pleasure. o IUDs migrate once implanted. o Babies will be born clutching the IUD. o Men confirmed that women using contraceptives were unattractive describing them as having loose bodies and popping veins (Listening to the Voices). o Even adults have confusion and misconceptions, such as thinking that women get swollen because blood is not being discharged through normal menstruation (Mindset). Women who have given birth refrain from using contraceptives because they have to wait a certain period after giving birth (2-6 months) before using contraceptives (Mindset, GS). Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 Use of condoms depends on type of male partner (e.g., boyfriend v. older partner). Condoms not viewed as a family planning method rather as a method of preventing sexually transmitted diseases, especially HIV. As a result, teenagers and youth are reluctant to propose the use of condoms in their relationship because their partners would assume that they were unfaithful or were accusing them of being unfaithful (Mindset, Gert Sibande). Parents don't talk to their kids SRH and FP (Mindset, Gert Sibande). Perceptions of key members in the community (e.g. from church) may discourage certain behaviours such as contraception use (Capricorn). o Shame and silence on the part of religious institutions, who encourage becoming “born again” and abstinence but nothing else (Mindset, Gert Sibande). Some teenage boys who have undergone circumcision indicate that they stop using condoms during sexual intercourse because they think that circumcision prevents sexually transmitted infection (Mindset, GS). The majority of teenagers, both male and female, indicate that they do not speak to their partners about family planning and healthcare. Teenage girls were of the view that they were not supposed to tell their boyfriends that they were using contraceptives because they would not approve of it. Teenage boys on the other hand indicated that they did not trust their girlfriends and that they would be judgmental of them and thus end their relationship when they brought up the topic (Mindset, GS). Women taking decisions about contraception or sterilization on their own without consulting their partners (CADRE-KZN). Young women in “first love” make decision to fall pregnant without considering anything other than how pregnancy fulfills the relationship (CADRE-KZN). Rather than talk about FP, as soon as the girl begins menstruating, here parents take them to the clinic (CADRE-FS). There is peer pressure to engage in sexual activity without any form of contraception (Mindset). Patients on ARVs are taught to use condoms and when they become pregnant they are fearful of coming to clinic. This means that they have not taken their treatment so mothers and babies do not have PMTCT (JTG district of NC). PREGNANCY Teenage Pregnancy Teenage parents only start discussing healthcare needs like family planning, pregnancy and baby healthcare after they have fallen pregnant (BlackSash). ToP Girls terminate because of fear of being kicked out their homes by their parents (Listening to the voices). Limited awareness of the legality of ToP by the general public precludes the kind of demand-driven support seen for other reproductive-health services (IPAS evaluation). 6|Page Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 EANC Peri-Natal Women seek ANC late into their pregnancy, as late as in their last trimester, or they do not seek ANC at all. Women often only seek ANC when they suspect complications (BlackSash). Parents will keep their [pregnant] daughters at home up to seven months so they won’t contract other diseases at the clinic (Mindset). Some of the delayed ANC is attributed to the fact that many teenagers are hiding their pregnancies (BlackSash). The fear of testing for HIV is one reason teenage parents give for delayed ANC. As result, they go to health facility at 8 months just to get the ANC card for them to be able to be admitted at a hospital to deliver the baby (Mindset). Before the HIV epidemic, it was considered acceptable to come for your first visit at six months. Now, early ANC is associated with being HIV+, so women don't want to come for fear of being labeled as positive by other community members. New mothers are reluctant to bring new babies to the clinic due to fear of exposing the baby to unnecessary infection (Capricorn). Delaying ANC and late testing of HIV is resulting in prevention of mother to child (PMTCT) regimens not being successfully employed, the result being HIV infection of infants (Black Sash). High use of alcohol when girls are pregnant (KZN, listening to voices), which can lead to fetal alcohol syndrome It is okay to drink traditional beer while pregnant (FAMSA). Girls do not know how to count the months during their pregnancy (FAMSA). High use of alcohol when girls are pregnant (KZN, listening to voices), which can lead to fetal alcohol syndrome It is okay to drink traditional beer while pregnant (FAMSA). Girls do not know how to count the months during their pregnancy (FAMSA). Moms and babies should not leave home for 3 months (Capricorn). Babies should not be mixing with lots of people in the waiting rooms (Capricorn). It not cultural that a neonate can be fed with another women's milk, though this happens. There is a need to explain the pasteurisation process. Some women believe that every newborn should be given Lemmon Drops (Northwest). Male partners will buy formula for women as a way to show love (EC). Poor women who can’t afford formula will put flour in water to seem that they