1 Supplementary Tables and References for the 100 Full-Text Articles Reviewed for the Manuscript Entitled, “Systematic Review of Health-Related Quality of Life Models.” Supplementary Table A: Subset of 25 Articles using a Uniquely Derived Model …………………. Pages 2-8 Supplementary Table B: Subset of 52 Articles Guided by Existing Models Used Once or Twice …. Pages 9-21 References for the 100 Full-Text Articles Reviewed …………………………………………………Pages 22-32 2 Supplementary Table A: Subset of 25 Articles Using a Uniquely Derived Model (Disease-specific n = 24; Consensus n = 1). Authors (year) Country BandellHoekstra, AbuSaad, Passchier, & Knipschild (2000) Purpose Design Sample Model guided or derived Models derived To review the literature on personal and situational variables, coping strategies, and QOL among children with recurrent headaches. Literature review NA Derived Authors derived a conceptual model linking primary headache, coping, and QOL in children To identify items for inclusion in a Nutrition Quality of Life survey based on focus groups, surveys, and a consensus process. Descriptive 65 patients receiving medical nutrition therapy and 46 dietitians Derived Researchers identified six categories of HRQOL inductively and deductively To determine how symptoms and associated functional impairments impact QOL in adults with attention deficit hyperactivity disorder. Descriptive 29 patients with attention deficit hyperactivity disorder and 4 experts Derived Authors derived a model of QOL in attention deficit hyperactivity disorder To construct and test, using path analysis Descriptive techniques, a pertinent conceptual model of QOL among people with schizophrenia living in the community. 200 people with schizophrenia Derived Conceptual model of QOL among people with schizophrenia living in the community Netherlands Barr & Schumacher (2003) United States Brod, Perwien, Adler, Spencer, & Johnston (2005) United States Chan & Yeung (2008) China 3 Authors (year) Purpose Design Sample Model guided or derived Models derived To better understand how older African Americans with diabetes view their illness and to develop a conceptual framework for approaching their care. Qualitative 19 patients from an urban academic medical center. Derived Edwards, Huebner, Connell, & Patrick (2002) To develop a conceptual model for assessing generic QOL among youth with physical and developmental disabilities Qualitative 33 adolescents with disabilities Derived United States Julkunena, GustavssonLiliusa, & Hietanenc, (2009) To examine associations of angerexpression styles of both cancer patients and their partners with patient-perceived partner support and the impact of these variables on long-term HRQOL Correlational 153 cancer patients and their partners Derived Conceptual framework for understanding illness and attitudes in older, urban African Americans with diabetes Youth quality of life model with 4 domains - sense of self, social relationships, environment, general quality of life Used path analysis to test a model of angerexpression styles on perceived partner support and HRQOL in cancer patients To determine the independent association of nutritional risk and HRQOL in frail older adults Descriptive 367 frail older adults Derived Country Chin, Polonsky, Thomas, & Nerney (2000) United States Finland Keller (2004) Canada Not named - derived regression model of factors associated with HRQOL in frail older adults 4 Authors (year) Purpose Design Country Kelley-Gillespie To assemble a comprehensive, integrated Literature (2008) model of QOL for older adults with review synthesis of the 6 major QOL domains United States (social, physical, psychological, cognitive, spiritual, environmental) King, Hinds, Dow, Schum, & Lee (2002) United States Klassen, Pusic, Scott, Klok, & Cano (2009) Sample Model guided or derived Models derived NA Derived Integrated Conceptual Model of Quality of Life To explore patients’ QOL as defined by RNs in adult and pediatric oncology settings; Examine knowledge needed to apply QOL research outcomes in clinical practice; Develop model of nurses' perceptions of patients’ QOL To describe how breast conditions