Brocher Workshop Returning Genetic Results in Biobanks: Opening
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Brocher Workshop Returning Genetic Results in Biobanks: Opening an International Dialogue November 19-21, 2013 Participant List as of July 9, 2013 Organizers: Barbara Koenig, PhD Professor of Medical Anthropology & Bioethics Institute for Health & Aging, School of Nursing University of California, San Francisco USA Jane Kaye, LLB, DPhil Director, Centre for Health, Law and Emerging Technologies (HeLEX) Department of Public Health University of Oxford United Kingdom Bernice Elger, MD, PhD Head, Institute of Biomedical Ethics University of Basel Switzerland Susan M. Wolf, JD McKnight Presidential Professor of Law, Medicine & Public Policy Founding Chair, Consortium on Law and Values in Health, Environment & the Life Sciences University of Minnesota USA Observers (from funding agencies): Jean McEwen, JD, PhD Program Director, Ethical, Legal, and Social Implications Program National Human Genome Research Institute/National Institutes of Health USA Katherine Littler Senior Policy Adviser (Ethics & Governance) Strategic Planning & Policy Unit Wellcome Trust United Kingdom Participants: Clement Adebamowo, BM, ChBHons, FWACS, FACS, ScD Chairman, Nigerian National Health Research Ethics Committee Director of the Center for Bioethics, Nigeria Director of Office of Strategic Information, Research and Training Institute of Human Virology University of Maryland School of Medicine Nigeria 1 Brocher Workshop Returning Genetic Results in Biobanks: Opening an International Dialogue November 19-21, 2013 Participant List as of July 9, 2013 Paul Appelbaum, MD Dollard Professor of Psychiatry, Medicine & Law Director, Division of Law, Ethics & Psychiatry Columbia University College of Physicians & Surgeons NY State Psychiatric Institute USA Nikola Biller-Andorno, MD, DPhil Head, Institute of Biomedical Ethics University of Zurich Switzerland Pascal Borry, PhD Researcher Centre for Biomedical Ethics and Law Katholieke Universiteit Belgium Annelien Bredenoord, PhD Division Julius Center, Medical Ethics University Medical Centre Utrecht The Netherlands Holland Michael Burgess, PhD Professor and Chair in Biomedical Ethics W. Maurice Young Centre for Applied Ethics School of Population and Public Health and Department of Medical Genetics University of British Columbia Canada Anne Cambon-Thomsen, MD Directrice de recherche au CNRS UMR U 1027 Inserm Université de Toulouse III-Paul Sabatier France Donald Chalmers, LLB, LLM Director, Centre for Law and Genetics University of Tasmania Australia Ellen Wright Clayton, MD, JD Craig-Weaver Professor of Pediatrics Professor of Law Co-Founder, Center for Biomedical Ethics and Society Vanderbilt University USA 2 Brocher Workshop Returning Genetic Results in Biobanks: Opening an International Dialogue November 19-21, 2013 Participant List as of July 9, 2013 Jantina deVries, Msc, DPhil Division of Human Genetics Faculty of Health Sciences University of Cape Town South Africa Stephanie Malia Fullerton, DPhil Associate Professor, Department of Bioethics and Humanities University of Washington School of Medicine USA Jennifer Harris, PhD Senior Researcher, Division of Epidemiology Norwegian Institute of Public Health Norway Gail Henderson, PhD Professor and Chair, Department of Social Medicine School of Medicine University of North Carolina at Chapel Hill USA Ingrid Holm, MD, MPH Director, Phenotyping Core, Program in Genomics Boston Children’s Hospital USA Nils Hoppe, PhD Director, Centre for Ethics and Law in the Life Sciences Leibniz Universitaet Hannover Germany Steven Joffe, MD, MPH Emmanuel and Robert Hart Associate Professor Dept. of Medical Ethics and Health Policy University of Pennsylvania USA Kazuto Kato, PhD Professor Department of Biomedical Ethics and Public Policy, Graduate School of Medicine Osaka University Japan 3 Brocher Workshop Returning Genetic Results in Biobanks: Opening an International Dialogue November 19-21, 2013 Participant List as of July 9, 2013 Bartha Knoppers, PhD, OC Director, Centre of Genomics and Policy Faculty of Medicine, Department of Human Genetics McGill University and Génome Qébec Innovation Centre Canada Graeme Laurie, LLB, PhD, FRSE, FRCPE, FMedSci Professor of Medical Jurisprudence Director of Research School of Law, University of Edinburgh Scotland, United Kingdom Michelle Lewis, MD, JD Research Scholar, Genetics and Public Policy Center Johns Hopkins University USA Deborah Mascalzoni, PhD EURAC Institute of Genetic Medicine Center for Biomedicine Italy Lawrence McCullough, PhD Dalton Tomlin Chair in Medical Ethics and Health Policy Associate Director for Education Center for Medical Ethics and Health Policy Baylor College of Medicine USA Amy McGuire, JD, PhD Leon Jaworski Professor of Biomedical Ethics Director, Center for Medical Ethics & Health Policy Baylor College of Medicine USA Scott Roberts, PhD Associate Professor, Department of Health Behavior & Health Education University of Michigan School of Public Health USA Richard R. Sharp, PhD Director, Biomedical Ethics Program Mayo Clinic USA 4
