Breast Cancer Network Site Specific Group
Thursday 17th September 2015
Strawberry Fields Conference Room, Lifton Farm, Lifton PL16 0DE
Attendance:
Jim Steel, PHT
Patricia Coghill, PHT
Sheikh Ahmed, RCHT
Sarah Zee, RCHT
Mike Green, SD
Claire Herlihy, ND
Gemma Pooley,
Wendi Abraham, Macmillan
Cheryl Brown, PHT
Margaret Jenkin, PHT
Josephine Brand, RCHT
Douglas Ferguson, RDE
Peter Kember, SD
Laurie Elder, SD
Mel Chandler, RDE
Actions
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Welcome and Apologies
Sheikh Ahmed welcomed group members and Wendi Abraham, Macmillan
Patient Pathway Redesign Project Manager. For a full list of attendees and
apologies see Appendix A.
Minutes / Actions of meeting held on 11th March 2015
Future Support and Funding – Not yet confirmed that all trusts are signed up to
funding the network support roles. Need formal agreement to say money
comes from the other trusts.
Action: LB to update when funding agreed
Constitution – draft version still with SA for review and approval at next
meeting
Action: SA to update and send out for review
Clinical Guidelines
JS suggested group consider and adopt NICE Guidelines.
Action: SA/LB to reissue draft guidelines incorporating NICE recommendations
‘Breast Cancer in Women over 70 Campaign’
Bristol Breast Care Policy to be discussed next time.
Action: AS to ask Polly King to present data at the next meeting.
SW Suspected Breast Cancer Referral Proforma
Action: DF to send out again.
ADM use in individual units
SA and Carly to complete
Audit
Each unit carried out audit on new patient clinic activity / reason for referral.
Data to be sent to LB to collate for next meeting.
Action: Clinical leads to provide audit data
Action: LB to collate and produce report
LE suggested a patient lead audit, to be done at 6-8 weeks then again at 6
months.
Action: To be discussed at next meeting
MG has done audit on one-stop clinic.
Action: MG to write up and send via LB so everyone can have a look at.
Patient Representation
No Patient Representative at this meeting. Group expressed wish for
challenging representative as they would have more of an experience to share.
Action: CNSs to suggest patient reps to be invited
LB
SA
SA/LB
AS
DF
ALL
LB
ALL
MG
CNSs
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Breast NSSG Minutes 17.9.15 – Approved 17.12.15
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Survivorship
Living With and Beyond Cancer (Speaker – Wendi Abraham, Macmillan Patient
Pathway Redesign Project Manager).
Presentation Summary attached (See Appendix B).
The pilot is in progress.
Action: LB to invite WA to 4th March 2016 meeting for follow-up discussion.
Clinical Research / Current and New Trials
No research representative at meeting. Research report and trials discussed by
group.
Mammo-50 205 total so far. RDE have been accepted.
LORIS – 1st patient. Seen at MDT but not had treatment. Coming back for
Ultrasound.
Protocol – Core-biopsy.
Pallett – RDE applied but not yet accepted as a site.
Biologic - JS own trial on hold
POSNOC - RD&E applied not yet accepted as a site
LB
Any Other Business
NSSG Meeting Attendance - reasonable but not brilliant. Needs to improve
with at least 1 representative from each trust. SA suggested having one
meeting per year with proper representation.
Content of Future Meetings - SA said the value of the group would increase if it
had more objectives. Suggested entire day including education guidelines /
standard practice. DF doubted whether trusts would support a whole day off
for these meetings
The Breast Nurse Group is holding an annual educational meeting. First one on
18th April 2016 with 2 speakers.
Unit Updates
RDE has no Secondary/Metastatic Breast Care Nurse. DF said no funds for
£4,500 to sustain Metasin intraoperative nodal assessment plus £70 per
test. No investment to improve. RDE has Breast Physician.
SD has Metastatic Breast Care Nurse but not funded. Meeting with Oncology to
get money from Macmillan. JB said it took her 9 years to get the money from
the Trust. SD has another accelerator coming in shortly.
RCT has Breast Staff rate and Special Care Practitioner. Appointing 2
Radiologists i.e. one full time and one part time.
PHT currently have 3 Surgeons, 1 Consultant and 1 Locum. 2 Consultant jobs
advertised, one replaced with current Locum.
Date of Next Meeting
Friday 4th March 2016 – Strawberry Fields Conference Room, Lifton Farm Shop,
PL16 0DE 2pm – 4pm
Wednesday 21st September 2016 – Strawberry Fields Conference Room, Lifton
Farm Shop, PL16 0DE 2pm – 4pm
NOTE: Draft Minutes distributed on 12th November 2015.
Final Minutes, Constitution and Terms of Reference have subsequently been
approved by Sheikh Ahmad on 17th December 2015.
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Breast NSSG Minutes 17.9.15 – Approved 17.12.15