and breast surgery impact patient satisfaction and quality of life in women who undergo breast surgery Qualitative 24 oncology nurses Derived Nurses’ RelationshipBased Perception of Patients’ Quality of Life Descriptive 48 breast surgery patients Derived Conceptual model of patient satisfaction and QOL in breast surgery patients To explore how rural minority breast cancer survivors perceive and address QOL within their own social network and develop a conceptual framework. Qualitative 13 breast cancer survivors Derived Conceptual Framework of Rural African American Breast Cancer Survivorship QOL Canada López, Eng, Randall-David, & Robinson (2005) United States 5 Authors (year) Country Maurice-Stam, Oort, Last, & Grootenhuis (2009) Netherlands McEwan, Espie, Metcalfe, Brodie, & Wilson (2004) United Kingdom Moffat, Dorris, Connor, & Espie (2009) United Kingdom Motl, McAuley, & Snook (2007) United States Purpose Design Sample Model guided or derived Models derived To examine factors that affect child Descriptive cancer survivors’ HRQOL using a model in which demographic and medical characteristics explain HRQOL mediated by life course, coping, and social support 353 survivors of childhood cancer Derived Conceptual model of the process of adjustment to childhood cancer To describe the experience of having epilepsy in adolescence; Understand perceived impact of epilepsy on QOL; Explore changes in QOL issues as adolescents progress towards adulthood; Present a conceptual framework for understanding the impact of epilepsy in adolescence To investigate the impact of childhood epilepsy on QOL directly from the child’s perspective Qualitative 22 adolescents with epilepsy Derived QOL and identity formation in adolescents with epilepsy Qualitative 22 children with epilepsy Derived QOL in children with epilepsy. To examine relationships among selfefficacy, functional limitations, physical activity, and QOL in participants with multiple sclerosis Descriptive 196 individuals with multiple sclerosis Derived Analysis linking concepts with quality of life 6 Authors (year) Country Perez, Huang, Jansky, Nowinski, Victorson, Peterman, et al. (2007) Purpose Design Sample Model guided or derived Models derived To confirm conceptualization of QOL domains underlying the Neuro-QOL instrument using focus groups. To examine HRQOL for patients with neurological conditions Qualitative Derived HRQOL domains and subdomains across neurological disorders To develop and validate a measure of HRQOL for persons with dementia Instrument development 64 patients and 19 caregivers of those with neurological diagnoses (Alzheimers, Multiple Sclerosis, Amyotrophic lateral sclerosis, Parkinson's, stroke, epilepsy) 241 people with dementia and 225 carers of persons w/dementia To understand HRQOL in people with dementia and examine differences between self-report and family caregiver descriptions of HRQOL Qualitative 19 people with dementia and 16 caregivers Derived United States Smith Lamping, Banerjee, Harwood, Foley, Smith et al. (2005) United Kingdom Smith, Murray, Banerjee, Foley, Cook, et al. (2005) United Kingdom Derived Dementia HRQOL Conceptual framework derived from literature, qualitative interviews, expert opinion, and team discussion. Dementia HRQOL Conceptual framework developed based on literature and qualitative data. 7 Authors (year) Country Sousa & Chen, (2003) United States Swigris, Stewart, Gould, & Wilson (2005) United States Urbach, Harnish, & Long (2005) Canada Urbanoski, Cairney, Adlaf, & Rush (2007) Purpose Design Sample Model guided or derived Models derived To demonstrate latent mean structure analysis as a technique to compare group differences in a QOL model Descriptive 924 HIV+ patients Derived Hypothesized conceptual model representing QOL. To 1) gain insight into effects of Qualitative idiopathic pulmonary fibrosis on patients’ lives; 2) organize the effects into a conceptual framework; 3) examine whether 4 existing instruments capture the elements of the framework; 4) examine the extent that the 4 instruments include irrelevant items to patients with idiopathic pulmonary fibrosis To develop a conceptual framework