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June 2015
Office use only
EoI no: _______
Date received:
______________
Substudy Expression of Interest
Use this form if you are proposing to conduct a substudy with ALSWH participants.
Have you discussed this with the ALSWH Deputy Director and
Research team?
Yes
No
All substudies must be discussed with the ALSWH Research team at the University of Newcastle before filling
out this form. Our substudy policy can be found in Document C at: http://www.alswh.org.au/accessingdata.html
Section A
Name, title, email address and institution of Project
Leader (lead person)
Corresponding ALSWH liaison & contact details
http://www.alswh.org.au/who-is-involved/alswhliaison
(If ALSWH liaison is also a collaborator please list below)
Other Collaborators (include title, email address and
institution)
Detailed scientific title of potential project
Is the research the project of a student? (will the
project contribute to their award)?
Yes
If yes what percentage will this project contribute
to their final award? (For example if their project is
based entirely on ALSWH data this would be 100%)
No
%
If yes, please provide student’s name, course, institution,
course start date and expected completion date
Please list supervisors
Does this project involve linked data?
If yes, please select the appropriate data set.
The Australian Institute of Health and Welfare is the
custodian for the cause of death data, which comes
from the National Death Index. All researchers who
use the cause of death data must provide a public
interest statement for each project undertaken
using COD URF data. The statement must establish
a clear link between the intended use of the data
for the project and the benefits to the community.
Analyses on external linked datasets may only be
conducted at the University of Queensland, the
University of Newcastle or through the SURE facility
Principal Supervisor:
Associate Supervisor/s:
Yes
No
Cancer
Perinatal
Admitted Patients Data Collections
Aged Care
MBS
PBS
Cause of Death
If you intend to use Cause of Death data, please add this
statement in this box.
☐The researcher/s will conduct analyses on site at either
the University of Queensland or the University of
Newcastle. This option is dependent on the availability of
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June 2015
at the Sax Institute
https://www.saxinstitute.org.au/our-work/sure For
external researchers wishing to include external
linked data in analyses, please select one of the
following options:
facilities and resources at the time of request.
☐ALSWH will provide an experienced statistician to
conduct analyses on behalf of the researcher. This option
will involve a cost recovery which will be negotiated on a
case by case basis, based on the complexity of work
involved. It is also dependent on the availability of
resources.
☐Researchers will use the SURE facility. If this option is
chosen, researchers are responsible for any costs imposed
by SURE to access the data.
Does this new EOI supersede a current or previous
EOI?
Yes
No
If yes, please provide details of which EOI it supersedes
and confirm whether the EOI it supersedes can now be
made inactive
Please provide a lay synopsis of your proposed project (75-100 words) that can be published on the ALSWH
website if the project is approved. (This synopsis may also be included in the ALSWH annual newsletter to
participants.)
Outline of substudy:
Rationale (scientific and/or policy driven)
Hypothesis/research questions, Methods (description of study type- interview, survey etc; sample size; criteria
for selection/exclusion; length of survey, interview), Main variables – outcome response/dependent variables
and explanatory/predictor/independent variables, Main method of analysis.
Please attach drafts of any surveys/interviews you wish to use
If you are also planning to analyse other ALSWH data as part of the proposed project, please specify
hypotheses/research questions, main variables (as above) and analyses to be undertaken and specify the ALSWH
datasets that are required. Please note – For data linkage projects the additional Variable Checklist must be
completed.
Ethical considerations:
Participant confidentiality & care
Institutions where clearance will be sought (must
include Universities of Newcastle & Queensland)
Status of ethics applications
Expected outcomes & likely target audience (eg.
paper to be submitted to a psychology journal; paper to
be submitted to National Rural health Conference)
Timeline for the project
Develop with assistance of ALSWH UN staff
Include:
Start date
Ethics clearance dates
Recruiting start date
Expected conclusion of data collection
Expected outcomes date (eg. paper submission
date)
How do you expect to fund this work?
(Describe source and amount)
Budget
(Develop with assistance of ALSWH staff)
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Core ALSWH staff who will assist & the tasks agreed
upon
(Develop with assistance of ALSWH staff)
Names and email addresses of all people who will
have access to the raw data for analysis purposes
For projects using data from external datasets:
Names and email addresses of all people who will
have access to the linked data.
All investigators accessing external datasets are
required to be approved by the data custodians and
HRECs where appropriate.
Who will provide the substantive expertise and
input?
