PULMEDIX ASTHMA CARE CENTER & PFT LAB 8532 W. Capitol Dr. Milwaukee, WI 53222 Ph: (414) 393-4002 Fax: (414) 393-4014 Suite #L100 www.pulmedix.com The Burden of Asthma in Milwaukee Milwaukee is one of the worst asthma cities in the U.S. Milwaukee is plagued by asthma more than almost every other city in the U.S. and currently is in the midst of an asthma crisis. As recently as 2009, Milwaukee ranked second in the prevalence of asthma, and has been in the top 10 cities for almost a decade. Statistics for asthma in America are so high that the CDC (Centers for Disease Control) has labeled it an epidemic. More alarming is the prevalence of asthma in racial minorities and lower socioeconomic groups. Given the disproportionate volume of asthma in Blacks and Latinos, there also exist a disproportionate number of ER admissions, inpatient hospitalizations and deaths due to asthma. Blacks and Hispanics have a slightly higher prevalence rate of asthma than Caucasians (8.5% vs 7.1%), yet they are 3 times more likely to be hospitalized or to die from asthma complications according to the CDC. This reflects the trend of health disparities that exist in asthma prevalence, as it does in every other area of health for racial minorities and lower socioeconomic groups. The asthma crisis in Milwaukee is substantial and it is getting considerably worse. With increasing numbers of uninsured asthmatics, overrun free health clinics and the addition of high premiums for insured recipients, no other health resource will be available for care other than emergency rooms and urgent cares. Eventually, the situation will be even more critical, with grave consequences, if this predicament continues unaddressed. What causes asthma? Research has found that the biggest factor for the development of this condition is primarily genetic. Having one or both parents with asthma, bronchitis or allergy genetically predisposes the children to the development of these conditions. Generally, asthma in families exists in large groups where multiple family members are afflicted. Asthma can exist anywhere in the family tree line, but if those individuals were never properly diagnosed with it, you may never know who in your family actually has it. Recent data reveals socioeconomic status that dictates geographic residency location also has a dramatic impact on the development and prevalence of asthma. Middle and upper income zip codes do not experience the negative effects of asthma nearly as much as lower income zip codes, in fact, the lower the income level the higher the presence and morbidity rate for asthma. If poverty plays a role in asthma development, one needs to only review the national poverty rating for Milwaukee over the last two decades and we clearly see a correlation between our poverty rate and asthma rates in those populations. Why is poverty linked with asthma? 1) Research has demonstrated that there is a direct connection between exposure to cockroaches and mice at an early age and the development of asthma. Mice and cockroaches’ leave behind feces (protein allergens) that children inhale and can become allergic to. Mouse or cockroach allergen exposure may increase the risk of developing allergies which is in turn related to the development of asthma in children. Homes in the high-asthma communities also had higher concentrations of the cockroach allergen as well as allergens associated with mice and cats as reported in the Journal of Allergy and Clinical Immunology. 1) Nearly 1 in 4 kids living in neighborhoods with high asthma rates were allergic to cockroaches, compared to 1 in 10 kids living in areas where asthma is less common. 2) Most low income residents are located in areas with poor air quality due to a close proximity to expressways and large thoroughfares as well as industries like WE Energies that refrain from using expensive pollution control mechanisms when the surrounding zip codes are low income, mechanisms installed in the plants surrounded by higher income zip codes. 3) Economic status also affects food choices and nutritional access. Low income residents may not have the resources to travel to the closest grocery store and may not be able to afford the healthiest foods. Areas, far from a grocer, that can only provide local corner stores with few nutritious options have been described as food deserts and found to be prevalent in many low income communities. Food options are generally frozen foods like pizza’s and TV dinners or junk foods-candy, cookies, soda’s and chips. Sometimes the dollar menu at McDonald’s appears more appealing than going to the store, buying groceries and cooking, and after all, it’s only one dollar. Again research has clearly identified a causative relationship between poor diet and the incidence of asthma. Typically foods that lower the incidence of asthma are fruits, veggies and lean meats especially fish that is rich in Omega-3 fatty acids, not the typical corner store stock. 4) Another factor that contributes to developing asthma is low birth weight. Milwaukee is nationally recognized for problems surrounding pregnancy and birth especially in regards to premature births and the infant mortality rate. Few cities rank ahead of us in these categories where we generally lead the nation in poor outcomes which, again, is highest in minority and low income populations. 