have access to formula (EC). Mothers don’t want their babies tested so they “lose” their road to health card and so health staff can’t see o the baby’s history. They tell you the baby is negative, yet children are still dying of underlying causes o related to HIV infections (Sarraounia). Children are often left in the care of grandmothers who feed the children tea in their bottles because they have no money to buy o Milk (JTG district of NC, Sarraounia). Women have real concerns regarding the impact of exclusive breastfeeding on their body images and therefore may resist to continue breastfeeding fearing that it may make their breast sag or them appear less attractive (Listening to Voices)• POST NATAL (MOTHER AND CHILD) 7|Page Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 Post Natal Care Breastfeeding OR Tambo women are arriving for PNC late since there is a cultural belief in the community that women cannot leave the house for two weeks after delivery (BlackSash). 8|Page Not exclusively breastfeeding for first six months o Rural women are reluctant to discuss issues like breastfeeding with someone else unless that person is a woman who has had a child (Zithulele Hospital, EC). o From mindset FGDS: Some of the women reported that they introduced solids to their infants at two to three months while others were not comfortable at all with breastfeeding their infants because they were HIV positive. o The manner in which a mother feeds her baby is often used as a signifier of her HIV status. The high levels of stigma within communities towards women living with HIV acts as a barrier towards safe infant feeding practices. (Listening with Voices) Mothers tear out pages 8-9 of the child’s road to health card (PMTCT) making it difficult to follow-up the child’s management (JTG in NC). Women do not like their infants to be weighed. Moms and babies should not leave home for 3 months (Capricorn). Babies should not be mixing with lots of people in the waiting rooms (Capricorn). It not cultural that a neonate can be fed with another women's milk, though this happens. There is a need to explain the pasteurisation process. Some women believe that every newborn should be given Lemmon Drops (Northwest). Male partners will buy formula for women as a way to show love (EC). Poor women who can’t afford formula will put flour in water to seem that they have access to formula (EC). Mothers don’t want their babies tested so they “lose” their road to health card and so health staff can’t see the baby’s history. They tell you the baby is negative, yet children are still dying of underlying causes related to HIV infections (Sarraounia). Children are often left in the care of grandmothers who feed the children tea in their bottles because they have no money to buy Milk (JTG district of NC, Sarraounia). Women have real concerns regarding the impact of exclusive breastfeeding on their body images and therefore may resist to continue breastfeeding fearing that it may make their breast sag or them appear less attractive (Listening to Voices) Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 MOTHER HOOD (INFANT AND CHILD) Data forthcoming as it emerges from output 3 grantee activities. Section 3: Traditional Medicine, Treatment and other Practices related to MCH A “traditional” system of leadership, knowledge and care for MCH exists and operates concurrently to the formal health system. Evidence suggests that while the majority of women deliver at a clinic and receive ante natal care there, women also use traditional healers, treatments and medicines. Furthermore it can be the case that while “traditional attitudes, beliefs and practices are widely used and familiar to the patient and clinic staff, they are “discounted”. In other words they are overlooked, ignored or put down. To illustrate, the integration of traditional healer into the health system for example through referrals is a weak practice. Further, it can be the case that nurses and clinic staff are familiar with and may themselves use traditional practices yet in the professional setting this tends not to be acknowledged or appreciated. To focus on culture and “tradition” is not to reify it. Rather the intention is to acknowledge it as culture and tradition are part of the solution as well as part of the problem when it comes to MCH outcomes and their improvement. In other words while culture is often seen as barrier it is also a resource. In other words some practices can and should be built upon while others need reform. The reference tables below focus on what output 3 grantees have surfaced so far in relation to 1] traditional medicines 2] traditional practices (general); 3] traditional practices – adolescence and before pregnancy ;4] traditional practice – pregnancy; 5] traditional practices - post natal. 