of Qualitative QOL after abdominal surgery 20 patients with idiopathic pulmonary fibrosis Derived HRQOL in patients with idiopathic pulmonary fibrosis 21 post-operative patients Derived Short term HRQOL after abdominal surgery To propose and test a conceptual model of QOL in severely mentally ill consumers Descriptive 133 severely Derived mentally ill adults QOL model involving substance abuse, psychiatric symptoms, and distress. Literature review NA QOL for family caregivers of stroke survivors Canada White, Lauzon, To describe QOL of caregivers of stroke Yaffe, & Wood- survivors and to identify associated Dauphinee factors (2004) United States Derived 8 Authors (year) Country Cummins (2005) Australia Purpose Design Sample Model guided or derived Models derived To update statements defining QOL to reflect the emerging areas of agreement from the Special Interest Quality of Life Group Consensus paper NA Derived Conceptual model of well-being (not disease-specific) 9 Supplementary Table B: Subset of 52 Articles Guided by Existing Models Used Once or Twice. Models used twice were Maslow (n=2), Mishel (n = 2), and Stewart (n=2). Authors (Year) Country Collins, Lanham, & Sigford (2000) Purpose Design Sample Model guided or derived Model used To examine the psychometric properties of the Wisconsin HSS Quality of Life Inventory Instrument development 414 individuals with traumatic brain injury Guided Maslow's Theory of Human Needs (1) To inventory needs assessment instruments in dementia, (2) Explore interaction between unmet needs & HRQOL; (3) to relate needs and HRQOL to Maslow's model to design a dementia specific model Literature review NA Guided Derived Maslow's Hierarchy of Needs Model used to derive a dementia specific model To test Mishel’s Uncertainty in Illness Theory to determine factors influencing QOL in persons with head and neck cancer Descriptive 250 head and neck cancer patients in Thailand Guided Mishel’s Uncertainty in Illness Theory combined with concept of religious participation as a structure provider 19 men with prostate cancer Guided Mishel’s Uncertainty in Illness Model United States ScholzelDorenbos, Meeuwsen, & Olde Rikkert (2010) Netherlands Detprapon, Sirapo-ngam, Mishel, Sitthimongkol, & Vorapongsathorn (2009) Thailand Wallace (2003) United States To explore uncertainty, anxiety, Descriptive health-related QOL and affective QOL in men undergoing watchful waiting for prostate cancer 10 Authors (Year) Purpose Design Sample Model guided or derived Model used Literature review NA Guided United States To present a general conceptual framework to facilitate the development of measures to describe QOL of dying persons in the context of health care Tang, Aaronson, & Forbes (2004) To evaluate correlates of QOL in patients with terminal illness Descriptive 60 hospice patients Guided To assemble information on health status factors, therapeutic strategies, and QOL among persons with asthma. To make empirical generalizations about the selected variables from a universe of studies. To investigate age differences in psychological adjustment & HRQOL, and to identify predictors of psychological adjustment & HRQOL among preschool, school age, and adolescent patients with cancer Descriptive Meta-analytical findings from three studies involving persons with asthma (total N = 811) 69 preschool, school age, and adolescent patients with cancer Guided Stewart’s conceptual framework of dying patients and families combining quality of life and quality of health care indicators Stewart’s conceptual model of factors affecting dying patients and families Asthma QOL Model (comprised of health status factors, therapeutic strategies, and QOL) Country Stewart, Teno, Patrick, & Lynn (1999) United States Bailey (2001) Canada, United States Barrera, Wayland, D'Agostino, Gibson, Weksberg, & Malkin (2003) Canada Descriptive Guided Model based on earlier conceptualizations and research with children with chronic illnesses 11 Authors (Year) Purpose Design Sample Model guided or derived Model used To present descriptive HRQOL studies of children with moderate to severe cerebral palsy and to compare children