Genetics Deconstructed: Learning the Essentials with Hands

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2014 IACRN Annual Conference
“Feeling the Pulse of Clinical Research Nursing:
Impact and Value through Caring, Communication, and Compliance”
AGENDA
7.0 CEUs
Wednesday, November 5, 2014
7:30 AM – 4:00 PM
9:00 AM – 12:00 PM
EARLY REGISTRATION
MORNING PRE-CONFERENCE SESSIONS (Choose one)
PRECONFERENCE SESSION I:
Developing Outcome Measures to Document Contributions of the Clinical
Research Nurse
 Joy Bailey, Ph.D, RN
Director of Clinical Research Nursing, EHC, ACTSI
Emory University
 Cheryl Fisher, Ed.D., RN
Senior Nurse Consultant for Extramural Collaborations
National Institutes of Health
 Clare Hastings, Ph.D, RN, FAAN
Chief Nurse Officer
Nursing and Patient Care Services
National Institutes of Health - Clinical Center
PRECONFERENCE SESSION II:
Moving from Novice to Expert: Growing Professional Clinical Research Nurse
Portfolio
 Elizabeth Ness, RN, BSN, MS
Nurse Consultant (Education)
Center for Cancer Research,
National Cancer Institute
 Dana Raab, RN, BSN, MS
Practice Leader – Clinical Research Nursing
Center for Professional Excellence
Cincinnati Children’s Hospital Medical Center
3.0 CEUs
1:00 PM – 4:00 PM
AFTERNOON PRE-CONFERENCE SESSIONS (Choose one)
PRECONFERENCE SESSION III:
3.0 CEUs
Genetics Deconstructed: Learning the Essentials with Hands-On Models (limited to 28 people)

5:00 PM-7:00 PM
Catherine Ricciardi, DNP, ANP-BC
Nursing Director MIT CRC
Research Navigator Harvard Catalyst CTSA
Massachusetts Institute of Technology
 Kathleen M. Vandiver, Ph.D
Director, Community Outreach Education and
Engagement Core (COE2C)
Center for Environmental Health Sciences (CEHS)
Massachusetts Institute of Technology
 Amanda Gruhl Mayer, Ph.D
MIT CEHS Outreach Coordinator
MIT Edgerton Center Instructor
Massachusetts Institute of Technology
PRECONFERENCE SESSION IV:
Steps to Local IACRN Chapter Start-Up
 Mary Larkin MS, RN
Assistant Director
MGH Diabetes Research Center
Massachusetts General Hospital
 Kerry Grennan, RN, ANP-BC, CDE
Clinical Research Nurse Practitioner
Inpatient Diabetes Consult Service
Massachusetts General Hospital
 Linda Pitler, RN, MS
Clinical Research Nurse
Thoracic Aortic Center
Massachusetts General Hospital
 Catherine Griffith RN, MSN
Harvard Catalyst Clinical Translational Science Center
Massachusetts General Hospital
 Amy Sbrolla, RN, BSN, ACRN
Research Nurse
Massachusetts General Hospital
BOSTON IACRN CHAPTER MEETING
Topic: Eunice Rivers: Victim or Villain?
 Linda Pitler, RN, MS
President, IACRN Boston Chapter
Massachusetts General Hospital
 Mary Larkin MS, RN
Past-President, IACRN Boston Chapter
Massachusetts General Hospital
(Chapter Meeting Open To All IACRN Members)
1.0 CEU
2014 IACRN Annual Conference
“Feeling the Pulse of Clinical Research Nursing:
Impact and Value through Caring, Communication, and Compliance”
AGENDA
7.75 CEUs
Thursday, November 6, 2014
7:30 AM – 8:30 AM
REGISTRATION AND BREAKFAST
8:30 AM – 8:45 AM
WELCOME
 Liza Behrens, MSN, RN, CCRC
President, IACRN
Geisinger Health Systems
KEYNOTE ADDRESS:
“Clinical Research Nursing: Finding Your Voice, Asserting Your Value”
 David Keepnews, Ph.D., JD, NEA-BC, RN, FAAN
Director of Graduate Program
Hunter – Bellevue School of Nursing
Break- Tweet
CLINICAL TRIAL WORKLOAD ASSESSMENT
 Marge Good RN, MPH
Nurse Consultant - Division of Cancer Prevention
National Cancer Institute
BREAKOUT SESSION I (Choose one session)
Session A:
Participants Just Don’t Understand…Or Do They?
