BIG MAKS RESOURCE LIST FOR UTAH May 11, 2011 Big MAKS Resource List for Utah DISCLAIMER: The following resources were provided anonymously by Big MAKS members who completed the online survey (http://www.surveymonkey.com/s/2PFVL72). Big MAKS is making this list available to all who are interested. Big MAKS is not recommending the following resources but providing a list of resources Big MAK members have indicated were helpful for their particular child(ren). As with all autism resources, results will vary for each child/adult. The following list is divided by the type of resource provided. Contact information is provided when available. Please note that the contact information may be incorrect or may change. If you notice an error, or would like to provide additional information, please contact heathercan@gmail.com. Also, several resources were provided multiple times by those answering the survey. We typed their name in bold in order to show that that particular contact has been recommended more than once. If you feel our list is incomplete, PLEASE either complete the survey listed above or, if you are short on time, email Heather at heathercan@gmail.com. To quickly view the newest additions to the list, look for the sign! DENTAL Name Specialty Dr. Colleen Taylor Pediatric Dentist Dr. James H. Bekker Pediatric Dentist Comments Location/Phone 535 Medical Drive, Bountiful. 801-2922828 He works with children with special needs. He is trained specifically to work with children on the spectrum. He has been excellent with all my boys, on the spectrum or not. Page 1 of 17 1434 E 9400 S Ste 205, Sandy. 801571-5800 BIG MAKS RESOURCE LIST FOR UTAH MEDICAL Name Specialty Comments Location/Phone Dr. Arthur Krigsman Gastroenterologist Works out of Austin, TX, and New York 250 East 5770 South Suite 330, Murray. 801-314-4444. Dr. John Kestle Cathy Johnson, NP Neurosurgeon Nurse Practitioner Dr. Janet Harnsberger Pediatric Gastroenterologist Dr. Joel Thomson Pediatric Neurologist Dr. David Voss, Freedom Medical Center in Provo Pediatrician "wonderful and has a son with autism. We love her. I am also a nurse and have super high expectations. " Primary Childrens 267 Traversepoint Dr, Draper. 801553-8300 She worked well with my son and she is highly recommended by many physicians and therapists. In addition to appointments, she has times in the mornings to take phone calls from patients. Defeat Autism Now (DAN) physician. "He's great! He's in Utah county but it's worth it because he can set you up with a plan to help and then you don't have to go all the time. He is a regular doc but he is also a (DAN) doctor Defeat Autism Now. The great thing is he's just the cost of a co-pay with insurance. Usually Any biomedical doc's aren't covered but he is." Page 2 of 17 Primary Childrens Freedom Medical Center, Ste 11E, 1675 N Freedom Blvd, Provo, 801373-8500 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH Name Specialty Comments Location/Phone Dr. Earl Judd, Growing Up Great, Bountiful Pediatrician 620 Medical Dr #100, Bountiful, 801-295-2888 Dr. Humphreys, Healing Solutions Pediatrician http://www.healingpediatrics.com/ Dr. Jeffery Jackson Pediatrician Dr. Jennifer Cox, Alpine Medical Group Pediatrician 1060 E 100 S, Ste 400, SLC, http://alpinemedicalgroup.com/ Dr. Katie (Catherine) Jolma Pediatrician 1140 East 3900 South, SLC, 801264-8686 Dr. Lisa Palmieri Pediatrician Sandy. 