with quadriplegia, diplegia and hemiplegia. Literature review NA Guided 40 stroke survivors and their spouses Guided 362 women with breast cancer and 520 men and women without cancer Guided Sweden To examine relationships among hope, Descriptive family health promoting activity, and QOL among stroke survivors and their spouses. To perform confirmatory factor Instrument analyses of the Life Satisfaction development Questionnaire in women with breast cancer Five part conceptual framework modified from prior models by the World Health Organization and the National Center for Medical Rehabilitation Research. Developmental Model of Health and Nursing Chamlin, Cella, Frieden, Williams, Mancini, Lai, et al. (2005) To develop the Childhood Atopic Dermatitis Impact Scale to measure the effects of atopic dermatitis on the quality of life of affected young children and their families. 270 families of children with atopic dermatitis Guided Country Bjornson & McLaughlin (2001) United States Bluvol (2003) Canada Carlsson & Hamrin (2002) United States Instrument development Model consisted of 5 dimensions of QOL based on a review of literature focused on women with breast cancer Effect of Atopic Dermatitis on QOL conceptual framework 12 Authors (Year) Country Chaudhury (2003) United States Costantini, Mencaglia, Giulio, Cortesi, Roila, Ballatori, et al. (2000) Italy da Silva Caralho Villa & Rossi (2008) Brazil Dow, Ferrell, Haberman, & Eaton (1999) United States Purpose Design Sample Model guided or derived To explore reminiscence of personally meaningful past places (i.e., place therapy) among cognitively intact and impaired residents in 4 nursing homes. Qualitative Lawton’s Quality of Life Conceptual Model To identify contents of QOL domains using cancer patients as experts Instrument development 21 nursing home Guided residents (8 Derived cognitively intact, 13 with dementia) and 15 family members of those with dementia 248 cancer Guided patients To understand the meaning of QOL in people with coronary artery bypass grafting and their relatives Qualitative To describe the meaning of quality of life in long-term cancer survivors, validate inductively derived QOL themes, and identify and cluster overarching themes across long-term cancer survivors Qualitative 11 adults who experienced coronary artery bypass grafting and 10 relatives 687 cancer survivors Conceptual Model of Quality of Life of the Centre for Health Promotion, University of Toronto Conceptual Model based on investigator’s previous research with cancer patients Guided Guided Derived Model used Conceptual framework with domains identified by the Italian Society of Psycho-Oncology 13 Authors (Year) Country Echteld, van Elderen, & van der Kamp (2001) Netherlands Hafslund & Nortvedt (2009) Norway Hatzmann, Maurice-Stam, Heymans, & Grootenhuis (2009) Netherlands Hollen, Gralla, Liepa, Symanowski, & Rusthoven (2006) Canada, United States, Western Europe Purpose Design Sample Model guided or derived Model used To improve understanding of quality of life outcomes related to percutaneous trans luminal coronary angioplasty (PTCA) by investigating relationships between predictors and correlates of QOL of patients waiting for PTCA To explore how women attending a national mammography screening program reacted to the screening process on QOL To explore the influence of demographic and disease-related factors on parental HRQOL, mediated by employment, income, leisure time, holiday, and emotional support Correlational 122 percutaneous trans luminal coronary angioplasty patients Guided Working model was derived from Maes’ coping with chronic illness model Literature review NA Guided Spilker's domains of HRQOL Correlational 543 parents of chronically ill children Guided Model constructed based on literature focused on parents of chronically ill children To adapt and test a modified version of the Lung Cancer Symptoms Scale for patients with pleural mesothelioma Instrument development 495 patients with mesothelioma Guided Lung Cancer Symptom Scale QOL Model 14 Authors (Year) Country Jenerette (2008) United States Keenan, McKenna, Doward, Conaghan, Emery, Tennant (2008) United Kingdom King, Kinney, & Marks (2009) Australia Koller, KlinkhammerSchalke, & Lorenz (2005) Germany Purpose Design Sample Model guided or derived Model used To examine relationships among types of social support and HRQOL Correlational 232 adults with sickle cell disease Guided To develop and validate a diseasespecific QOL measure for osteoarthritis (OA), the OAQOL, using a needs-based conceptual model Instrument development To understand relationships between asthma control and HRQOL and to test a conceptual model Correlational Phase 1 - 44 OA Guided patients; Phase 2 17 OA patients; Phase 3 - 259 OA patients; Phase 4 60 OA patients for test-retest reliability 213 people with Guided asthma Derived Theory of Self-Care Management for Sickle Cell Disease A needs-based approach based on QOL domains derived from qualitative interviews To improve the conceptual frameworks that allow the use of the QOL concept in clinical practice Literature review NA Guided Asthma control and HRQOL model based on literature Integrating medical paradigm and diseaserelated QOL: A 3 component model (classical endpoints, hermeneutic endpoints, clinical relevance) 15 Authors (Year) Country Leung, Liu, Zhao, Fang, Chan, & Lin (2005) Purpose Design Sample Model guided or derived Model used To develop the Chinese Quality of Life Instrument Instrument development 100 Chinese medicine practitioners Guided Derived 51 female immigrants with breast or gynecological cancer NA Guided Derived Adopted concept of health involving harmonization of (a) physical form and spirit (b) man and society (c) man and nature (d) emotions Berkman’s social network model China Lim, Yi, & Zebrack (2008) United States Lipscomb, Snyder, & Gotay (2007) United States To examine direct and/or indirect Correlational pathways among acculturation, social support, depressive symptoms, and QOL among Korean immigrant breast and gynecological cancer survivors To summarize & draw inferences from Literature the Cancer Outcomes Measurement review Working Group findings about the soundness of HRQOL assessments in cancer Guided Medical Outcomes Trust Framework 16 Authors (Year) Country Marden (2005) United States Menne, Judge, & Whitlatch (2009) United States Nesbitt & Heidrich (2000) United States Purpose Design Sample Model guided or derived Model used To present a new theoretical model to explain people’s diverse responses to therapeutic health technology by characterizing the relationship between technology dependence and HRQOL Literature review NA Guided To identify predictors of QOL in individuals with dementia Descriptive 211 individuals with dementia Guided Technology dependence and HRQOL model: based on (a) Sandelowski’s conceptual framework of technology dependence in health care, (b) Spilker’s relationship of clinical aspects of safety and efficacy data and QOL and (c) Leventhal et al.s’ self-regulation model of illness cognition and behaviour Model based on stress and coping literature To test a conceptual model of proposed relationships between physical health limitation, the sense of coherence, illness appraisal, and QOL in older women Descriptive 137 older women Guided Derived A stress and coping framework, the Salutogenic Model 17 Authors (Year) Country Noonan, Kopek, Zhang, & Dvorak (2008) Purpose Design Sample Model guided or derived Model used To determine the effect of associated spinal cord injury conditions on the health status and QOL in people with traumatic central cord syndrome Descriptive 70 people with traumatic central cord syndrome Guided Conceptual model developed by investigators based on the literature To assess patients’ and spouses’ QOL, appraisal of illness, resources, symptoms, and risk for distress across three phases of prostate cancer Descriptive 263 prostate cancer patientspouse dyads Guided Lazarus and Folkman stress and coping theory To develop a QOL measure for elderly Instrument people development 105 elderly individuals Guided Derived Quality of Life in old age To identify factors related to global HRQOL & identify problems and health-oriented behaviors 245 women with breast cancer Guided Derived QOL model adapted by