 Michelle Dickey, MS, CFNP, CPNP
Director, Clinical Research Program
Cincinnati Children’s Hospital Medical Center
The Power of the Shared Reading Experience
 Kerry B. Grennan, RN
Clinical Research Nurse Practitioner
Inpatient Diabetes Consult Service
Massachusetts General Hospital
Session B:
Working Collaboratively to Define Practice Parameters and Allocation
of Resources
 Kathryn E. Hall, MS, ANP-BC, NE-BC
Nurse Director
Harvard Catalyst Clinical Research Center
Massachusetts General Hospital
8:45 AM – 10:00 AM
10:00 AM – 10:15 AM
10:15 AM – 11:15 AM
11:15 AM – 12:15 PM
1.25 CEUs
1.0 CEU
1.0 CEU
12:15 PM – 12:30 PM
12:30 PM – 1:45 PM
1:45 PM – 2:00 PM
2:00 PM – 3:00 PM
3:00 PM – 3:15 PM
3:15 PM – 4:15 PM
Clinical Research Coordinator Time Utilization Data: Does it Describe
the Clinical Research Nursing Specialty Domain of Practice?
 Debra Henninger, MHSA, RN, CCRC
Associate Director
Office of Research Compliance and Training
Geisinger Health System
Session C:
Utilization of a Recruitment and Retention Specialist in Multi-Site
Clinical Trials: Transforming Site Management to Improve Clinical Trial
Success
 Susan McMahan, RN
Research Nurse II Recruitment and Retention Specialist
Cincinnati Children’s Hospital Medical Center
The Role of the Clinical Trials Nurse in Research Quality
Assurance/Quality Improvement
 Karen Skinner, MSN, RN, NHA, CCRP
Director Quality Assurance/Quality Improvement
Office of Research
Drexel University
Break - Tweet
LUNCH AND BUSINESS MEETING
Break - Tweet
“Implementing a pediatric allergy trial- where it had not been
done before: How to be a collaborative cat, not a cowboy”
 Wayne G. Shreffler, MD, Ph.D.
Chief, Pediatric Allergy and Immunology
Director, Food Allergy Center
Massachusetts General Hospital
Break - Tweet
BREAKOUT SESSION II (Choose one session)
Session A:
Research Nurse: Screening Form for Initial Protocol Submission
 Margaret Hill, RN, MS
Research Nurse
Office of Clinical Trials Nursing Operations
Dana-Farber Cancer Institute
Where in the World is your Clinical Research Patient? – An
International approach to Clinical Research Nursing Education
 Colleen H. Dansereau, RN, BSN, CPN, CPHON
Clinical Research RN Coordinator
Dana-Farber/Children’s Hospital Cancer Center
Session B:
A Patient Exemplar to Illustrate Clinical Research Nursing Practice
 Catherine A. Griffith, RN, MSN
Harvard Catalyst Clinical Translational Science Center
Massachusetts General Hospital
Developing an Education Curriculum for Research Nurse Coordinators
 Elizabeth, Ness, RN, MS
Nurse Consultant (Education)
Center for Cancer Research,
National Cancer Institute
1.0 CEU
1.0 CEU
6:00 PM – 7:30 PM
Session C:
You Are Going to Demote Me?
