FOR LHIN USE ONLY PROPOSAL ID: _____________ HEALTH SYSTEM IMPROVEMENT PROPOSAL (H-SIP) FORM Training SECTION 1 –PROPOSAL DETAILS PROPOSAL CEO APPROVED BY SUBMITTING HEALTH SERVICE PROVIDER PROPOSAL TITLE Dialectical Behaviour Therapies: Building a Continuum of Services CONTACT INFORMATION NAME: TIM SIMBOLI E-MAIL: tsimboli@cmhaottawa.ca PHONE NUMBER AND ADDRESS: CANADIAN MENTAL HEALTH ASSOCIATION OTTAWA CARLETON BRANCH 301-1355 BANK STREET, OTTAWA, ON K1H 8K7 613 737 7791 EXT 249 FAX 613 737 7644 LEGAL NAME OF HEALTH SERVICE PROVIDER: CANADIAN MENTAL HEALTH ASSOCIATION – OTTAWA CARLETON BRANCH DATE OF SUBMISSION: AUGUST 19, 2013 COMMUNITY OF CARE ALIGNED WITH PROPOSAL EASTERN COUNTIES NORTH LANARK & NORTH GRENVILLE OTTAWA CENTRAL OTTAWA EAST OTTAWA WEST RENFREW COUNTY REGIONAL If this proposal has been submitted to other LHINs, please indicate which LHINs below and the status of the proposal. Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 1 SECTION 2 – NATURE OF REQUEST SMALL CAPITAL REQUIRED TO SUSTAIN SERVICES (< $100,000) (EX. EQUIPMENT, RENOVATIONS) CHANGE TO HSP SERVICES (INCLUDING VOLUNTARY INTEGRATION)* ADMINISTRATIVE/OPERATIONAL EFFICIENCY (NOT SERVICE RELATED) OTHER (PLEASE SPECIFY _______________________________________________________) request for integration SECTION 3 – DESCRIPTION OF REQUEST DESCRIPTION OF PROPOSAL Please provide a brief description of the project including a description of any proposed services. (Maximum 200 words) Dialectical behavior therapy (DBT) is an evidence-based approach that can be delivered at both moderate and high intensity levels, and has proven to be effective for people that can present particular challenges to the mental health service system – in particular, for people with Borderline Personality Disorder (BPD) or borderline traits (see Appendix A for a description of BPD symptoms). DBT involves group skills training, individual therapy, telephone coaching and a therapist consultation team. Therapists receive DBT intensive training through Behavioral Tech, which was founded by Marsha Linehan, the developer of DBT. Currently, DBT services sited within the City of Ottawa (although open to all residents of Champlain) are provided by CMHA Ottawa, The Ottawa Hospital, Montfort Hospital, and the Royal Ottawa Mental Health Centre1. Services are typically provided in group settings, and the high intensity service option (DBT “Full”) incorporate group sessions and frequent individual therapy sessions. The target population for these services varies depending on service type and are summarized as part of the attached DBT Services Continuum (see Appendix B). In short, this is a client group that are high users of emergency department and inpatient services, place a heavy burden on service providers, experience significant impacts in their functioning as a result of BPD symptoms, and for whom a specialized approach is required to empower them in achieving sustainable change and improvement (see Appendix C for the evidence base for DBT in treating patients with BPD). For example: High utilization of services: A two year study of people with BPD features showed that this group, as compared to a control group, utilized more pharmacologic, psychological and medical treatment, even after controlling for gender and Axis I and II pathology (Bagge et al 2005) A comparison of inpatients with BPD and inpatients with other axis II diagnoses showed that patients with BPD were 2- 4.5 times more likely to have received each of 12 types of treatment 1 Note that DBT services are offered by the ROMHC to people who are active patients. Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 2 (excluding electro-convulsive therapy), spend more time in individual therapy, spend more time in inpatient units and take more medications over the course of their treatment >75% had individual therapy, previous hospitalizations and standing medications 50- 60%: self-help groups, multiple psych hospitalizations, day hospital or residential treatment 35-45%: group, couple/family, intensive individual (>2x/week), intensive polypharmacy (>3 meds) Zanarini et al 2001, Patients with BPD had greater likelihood of receiving each mode of treatment (individual, group, family, day, hospitalization and all classes of medication) than patients with MDD OR 1.89 to 4.95. Patient with BPD received more of these treatments than patients with MDD or other personality disorders. (Bender 2001) Poor service outcomes o Gunderson et al 2004 (since updated) BPD plus Major Depressive Disorder (MDD) vs MDD alone have similar rates of remission – 81% vs 91%. Time to remission is significantly different – 55.1 weeks (mean) for BPD + MDD vs 18.7 weeks for MDD alone BPD + MDD and MDD have similar rates of relapse – 72% and 63%, however time to relapse is much shorter for BPD + MDD 48 weeks(mean) vs 106.8 weeks o Zanarini et al 2004 Rates of axis I disorders in patients whose BPD remitted also showed significant decline Rates of axis I disorders (Mood, anxiety, substance use disorders, eating disorders) in never remitted BPD remained stable despite intensive treatment Sociodemographic profile: o In a sample of treatment-seeking BPD patients in Mannheim, Germany, researchers found that there were significant differences for patients in employment status and marital status as compared to general population statistics, despite the fact that there were similar levels of education and training across the two groups o Researchers also found that this group of patients was young – with majority being aged 38 or less – prime years for education, employment, and raising young children High impact on children and families: o Compared to moms with depression or moms with no mental disorder BPD Moms are predisposed to frightened/frightening behaviours that are thought to increase the likelihood of disorganized infant attachment (Main et al 1990, Schuengel et al 1999) BPD Moms are prone to relate to their infants with intense, inconsistent and often selforiented styles of engagement BPD Moms were more likely to exhibit fear/disorientation in response to their infant’s attachment bids (Hobson et al 2009) o Compared with children of moms with depression, cluster c or no disorder, children (ages 11-18) of moms with BPD exhibited: Higher harm avoidance Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 3 Perceived their mother as being overly protective (mother gets overinvolved, mother induces feeling of shame and guilt, mother acts very anxious, mother dictated what clothes should be worn) Lower levels of self esteem Compared with children of moms with no disorder attention problems, behavioural problems (delinquency and aggression) Death wishes and suicidal ideas/plans o Families with parental BPD more unstable and children more frequently exposed to parental substance abuse, neglect and suicide attempts (Feldman, Zelkowitz, Weiss, Heyman, Vogel and Paris 1995) o Families with parental BPD report interactional styles with more conflict, less expression and less cohesion (Moos and Moos 1986) o BPD patients entering treatment perceived family relationships as extremely difficult, and overall their scores for quality of relationships with partner, children and family unit were much worse than is seen with depression. (Gerull, Meares, Stevenson, Korner and Newman 2008) High suicide risk: o All suicides: 9% adults – Kullgren et al 1986 Up to 33% of adolescent suicides BPD Runeson and Beskow 1991 o Lifetime risk of suicide in BPD: 3-10% Paris and Zweig-Frank 2001 o Early all cause mortality 18.2% at mean age 50 yrs (expected in general population 4.5% women 7.5% men) Paris and Zweig-Frank 2001 An extensive community consultation was undertaken to better understand service needs and gaps for people with BPD or BPD traits in the City of Ottawa (see Appendix 4 for a summary of findings): an adequately resource continuum of DBT services, including consultation to partners, was identified as a key need. Service providers have piloted various approaches to providing a range of DBT services. These partners have developed expertise in providing the range of DBT services, and have also developed an intimate knowledge and understanding of what is required to ensure there is sufficient capacity in each of the service types to meet this population’s needs. Case studies shared throughout this HSIP provide examples of the significant, positive impact DBT services have already had at a local level, empowering and supporting people as they dramatically reduce their ER and inpatient utilization, and make tremendous, positive changes in their educational, professional and personal lives. Case Study – Ms. A Presenting to The Ottawa Hospital in 1996, there were multiple diagnoses at admission, including: Axis I: dysthymia, major depressive disorder, social phobia, eating disorder NOS, polysubstance dependence Axis II: borderline personality disorder, avoidant personality disorder Axis III: asthma, myofacial pain syndrome, environmental allergies Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 4 In Oct 2004 Ms A entered DBT-full treatment. The program, at that time, lasted 18 months. Ms A received full DBT – including individual and group therapy and telephone consultation from October 2004 to May 2006. Following completion of DBT, Ms A was able to return to University part-time and then eventually full time to complete her degree and her masters. In July 2011 she moved out of the Ottawa area and obtained her first full time employment and continues in full time employment at the time of this report. March 1996 to Oct 2004 DBT Oct 2004 to May 2006 May 2006 to July 2011 ER visits psych 26 1 ER visits medical 3 0 Inpatient admissions Inpatient days Outpatient visits 29 1 360 5 46 129 3 0 3 13 75 While partners are committed to continuing to provide some of the funding required to serve clients, they recognize that additional resources are required to have sufficient capacity to meet client needs. Partners recognized that this HSIP represented an opportunity to come together as a group to define the DBT service system, identify the resource requirements, clarify individual partner roles and areas of specialty, and set out a process through which coordinated access to this service system would be developed. Ensuring that the full continuum of DBT options is crucial to maximizing resources and efficiencies: the continuum facilitates treatment staging, with lower intensity options designed to support people both as they enter the system, and as they “graduate” from DBT full options. The figure and table below summarizes the different areas of expertise that various providers have developed over time. In addition to the direct services provided to patients, CMHA and TOH have piloted different approaches to support family physicians in meeting patient needs, including providing a consultation clinic. Patients referred by family physicians do not necessarily require the intensity of a “DBT Full” program, but have benefited from the less intensive group options as well. Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 5 Moderate Intensity High Intensity Low intensity •Group/Working with Emotions – 12 weeks - TOH •DBT Lite – 6 months - TOH •Emotion regulation skills training – Women’s Mental Health/Meadowcreek ROMHC •DBT Lite - Hopital Montfort • DBT Full: Group and individual therapy – 12 months - TOH • Group/DBT Modified – 24 weeks – CMHA • DBT M-Individual – 48 weeks - CMHA • Individual therapy - Family Services Ottawa in planning phase (in concert with existing CMHA group and case management therapies) • Group/DBT S – 24 weeks - CMHA •Group/DBT Grad – open - TOH •Group/DBT Aftercare – 48 weeks - CMHA Service type Entry Treatment Services: Individual or Groups - Working with emotions (TOH), Emotion Management (ROHCG) DBT Lite DBT Full DBT Case Management (includes case management, group therapy, individual therapy) Description of needs Anyone who presents at ER who could benefit (TOH) – tends to be a high risk group that would need some individual support in addition to the WWE group ROH tends to be for individuals not currently presenting at the emergency room People with BPD or People with BPD Traits People are moderately impaired and symptoms are moderate in severity People with BPD People are highly impaired and symptoms are high in severity People with BPD People are highly impaired, and high severity symptoms, and are usually experiencing other complex issues e.g. homelessness Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 Provider TOH ROHCG Groups – TOH, Montfort (provides a group to 18-25 year olds) Individual therapy provided by community therapist TOH – Groups and individual therapy CMHA – Case management CMHA – Groups Individual therapy – Family Services Ottawa (planned) 6 TOH – Graduates group CMHA – Group – pilot integrates peer support component FSO - will provide individual therapy in the future DBT Consultation Consultation/outreach support to TOH other providers CMHA NOTE – 2/3 of people continue in therapy for one or more years after completing DBT Lite or DBT Full DBT Follow-up People with BPD who have already completed DBT Full or DBT Case Management Under this HSIP: The Ottawa Hospital will provide the DBT “Full” Program and continue to offer the Working with Emotions Group, DBT Lite Group and DBT Grad Group ROMHC will continue to provide Emotion Regulation Groups CMHA Ottawa will provide DBT Group and Individual Therapies, as well as consultation services to CMHA staff. Clients of the CMHA Ottawa program will also have access to the range of CMHA programs including the primary care nurse practitioner. Family Services Ottawa will provide DBT Individual Therapies and co-lead groups provided by CMHA Ottawa Annual training and support will be provided to the Champlain Mental Health Crisis Line volunteers to provide after-hours, time-limited support to clients of DBT services. The CMHCL requires this additional training to ensure that the needs of this particular population group are supported in an appropriate, efficient, and evidence-based manner. Additional funds are identified to address existing wait lists and build capacity for moderate intensity groups (e.g. Working with emotions or similar group models) This proposal further lays out a process to develop a coordinated access mechanism for the range of DBT services for people with BPD or BPD traits, together with consideration of what other types of lower-intensity or moderate-intensity groups, particularly those utilizing peer support, might be of benefit to this population. The coordinated access mechanism will formalize the informal ways in which various services, including primary care services, substance use services, and emergency room services can link patients for assessment and referral to the most appropriate level of care. Providing a central way in which primary care providers can access services, and ensuring that the DBT service continuum is integrated within the range of mental health and addictions services, will be key goals of the coordinated access development. PROPOSED BUDGET Please complete the following tables with your proposed budget. Please identify any funding for this project obtained from other sources (including previous LHIN funding received). Please identify any cost savings with a negative number. CAPITAL EXPENDITURES Name/Sub Account Description Fiscal 2012/13 Annualized Budget N/A Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 7 N/A Total – Capital Expenditures ONE-TIME EXPENDITURES Name/Sub Account Description Fiscal 2012/13 Annualized Budget Coordinated Access Development Provides funding to facilitate the DBT committee in reaching agreement on: How patients access assessment for services Protocols and tools used in the assessment process How referrals are made for specific DBT services How wait lists for services will be managed How other health services intersect with the coordinated access How DBT services are situated within the broader addictions and mental health system The ways in which primary care providers can refer clients for assessment and services What additional service options are needed to support people with BPD or BPD traits, particularly considering groups that have strong peer support elements e.g. Skills For Safer Living, a model first developed by St. Michael’s Hospital in Toronto 20,000 N/A New staff training and education Btech "foundation training" 5 day training, available to clinicians who are joining an established DBT team. Costs are approximates, based on the training offered this fall in Princeton New Jersey 27,200 N/A BTech tuition 1400 US Transportation $600 Food and accommodation: $1400 Total per clinician - $3400 4 clinicians (2.0FTE) CMHA, 2 clinicians (1.0FTE) FSO, 2 clinicians TOH Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 8 Total – One-Time Expenditures 47,200 N/A OPERATIONAL EXPENDITURES (FOR BASE FUNDING) Name/Sub Account Description Fiscal 2013/14 26,000 Salaries – TOH - note - this reflects the cost difference in addition to other funding sources for additional FTEs as noted in table below Psychiatry (0.2 FTE) Psychology (0.2FTE) - see other funding sources) Social Work - includes on-call (0.6FTE) Occupational Therapy (0.4FTE) RN - includes on-call (0.6FTE) Administrative Support (scheduling, data entry, clerical) (0.4FTE) Annualized Budget 52,000 15,587 31,174 33,956 32,129 43,537 67,912 64,258 87,074 9,335 18,670 Research Assistant (program-wide) 25,000 50,000 Social Work (2FTE @ $94,315/FTE) 94,315 188,630 Provides 2 days/week physician time plus additional 20 half days per year 60,000 120,000 Counseling (1FTE) 33,350 66,700 To provide after-hours on-call support to clients of the DBT programs provided by TOH 5,000 5,000 Salaries – TOH – System Resource Salaries – CMHA Ottawa note - this reflects the cost difference in addition to other funding sources for additional FTEs as noted in table below Sessional fees - CMHA to support staff and clients in CMHA and FSO DBT programs Salaries – Family Services Ottawa Training – Distress Centre of Ottawa General and administrative expenses – CMHA Ottawa General and administrative expenses – Family Services Ottawa Program administration expenses – CMHA Ottawa Staff travel, cell phone, training, rent, computer 12,472 24,944 Staff travel, cell phone, training, rent, computer 6,236 12,472 Administrative infrastructure for program i.e. book-keeping, data and LHIN reports 5,710 11,347 402,627 800,181 Total – Operating Expenditures - Salaries OTHER FUNDING SOURCES FOR THIS PROJECT Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 9 Funding Sources TOH (total of 1.35 FTE) CMHA Ottawa (total of 2.0 FTE) Previous fiscals Description Fiscal 2012/13 Annualized Budget Sessionals – Psychiatry 0.6FTE 20,000 20,000 20,000 Psychology 0.4 FTE 62,345 62,345 62,345 Social Work 0.2 FTE 22,638 22,638 22,638 Admin 0.1 FTE 6,223 6,223 6,223 Social Work 2.0 FTE 207,524 207,524 207,524 318,730 318,730 318,730 Total – Other Funding Sources Note - additional program dollars exist via ROHCG and Hôpital Montfort Programs Table does not reflect administrative infrastructure provided by organizations, nor does it reflect the range of other programs clients have access to at CMHA e.g. nursing, concurrent disorders groups – CMHA contributes 6 hours psychiatry/month and 15 hours case manager time/week to the DBT program Partners have agreed that student placements will be actively used in this program as a way