Dow and colleagues Canada Northouse, Mood, Montie, Sandler, Forman, Hussain, et al, (2007) United States Paschoal, Filho, & Litvoc (2007) Brazil Paskett, Herndon, Day, Stark, Winer, Grubbs, et al. (2008) United States Descriptive 18 Authors (Year) Purpose Country Perrins-Margalis, To study the impact of horticulture on Rugletic, group participants with chronic mental Schepis, illness in a clubhouse facility Stepanski, & Walsh (2000) United States Petry, Maes, & To examine the validity of basic Vlaskamp (2005) domains of QOL that appear in theoretical models for people with Netherlands profound multiple disabilities Rabins, Kasper, To describe a conceptual framework Kleinman, Black, and development of the Alzheimer's & Patrick (1999) Disease-Related Quality of Life instrument United States Rebollo & To analyze literature on HRQOL in Ortega (2002) end-stage renal disease patients Spain Renwick, Nourhaghighi, Manns, & Rudman (2003) Canada To develop & validate an instrument called QOL Profile for Adults with Physical Disabilities Design Sample Model guided or derived Model used Qualitative 10 people with chronic mental illness Guided Derived Zhan's conceptual model of QOL (life satisfaction, selfconcept, health and functioning, socioeconomic) Qualitative 76 parents and support staff of people with profound multiple disabilities 11 experts and 12 family caregivers Guided Felce and Perry Model consisting of 5 basic domains Guided Literature review NA Guided Model containing HRQOL concepts and domains specific to daily lives of persons with dementia An applied conceptual model of HRQOL. Instrument development 27 adults with Guided physical disabilities (Study 1), 40 adults with physical disabilities (Study 2) Instrument development Center for Health Promotion Quality of Life Model 19 Authors (Year) Country Sato, Saito, NakamuraMiura, Kato, & Cathcart (2007) Japan, Canada Schlarmann, Metzing-Blau, & Schnepp (2008) Germany Shi, Sun, Cai, & Yang (2004) Purpose Design Sample Model guided or derived Model used To incorporate dental hygiene human needs model and the oral health related QOL model into the dental hygiene curriculum in Japan Randomized controlled trial 67 dental hygiene students in Japan Guided Dental hygiene human needs model; Oral health related QOL model To review literature on concept, common definition, and assessment of HRQOL in children, relevance of HRQOL measures to young carers, and create recommendations for instrumentation in Germany. To develop and validate a QOL scale for Chinese patients with benign prostatic hypertrophy Literature review NA Guided Authors used core HRQOL domains by von Ruden to guide the review. Descriptive Guided Model formulated from literature search, semi-structured interviews, and HRQOL domains. To examine biological, medical system, & socio-demographic factors associated with HRQOL as measured by a multi-dimensional index that accounts for a wide range of child health domains Descriptive 256 men with benign prostatic hypertrophy; 60 randomly sampled to repeat assessment 2nd time; 43 healthy matched men 69,031 caregivers of children from the National Survey of Children's Health Guided Child Health and Illness Profile China Simon, Chan, & Forrest (2008) United States 20 Authors (Year) Purpose Design Sample Model guided or derived Model used 800 general practitioners Guided Transtheoretical Model of Behavior Change Descriptive 1281 people with HIV or AIDS Guided Derived Chronic Illness Quality of Life Model using WHO QOL-HIV instrument Correlational 600 adults in deprived neighborhoods Guided Berlin Aging Model Literature review NA Guided Evaluated data according to a mathematical model involving biomarkers of clinical outcomes and QOL Country Skevington, Day, To (1) find whether general Descriptive Chisholm, & practitioners use QOL information in Trueman (2005) primary care & explore their reasoning & barriers to use; (2) to determine if United Kingdom transtheoretical model of behavior change can be applied to the doctor's use of QOL information in primary care Skevington, Norweg, & Standage (2010) To test a revised QOL model Austrailia, Brazil, India, Italy, Thailand, Ukraine