Who will provide statistical expertise and input?
Who will provide qualitative analysis expertise if
required?
Keywords
Applicable themes – tick all that apply
Tobacco, alcohol & other drugs
Chronic conditions
Weight nutrition & physical activity
Health service use & systems including Medicare
Australia analyses
Mental health
Social factors in health & wellbeing
Medications
Health in rural and remote areas
Formal & informal work patterns & work-family balance
Roles & relationships
Caring
Intergenerational issues
Reproductive health
Methodology
Data Linkage
Ageing
Independent living / Aged Care
Abuse
Please complete section B of this document on the following page
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Section B - ALSWH Dataset Instructions (for linked data – see Section C)
Collaborator name & email address:
ALSWH Liaison person for the project:
The data sets on this form are specific to data collected by ALSWH. Access to external linked data sets such as
Perinatal Data, Cancer registry, Admitted Patients Data Collections or MBS and PBS should be discussed with your
ALSWH Liaison person. A separate form is required for use for all external linked data sets. Please see Section C
for links to the appropriate variable checklist forms for all external linked data sets.
Please indicate preferences for the following by checking the applicable boxes:
SAS
SPSS
STATA
Other (text)
Type of data files
When datasets are requested the accompanying formats and labels will also be sent if possible.
Cohort
1989-95 (NYC):
Survey data
Survey data only
Survey & qualitative data
Qualitative data only
1973-78 (Young):
Survey data only
Survey & qualitative data
Qualitative data only
1946-51 (Mid):
Survey data only
Survey & qualitative data
Qualitative data only
1921-26 (Old):
Survey data only
Survey & qualitative data
Qualitative data only
OTHER DATA SETS
1
2
1
2
3
4
5
6
Child Data
Child Data
Child Data
1
2
3
4
5
6
7
1
2
3
4
5
6
7
1973-78
1946-51
1921-26
Participant Status
Cause of Death
5th Survey
6th Survey
5th Survey
6th Survey
Medications
Food Frequency Questionnaire
1973-78
Survey 3
Survey 3
Survey 5
Survey 7
Comments:
EOI No:
Date EOI approved: __ /__ /___
Dataset created by:
Date dataset created: __ /__ /___
1946-51
Office use only
Email address
4th Survey
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Section C – Requesting Linked Datasets
Access to external linked data sets such as Perinatal Data, Cancer Registry, Admitted Patients Data
Collections, Aged Care, MBS and PBS should first be discussed with the ALSWH Liaison person.
Currently, the ALSWH has approval to link survey data with external Cancer Registry, Perinatal and
Admitted Patients Data from NSW, WA, QLD, SA and VIC with annual updates. Applications are
currently in progress to receive similar data from all other States and Territories. Aged Care, MBS and
PBS data are currently available up to the most recent year for all participants, except for women
who had previously requested to be removed.
Analyses on external linked datasets may only be conducted at the University of Queensland, the
University of Newcastle or through the SURE facility at the Sax Institute
https://www.saxinstitute.org.au/our-work/sure. External researchers wishing to include external
linked data in analyses must select one of the available options in Section A of this document.
There are a number of caveats that need to be noted by any researcher using these linked data. The
ALSWH will not release all the linked data for each project. The user must specify which records and
specific variables they require for each age cohort. Justification for the inclusion of each variable in
your study will be required. The release of variables will not be considered unless sufficient
justification has been provided for each variable requested. Please see the appropriate variable
checklist form and the ALSWH website for further information about the accessing data policy
www.alswh.org.au.
Please check the applicable boxes below and then follow the links to complete the appropriate
additional variable request forms. Please attach all relevant forms to your application.
☐
☐
☐
☐
☐
☐
☐
☐
Linked Data Set
MBS
PBS
Aged Care
NSW- Perinatal data,
Cancer Registry, Hospital
morbidity
WA - Perinatal data,
Cancer Registry, Hospital
morbidity
QLD - Perinatal data,
Cancer Registry, Hospital
morbidity
SA - Cancer Registry,
Separations (Hospital)
VIC - Cancer Registry
If ‘Yes’ please complete and append ALSWH Data Linkage
Variable Request form
Currently not available
If ‘Yes’ please complete and append ALSWH Data Linkage
Variable Request form
If ‘Yes’ please complete and append ALSWH Data Linkage
Variable Request form
If ‘Yes’ please complete and append ALSWH Data Linkage
Variable Request form