SCHOOL CARE PLAN
A Personal Details
xxx
Name
xxx
Xxxxxx
DOB
Address
Age xxx
Tel.
B Medical Condition
xxx
Hereditary Angioedema (C1 Esterase Inhibitor Deficiency)
A rare blood disorder leading to episode attacks of swelling.
Episodes can be triggered by trauma, illness, hormones, stress and also for no determinable
reason.
Episodes can be life threatening and must be treated without delay.
C Assessment of
Risk
Common Swellings
Symptoms
Risk
Action
Treatment Required
FACE & THROAT
Puffiness on the face or
neck
Difficulty swallowing
Difficulty breathing
Panic
Pale pink rash similar to
marble
HIGH
This is a medical emergency
that can lead to death by
asphyxiation
C1 Esterase
Concentrate (Berinert)
Paramedic Ambulance required
to take patient to xxx Hospital
Protocol agreed with xxx
To be administered
intravenously
Medication only stored
Do not confuse symptoms
with allergic reaction
(anaphylaxis) as this will
delay medical treatment
Common Swellings
Telephone in advance on
Xxx to advise them to prepare
medication
Risk
Give doctor’s letter to medical
staff
Action
at larger hospitals
Patient has supply at
home, mother trained
to administer
Treatment Required
Symptoms
ABDOMINAL
Swollen tummy
Abdominal pain
Nausea/sickness
Diarrhea
Pale pink rash similar to
marble
MEDIUM Call parents
----------------------------
-------
Any episode can lead to further
swellings, so close supervision
is required until the pupil is
collected.
C1 Esterase
Concentrate (Berinert)
To be administered
intravenously, can be
done by mother at
home
------------------------------------------------------------
Dehydration - dizzy,
headache, lightheaded,
lethargic, confused, unable
to urinate, dry mouth and
eyes
HIGH
Ambulance required to take
patient to xxx Hospital
Protocol agreed with xxx
Telephone in advance on
xxx to advise them to prepare
medication.
Give doctor’s letter to medical
staff
C1 Esterase
Concentrate (Berinert)
To be administered
intravenously
Intravenous fluids
----------------------------
-------
------------------------------------
--------------------------HANDS, FEET, ARMS,
LEGS, GENITALS
D
--------------------------LOW
Call parents
Soft tissue swellings
Pale pink rash similar to
marble
Discomfort
Any episode can lead to further
swellings, so close supervision
is required until the pupil is
collected
Painkillers
Rest
Depending on severity
of attack, C1 Esterase
Concentrate (Berinert)
CONTACT DETAILS
Name
xxx (Mother)
Mobile No. / Address
xxx
Work No.
xxx
Email
xxx
xxx (Father)
xxx (Consultant)
xxx (Grandparents)
xxx
xxxHospital, Immunology
xxx
xxx
xxx
xxx
xxx
OTHER USEFUL INFORMATION
xxx takes TRANEXAMIC ACID daily, which helps to control frequency and severity of attacks.
xxx wears a MEDICALERT bracelet and carries a wallet card.
This provides details of his condition and a telephone number for medical staff to call if this plan is not available.
Xxx’s father also suffers with the condition, which is hereditary.
The emergency treatment C1 Esterase Concentrate (Berinert) is also stored at home in the fridge and xxx’s mother is trained to
administer it.
This could save valuable time in an emergency.