Smith, Sim, To examine determinants of QOL Schari, & among those in deprived Phillipson (2004) neighborhoods United Kingdom Spiegel, Melmed, Robbins, Esrailian (2008) United States To review literature on HRQOL in end stage renal disease patients 21 Authors (Year) Purpose Design Sample Model guided or derived Model used To present a model integrating response shift into HRQOL Literature review NA Guided Theoretical model of response shift and QOL To validate a measure of the impact of epilepsy on adolescent QOL Descriptive 108 adolescents with epilepsy Guided McEwan et al conceptual model of QOL in epilepsy United Kingdom Tully, Baker, Turnbull, Winefield, & Knight (2009) To examine the impact of general stress, depression and anxiety on HRQOL after coronary artery bypass graft (CABG) surgery. Descriptive 193 coronary artery bypass graft patients Guided Tripartite model of depression and anxiety Australia Ward & Tanner (2010) To examine the relationship of migrant farmworker stress to HRQOL Descriptive 75 migrant farmworkers Guided To test the convergent, discriminant, and clinical validity of the QOLCC instrument for measuring the QOL of Taiwanese children who suffer from cancer. Instrument development 160 children with cancer and 129 caregivers Guided Ecological model of health determinants specific to migrant farmworkers Conceptual framework based on grounded theory: health-related problems are solved from both a biomedical and biobehavioral perspective. Country Sprangers & Schwartz (1999) Netherlands, United States Townshend, Dorris, McEwan, Aylett, Brodie, O'Regan, et al. (2008) United States Yeh & Hung (2003) Taiwan 22 References for the 100 full-text articles reviewed: Bailey CB: Testing an asthma quality of life model. J Theory Const Testing 2001, 5:38-44. Baker SR, Pankhurst CL, Robinson PG: Testing relationships between clinical and non-clinical variables in xerostomia: a structural equation model of oral health-related quality of life. Qual Life Res 2007, 16:297-308. doi: 10.1007/s11136-0069108-x Bandell-Hoekstra, I Abu-Saad HH, Passchier J, Knipschild P: Recurrent headache, coping, and quality of life in children: a review. Headache 2000, 40:357-370. doi: hed54 [pii] Barr J, Schumacher G: Using focus groups to determine what constitutes quality of life in clients receiving medical nutrition therapy: first steps in the development of a nutrition quality-of-life survey. J Am Diet Assoc 2003, 103:844-851. doi:10.1053/jada.2003.50170 S0002822303003857 [pii] Barrera M, Wayland L, D'Agostino NM, Gibson J, Weksberg R, Malkin D: Developmental differences in psychological adjustment and health-related quality of life in pediatric cancer patients. Child Health Care 2003, 32:215-232. Bjornson KF, McLaughlin JF: The measurement of health-related quality of life (HRQL) in children with cerebral palsy. Eur J Neurol 2001, 8(Suppl 5): 183-193. doi: 051 [pii] Bluvol A: The Codman Award Paper: quality of life in stroke survivors and their spouses: predictors and clinical implications for rehabilitation teams. Axone 2003, 25:10-19. Brod M, Perwien A, Adler L, Spencer T, Johnston J: Conceptualization and assessment of quality of life for adults with attentiondeficit/hyperactivity disorder. Primary Psychiatry 2005, 12:58-64. Carlsson M, Hamrin E: Evaluation of the life satisfaction questionnaire (LSQ) using structural equation modelling (SEM). Qual Life Res 2002, 11:415-425. 23 Chamlin SL, Cella D, Frieden IJ, Williams ML, Mancini AJ, Lai JS, et al: Development of the Childhood Atopic Dermatitis Impact Scale: initial validation of a quality-of-life measure for young children with atopic dermatitis and their families. J Invest Dermatol 2005, 125:1106-1111. doi: JID23911 [pii]10.1111/j.0022-202X.2005.23911.x Chan SH, Yeung FK: Path models of quality of life among people with schizophrenia living in the community in Hong Kong. Community Ment Health J 2008, 44:97-112. doi: 10.1007/s10597-007-9114-7 Chaudhury H: Quality of life and place-therapy. In Physical environments and aging: Critical contributions of M. Powell Lawton to theory and practice. Edited by Scheidt RJ, Windley PG. New York: Haworth