in which to build capacity with no additional funds required for the program. Note on psychology from TOH – provided as part of annual global funding. IS THIS REQUEST A PRIORITY FOR YOUR ORGANIZATION IN FISCAL 2012-13? If yes, please describe why this issue is a priority for your organization and why it should be completed in 2012-13. If you have submitted more than one HSIP during the current fiscal, please identify which has the highest priority. DBT services typically serve people who have had high levels of service use, often with little success. The experience of the TOH DBT full program has been consistent with the literature in finding that patients with BPD benefit from access to appropriate services rather than defaulting to repeat Emergency room presentations and inpatient admissions/readmissions. The wind up of this pilot program presents the system with an urgent need to secure ongoing, stable funding to ensure that these individuals continue to have access to appropriate services. Borderline personality disorder affects 1% of the population (Lenzenweger et al.2007). It accounts for 10% of mental health outpatients and 20% of psychiatric inpatients (APA, 1994; NICE 2009). It is also often associated to trauma. While BPD affects men and women equally in the clinical population women outnumber men 3:1. (Links, Heslegrave & Van Reekum, 1998). It results in significant morbidity, including significant problems in relationships, parenting and employment. Individuals with BPD have repetitive self harm, and are at increased risk of many co-morbid disorders Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 10 including, depression, eating disorders, substance and alcohol dependence and anxiety disorders, anxiety disorders and PTSD (Linehan, 1993). DBT involves group skills training, individual therapy, telephone coaching and therapist consultation team. Our therapists received DBT intensive training through Behavioral Tech, which was founded by Marsha Linehan, the developer of DBT. DBT is an empirically validated program for treatment of BPD that has been shown to reduce suicide and self harm behaviors, improve treatment retention, reduce hospital ER visits and inpatient admissions, and improve overall quality of life. It has the most extensive research supporting its effectiveness of any of the empirically validated treatments for borderline personality disorder (Miller et al, 2007). Case Study - Ms B Ms B first presented to TOH in June 2006: she had a 12 day hospitalization due to depression and suicide attempts. Prior to being admitted to TOH, she had a 2 month day hospital stay and a 4 month inpatient admission overseas. She had returned to Ottawa following these treatments, but was unable to return to work. Ms B had a history of depression since her teens, bulimia nervosa since her 20’s and a 10 year history of repetitive self-harm (cutting). She was diagnosed with BPD during this hospital admission and was referred to the TOH DBT program. In September 2006,Ms B started the DBT-full program at TOH. She participated in the DBT skills group at TOH and her individual counseling with a community psychologist who was affiliated with the DBT program. Following completion of the DBT program in April 2008, she returned to University and completed an honors degree and her masters. She is now gainfully employed in another career, is married and has a child. She has not had any further psychiatric admissions. She was seen in outpatient psychiatry once per month from 2009- 2010 and then every three months. She has also received treatment from the perinatal psychiatry program. An extensive community consultation process was undertaken by Ottawa partners to better understand what services are currently available to people with BPD, what’s working well, where service gaps exist, and what services were of the highest priority. Incorporating partner survey and client/patient survey findings, together with stakeholder meetings, a working group undertook a priority setting exercise, identifying three main priorities for improving care for people with BPD in the Ottawa region: Improved access to services, Education and Coordination of Services. Provision of DBT and DBT-lite was identified as the highest sub-priority within the access to services priority. This in-depth consultation process presented partners with evidence-based research that emphasizes: 1) Specialized treatment for BPD exists, 2) there is good evidence that it works, and 3) it may save money when compared to treatment as usual. Participants also prioritized the importance of global system coordination, and the ability to match services to an individual’s needs and severity of illness. This HSIP includes a request for one-time funding to create a Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 11 coordinated access approach to ensure clients access the right type of DBT service at the right time with the right provider. The Champlain LHIN has identified in the 2013-2016 Integrated Health Service Plan mental health and addictions as a key result area. Over the next three years, the Champlain LHIN is committed to work with its partners so that more people with mental health conditions and addictions have access to services: “For more people with mental health and addictions to have access to services, a system that is responsive and efficient is needed. We need a system so that people are not entering at multiple points, services are not duplicated, that appropriate services are delivered when needed and with a quality that provides the best possible outcome”. Specifically, the LHIN will be monitoring two indicators to assess the degree to which this area is being impacted: • Rate of repeat visits to hospital emergency rooms for mental health conditions and / or addictions • Hospital readmission rates for mental health conditions and / or addictions within 30 days (unplanned readmissions). As noted in the indicators sections, these will be central to monitoring progress of the DBT range of services. SECTION 4 – ALIGNMENT WITH LHIN PRIORITIES Note – In 2011-12 the Champlain LHIN implemented an updated Decision-Making Framework as part of the proposal review process. The following questions are directly related to the scoring metrics in this framework. Please reference sources where appropriate. ALIGNMENT WITH CHAMPLAIN LHIN PRIORITIES Please describe how your proposed service change will help advance one or more priorities or goals in the Champlain LHIN Integrated Health Services Plan and/or Annual Business Plan and/or Champlain eHealth Strategic Plan and/or Decision Support Strategic Plan by completing the following table. Note – Please see www.champlainlhin.on.ca for a copy of these reports. Priority/Goal People with BPD or BPD traits Impact of Project Reduction in emergency room visits People with BPD or BPD traits Reduction in hospital readmission rates Performance Measure Number of ED visits and repeat visits per year by project clients Number of hospital readmissions post-discharge by project clients Source of Data Patient registration system at hospital and client charts Patient registration system at hospital and client charts Case Study – Ms C Ms C was referred to the DBT-full program by the TOH eating disorder program as she was unable to complete the eating disorder program due to frequent suicide attempts. She had also attempted the day hospital program but was unable to complete this program due to suicide attempts. Ms C’s diagnoses included Bulimia Nervosa, PTSD, chronic depression and alcohol use disorder in addition to BPD. She had chronic suicidal ideation since the age of 13. Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 12 From August 2010 to Nov 2011 Ms. C received full DBT at TOH. Treatment included individual and group therapy and telephone consultation. Following the completion of DBT treatment Ms C disclosed that she had continued to consume alcohol heavily throughout DBT treatment. She was ready to engage in treatment for alcohol dependence which she did at a local addiction program. Ms C continues to be seen once per month for out patient follow up and twice per month for DBT graduate group. She has been able to remain abstinent from alcohol. During the course of DBT, Ms C found out that she has ankylosing spondylitis and has had some challenges managing this illness. Despite this she is attempting to return to work with her former employer. April 2008- Aug 2010 DBT Aug 2010 to Nov 2011 Nov 2011 to June 2012 ER visits psych 31 ER visits medical 3 Inpatient admissions Inpatient days Outpatient visits 12 20 59 Day Hospital Program 8 4 11 5 9 127 0 7 14 5 4 23 0 ALIGNMENT WITH HEALTH SERVICE PROVIDER MANDATE Please provide a brief description on how this proposal is aligned with your role within the health system. CMHA Ottawa CMHA Ottawa works with individuals with serious mental illness (SMI), complex needs and co-occurring substance use disorder who are homeless or vulnerably housed and fit the Intensive Case Management Standards of Practice (Ministry of Health and Long term Care). DBT involves group skills training, individual therapy, telephone coaching and therapist consultation team. Our therapists received DBT intensive training through Behavioral Tech, which was founded by Marsha Linehan, the developer of DBT. This service has been extended to Mental Health Community Support Services (MHCSS) partners as agency resources permit DBT is an empirically validated program for treatment of BPD that has been shown to reduce suicide and self harm behaviors, improve treatment retention, reduce hospital ER visits and inpatient admissions, and improve overall quality of life. It has the most extensive research supporting its effectiveness