5) The incidence of tobacco use is also prevalent in these communities and smoking or being around smokers during pregnancy is especially harmful to the child’s lung development. Nothing is worse for lung maturity than exposure to tobacco smoke during the formative years of life. Exposing infants and children to second hand smoke is one of the most dangerous activities a parent can engage in and will be the most injurious to their respiratory health. Unfortunately, far too many of our children live in homes with not only one smoker in the residence but most often multiple smokers. They are suffering at the hands of the very one’s entrusted to protect and care for them. These are the things you should expect from good asthma care: TO……. Have an Asthma Action/Management Plan. Have no symptoms or minor symptoms of asthma. Be able to take part in daily activities-including exercise or playing sports. Have normal or near normal lung function. Have few or no side effects from asthma medications. Have no time off from school or work due to asthma. Have no emergency room visits or hospital stays. Sleep through the night without asthma symptoms. Have a partnership with your health care provider on meeting your goals for good asthma care. As mentioned before, asthma has a high degree of variability which means sometimes you’re fine and other times you’re struggling to breathe. This switch between the two states is known as variability (as the symptoms change) and reversibility (from the presence of symptoms to their absence). Reversibility can occur with or without medical intervention. When all else fails, and in more extreme cases, professional, emergency care will be needed in the form of breathing treatments and oral or IV steroid administration. Life threatening situations may also involve injections and infusions of drugs such as epinephrine or theophylline, the addition of extra oxygen and may require the insertion of a breathing tube into the airway (intubation) and connection to a breathing machine (ventilator) for life support. Please note that making it to the hospital and being connected to life support is not always a guarantee of survival. How do I know if I have poorly controlled asthma? A good starting point here is Baylor’s “Rules of Two”. If you take your quick-relief inhaler more than two times per week, if you wake up at night with asthma symptoms more than two times per month or refill your quick-relief inhaler more than two times per year, your asthma may not be in good control. You should not have to make frequent visits to the doctor, Urgent Care, Emergency Room or be admitted often into the hospital, these are all signs of poorly controlled asthma. What you may not know is that every one of those visits increases the risk of not surviving this condition. Studies have shown a direct relationship between the number of ER visits and hospitalizations and those who die from asthma, in other words, the greater the number of visits, the greater the risk of not surviving asthma. What are the risks of poorly controlled asthma? Death is, of course, the worst possible outcome; however, the risk of impairment should be as frightening as well. Most people with asthma experience reversibility, the fluctuation between the presence and absence of symptoms; however, if not managed properly, this reversibility component diminishes. This means that symptoms of difficulty breathing will become more frequent, more intense and will continue for longer and longer periods of time. At this point, the condition will be more difficult to manage and will require higher doses of stronger medications that carry more side effects. A lack of responsiveness to asthma medications reflects a loss of reversibility and asthma can deteriorate into a more debilitating condition known as COPD (Chronic Obstructive Pulmonary Disease). This condition is characterized by frequent, often unrelenting symptoms that have a corresponding decrease in the person’s ability to function in a near normal capacity. How well can one function when struggling to breathe becomes a daily ritual? There are three paths to COPD: 1) Smoking 2) Uncontrolled asthma and 3) Smoking with uncontrolled asthma aka the fast track to COPD. If the asthma medications you take used to work for you but now they don’t, it may be that COPD has developed inside your lungs. The onset of asthma can begin as early as birth and management needs to begin corresponding to the onset of symptoms. The longer asthma goes unmanaged, the more changes that occur in the lungs that can be irreversible and irreparable, a process called airway remodeling or a restructuring of the lung tissue contained in the bronchial tubes. Unmanaged, poorly controlled asthma can debilitate and disable a person as early as 30 to 40 years of age. This has a corresponding decrease in quality of life, would require supplemental oxygen to assist breathing, pulmonary rehabilitation to retrain breathing and a much shorter life expectancy as well. Do I have asthma? To determine if you have asthma, you first need to do a self assessment. 1) Are you experiencing any of the four classic symptoms: coughing, chest tightness, wheezing or shortness of breath? 2) Do the symptoms occur during routine activities such as walking long distances, carrying groceries, doing laundry or going up and down stairs? 3) Are you ever awakened at night from any of these symptoms? 4) Do certain environments create these symptoms such as being around pets, strong odors, outdoor allergens, dust or tobacco smoke? 