Press; 2003:85-103. Chin MH, Polonsky TS, Thomas VD, Nerney MP: Developing a conceptual framework for understanding illness and attitudes in older, urban African Americans with diabetes. Diabetes Educ 2000, 26:439-449. Collins R, Lanham RA Jr, Sigford BJ: Reliability and validity of the Wisconsin HSS Quality Of Life inventory in traumatic brain injury. J Head Trauma Rehabil 2000, 15:1139-1148. Cosby C, Holzemer WL, Henry SB, Portillo CJ: Hematological complications and quality of life in hospitalized AIDS patients. AIDS Patient Care STDS 2000, 14:269-279. doi: 10.1089/108729100317731 Costantini M, Mencaglia E, Giulio PD, Cortesi E, Roila F, Ballatori E, et al: Cancer patients as 'experts' in defining quality of life domains. A multicentre survey by the Italian Group for the Evaluation of Outcomes in Oncology (IGEO). Qual Life Res 2000, 9: 151-159. Cummins R A: Moving from the quality of life concept to a theory. J Intellect Disabil Res 2005, 49:(Pt 10),699-706. doi: JIR738 [pii]10.1111/j.1365-2788.2005.00738.x daSilva Carvalho Vila V, Rossi LA: Quality of life from the perspective of revascularized patients during rehabilitation: An ethnographic study. Revista Latino-Americana de Enfermagem 2008, 16:7-14. Daggett V, Bakas T, Habermann B: A review of health-related quality of life in adult traumatic brain injury survivors in the context of combat veterans. J Neurosci Nurs 2009, 41:59-71. 24 Detprapon M, Sirapo-ngam Y, Mishel MH, Sitthimongkol Y, Vorapongsathorn T: Testing of uncertainty in illness theory to predict quality of life among Thais with head and neck cancer. Thai Journal of Nursing Research 2009, 13:1-14. Dow KH, Ferrell BR, Haberman MR, Eaton L: The meaning of quality of life in cancer survivorship. Oncol Nurs Forum 1999, 26:519-528. Echteld MA, van Elderen T, van der Kamp LJT: How goal disturbance, coping and chest pain relate to quality of life: A study among patients waiting for PTCA. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation 2001, 10:487-501. doi: 10.1023/a:1013083620565 Edwards TC, Huebner CE, Connell FA, Patrick DL: Adolescent quality of life, part I: conceptual and measurement model. J Adolesc 2002, 25:275-286. doi: S0140197102904707 [pii] Ferrans CE, Zerwic JJ, Wilbur JE, Larson JL: Conceptual model of health-related quality of life. J Nurs Scholarsh 2005, 37:336342. Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D: Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler 1999, 5:251-259. Frank A, Auslander GK, Weissgarten J: Quality of life of patients with end-stage renal disease at various stages of the illness. Soc Work Health Care 2003, 38:1-27. Hafslund B, Nortvedt MW: Mammography screening from the perspective of quality of life: a review of the literature. Scandinavian Journal of Caring Sciences 2009, 23:539-548. Hatzmann J, Maurice-Stam H, Heymans HS, Grootenhuis MA: A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system. Health Qual Life Outcomes 2009, 7:72. doi: 1477-7525-7-72 [pii]10.1186/1477-7525-7-72 Hays RD, Hahn H, Marshall G: Use of the SF-36 and other health-related quality of life measures to assess persons with disabilities. Arch Phys Med Rehabil 2002, 83(Suppl 2):S4-9. doi: 10.1007/s11136-009-9496-9 25 Hill PD, Aldag JC, Hekel B, Riner G, Bloomfield P: Maternal Postpartum Quality of Life Questionnaire. J Nurs Meas 2006, 14:205-220. Hofer S, Benzer W, Alber H, Ruttmann E, Kopp M, Schussler G, et al: Determinants of health-related quality of life in coronary artery disease patients: a prospective study generating a structural equation model. Psychosomatics 2005, 46:212-223. doi: 46/3/212 [pii]10.1176/appi.psy.46.3.212 Hollen PJ, Gralla RJ, Liepa AM, Symanowski JT, Rusthoven JJ: Measuring quality of life in patients with pleural mesothelioma using a modified version of the Lung Cancer Symptom Scale (LCSS): psychometric properties of the LCSS-Meso. Support Care Cancer 2006, 14:11-21. doi: 10.1007/s00520-005-0837-0 Janz NK, Janevic MR, Dodge JA, Fingerlin TE, Schork MA, Mosca LJ, et al: Factors influencing quality of life in older women with heart disease. Med Care 2001, 39: 588-598. 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