What is our mission?
“Our mission is a worldwide
initiative to cure Arterial Tortuosity
Syndrome, by supporting research,
education, awareness, and families.”
Joseph, 13, and the book he wrote The World
Interested in how we are supporting
ATS?
Contact Us
Phone: 501-605-3991
Email: arterialtortuositysyndrome@yahoo.com
Website: http://www.atwistoffate-ats.com
Find us on Facebook at:
We are currently working on the following
projects for Arterial Tortuosity Syndrome:

Creating an interactive website- to link
physicians and patients together,
provide support, and information.

Appling for our non-profit, 501 c 3
status.

We have a fiscal sponsor in place.

Assisting UAMS/ACH in a 5 year
study on ATS.
https://www.facebook.com/Atwistoffatearteri
altortuositysyndrome
or
https://www.facebook.com/groups/13802998
2926649/
A Twist of
Fate- ATS
If you would like to help us support Arterial
Tortuosity Syndrome, please contact Andrea
Taylor President/Founder of A Twist of Fate-ATS
501-605-3991
or you can reach Andrea by e-mail at:
arterialtortuositysyndome@yahoo.com
A Twist of Fate- ATS
Owasso, OK 74055
Arterial Tortuosity
Syndrome
How do you get ATS?
ATS is a genetic syndrome, so both parents of
an affected patient must be carriers of the gene
mutation. The mutation occurs at the SLC2A10
gene, and effects connective tissues throughout
the body. If the two affected parents have
more than one child with ATS, the other
siblings will have a 1 in 4 chance of also having
Arterial Tortuosity Syndrome.
Lily, recovering from a partial Colectomy
What is Arterial
Tortuosity Syndrome?
Arterial Tortuosity Syndrome is an
extremely rare, genetic, connective
tissue disorder.
There are only about 100 documented cases of
ATS since the late 1960’s to present day. With
the mortality rate so high, especially in infants
and young children, there are only about 30 or
less living patients in the world, today.
Arterial Tortuosity Syndrome causes the
arteries throughout the body to grow too long,
kink and twist, thus causing extreme pressures
in the heart and causing extreme risks of
pulmonary infections, strokes, aneurisms, and
heart attacks.
Aiden, at 2, recovering from open chested surgery
“Our mission is a worldwide
initiative to cure Arterial
Tortuosity Syndrome, by
supporting research,
education, awareness, and
families.”
Collin, 18, multiple double hernia surgeries
What is life like with ATS?
Life with ATS is very uncertain, a common cold
can send them into respiratory distress. There
are multiple missed days of school, due to
illness and fatigue. Many patients find normal
activities difficult, and many are in physical and
occupational therapy. Frequent cardiac
evaluations are necessary as well as trips into
the hospital for stent and balloon placement in
the arteries. We try to lead as “normal” of lives
as possible, knowing we are blessed for each
day we have with our loved ones.
What is the prognosis of Arterial
Tortuosity Syndrome?
There is an estimated mortality rate of 40% by
age 5. We are diligently working with
researchers, physicians, and families to
drastically reduce this rate.
Jordyn, 4, recovering from stent placement