Review of therapy services to special schools Children’s therapy team – North Lincolnshire Summary of feedback and proposals for future service delivery October 2014 CONTENTS Introduction Page 3 Summary of current service delivery Page 3 Purpose of the review Page 4 How the review has been carried out Page 5 Feedback received Page 6 Key messages from feedback received Page 10 Proposals for improving the service Page 11 Next steps Page 15 2 Introduction Therapy services for children and young people attending special schools are provided by the Children’s Therapy Team for North Lincolnshire. This team was formed in May 2012 following a major re-structuring of therapy services provided by Northern Lincolnshire and Goole NHS Foundation Trust (NLAG). The children’s therapy team consists of: Occupational therapy staff (OT’s) Physiotherapy Speech and language therapy staff (SLT’s) Working in special education is only one strand of the team’s work as it also covers early years settings, family homes, mainstream schools, the child development centre and children’s centres and links with the hospital. Funding comes predominately from NHS commissioners but both special schools are buying in some additional time to ‘top up’ what is offered through core NHS services: St Luke’s Primary Special School is funding an extension to the core Occupational therapy service to support children with specific sensory integration needs. St Hugh’s Communication and Interaction Specialist College is funding therapy assistant time to extend the physiotherapy and occupational therapy provision available to students. A speech and language therapist is also funded 2 days a week to support excellence in developing communication skills across the school – and to work on the delivery of training and community projects. Summary of current service delivery Speech and language therapy St Luke’s and St Hugh’s are covered by three therapists with an allocation of 8 half day sessions a week to cover a current caseload across both schools of 160 (97 at St Luke’s and 63 at St Hugh’s). Communication teams involving speech and language therapists and school staff (including a member of the senior leadership team) meet within both schools to coordinate work streams and agree priorities and practice to promote communication and interaction. Clinical work within the schools includes assessment, advice, strategies, targets, and programmes of work to address communication, speech, language, alternative and augumentative communication (AAC), feeding and drinking needs as appropriate for each individual. Therapists offer support and training for school staff and for parents/carers as required. Work in school during term time is supported by some home visits during the school holidays. Transition planning across the two schools takes place within the summer term prior to moving to secondary school. 3 Physiotherapy Physiotherapists offer input to both schools on a regular basis. The aim is to provide one half day session each week for each school, although this has not always been possible in recent months because of staffing difficulties. The physiotherapists work closely with parents, school staff, other therapy colleagues and run joint clinics with the orthotist and consultants. There is a physiotherapy assistant, funded by St Hugh’s, who provides regular ‘hands on’ sessions for some students and works under the supervision of the physiotherapist. Classroom staff/parents in both schools are given advice and programmes to support individual children – and to ensure the safe and effective use of specialist equipment e.g. standers. There are currently 72 children on the special school caseload, with numbers split roughly half in half across the 2 schools. Occupational therapy The occupational therapists provide input into both St Luke’s and St Hugh’s and have approximately 82 pupils on caseload. There are two regular half day sessions each week, usually on a Wednesday, and a Thursday, with three occupational therapists having input across the 2 schools. Therapists are also frequently involved in other contacts during the week, to carry out assessments, often for specialist equipment, contribute to ‘child in need’ meetings, offer intervention or training for staff and parents. The occupational therapists work particularly closely with the physiotherapists. Therapists liaise regularly with classroom staff and both head teachers. Many of the pupils are also seen at home, where therapists work with parents to provide and monitor specialist equipment, and advise on adaptations. Purpose of the review This review is being undertaken to ensure that the services provided by Children’s Therapy Team: Make the best use of the therapy time available to have the greatest possible impact on outcomes for children and young people Are delivered in partnership with school staff and parents (and the children and young people themselves) Are evidence based Are sustainable and realistic given the increasing level of demand Are delivered efficiently and are good value for money 4 This is essential given: Changes at a national level The Children and Families Act 2014 makes radical changes to the way in which support is provided for children and families with special educational needs and /or disabilities. There is renewed emphasis on designing services around the needs of individual children and families, and on working in partnership at all levels. Whilst fully supporting the ambitions of the Act, this will demand additional time from the Children’s Therapy Team, due to the increased emphasis on joint planning and review. The increasing level of demand for therapy services There has been an increase in the demand for therapy support at both schools in recent years. This is due to: The increasing numbers of children on roll at both schools The increasingly complex needs of pupils related to improved survival rates for very premature babies and children with complex health conditions The expansion of available evidence based treatments e.g. Botox, which require therapy support How the review is being carried out The review is being undertaken in stages: This document represents the third step in the review (see diagram below). Feedback was gained via: Questionnaires sent out to all parents Questionnaires sent out to all school staff Attendance at a parents’ evening at St Hugh’s and a coffee morning at St Luke’s Meeting with the Parents in Partnership (PIP) group for North Lincolnshire Email contact with other stakeholders e.g. paediatricians Ongoing dialogue with the senior management teams in both schools Group discussions – therapy staff 5 1.Feedback collected from schools, parents, therapists and other partners 5.Service delivered 4.Changes to service delivery confirmed and communicated to others 2.Feedback collated and proposals developed 3.Proposals sent out for consultation Process of the review Feedback received St Hugh’s Communication and Interaction Specialist College 1. Feedback from parents at St Hugh’s Feedback was received from 12 parents. Key messages were that: Speech and language therapy and occupational therapy services are generally well received There is a mixed view of physiotherapy with some parents identifying a lack of provision Parents highlight communication with home as an area which could be improved, some saying that they are unclear about who is seeing their child and how often, and would like more support with knowing how to help their child at home. 6 2. Feedback from staff at St Hugh’s Feedback was received from 19 members of staff ranging from teaching assistants to senior managers. Staff value physiotherapy, occupational therapy and speech and language therapy and feel that these services run smoothly most of the time. They particularly value: The approachability of therapy staff and their helpful attitude The positive relationships between therapy staff and children / young people Therapy assessments, reports and advice Therapists acting as a link with other health service staff and specialist centres Opportunities to meet to discuss students’ needs and therapy advice on targets / strategies Dedicated staff time in school to deliver therapy programmes e.g. physio assistant available through the service level agreement, in house speech and language key worker Having a central point of contact in school for therapy matters i.e. a senior member of staff who would co-ordinate input, raise questions, make requests etc on behalf of school staff Suggestions for improvements include: Therapists attending review meetings Increased availability of therapists in school to meet with parents e.g. parents’ evenings, drop in sessions Further staff training – including more therapy input into the induction of school staff Reducing the gap between assessments and programmes / equipment being available (although the latter is not within the control of the Children’s Therapy team). Several staff mentioned that communicating by email would improve joint working, but that this presents security issues which need to be addressed Greater clarity over which therapists are involved with which students e.g. where 2 occupational therapists are working in the school, it may not be clear who is working with an individual child More regular opportunities for joint working, particularly in relation to students with the most complex needs – setting goals, discussing approaches and measuring change Improved transition into adult therapy services and better therapy services for young people once they have left school St Luke’s 1. Feedback from parents at St Luke’s 4 parents returned their questionnaires. Approximately 15 parents attended the coffee morning. Key messages from parents were: 7 Having therapy services on site is valued There were a number of positive comments about the impact of therapy input and the progress that children had made Therapy staff are viewed as approachable, supportive and helpful Generally, parents feel that they were not ‘kept in the loop’ enough and want more information about: What therapy their child is receiving What this means in practical terms – day to day Which therapists are involved and what happens in sessions How best to help at home Periodic Makaton sessions for parents would be welcomed – so parents can keep up with their children’s signing! Parents are supportive of therapists working closely with school staff to ensure that, as far as possible, children’s needs were met through everyday classroom activities. They support the idea that therapists should be available to deliver specialist help when needed – through targeted sessions, problem solving etc – and that it is not necessary for them to see all children all of the time. However, they emphasise that therapists need to respond quickly when issues arise. They would welcome more information about specific programmes available in school e.g. MOVE Parents feel that the school has an ‘open door’ policy – and staff are always ready to offer support and information – but they want more two-way communication so that parents, therapists and school staff can do more together in relation to setting goals, problem solving and learning from each other. Parents welcome homework packs during the school holidays – but would like the opportunity to report back on how these have gone. Some parents have found it difficult to get hold of therapists to sort out problems or get help. When children are discharged by occupational therapists, it can take a long time to get seen again if parents want a re-referral. Inconsistent/lack of staffing in physiotherapy is a concern. There are sometimes lengthy delays in the provision of equipment and this is viewed as very unhelpful (although parents recognise that this is often out of the control of therapists) Parents would like therapists to attend annual review / single plan meetings which is not the case routinely at present, as this helps with communication and planning. 