801-501-2150. (Next to Altaview Hospital.) Dr. Lisa Sampson-Fang at the University Pediatric Center (University Hospital) Pediatrician Dr. Mark Briesacher Pediatrician 2180 East 4500 South Ste 210, SLC, 801-947-4242 Dr. Matthew Carter Pediatrician 2180 East 4500 South Ste 210, SLC, 801-947-4242 West Jordan She is a Developmental Pediatrician which means she specializes in neurological disorders in children. Page 3 of 17 1995 West 9000 South, West Jordan, 801-566-9888 74 Kimballs Lane Ste 6, Draper, 801-581-3501 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH Name Specialty Comments Location/Phone Dr. Paul Carbone Pediatrician Pediatric autism specialist. "great and very passionate about these sweet kids. He's very well known and can take up to three months to get into." University of Utah Pediatrics, 50 N Medical Dr., SLC, 801-581-3501 Willowcreek Pediatrics Dr. Kathy Omera Pediatrician "Signing Time videos and walls decorated in rooms, very autism friendly" 7138 South 2000 East, Suite 106, SLC, 801-942-1800 Dr. McKay Christian, Saint George Clinic Pediatrician 736 S 900 E, #203, St. George, 435674-6062 PSYCHIATRIC Name Specialty Jeff Skibitsky Behavioral Therapist Dr. Brent Peterson Psychiatrist Dr. Debbie Bilder Psychiatrist Comments Location/Phone http://www.autismprograms.com/contact_new_client_utah.html "He's knows his stuff, able to prescribe meds, mellow" 5770 S 1500 W, SLC, 801-265-3000 650 Komas Dr. Ste 200, SLC, 801-581-5515 Page 4 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH Name Specialty Comments Location/Phone Dr. Mark Manley, Southern Utah Behavioral Health Psychologist/Psychiatrist/Therapist Dr. Jason Anderson Psychiatrist Dr. Randy Hyde Psychologist 1355 N. University Ave #210, Provo, 801-373-8930 Dr. Mikle South Psychologist http://autism.byu.edu/ Southern Utah Behavioral Health, Ste 202, 1054 E Riverside Dr, St. George, 435-634-6100 "...great with medicine doesn't try to overdose." Utah Valley Regional Medical Ctr, 1034 North 500 West, Provo, 801-357-7380. Page 5 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH Name Specialty Psychiatric BYU Comprehensive Clinic Comments Location/Phone "They do a $50 psych eval and a $400 Autism eval to help guide therapy." http://cc.byu.edu/ OCCUPATIONAL/SPEECH/PHYSICAL THERAPY Name Amy Rosello Katie Mangus, Easter Seals, Childrens Center Specialty Occupational Therapist Occupational Therapist Kimber L. Dower, Riverside Rehabilitation Outpatient Pediatric Therapy Roxann, Primary Children's Rehab in Bountiful Theresa Golley Autism Journeys, Jodi Groot Occupational Therapist Occupational Therapist Occupational Therapist Occupational/Physical/Speech Therapists Comments She has been fabulous for our family. She “gets it” completely and is excellent with helping with sensory issues. Location/Phone 3845 West 4700 South, Taylorsville, 801-840-4374 Children's Center, SLC, 801-946-1860 435-632-3423 Also does feeding therapy Bountiful Intermountain Healthcare, Bountiful and Ogden http://www.autismjourneys.net/ Page 6 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH Name Kimber Dower, Riverside Rehabilitation Social Skills, Lori Krasney Andrea Lobb, Primary Childrens - Sandy Carla Amis Specialty Occupational/Physical/Speech Therapists Comments St. George Location/Phone http://www.riversiderehabsg.com/ Social skills Children’s Center http://www.tccslc.org/ Jessica Jones, Riverside Rehabilitation Outpatient Pediatric Therapy Shriners Hospital Speech Therapist Sandy Outpatient Rehabilitation, Primary Children's Medical Center Tom Gurrister, Wasatch Speech &Language Center Speech Therapist Speech Therapist Speech Therapist Sandy "knows all therapies and is able to change it up whenever needed" 435-632-3423 801-272-5143 Have the best speech therapists 1275 Fairfax Rd, SLC, 801-536-3500 Occupational/Physical/Speech Therapists Speech Therapist http://www.riversiderehabsg.com/speechtherapy/ 870 E 9400 S Ste 112, Sandy. 