 Dana Raab, RN, BSN, MS
Practice Leader – Clinical Research Nursing
Center for Professional Excellence
Cincinnati Children’s Hospital Medical Center
A Research Nursing Evidence-based Practice Model
 Lucinda Williams, MSN, RN, PNP, DNPc, Ne-BC
Nursing Director- Clinical & Translational Study Unit (CTSU)
Boston Children’s Hospital
PANEL: INTERNATIONAL TRAINING/EDUCATION FOR CRNs
Break - Tweet
Maker Nurse
 Anna Young, BS
Research Specialist – Instructor
Massachusetts Institute of Technology
POSTER SESSION/SOCIAL NETWORKING
7:30 AM – 7:30 PM
EXHIBIT HALL OPEN
4:15 PM – 5:15 PM
5:15 PM – 5:30 PM
5:30 PM – 6:00 PM
1.0 CEU
0.50 CEU
1.0 CEU
2014 IACRN Annual Conference
“Feeling the Pulse of Clinical Research Nursing:
Impact and Value through Caring, Communication, and Compliance”
AGENDA
6.75 CEUs
Friday, November 7, 2014
7:30 AM – 8:30 AM
8:30 AM – 8:45 AM
8:45 AM – 9:45 AM
9:45 AM – 10:00 AM
10:00 AM – 11:00 AM
REGISTRATION/BREAKFAST
COMMITTEE AND SPECIAL INTEREST GROUPS
 Chapter Governance Committee
 Conference Planning Committee
 Education Committee
 Membership & Marketing Committee
 Nominations Committee
 Research Committee
 Scope and Standards of Practice Committee
 Quality Metrics SIG
DAY 2 INTRO AND HOUSEKEEPING
 Liza Behrens, RN, MSN, CCRC
President, IACRN
Geisinger Health Systems
RESEARCH COMPLIANCE
 Kelly Willenberg, MBA, BSN, CRC, CHRC
President, Kelly Willenberg LLC
Break - Tweet
BREAKOUT SESSION III – (Choose one session)
Session A:
Development and validation of ethical caring tool for clinical
research nurses
 Mark Donald C. Renosa, DNS, MSc, RN
Science Research Specialist I
Research Institute for Tropical Medicine
Philippines
Rethinking Fatigue in Gaucher Disease
 Yehudit Chen Zion, RN, BSN, MPA
Clinical Research Manager
Rambam Medical Center, Israel
Clinical Research Nurses: The Roles, Education and
Challenges in Japan
 Noriko Fujiwara, MS, RN, OCNS, CCRP
Chief Clinical Research Coordinator
Assistant Nurse Manager
The Institute of Medical Science
The University of Tokyo, Japan
1.0 CEU
1.0 CEU
11:00 AM-11:45 AM
12:00 PM – 12:30 PM
12:30 AM -1:30 PM
1:30 PM – 1:45 AM
1:45 PM – 2:45 PM
Session B:
A Pilot study: professional nursing role perception for nurses
involved in clinical trial research in China
 Zejuan Wang, RN, MS
Head Nurse
Beijing Shijitan Hospital
Capital Medical University, China
The Contribution of Unified Management by National Drug
Clinical Trial Institution and Nursing Department to
Development of Research Nurses
 Liu Xiaohong, RN, MS
Clinical Research Nurse
Beijing Cancer Hospital
Peking University Cancer Hospital & Institute, China
Distinguished Clinical Research Nurse Award
LUNCH
Invited Speaker
 Greg Koski, Ph.D., M.D.
-President & Co-Founder
Alliance for Clinical Research Excellence and Safety
-Senior Scientist at the Institute for Health Policy
Associate Professor of Anesthesia
Massachusetts General Hospital
Harvard Medical School
Break - Tweet
BREAKOUT SESSION IV (Choose one session)
Session A:
Implementation of a Competency Based Educational
Program for bedside Clinical Research Nurses at a Major
United States Clinical Research
 Julie Kohn-Godbout, MSN, RN
Program Director- Nursing Education
National Institutes of Health
Applying crucial conversations for clinical research nurse
interdisciplinary leadership in the complex adaptive
environment in clinical research.