2. Feedback from staff at St Luke’s 3 members of staff returned their questionnaires. Key messages are: Occupational and speech and language therapy are generally working well Physiotherapy has not been working well due to inconsistent staffing and insufficient time being allocated to the school Communication via email – and being able to store therapy reports electronically – would assist with joint working 8 The service could be improved by: more training for school staff, more frequent progress reviews and equipment checks for some children, an OT to support the work of the CART team (communication aids) Parents in Partnership Group (PIP) The children’s therapy manager attended a PIP group meeting in July and received the following feedback: It is essential that therapists attend single plan / annual review meetings as these are crucial for planning and partnership working. A report is also needed for these. Parents accept that ongoing support does not always need to be delivered by a therapist – and that it can often be delivered effectively by a member of the schools staff – but feel that therapists need to provide some quality assurance in the delivery of specific interventions e.g. train the staff and update their knowledge Communication between therapists and parents of children at special school could be improved When specific interventions are delivered by schools staff, parents don’t routinely get an update on progress (whereas they would if a therapist was delivering it). This leaves them in the dark about what impact it has had. Paediatrician One paediatrician has recently raised concerns about physiotherapy provision at St Luke’s school, highlighting the impact of staffing difficulties on individual children. Lack of available physio staff has also jeopardised joint clinics, which have proved a useful mechanism for delivering ‘joined up’ services in the past. Therapy staff Therapy staff feet that the following are positive aspects of the service: Being able to provide an on-site service, integrated into the school day Examples of excellent joint working in both schools and a number of shared initiatives They value the investment by both schools in additional staff time to supplement core NHS provision Having a single point of contact in school is seen as helpful – as this assists with coordination and communication They appreciate positive working relationships with staff in both schools Therapists saw current challenges as: 9 Managing the increasing level of demand: they feel their intervention is becoming too watered down due to the size of caseloads, with a negative impact on what outcomes can be achieved (particularly given the large caseloads in speech and language therapy) Ensuring that children with the highest level of specific need receive the biggest proportion of therapy time Finding time to be pro-active and set up whole school approaches e.g. posture management, which could make a big impact across the schools and prevent problems arising Spreading best practice across all classes – as they report variations between classes in how therapy advice and programmes are implemented Finding better ways to communicate effectively with parents and staff, including use of email Releasing time to attend annual review / single plan meetings Lack of staffing in physiotherapy: it is an ongoing issue and has a knock on effect for the OT’s who try hard to support physio colleagues in ensuring children’s physical needs are met Key messages from feedback 1. Therapy expertise is valued and seen as making a real difference The importance of therapy assessments, reports, programmes, training for school staff and joint working is highlighted. Also, the importance of having a school based service for this group of children and young people. 2. There is concern about the level of therapy provision Physiotherapy is highlighted as an area of real concern because of inconsistent staffing and a lack of allocated time. All parties involved in the consultation raised this as a concern. The demands on all therapy services are increasing due to the additional children on roll at both schools at the increasingly complex needs of the special school population – which means that therapists feel that they are sometimes stretched too thinly to make a real impact. School staff and parents also feel that some children require a higher level of therapy support than is currently available. 3. There is good joint working in both schools, but there is still more that could be done There are positive working relationships between therapy and school staff in both schools, and examples of excellent joint working. However, this could be developed further, with a focus on ‘levelling up’ to ensure the best possible provision for all students, and the most effective use of joint resources. 10 4. Some parents report that communication with their child’s therapist(s) needs to be improved Current means of communicating with parents are not working well for everyone, and there is sometimes a lack of clarity for families about who is involved with their child and what is happening. Proposals for improving the service The Children’s therapy team has looked at the feedback received and put together some proposals for improving the service. We would like to hear what school staff and parents think about these. To address concerns about the level of therapy provision we propose … 1. Targeting therapy resources more effectively We propose a graduated approach which takes into account the specialist skills of school staff and the supportive / adapted environment of a special school. This is to ensure that therapy resources are responsive to individual need, have an impact, and are not spread too thinly to be effective. See diagram below 11 SPECIALIST: high level of specific needs Specialist assessment Hands on therapy sessions and/or Individual programme Close liaison with home and school Automatic reviews to update advice Attendance at planning and review meetings TARGETED: some specific needs Assessment, advice and/or a programme provided Parents and staff can request further help whenever needed Therapists may recommend a programme which can be delivered by school staff e.g. MOVE UNIVERSAL: needs can be met by school staff Support from therapy staff to ensure best practice across the school e.g. posture management, alternative means of communication This means that: Therapists would spend more time with the students who have a high level of specific need, and who require the skills of a therapist in order to achieve their potential Therapy advice, programmes and support would be provided for children who have some specific needs, but responsibility for requesting further help or an updated programme will lie with parents and school staff. This would allow the system to be 12 more responsive, reducing time wasted when children are reviewed before they have achieved their targets – and enabling children who are progressing quickly to be reviewed sooner. Therapists would work with school staff to develop best practice across both schools in