801-571-1223 Tom specializes in stuttering issues and has experience working with autistic children. http://wasatchspeechandlanguage.com/index.php Page 7 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH EDUCATION School Comments Location/Phone Autism Behavior Treatment Center (ABTC) Bell View Elementary Public School 801-572-5727. Draper. Carmen B. Pingree School for Children with Autism Dilworth Elementary http://www.carmenbpingree.com/ http://bellview.canyonsdistrict.org/ "Public but very inclusive" http://dilworth.slcschools.org/ Kids World Our Lady of Lourdes K-2nd grade www.kidsworldpreschool.org http://www.lourdesschool.org/ Rolling Meadows Elementary, Pre-K Attended pre-K class taught by Ms. Dora. She was wonderful. http://www.graniteschools.org/el/rollingmeadows/ Silver Hills Elementary http://www.graniteschools.org/el/silverhills/silver/ Spectrum Academy http://www.spectrumcharter.org/ Sunrise Ridge Intermediate http://sri.washk12.org/ Page 8 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH School Comments Washington County Early Education We have found a wonderful pre school "Washington County Early Education". My sons speach and understanding improved in the first 2 months by atleast 20%. His teacher is Ms.Mellissa. Children’s Christian School Kearns Library – Special Needs storytime Location/Phone 3138 West 7000 South West Jordan, UT 84084 801-967-5754 Special Needs Sensory Storytime at the Kearns Library, 5350 South, 4220 West in Kearns. Began March 26, 2011, and will be held once a month. The program is specifically geared towards autistic children but any child is welcome. Attendance of a participating adult is required and attendance is limited. crwhitehead@slcolibrary.org or 801.944.7611. Page 9 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH May 11, 2011 RECREATIONAL Name Comments Location/Contact Information Bare-Foot Gymnastics This studio has offered to do a weekly class for children with autism. Cathy Gwindelin just needs people to sign up to get it going. 476 E Riverside Dr. Ste C, St. George, 435-634-9009 Camp Takoda http://www.uafc.org/ Kindred Spirits at Art Access Miracle League Baseball http://www.kindredspiritsart.org/ National Ability Center (NAC) SPLORE http://www.recreation.slco.org/genefullmer/youthsports/Miracleleague.html Skiing, summer camp, Aspergers camp. “NAC has availability to book separate sports for groups. You could take a group of kids up for just one sport such as ropes course, or water skiing etc. “ Rock on program http://www.discovernac.org/ http://www.splore.org/ Page 10 of 17 BIG MAKS RESOURCE LIST FOR UTAH Name Comments UFIT Friday nights at the University of Utah. The program http://www.health.utah.edu/outreach/UFIT/index.html places each child with a volunteer to play in the gym, dance, do an art project and swim. I meets every Friday night for the fall and spring semester. Its web address is http://www.health.utah.edu/outreach/UFIT/index.html Wasatch Dance lessons for special needs kids. Arts Center http://wasatchartscenter.org/ (instructor Audrey Rock Richardson) Liz Eagan Private swim instructor for special needs persons. "Has adaptive camps in the summer and rec leagues Salt during the year." Lake County Beyond "Is excellent with kids who have issues." Sports Taekwondo Kidstar Summer camp for kids with high functioning autism (HFA) ages 8-17. Summer Camp (UNI) Lindsey Very autism friendly park which has a real merry-goround which is great for spinners. Also has lots of sand Gardens for those who enjoy that kind of sensory activity. Location/Contact Information http://www.wasatchartscenter.com/ 801-209-1521 http://www.recreation.slco.org/adaptive/ 139 S State #13, Lindon, UT 84042, (801) 796-0412 University Neuropsychiatric Institute (UNI) 426 N M ST (800 E), SLC. (The Avenues.) Page 11 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH Name Comments Location/Contact Information Pretty well enclosed so wandering is less possible. ENTERTAINMENT Name Utah Opera and Symphony Clark Planetarium Comments Every January the Utah Opera and Symphony has a concert for kids with disabilities and their families. It is a great event, which you can enjoy yourself without having to worry if your child is disturbing anyone. It is a very noisy audience. Great for kids who love planets. Plenty to do for free. My kids have