of any of the empirically validated treatments for borderline personality disorder (Miller et al, 2007). Also see: http://www.nice.org.uk/nicemedia/live/12125/43045/43045.pdf Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 13 http://summaries.cochrane.org/CD005652/psychological-therapies-for-borderline-personality-disorder The program works closely with CMHA’s concurrent disorder program as well as the cognitive restructuring (CR) practitioners. All DBT practitioners are trained in motivational interviewing and CR, concurrent disorders (CD), ASSIST ,SUICIDE care ,CPR, first aid and defibrillator training, all have undergone a mandatory 5 day standardized case management training as well as NVCI( non-violent crisis intervention training) as well as formal intensive DBT training. Practitioners have a minimum of 3 years working with the homeless ,are masters prepared and can be registered with a professional college Supervision: CMHA practitioners attend 2 separate clinical consultation teams1) internal with clinical support from a DBT trained psychiatrist 1)external with a multi-disciplinary team of community and hospital based practitioners .This participation in a weekly consultation team adheres to the fidelity of the treatment Various recognized psychometric tools are used to screen ,assess and monitor participants : DIB,OCAN &IAR, Self harm inventory, suicide risk assessment MCAS,AUS,DUS,BSL,OQ-45.2 ,CMHA DBT screening tool. Case management DBT knowledge base and staffing have been under significant development and the practice has been validated: this model is highly effective and economical (Cochrane 2012) and see article by (Shelley F. McMain and Paul S. Links 2012 featured in:ojp.psychiatryonline.org The program is developing a peer led graduates group to provide ongoing support. There is an established DBT –s group ( focus on substance use ). Expertise with the DD population is being developed in conjunction with the CMHA Brokerage program . CMHA works with the Universities to provide placements for MSW students, nursing students and counseling students. Quality standards defined in the CMHA M-SAA (Multi-Service Accountability Agreement) with the Champlain Local Health Integration Network are met (LHIN Program evaluation: CMHA has been working with Ottawa University’s psychology department to facilitate a PhD student placement to evaluate the DBT program. THE OTTAWA HOSPITAL The Ottawa Hospital has played a leadership and facilitation role in developing a range of DBT services available to the City of Ottawa, and broader Champlain LHIN area, for many years. In addition to working in close partnership with CMHA Ottawa to ensure a continuum of DBT services are available to residents, TOH provides a broad array of inpatient and outpatient mental health services to the community, in addition to sponsoring key community services such as the Ottawa Mobile Crisis Team. As noted, DBT services can play a crucial role in reducing ER visits and inpatient readmissions – both key indicators relating to health system sustainability and quality of client outcomes. TOH has allocated global funding towards DBT services for eight years through a mixture of psychiatry (also funded through OHIP billing), psychology, social work and admin staffing. Together this team has provided the following services: Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 14 Completed pilot - DBT Full: 2.5 hour DBT skills training group. Occurs weekly. Total time per group 3.5 hours – includes prep/debriefing/crisis assessments/notes. Duration 12 months DBT Grad: Twice a month. 1.5 hour group. Total time 2 hours. Duration: open group DBT Individual: 1-1.5 hours per week direct patient contact. Telephone coaching/notes require an additional 0.5 hours (average) per week. Duration 12 months DBT lite: 2.5 hour group. Total time required 3.5 – 4 hours. Prep/debrief/notes as for DBT full, but more crisis assessment as patients in group have community therapists. Duration 6 months Working with Emotions group (part of TOH Urgent Consultation Clinic/UCC) - DBT based skills training group. Open to all UCC referrals. On average 1-3 patients in group with BPD. Group is 12 weeks. Staff have contributed additional volunteer hours towards ensuring continuation of service provision, including on-call support to existing patients. Extensive and rich patient data has been maintained through the charting process. FAMILY SERVICES OTTAWA Family Services Mental Health Program The Mental Health Program is a counselling program available to individuals living with a serious, long term mental illness. Services are provided to an average of 250 clients per year. The age range of clients is 18 - 75. The mental health challenges that clients are facing include mood disorders, Psychotic Disorders, Dissociative Disorders, Eating Disorders, and Personality Disorders. Many of the clients have ‘traits’, or have a diagnosis of Borderline Personality Disorder. Counselling staff are very experienced in providing services to persons living with a mental illness. As a program, the objective is to foster change through a focus on the issues and concerns that challenge the individual from being able to have healthy relationships, live in the community, and participate in community life. Approaches to providing counselling services are client-centered and recovery based; counselors integrate the concepts of therapeutic change with practical skill based programming. Counselling services are grounded in research based practices, and incorporate the newly emerging findings of neuroscience research and its implications for practice interventions. The program is well situated to provide individual therapy support for clients in DBT groups; this project will assist in maximizing staff skills, with an additional clinical resource that will increase individual effectiveness in providing services to individuals living with the challenges of BPD. ROYAL OTTAWA HEALTH CARE GROUP The ROHCG has a history in provision of DBT and Emotion Regulation type groups, both at their Brockville site, and at their Ottawa site. There is recognition that clients can have co-morbid diagnoses with BPD or BPD traits which can impact their prognosis unless properly treated. Currently, the Royal Ottawa Mental Health Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 15 Centre provides, for people who are active patients, an Emotion Regulation DBT skills training through a combination of psychiatry, psychology and social work. These are provided as part of their overarching Women’s Mental Health initiative funded through a private donation (not part of their annualized global funding). In addition, the Youth mental health program has a Behaviour Tech trained DBT team, providing DBT group skills training and concurrent DBT individual psychotherapy. Although the ROHCG recognizes the need for additional development of the capacity of DBT services to reflect client needs, the ROHCG will continue to support the endeavors of expanding DBT services and support this HSIP as a first step in improving services. IMPACT OF PROPOSAL ON THE CLIENT EXPERIENCE Please describe how this proposal will improve continuity of care, safety, effectiveness, access to services, client empowerment and/or client experience with the health system by completing the following table. Nature of Impact Increase access to services; reduction in utilization of other clinical services Performance Measure Programs’ Wait list (as monitored by project partners) ER utilization Inpatient Admissions Patient satisfaction Source of Data Organizational data – wait list Hospital data/patient registration system Satisfaction surveys HEALTH SYSTEM SUSTAINABILITY Please describe the health care system efficiencies to be gained in quantitative terms on an annual basis (e.g. # visits, # patients, monetary terms, impact on human resources over time). Outputs/Outcomes Reduction in repeat admissions Reduction in inpatient admissions Increased housing placement Performance Measure Repeat admissions post-discharge from inpatient unit or ER Admissions to inpatient units # of clients who secure housing # of clients who maintain housing (6+ months) Increased stability and quality of life Source of Data Hospital data/patient registration system Hospital data/patient registration system CMHA client management system Patient/client and clinician reporting using OQ-45 Case Study - Mr. D Mr. D was referred to the DBT-full program by the psychiatrist in the immunology program at TOH where he was followed for treatment of HIV. He was referred for treatment of impulsive behaviours including unprotected sex and problems managing anger. He had previous diagnosis of THC and alcohol dependence and had received treatment through a local addictions program with some success, but continued to use THC regularly. He had attended a local anger Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 16 management program following a domestic assault. Lastly he had been followed by a counselor at a local family service agency for three years. At the start of DBT he identified his goals as: 1) being involved in a monogamous, long term relationship with a partner who was aware of his HIV status, 2) improving nutrition and exercise including quitting THC use and 3) maintaining full time employment. Mr D received DBT- full – including individual therapy, group therapy and telephone consultation – at TOH from Nov 2011 to Nov 2012. At the completion of the program he had been successful in all three of his goals. He continues to receive outpatient follow up every 2-4 weeks at TOH. INTEGRATION OF SERVICES Please describe the extent to which this proposal would improve the coordination of health care among