key areas – to ensure that students’ needs can be met as much as possible through everyday activities and the curriculum offer. This would free up therapy time for students with a high level or specific need or complex needs. Examples of this are: developing a communication friendly environment, posture management, the MOVE programme, screening for fine motor, co-ordination and sensory needs. Feedback from school staff indicates there is an appetite for training and skill building. Individual students’ needs may change over time, and will need to be discussed with parents, school staff and others involved in their learning and care in order to establish the right level of therapy support at any one time. Factors which will affect the level of therapy support provided will include: The child’s overall pattern of abilities and needs A child may have a severe and specific difficulty in one area of their development, which can act as a barrier to their overall progress. In this case, therapy intervention may help to ‘unlock’ their potential. The complexity of their needs Children who have complex needs or rare conditions may require a higher level of specialist support Transitions and changes in condition The need for more intensive intervention may be triggered by a move between key stages, transfer to college, or a change in staff in school. Similarly, surgery – or another major event in the child’s life such as moving into foster care – may mean that a block of more intensive input is required. Current priorities for the child and their family. For example, a period of ill health or bereavement may mean that priorities lie elsewhere for a period of time 13 The capacity of school staff and parents to implement a therapy programme It is important that therapy programmes are set up in partnership with the child, and his/her family and school. Therapy programmes need to reflect the capacity of those in daily contact with the child to carry out specific suggestions, and be realistic. In order to move towards this way of working, we would need to: Develop a joint working protocol with both schools – which clarifies roles and responsibilities using a graduated approach (as above) Work with schools on prevention and early intervention wherever possible to stop secondary problems developing e.g. posture management, awareness of sensory needs Identify what training for school staff could usefully be provided by the Children’s Therapy Team to help meet the needs of children at the targeted and universal levels Support the school leadership team in quality assuring the delivering of specific intervention programmes e.g. hydrotherapy, Madeleine Portwood programme, and measuring outcomes 2. Developing a business case for more physiotherapy This is in response to the high level of concern expressed and the lack of staffing in this area compared to national benchmarking data. To improve communication with parents, we propose …. 1. Providing parents with a leaflet about the therapy services available on entry to the school so they know what to expect and how to contact us 2. Requesting that information about therapy services is added to the school website if not already there (or links provided to the NLAG website), including contact numbers – and how to get therapy help 3. Requesting that therapists names and photos are put up in school to increase visibility 4. Ensuring information is sent home at the start of each year to parents explaining which therapists are involved with their child and providing contact details, including work mobile numbers. 5. Maintaining contact through all possible means – phone, home/school book, letters, written programmes, meetings, home visits – especially for those children who are currently in need of a high level of therapy support 6. Putting a sticker or comment in the home/school book or a slip to be sent home each time a child is seen in school by a therapist – so parents know what is happening and can get in contact for help or further information 7. Therapists to attend review meetings for those children with the highest level of specific needs (see above) 8. Therapists to make themselves available to parents in school via the most appropriate means e.g. drop in at coffee mornings, parents’ evenings, by appointment 14 To further develop joint working with school staff, we propose …. 1. Contributing to the induction of new staff so they have information about the therapy services available in the school, and how to access these 2. Developing a safeguarding flow chart – which shows how school and NHS safeguarding processes link together 3. Having a presence at some staff meetings (as felt appropriate by the head teacher) and to be involved in relevant staff INSET 4. Meeting at agreed intervals with the key point of contact in school – to ensure good communication and joint planning between the therapy team and the school’s SMT 5. Requesting that therapy staff be routinely invited to whole school events .e.g. sports days, to develop visibility and relationships 6. Find technological solutions which will enable personal information to be emailed / shared without breaches of security and confidentiality 7. Introduce a quality standard – that therapy reports and written programmes will be available within 3 weeks of a child being seen 8. Increase links with the nurse in school – to join up the delivery of therapy and health plans where appropriate Other areas to address …. Additional areas to consider are: The involvement of an OT on the CART team (communication aids) Improved transition into adult services – although this would need to involved other partners e.g. RDASH and the commissioners – and further discussion about the needs of 16 to 19 yr olds who leave St Hugh’s but who are not yet eligible for adult therapy services. Next steps We will now consult on these proposals by: Sending information about the proposals out to parents, school staff and other partners Offering to attend any meetings or forums where these ideas could be discussed We will then: Look at feedback and finalise future service delivery on the back of this Communicate how the service will be delivered in future to parents, school staff and other partners Ensure close working with both schools to plan how best to implement any changes. We will be implementing changes from January 2014. 15