sensory issues but have tolerated it. It may be to stimulating for some children though. Location/Contact Information http://www.utahopera.org/ http://www.clarkplanetarium.org/ Kangaroo Zoo Bouncy house place http://www.kangaroozoo.net/ AMC Theaters – Sensory Friendly Films “The program provides a special opportunity for families to enjoy their favorite films in a safe and accepting environment. The auditoriums dedicated http://www.amctheatres.com/SFF/ Page 12 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH Name Comments May 11, 2011 Location/Contact Information to the program have their lights up, the sound turned down and audience members are invited to get up and dance, walk, shout or sing!” RETAIL Name Specialty Comments Location/Phone Abby Alger Photographer Abby Alger is a student at BYU. She started a project called, "Faces of Autism" which she has exhibited in Utah. She works very well with our kiddos. Reader Rabbit Baby/Toddler computer game Product http://abbyalgerphotography.com/ The Reader Rabbit Baby/Toddler computer game is so wonderful and my son really sits well for it. I recommend it for children with Autism as well as 2 year olds or little ones wanting to use the computer too. Affordable Therapy Solutions Retailer Big MAKS Retailer seller on ebay: http://stores.ebay.com/affordabletherapysolutions?_rdc=1 http://www.affordabletherapysolutions.com/ "Really cute t-shirts" http://utahmaks.blogspot.com/ FunandFunction.com Retailer Occupational, sensory supplies Page 13 of 17 BIG MAKS RESOURCE LIST FOR UTAH May 11, 2011 Name Specialty Comments Location/Phone Gluten Free Foods Retailer All products gluten free and many are dairy free, Layton 1596 N Hill Field Rd. #8, Layton, 801-7761330 http://www.cafepress.com/ Retailer Cute shirts IKEA Retailer Have affordable swings and other products which are to OT products except a lot cheaper. http://www.ikea.com/us/en/ Sweet Cakes Bakery Retailer All products gluten free, Kaysville http://www.sweetcakebakeshop.com/ Time Timer Retailer Excellent time management tool for autistic persons. http://www.timetimer.com/ Scotch Laminator, Model TL901 Product “I use my laminator almost every day and it has worked very well for my family.” Cost is approx. $30. Laminator sheets cost around $15 for 50 8 x 10 sheets. SUPPORT Name Rebecca Thompson Specialty Consultant Utah Family Voices Support Utah Parent Center Child Developmental Clinic, CSHCN Support Support Comments Advocate, tutor and consultant. Comes to your home and helps create programs/systems specific to you and your family’s needs. Special health care needs Location/Contact Information r.tutor@hotmail.com (best) 801-634-1523 (next best) School/IEP Issues/ Training http://health.utah.gov/cshcn/CDC/ Resource for lists of doctors Page 14 of 17 BIG MAKS RESOURCE LIST FOR UTAH Name Proyecto Autismo Specialty Support Comments Great resource for Spanish speakers. Page 15 of 17 Location/Contact Information http://www.queesautismo.com/ May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH MEDIA Name/Title Type Comments Out of Sync Child by Carol Stock Kranowitz Book Related to sensory issues. Out of Sync Child Has Fun by Carol Stock Kranowitz Book Lots of OT activities which help with sensory processing issues. The Curious Incident of the Dog in the Night-time by Mark Haddon Book - Fiction The World of the Autistic Child by Bryna Siegel Book The Asperger Parent: How to Raise a Child with Asperger Syndrome and Maintain Your Sense of Humor by Jeffrey Cohen Asperger’s Syndrome by Tony Attwood Book The Autism Mom’s Survival Guide by Susan Senator Book Autism & Asperger Digest Adam Temple Grandin The Black Balloon The Horse Boy Signing Time Magazine Movie Movie Movie Movie TV Without Reason: A Family Copes With 2 Generations of Autism by Charles Hart Book Book Page 16 of 17 May 11, 2011 BIG MAKS RESOURCE LIST FOR UTAH Page 17 of 17 May 11, 2011