1] Traditional medicines Medicine Ucliamemfene 9|Page How it helps This is given throughout pregnancy to aid in the mother’s Issues The concern is with dosages and that it should not be mixed Where reported? Umthatha meeting with wives of rural leaders Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 Mbelekisane Isicatathi Kgaba comfort and to help the baby to move around. It can also be given to a baby if he/she is not passing urine Given during labour to help expedite it Not entirely clear, but perhaps an anti-mucus agent. Is taken to ‘strengthen/bring on labour pains’ Mogato Mothers burn the herb and then apply the ash to the chord stump to dry the umbilicus and hasten the chord falling off. Isihlambezo Assists the mother to have a smooth and fast delivery. Gets rid of headaches and restores the mother’s original complexion should it turn yellow after birth. Is given to the newborn; and this medicine can also be purchased from the pharmacy. ToP Ipleyiti Umuthi wenyoni Gobho (trad muti) or Stameta (as sold in pharmacies), chrystal potassium, permanganate, aspirin added to coca-cola which is boiled muthi buried in the yard; coloured string around the waist; 10 | P a g e with other drugs. Umthatha meeting with wives of rural leaders Can result in prolonged labour and foetal distress or can cause ruptured uterus especially in patients who have had previous c sections Causes infection but young mothers tend to use grannies’ advice above that of the clinic as ‘this is our tradition’ and ‘culture was here before there was a clinic’. JTG district NC JTG district, NC Gert Sibande (Black Sash) Gert Sibande (Black Sash) Gert Sibande (Black Sash) KZN (Listening to Voices) and defining women Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 taking a shower; cough or jump up and down to expel sperm. 2] Traditional Practices -- General Practice Definition Ukungena Forced marriage of a widow to a male relative of her deceased husband's family. Abduction of young girls for marriage A girl being forced to sleep with her father-in-law A newborn with a red mark/rash/bruise on the back of the head will have the mark cut by the traditional healer. Ukuthwala Smanje Ibala Virginity testing Perceived by rural leaders as a system rather than a practice. Widow cleansing A man must have intercourse with a widow to “cleanse” her before she can 11 | P a g e Issues Recommended action (recommendee) Needs to be made consonant with the constitution (Commission for Gender Equality) Should be prohibited (Commission) Sometime results in sepsis or other problems leading to child mortality Positive: gives girls a platform for selfexpressions; can provide for community responses to GBV (e.g., involving police in rape cases) Negatives: concerns about bodily integrity, confidentiality, and cleanliness/hygiene. Girls will sometime opt for anal sex to avoid running afoul of VT Who checks whether the men are HIV+? Needs to be balanced with provisions that protect a girl’s right to choice, dignity, etc. (Commission) In order to function positively, the whole community must be involved. Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 remarry Polygamy Secondary virginity Negatives: Does this encourage acceptability of MCP? Positives: If done within legal provisions, it protects women in cases of separation or widowhood. Rather than debate the merits of the practice, should teach women about what to expect and their rights (e.g., that the first wife legally must approve of any subsequent marriage). Should be treated as a SRHR (DM, DWCPD) A girl who has been sexually active by choice or force can, after a period of abstinence, become a virgin again 3] Traditional Practices – Adolescence and Before Pregnancy Practice Common: pill, injection, condoms, morning after pill. Less common: thigh sex, abstinence, virginity testing (KZN); withdrawal method, female condom. Other practices: various stuff taken post sex to prevent pregnancy (e.g. bicarbonate of 12 | P a g e Definition Issues Recommended action (recommendee) CADRE Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 soda, essence of life); insert a sponge to absorb sperm; muthi buried in the yard; coloured string around the waist; taking a shower; cough or jump up and down to expel sperm; abortion. 4] Traditional Practices – Pregnancy Practice Women encouraged to drink homemade beer during pregnancy (considered healthy) Youth are not aware of how to track the duration of their pregnancy as they do not know how to 13 | P a g e Definition Issues Recommended action (recommendee) FAMSA FAMSA Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 count their months during pregnancies Women are prohibited to eat nutritious food and drink cold water Visitors not allowed in lying room (e.g., menstruating women and baby’s father). May lead to poor nutritional status Capricorn NoL Can lead to depression which in turn leads to poor breast milk production. 5] Traditional Practices - Post-Natal Practice Heavy bleeding is desirable Women are supposed to rest in bed for 6 weeks and more. Women are prohibited to eat nutritious food and drink cold water Visitors not allowed in lying room (e.g., menstruating women and baby’s father). Health facilities 14 | P a g e Definition Issues Anaemia Where reported Capricorn NoL Anaemia; Lack of exercise delays healing (e.g., with c/section, episiotomy) Capricorn NoL May lead to poor nutritional status Capricorn NoL Can lead to depression which in turn leads to poor breast milk production. Causes illness such as diarrhea. Research Finding – output 3 grantees – situational analysis; baseline data and networks of learning 19 January 2014 encourages mothers to exclusively breast feed their babies, while at home grannies encourage traditional herbs and soft porridge. The umbilical cord is smeared with cow dung and traditional medicines. ukuchaza 15 | P a g e Infections This refers to the practice whereby newborns are taken to a traditional healer and remain there for at least 10 days. Blades are then used to make incisions on the newborn in order for the traditional healer to apply traditional medicine on the infant for the ancestors to protect him/her. Key informants strongly maintained that this is not impacting negatively on health however more research is needed to verify this (Black Sash) uMgungundlovu e.g. Mkhambathini.