health service providers to ensure continuity of care in the local health system and provision of care in the most appropriate setting. All partners are committed to developing a mechanism for coordinated access to the range of DBT services. A working group will be struck with representatives from CMHA Ottawa, ROMHC, TOH, FSC, as well as Client and family representatives to work through the following issues: The most appropriate model to facilitate coordinated access Address how regional access to services will be incorporated in the model Identify how language capacity and cultural competency will be built into the model Identify how information will be shared and data managed across partners Determine how partner communication, and system-level monitoring of the access will occur Ensure the full range of partner services are consulted e.g. eating disorders, substance use, based on the client profile of people with BPD or BPD traits The objectives of the coordinated access mechanism are to: Shorten the time from which a person is referred for assessment, to the point at which they are screened (triaged) for level of need and service type needs, Improve differentiation of people to the services based on their needs, Maximize resources available by ensuring lower-intensity services are used as clinically appropriate and as part of the person’s treatment staging Identify how the person will be supported prior to initiation of service Improve client satisfaction in accessing services, Improve retention rates from time of assessment to time of service initiation, Develop system referral protocols for the coordinated access mechanism for use by other mental health services, addictions services, and allied health and social service sectors, Collect system level information about wait lists and where specific evidence-based service types or approaches lack capacity or do not exist, and Increase the number of opportunities for cross-organization training and knowledge-building activities; for example, cross-training. As part of this process, the working group will also consider what additional groups might support people with BPD or BPD traits: specifically, there is an emerging model first developed via St. Michael’s Hospital Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 17 in Toronto, and currently being implemented in a co-facilitation model with community mental health and Peer Support organizations that requires further review and understanding. ANALYSIS OF ALTERNATIVES Please describe any other initiatives considered and why this option was chosen. Partners have been engaged in discussions for years, developing the optimal range of DBT services and the most appropriate partners to provide these services. The success of the TOH DBT-full pilot provided the impetus for the development of this HSIP. This pilot is now complete, and the success of the pilot, consistent with the literature on BPD, demonstrates that investment in this treatment for individuals with BPD benefits these individuals and has impact at the ED and inpatient level. Concurrently, partners recognize that the next phase of work must examine how best to coordinate the range of available services, ensuring that clients have access to the most appropriate type of DBT services. They are fully committed to developing a system access mechanism that helps clients be linked to the right service, with the right provider, as determined by their needs. INTEGRATION OF INNOVATIVE PRACTICES Please describe how you have leveraged leading practices and/or innovation in your proposal. Please refer to Appendix C, as well as Appendix D which presents a summary of the community consultations that were undertaken in 2011. ASSESSMENT OF RISK OR BARRIERS Please describe any risks or barriers identified that may impact the implementation of this proposal by the HSP (incl. financial, reputational, policy, legislative, etc) Type of Risk or Barrier Insufficient funding would limit the capacity of services to meet the needs of clients Access to services and understanding which client profile fits with which service type could be challenging Having sufficient resources in place to properly measure the true impact of DBT services on hospital utilization Risk Level Moderate Moderate Low Mitigation Strategy Unknown at this time – planning has included discussion of how to use residents or students as part of the overall program. There are also opportunities to examine how overall system capacity could be built through expansion of training and consultation roles at TOH and CMHA Ottawa Creation of working group to develop a mechanism for coordinated access to the range of DBT services Integration of a system research assistant to assist in data collection and analysis to help in guiding program development IMPLEMENTATION TIMELINE Please describe the major activities for the first year of the project. Please ensure that you indicate the expected start date for service delivery (if applicable). Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 18 Activity Lead agency/partnership agreement Staff recruitment/hiring Coordinated access working group struck Development of protocols – Distress Centre of Ottawa and TOH for afterhours calls Distress Centre of Ottawa Training Staff training/orientation New staff begin integrating in existing DBT services and individual client contacts Begin running additional DBT groups Start Date Completion Date September 1 September 1 September 1 October 30 October 31 Ongoing September 30 October 1 November 1 November 1 October 31 January 30, 2014 Beginning February 2014 SECTION 5 – TARGET POPULATION Note – In 2011-12 the Champlain LHIN implemented an updated Decision-Making Framework as part of the proposal review process. The following questions are directly related to the scoring metrics in this framework. Please reference sources where appropriate. POPULATION OF FOCUS Please describe which LHIN population will benefit from this proposal. Please highlight the impact on any populations where there is a known health status gap (i.e. Groups defined socially, economically, demographically, culturally, linguistically or geographically). Please specifically highlight the impact on the francophone or aboriginal populations. In determining the impact on the populations of focus, please consult the Health Equity Impact Assessment and the Francophone Assessment tools available at www.champlainlhin.on.ca. The DBT range of services, while focused in the City of Ottawa, are available to clients throughout Champlain. Additionally, TOH and CMHA Ottawa provide training and consultation support throughout the region, and would continue to do so in an expanded way if funding is received. The Montfort Hospital, which provides DBT services to the francophone population, will be closely engaged in the implementation process. Partners also recognize the opportunity to build close working relationships with Youth Services Bureau, recognizing that the younger population presents particular challenges and opportunities with respect to DBT services. IMPACT ON POPULATION HEALTH Please describe any expected impacts on client health outcomes, quality of life, risk of adverse events, injury prevention and/or health promotion by completing the following table. Nature of Impact Performance Measure Source of Data Partners have agreed that the Outcome Questionnaire-45 (OQ-45) will serve as the basis for measuring client impacts at a health outcomes and quality of life level. The OQ-45 will be used to measure the impacts, over time, on a number of indicators, including: Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 19 Interpersonal relationships Suicidal and self-harming behaviours or actions (data will be augmented using the Self-Harm Inventory as well) Feelings of depression Substance use Social functioning School and work functioning COMMUNITY ENGAGEMENT ACTIVITIES Please describe any community engagement activities you have conducted to date, or plan to conduct if this proposal is approved. Please highlight any engagement with the francophone or aboriginal communities. In addition to the extensive community consultation that was undertaken in 2011, HSIP partners propose the establishment of a working group that would focus its activities on coordinated access. Partners would also continue to meet to monitor the implementation and ongoing operations of the range of DBT services available – some additional partners that will be engaged through this process (either through ongoing or periodic participation) include: Youth Services Bureau Ottawa Mobile Crisis Team and Distress Centre of Ottawa Addictions Services – specifically the Ottawa Addictions Assessment and Referral Services Eating Disorders Program Wabano Health Services Ottawa Network for BPD (family members) Elizabeth Frye and John Howard Mental health and addictions services in the counties (Renfrew, Eastern, and Lanark) Following acceptance of the HSIP, the existing DBT Committee membership will be refined to reflect additional key partners. Below outlines audiences and communications strategies that will be utilized on an ongoing basis. Audience To Whom? List recipients of the information. Information Needs What? State what information will be communicated. Format & Timing How? When? How often? Explain method & frequency. Clients and family members Service information Partner websites Coordinated access mechanism Service Brochure Mental health and Addictions service providers Ongoing reports on implementation and operations Monthly – through the Addictions and Mental Health Network Meeting Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 Responsible Who? Identify who will provide information. DBT Committee Lead