5) Are any of the symptoms triggered by anxiety, stress or strong emotional expression such as laughing, crying, yelling or anger? If you answered yes to any of the above, then the final question you need to ask is: 6) Do any family members have asthma, allergies, bronchitis or any other lung disorders. They may not have been properly diagnosed but if they’re using an inhaler, that’s your first clue. I answered yes to the asthma questions. Now what? These are the identifying elements of determining if you should have your breathing investigated to confirm if asthma is your problem. Investigating means evaluation with testing and a detailed symptom history. The sooner evaluation and treatment is sought, the better the long term outcomes will be. This is also true for infants and young children who doctors are often reluctant to diagnosis with asthma. However, it is less important what they call it and most important that it is treated appropriately and within a timely manner. Too often preventative treatment is delayed due to age and the results are frequent office, ER and Urgent Care visits due to increasing symptom frequency, duration and intensity. Breathing is designed to be effortless in its’ resting state. If your baby or child does not appear to be breathing with ease at rest AND there is a definitive family history of allergy and/or asthma, you need to talk to a specialist. If one parent has asthma/allergy, the likelihood of the child developing asthma is around 40%. If both parents have asthma/allergy, that figure rises to above 80%, so you should be aware of these factors even before your child is born to know what to look for and what to do in the event your child is positive for some breathing disorder. Asthma and You-How You Can Make a Difference Asthma has affected the poor and racial minorities more than any other groups in Milwaukee with higher inpatient hospitalization rates and ER visits. A large part of the problem lies within the structure of the healthcare system; poor health care delivery systems, lack of access to adequate insurance coverage and lack of motivation of providers to change the current model of managing these populations so poorly. However, we must make it incumbent upon us to do our part to survive and thrive without succumbing to a very manageable condition. We need to be educated about the condition so that we know what questions to ask our providers. We need to stop crisis management or episodic treatment of this condition, in other words, we need to continue our treatment even when we’re feeling fine and there are no symptoms. We need to be honest with providers about any concerns we have with the medication plan. Don’t agree to do something that you do not plan to do. Don’t try to fool your provider by telling them you’re following the medication plan and you’re not. If you have concerns about the medications in your plan, tell your provider and see what other options are available. We need to take care of our breathing to keep us out of the ER’s and hospitals that are robbing us of a higher quality of life so unnecessarily. We need to stop making the excuse of not having time to manage asthma. What is on your to do list that is more important than breathing? I recognize that some of the problems are with the system not playing the role of health care provider but I also see many of us not keeping our doctor appointments, not picking up medications from pharmacies, and worst of all, the number of asthmatics that continue to smoke is alarming. The Costs of Asthma, Is There A Better Way? The health care system is designed to take care of you when you’re sick, they profit on you being sick and should probably be called a sick care system instead. Our numbers in the hospitals reflect the success of their strategy. If our health care system was truly committed to your health, it would invest in the measures that would prevent numerous ER visits and hospital admissions for asthma. Because asthma primarily affects the poor and minorities, these populations are most likely to be found on Medicaid. The cost of asthma care in hospitals then is astronomical. We are using taxpayer money to fund the most expensive form of care that produces the worst outcomes for patients and we have been stuck in this rut for over two decades. This is a truly broken system that works for no one, everybody loses. The financial impact goes beyond just the massive cost of expensive care, but it extends into education and the workforce. Asthma is the number one cause of school absenteeism causing vast numbers of school age children to either miss a lot of school days or be unproductive at school because of the difficulty they have breathing. They miss sports, gym and other extracurricular activities that are essential to the normal development and well being of children. Parents miss work to care for children, schools miss funding when children are absent and the entire educational system is disrupted. People with asthma are losing jobs because of the frequency of their asthma attacks and the high number of sick days they must use as a result of their condition. While racial minorities and lower socioeconomic groups are facing the greatest number of obstacles to employment and education, asthma is one hurdle that has the best chance of being removed. If we could move education and evaluation to the forefront of asthma management, it would save millions of dollars, improve the lives of millions of people and provide a system that would actually benefit all parties involved. It’s time we make a stand for ourselves and show the world we can combat this menacing disease and see life in a new light.