 Carolyn Jones, RN DNP
Assistant Professor - College of Nursing
The Ohio State University
Session B:
New and Improved: Moving From a Reactive To Proactive
Quality Assurance Program to Optimize Quality Research
Activities and Human Subject Protection
 Patricia Mendoza, BA, BSN, RN, CCRC, CHRC
Senior Nurse Manager, Clinical Research Unit
Center for Clinical and Translational Sciences
University of Texas Health Science Center
0.75 CEU
1.0 CEU
1.0 CEU
2:45PM – 3:00 PM
3:00 PM – 4:00PM
4:00 PM -5:00 PM
5:00 PM- 5:15 PM
7:30 AM – 3:00 PM
Development of Nursing Sensitive Indicators for the Clinical
Research Setting
 Kathryn E. Hall, MS, ANP-BC, NE-BC
Nurse Director
Harvard Catalyst Clinical Research Center
Massachusetts General Hospital
Break - Tweet
MORAL DISTRESS
 Pam Grace, Ph.D., RN, FAAN
Associate Professor of Nursing and Ethics
William F. Connell School of Nursing
Boston College
Connecting to Purpose: Impact Through Caring and
Communication
 Sharon Brigner, MS, RN
Deputy Vice President of State Government Affairs
Pharmaceutical Research and Manufacturers of
America (PhRMA)
Washington, D.C.
Closing remarks
 Liza Behrens, RN, MSN, CCRC
President, IACRN
Geisinger Health Systems
EXHIBIT HALL OPEN
1.0 CEU
1.0 CEU
2014 IACRN Annual Conference
“Feeling the Pulse of Clinical Research Nursing:
Impact and Value through Caring, Communication, and Compliance”
President
Liza Behrens RN, MSN, CCRC
Office of Clinical Research Support Services,
Geisinger Health System
Danville, Pennsylvania, USA
President-Elect
Margaret McCabe, RN, Ph.D., P.N.P.
Director of Nursing Research for
Medicine Patient Services
Boston Children’s Hospital
Boston, Massachusetts, USA
Past President
Shaunagh Browning RN, FNP-BC
Georgetown-Howard University Center for Clinical
and Translational Sciences
Washington, D.C., USA
Treasurer
Catherine Griffith RN, MSN
Massachusetts General Hospital-Harvard Catalyst
Clinical Translational Science Center
Boston, Massachusetts, USA
Treasurer-Elect
Kathy Green, RN
Texas Children’s Hospital
Houston, Texas, USA
Secretary
Brian Beardslee RN, MSN
Program/Clinical Research Nurse
The Dana-Farber Cancer Institute
Boston, Massachusetts, USA
Board Members At Large
Jennifer Allison RN, AAS, RSCN, MICR
National Institute for Health Research/ Wellcome
Trust Clinical Research Facility
Southampton, United Kingdom, England
Jenifer Borruel Rector BSN, CCRC
Manager, Research Department
Northwest Gastroenterology Clinic
Portland, Oregon, USA
IACRN Administration
Beth Kassalen
Helaine Labovitz
Pam Vogel
Pittsburg, Pennsylvania, USA
2014 IACRN Annual Conference
“Feeling the Pulse of Clinical Research Nursing:
Impact and Value through Caring, Communication, and Compliance”
6th Annual IACRN Conference Planning Committee
Chair
Brian Beardslee RN, MSN
Program Nurse/Clinical Research Nurse
The Dana-Farber Cancer Institute
Boston, Massachusetts, USA
Co-Chair
Kathryn Hall, MS, ANP-BC, NE-BC
Nurse Director
Massachusetts General Hospital
Harvard Catalyst Clinical Research Center
Boston, Massachusetts, USA
Committee Members
Deborah DaSilva, RN, BSN
Clinical Research Manager
Beth Israel Deaconess Medical Center
Boston, Massachusetts, USA
Pennyy Jestor, BSN, MPH
Program Director III
University of Alabama at Birmingham
Birmingham, Alabama, USA
Andrea Hale, RN, BSN, MPH
Study Coordinator/Project Manager
Boston Childrens Hospital
Boston, Massachusetts, USA
Linda Morse, RN, MSN
Clinical Research Nurse
The Lowe Center for Thoracic Oncology
The Dana-Farber Cancer Institute
Boston, Massachusetts, USA
Nicole Hansen, RN, MSN
Associate Director
CTSC Clinical Research Center (CCRC)
University of California at Davis
Sacramento, California, USA
Amy Sbrolla, RN, BSN, ACRN
Research Nurse
Massachusetts General Hospital
Boston, MA
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