identified by DBT partners 20 Audience Partner groups: Aboriginal health services Mental health service providers Housing/homelessness service providers Primary Care providers – including Family Health Teams, Family Health Groups, Community Health Centres and the OMA Emergency Departments Non-LHIN funded services e.g. Ottawa BPD Network, Elizabeth Frye, John Howard Children and Youth Services Other LHIN Information Needs Format & Timing Responsible Ongoing reports on implementation and operations of the DBT services Periodic Lead from the DBT Committee Report on implementation progress Using LHIN identified templates as required on a quarterly basis Lead agency with support from the DBT Committee SECTION 6 – CAPITAL FUNDING REQUESTS In accordance with the Community Capital Projects Directive issued by the Ministry of Health and Long Term Care on May 1, 2012, the Champlain LHIN must not fund or approve any projects without first obtaining approval from the Ministry of Health and Long Term Care for the following: Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 21 All projects (including both leasehold and owner funded) with a value of over $100,000 (as outlined in the Ministry’s Capital Planning Manual, 1996) and the provision set out in the MOHLTC-LHIN Joint Review Framework for Early Capital Planning Stages Toolkit, November 9, 2012; or Where the value is less than $100,000 and where there is space utilized for the provision of primary care and/or allied health care services as part of the project, regardless of capital funding source(s), including Own-Funds Capital Projects and projects funded by LHINs. Please see www.champlainlhin.on.ca under the Health Service Providers section for more details on how to submit requests for projects of this nature. SECTION 7 – PREVIOUSLY FUNDED PROPOSALS Note – This section may not be applicable for all proposals. Please contact your Champlain LHIN specialist with any questions. OUTCOMES FROM PREVIOUS PROJECT PHASES If components of this proposal have received previous funding from the Champlain LHIN or other sources, please describe the nature of this funding and the outcomes achieved. Please include a description of any funding received for planning activities related to this proposal. Note – It is not necessary to attach all project documents and reports that have previously been submitted to the Champlain LHIN. SECTION 8 – CHANGES TO SERVICES PROVIDED Note – This section may not be applicable for small capital proposals. Please contact your Champlain LHIN specialist with any questions. CHANGES TO SERVICE TARGETS Please complete the following table. Please consult the OHRS guidelines at www.mohltcfim.com if you are not familiar with functional centre names and definitions for any new services. OHRS Functional Center Code 725 10 76 12 725 10 76 12 725 10 76 12 725 10 76 12 725 10 76 12 OHRS Functional Centre Name MH Counseling and treatment MH Counseling and treatment MH Counseling and treatment MH Counseling and treatment MH Service Activity Service Activity Fiscal Unit 2013/14 (# units) Individual weekly 40 contacts – CMHA Group contacts – 12 group DBT- M – CMHA sessions Group contacts 12 group – DBT-S Group sessions CMHA Group contacts – n/a DBT-M – FSO Counseling 40 Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 Annualized Budget (# units) 640 Individuals Served Fiscal Annualized 2013/14 (# Budget (# clients) clients) 4 16 24 group sessions 48 group sessions 8 8 8 8 24 group sessions 320 0 8 4 8 22 Counseling sessions – FSO and Treatment 2013/14 figures - based on staff taking clients in Q4 FSO – based on individual counseling beginning in Q4 with weekly counseling sessions (total of 40 sessions per client per year in order to account for cancelled appointments and vacation. Groups will be co-facilitated with CMHA but training time will take place in 2013/14, allowing for beginning groups in 2014/15. See below for increases through TOH. Note – This information may be used to update existing Service Accountability Agreements if funding is provided for this proposal. CMHA Ottawa and FSO – Summary of Changes Current Volumes Additional Volumes DBT-M 2 groups 16 1 group 8 – CMHA 1 group 8 - FSO DBT-S 1 group 8 1 group 8 DBT-grad 1 group 8 1 group 8 Workers group 2 Workers only 2 Workers only Focus group 1 Workers only Individual 7 clients 16 – CMHA Therapy 8 - FSO Assessment: Case 36 /yr 50 workers Assessment MD 20 Total Volumes 4 groups 32 clients 2 groups 2 groups 4 groups 1 group 31 clients 16 clients 16 clients 80 20 The Ottawa Hospital – Summary of Changes DBT Full DBT Therapy Consults Future Groups 2 running concurrently Individual therapy runs concurrent to DBT Full Current Patients Future Patients 8 16 7 30 1 group run twice per year Open group 16 90 # Contacts/client 52 (weekly contact in group for 1 year) 52 (weekly individual therapy for clients in DBT Full groups) 90 26 (weekly contact in group for 6 months) Total Client Contacts 832 (i.e.52*16) 832 90 416 DBT lite Group 16 16 DBT Grad Group 8 16 DBT Grad Follow Up Open group 0 8 Total 5 69 162 Currently, there are about 70 patients serviced in three groups – this HSIP increases that to 162 per year Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 23 •Group/Working with Emotions – 12 weeks - TOH •DBT Lite – 6 months - TOH •Emotion regulation skills training – Women’s Mental Health/Meadowcreek ROMHC •DBT Lite - Hopital Montfort Moderate Intensity • DBT Full: Group and individual therapy – 12 months - TOH • Group/DBT Modified – 24 weeks – CMHA • DBT M-Individual – 48 weeks - CMHA • Individual therapy - Family Services Ottawa (in concert with CMHA group and case management therapies) • Group/DBT S – 24 weeks - CMHA High Intensity •Group/DBT Grad – open - TOH •Group/DBT Aftercare – 48 weeks - CMHA Low intensity CHANGES TO FTE Please complete the following table. Please consult the OHRS guidelines at www.mohltcfim.com if you are not familiar with functional centre names and definitions for any new services. OHRS Functional Center Code Ex. 7* 5 82 45 OHRS Functional Centre Name Assisted Living Services 725 10 76 12 Counselling and Treatment Counselling and treatment 725 10 76 12w Functional Center Service Fiscal Activity Unit 2012/13 (# FTE) Inpatient / 0.75 Resident Days Annualized Budget (# FTE) 1.5 Type of FTE Description of FTE (ie. Admin, RN, PSW, Physician, Case Manager, etc) PSW 2.0 188,630 Case manager 1.0 66,700 Social work/ psychotherapist Note – This information may be used to update existing Service Accountability Agreements if funding is provided for this proposal. Additional Staffing Changes – The Ottawa Hospital: Current Staffing Levels Proposed Staffing Psychiatry 0.6 FTE 0.8 FTE Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 Difference FTE 0.2 FTE 24 Psychology Social Work Occ Therapy RN Admin Supplies Social Work RN Total 0.4 FTE 0.2 FTE 0.0 FTE 0.0 FTE 0.1 FTE 0.6 FTE 0.6 FTE 0.6 FTE 0.6 FTE 0.4 FTE 0.2 FTE 0.4 FTE 0.6 FTE 0.6 FTE 0.3 FTE On-Call 0.0 FTE On-Call 0.0 FTE 1.35 FTE 0.2 FTE 0.2 FTE 4 FTE 0.2 FTE 0.2 FTE 2.65 FTE OTHER PERFORMANCE METRICS Please complete the following table to identify any other performance metrics that will be used to assess success of this project. Outputs/Outcomes Performance Measure Source of Data Note – This information may be used to update existing Service Accountability Agreements if funding is provided for this proposal. The following is a DBT Checklist (already in use by CMHA Ottawa and TOH) that summarizes the range of tools used in assessing client impact before, during, and after completion of DBT “Full” services Baseline-Referral and Screening TASK Integrated Referral Form (beige one) Multnomah Score (MCAS) AUS rating DUS DBT Screening Form Borderline Symptom List (BSL) DBT Entry Interview Self Harm Inventory DBT program agreement DBT Evaluation Consent Form Case conference date CSW (initial) DBT (initial) Middle DBT questionnaire (BSL) Self Harm Inventory Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 25 Outcome Questionnaire (OQ-45.2) Case Conference (if needed) End of DBT DBT Exit Interview Borderline Symptom List (BSL) Self Harm Inventory Outcome Questionnaire (OQ-45.2) Case Conference (if needed) AUS DUS Multnomah Score (MCAS) SECTION 9 – PROJECT COLLABORATION COLLABORATION WITH CHAMPLAIN LHIN PARTNERS OR NETWORKS Please describe any networks or partnerships that will be established or strengthened through this proposal and the role each partner or network will play. Partner/Network Role Involvement To-Date CMHA Ottawa Lead Agency Key partner in planning and delivery of DBT services DBT Management Committee Provides oversight of DBT services through a formalized partnership agreement n/a individual partners (TOH, FSO, ROMHC) have been meeting formally – may include additional representation from Hôpital Montfort, clients and family, Youth Services Bureau representatives depending on feedback received from those partners Expected Future Role Lead agency in fund administration and administrative oversight Provide system-level oversight of DBT services KNOWLEDGE TRANSFER Please describe how results of this project will be communicated with other providers in order to share knowledge with the broader region. Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 26 Delivery of DBT services and the organizations’ partnership will be promoted within the region through communication activities and, where possible, at provincial, national and international conferences. APPLICANT HSP CEO/ED: As the lead participant in this proposal I support the project described above and believe that the performance measures identified will help advance the priorities identified in the Champlain LHIN Integrated Health Services Plan and/or Annual Business Plan and/or Champlain eHealth Strategic Plan and/or Decision Support Strategic Plan. _________________________________________ ________________________ ___________________ TIM SIMBOLI SIGNATURE DATE Executive Director, CMHA Ottawa PLEASE HAVE AUTHORIZED PERSONNEL FROM ALL PARTNER AGENCIES ACKNOWLEDGE THEIR SUPPORT OF THIS PROPOSAL. PARTNER(S): As a partner in this proposal I support the project described above and confirm my role as described in Section 8. _________________________________________ ________________________ ___________________ CHRIS CLEMENT THE OTTAWA HOSPITAL SIGNATURE _________________________________________ ________________________ ___________________ JAN CHRISTENSEN EXECUTIVE DIRECTOR, FAMILY SERVICES OTTAWA SIGNATURE _________________________________________ ________________________ ___________________ GEORGE WEBER CEO, ROYAL OTTAWA HEALTH CARE GROUP SIGNATURE Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 DATE DATE DATE 27 Citations Bagge, C.L., Stepp, S.D., Trull, T.J. (2005). Borderline Personality Disorder features and utilization of treatment over two years. Journal of Personality Disorders. 19(4), 420-439 Barnow s, Spitzer C, Grabe HJ, Kessler C, Freyberger HJ. (2006) Individual characteristics, familial experience and psychopathology in children of mothers with borderline personality disorder. J Am. Acad. Child Adolesc. Psychiatry. 45 (8) 965-972 Bender DS, Dolan RT, Skodol AE, Sanislow CA, Dyck IR, McGlashan TH, Shea MT, Zanarini MC, Oldham JM, Gunderson JG. (2001) Treatment utilization by patients with personality disorders. American Journal of Psychiatry. 158(2) 295-302 Feldman, R., Zelkowitz, P., Weiss, M., Vogel, J., Heyman, M., & Paris, J. (1995). A comparison of the families of mothers with borderline and nonborderline personality disorders. Comprehensive Psychiatry, 36, 157-163. Gerull F, Meares R, Stevenson J, Korner A, Newman L. The beneficial effect on family life in treating borderline personality. (2008) Psychiatry 71(1) 59-70. Grilo CM, Stout RL, Markowitz JC, Sanislow CA, Ansell EB, Skodol AE, Bender DS, Pinto A, Shea T, Yen S, Gunderson JG, Morey LC, Hopwood CJ, McGlashan TH. (2010) Personality Disorders predict relapse after remission from a episode of major depressive disorder. A 6 year prospective study. J Clin Psychiatry 71 (12) 1629- 1635 Gunderson JG, Morey LC, Stout RL, Skodol AE, Shea MT, McGlashan TH, Zanarini MC, Grilo CM, Sanislow CA, Yen S, Caversa MT, Bender DS. (2004) Major depressive disorder and borderline personality disorder revisited: longitudinal interactions. J Clin Psychiatry. 65(8) 1049- 1056 Hobson RP, Patrick MPH, Hobson JA, Crandell L, Bronfman E, Lyons-Ruth K. (2009) How mothers with borderline personality disorder relate to their year old infants. British Journal of Psychiatry. 195 (4) 325-330 Kullgren G, Renberg E, Jacobsson L. (1986) An empirical study of borderline personality disorder and psychiatric suicides. Journal of Nervous and Mental Disease. 174(6) 328 -331. Main M, Hesse E. (1990) Parents’ unresolved traumatic experiences are related to infant disorganized attachment status: is frightened and/or frightening parental behaviour the linking mechanism? In Attachment in the Preschool Years (eds M. Greenberg, D. Cicchetti, M. Cummings): 161–82. University of Chicago Press Schuengel C, Bakermans-Kranenburg MJ, van IJzendoorn MH. (1999) Frightening maternal behavior linking unresolved loss and disorganized infant attachment. J Consult Clin Psychol ; 67: 54– 63. Moos R, Moos B (1986) The Family Environment Scale Manual (2nd ed). Pal Alto, CA: Consulting Psychologists Press. Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 28 Paris J, Zweig-Frank H.(2001) A 27 year follow up of patients with borderline personality disorder. Comprehensive Psychiatry, 42(6) 482-487. Runeson B, Beskow J. (1991) Borderline Personality Disorder in young Swedish suicides. Journal of Nervous and Mental Disease. 179(3)153-156. Zanarini, M.C., Frankenburg, F.R., Khera, G.S., Bleichmar, J.. (2001) Treatment Histories of Borderline Inpatients. Comprehensive Psychiatry. 42 (2) , 144-150 Zanarini MC, Frankenburg FR, Hennen J, Reich DB, Silk KR. (2004) Axis I co-morbidity in inpatients with borderline personality disorder: 6 year follow up and prediction of time to remission. Am J Psychiatry 161 (11). 2108- 2114 Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 29 Appendix A: BPD Symptoms A pervasive pattern of instability of interpersonal relationships, self-image, and affects, and marked impulsivity beginning by early adulthood and present in a variety of contexts, as indicated by five (or more) of the following: 1. Frantic efforts to avoid real or imagined abandonment. Note: Do not include suicidal or selfmutilating behavior covered in Criterion 5. 2. A pattern of unstable and intense interpersonal relationships characterized by alternating between extremes of idealization and devaluation. 3. Identity disturbance: markedly and persistently unstable self-image or sense of self. 4. Impulsivity in at least two areas that are potentially self-damaging (e.g., spending, sex, substance abuse, reckless driving, binge eating). Note: Do not include suicidal or self-mutilating behavior covered in Criterion 5. 5. recurrent suicidal behavior, gestures, or threats, or self-mutilating behavior 6. Affective instability due to a marked reactivity of mood (e.g., intense episodic dysphoria, irritability, or anxiety usually lasting a few hours and only rarely more than a few days). 7. chronic feelings of emptiness (or boredom) 8. inappropriate, intense anger or difficulty controlling anger (e.g., frequent displays of temper, constant anger, recurrent physical fights) 9. transient, stress-related paranoid ideation or severe dissociative symptoms In a Systematic enquiry of 50 dysphoric feelings compared to patients without BPD Zanarini 1998): BPD patients higher than non BPD on all 50 dysphoric feelings % of time spent feeling: Overwhelmed 61.7% Worthless 59.5% Very angry 52.6% Lonely 63.5% Misunderstood 51.8% Abandoned 44.6% Betrayed 35.9% Evil 23.5% Out of control 33.5% Like a small child 39.1% Like hurting or killing themselves 44% ( Co-morbidity: The following table summarizes the incidence of co-morbidity between BPD and other mental illness. “Overall” draws from Gunderson text, representing a compilation from several studies and includes inpatient and outpatient samples. The “Inpatients” column is from Zanarini (2004), using data from McLean hospital: 290 consecutive inpatients between the ages of 18 and 35 SCID, DIB-R, Diagnostic Interview for personality disorders. (Gunderson, Links 2008, Zanarini et al 2004) Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 30 Overall Inpatients (Zanarini 2004) Depression 50% 86.6 % Dysthymia 70% 44.8% Bipolar II 11% 5.5% Bipolar I 9% 0% (exclusion criteria) ED (AN, BN) 25% (5%/20%) 53.8% (21.7%/24.1%) PTSD 30% 58.3% SUD 35% 62.1% Alcohol only 25% 50.3% Panic Disorder 45.2% OCD 14.5% Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 31 Appendix B: DBT Continuum of Services All treatments are/have: Structured Weekly supervision, support for therapists Twice weekly sessions with patients Here and now focus Active therapist Emotion focus Psychoeducation about BPD DBT Program Review The Ottawa Hospital Staffing Psychiatry: 0.65 FTE Psychology: 0.4 FTE Social Work: 0.2 FTE Admin: 0.1 FTE Total: 1.35 FTE Funding $40K $20K – SW $7K – admin $49K Psychiatry via OHIP Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 The Canadian Mental Health Association Coordinator: 0.2 FTE Consultants: 0.2 FTE Community Mental Health and Dialectical Behavioural Therapy Worker: 1 FTE PLUS: (5)* 0.2 FTE = 1 FTE Admin: 0.1FTE Physical plant :rooms for all CMHA groups ,Graduates group from the Ottawa hospital and all clinical consultation teams CMHA and external group Total: 2.5 Per Group DBT Modified: 6 (2x 24 weeks) DBT M- Individual: 8 (48weeks) DBT S: 6 (2x24weeks) DBT Aftercare: 8 (48weeks) Royal Ottawa Mental Health Centre Position: Emotion Regulation: 0.1 FTE social work (includes admin time) 0.1 FTE psychology (includes admin time) Emotion Regulation DBT skills training: 0.1 FTE Psychiatry 0.1 FTE Social Work (includes admin time) Total: 0.4 FTE Per Group Emotion Regulation : 8-10 Emotion Regulation DBT skills training: 8 32 Total unique patients: 32 Total unique patients: 16- 18 Number of Patients on Average Per Group DBT Full:8 Patients/ Waitlist 30* (wait list reflects list prior to pilot completion) DBT Grad: 8* DBT Individual: 7 DBT lite: 8 Per Group DBT Modified: 6 (2x 24 weeks) DBT M- Individual: 8 (48weeks) DBT S: 6 (2x24weeks) DBT Aftercare: 8 (48weeks) Per Group Emotion Regulation : 8-10 Emotion Regulation DBT skills training: 8 Total unique patients: 32 Total unique patients: 24 Description of Each Group and Patient Population plus Waitlist (# of patients and length) DBT Full: 2.5 hour DBT skills training group. Occurs weekly. Total time per group 3.5 hours – includes prep/debriefing/crisis assessments/notes. Duration 12 months DBT Grad: Twice a month. 1.5 hour group. Total time 2 hours. Duration: open group DBT Individual: 1-1.5 hours per week direct patient contact. Telephone coaching/notes require an additional 0.5 hours (average) per week. Duration 12 months DBT lite: 2.5 hour group. Total time required 3.5 – 4 hours. Prep/debrief/notes as for DBT full, but more crisis assessment as patients in group have community therapists. Duration 6 months Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 DBT Modified: 2 hours DBT skills training occurs weekly Total time per group 3.5 hours – includes prep/debriefing/crisis assessments/notes. Duration 24 weeks x2=48weeks DBT M- Individual: 1 hour therapy :One on One DBT therapy after group sessions .1 hour per week plus 1 hour prep and notes Total 2 hours per week . 24 weeks running concurrently with DBT- M (2x24weeks) Total 48weeks Total unique patients: 16- 18 Emotion Regulation : weekly skills training group for women . Total 3.5 hours week – includes 2 hour group/ prep/debriefing/crisis assessments/notes. Emotional regulation skills training for women who have completed meadow creek substance use treatment program 3 hours a week includes 2 hour group/ prep/debriefing/crisis DBT- S: 1.5 hours skills training group occurs weekly Total time per group 3.5 hours – includes prep/debriefing/crisis assessments/notes. Duration 24 weeks x2=48weeks DBT Aftercare: 1.5 hours skills based mindfulness & healthy living group with peer facilitation component plus 1 hour notes and prep. Total 2.5hours Occurs 33 weekly for Total 48 weeks Consultation team :1.5 hour skills based group for workers (case managers and outreach workers) occurs weekly for all case managers that have clients in DBT-M skills group Total 3.5 hours prep and notes /runs concurrently with DBT-M (2 x24weeks )Total 48 weeks Referral Sources DBT- full: Inpatient, day hospital, OPD, eating disorders. Only TOH. Must be “high utilizers” – at least 1 TOH visit in past 6 months and SH or suicide attempt in past year. No active alcohol/substance dependence. DBT-Lite: community therapists. Must have community therapist who is willing to see patient weekly and provide crisis support during working hours. Patient must be in paid work/volunteer work/ school work/ parenting a minimum of 4 hours per week, preferably 20 hours per week. No active alcohol/substance dependence. Must NOT have had serious self injury or suicide attempt in past 6 months Referrals are generated internally from CMHA case management and outreach caseloads . Referrals are generated from Mental Health Community Support Services (MHCSS ) partners from their case management caseloads.( eg Salus, Project Upstream, YSB as well as from CHEO (transitional aged youth workgroup) Emotion Regulation: women are referred through Shared Care, Mood and Anxiety Disorders program. No active alcohol/substance dependence. Patients experience emotional dysregulation. Patients must have an open chart at The Royal. Emotion Regulation : women are referred through Substance Use and Concurrent Disorders Program. DBT grad group: open to any graduates of DBT who have found DBT useful. Open group. Must have treating clinician that they can see once per month. Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 34 Additional Information Working with Emotions group. Part of UCC. DBT based skills training group. Open to all UCC referrals. On average 13 patients in group with BPD. Group is 12 weeks. Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 Supervision :clinical consultation team for practitioners 1x per week for 1.5 hours (48 weeks) Research :partnership with the Ottawa University being forged Sessional fees :partnership with the Ottawa Hospital Partnerships: with MHCSS partners and Royal Ottawa hospitals for the training of facilitators and admission to the CMHA/ DBT team(.Salus and Royal Ottawa Hospital) have trained 1 clinician each and have joined CMHA DBT team in order to facilitate groups to allow for clients from their service to be admitted to DBT groups at CMHA ROMHC Youth Mental Health program also has Behavior Tech trained DBT team. provides DBT group skills training and concurrent DBT individual psychotherapy 35 Appendix C: Summary of the Evidence-Base for Dialectical Behaviour Therapy Theoretical Basis for BPD: Core feature of BPD is emotion dysregulation Bio (emotionally vulnerable temperament) transacts with Social (invalidating environment ) Bio: Emotionally vulnerable individual Sensitive, intense, slow return to baseline Transacts with Social: Invalidating Environment Indiscriminately rejects communication of private experiences (thoughts, feelings, urges) Intermittently reinforce escalation of emotional responses and display Oversimplify the ease of solving life’s problems and meeting goals Individual who is emotionally vulnerable and self-invalidates Impulsivity and interpersonal turbulence secondary to affect dysregulation 5 functions of comprehensive treatment: teach skills, improve motivation, ensure generalization to the natural environment, improve therapist skill and motivation, structure the environment Evaluation of DBT Overall, there have been better findings for psychotherapy studies (including DBT) for people with BPD or BPD traits as compared to medication studies: all studies include patients with substance abuse, meds, suicide and self-harm behaviours Results below summarize findings from 8 studies (Linehan 1991, 2006, Turner 200, Koons 2001, Verhuel 2003, McMain 2009, Linehan 1999, 2002), recognizing that there were differences in some of the studies with respect to the frequency of individual therapy, and other aspects of service delivery Comparing “Treatment as Usual”, some or most of the studies found that: DBT decreases suicide attempts and self-harming behaviours (frequency and severity) DBT increases retention in treatment programs DBT decreases number of hospital days In a randomized control trial of providing DBT versus General Psychiatric Management (GPM) for people with BPD: There were significant improvement across time; no between group differences on the following outcomes: Frequency of suicidal behavior ER visits # Days in Psychiatric Hospital BPD symptoms Anger Depression Symptom Distress Interpersonal functioning DBT saves slightly more in health care costs over pre-treatment costs ($9,653 versus $9,418 for GPM) and confers a higher improvement in quality of life Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 36 Currently all guidelines recommend that empirically based treatment is best for BPD. TAU shows benefit, but not as much as structured treatment. Structured treatment needs to be delivered in a program. All structured treatments appear to be equal. Why DBT over other structured treatments? largest evidence base is for DBT versus other structured treatments clear treatment manual, easily accessed ( although somewhat expensive) training available 1 study has shown that front line workers are able to learn this material ( as compared to specialists with years of training in BPD/therapy that are required for other treatments) training can be delivered to multidisciplinary teams, although some therapy training and experience with people with BPD is required has been shown to reduce treatment costs over pre-treatment year has been shown to reduce ER visits and days in hospital local expertise has been developed over past 8 years Should we consider having more than one BPD treatment available? Increasing choice of treatment likely improves adherence with treatment and overall outcome, but depends on size of centre, most Canadian centres only offering DBT Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 37 Appendix D: Summary Findings – Community Consultation This community consultation exercise was hosted jointly by The Ottawa Hospital and Canadian Mental Health Association-Ottawa and was held at the ROHCG on March 2 2011. The purpose of this meeting was to gather information from stakeholders in Ottawa who are involved in the care of people with BPD in order to find out what services are available, which are working well, what services are not available, what services are needed and which of the needed services are highest priority. The engagement exercise included two phases – phase 1 involved a survey which was forwarded to all attendees (in some cases there were multiple attendees from one institution, in that case only one attendee was asked to submit the survey). In addition to the survey from family members and mental health organizations a separate survey was done of patients/clients currently in the DBT program at the Ottawa Hospital. The results of this survey formed the basis for the engagement exercises. The results of this summary are included in this report. Phase 2 was a meeting with all stakeholders held at the ROHCG. Part 1 of the meeting included 4 presentations. The first presentation, by Dr Paul Links a Canadian researcher and an internationally recognized expert on treatment of people with Borderline Personality Disorder, addressed issues to be considered when developing an integrated system of care for people with BPD. The second presentation was given by Mr. Winston Revie head of Family Connections Ottawa – a not-for-profit Ottawa based organization run by family members of people suffering with BPD, The presentation included the personal experience of a family member of a person with BPD and then provided information about the groups run by Family Connections Ottawa. The third presentation by Dr Sarah Birnie C. Psych covered a survey of patients with BPD who were receiving treatment in the TOH –DBT program. Lastly, Dr Deanna Mercer presented a summary of the results of the premeeting survey. This information set the framework for the working group discussion and priority setting exercise. The members of the working group identified improved access to services, education and coordination of services as 3 highest priorities for improving care for people with BPD in the Ottawa region. With respect to services, access to specialized services and general mental health services were given a priority level of 5/5. With respect to specialized services improved access to Dialectical Behaviour Therapy (DBT) and DBT-lite were the highest priority. Access to other evidenced based treatments for BPD such as Mentalization Based Treatment rated slightly lower at 4/5. With respect to general mental health services, improved access to services such as youth outreach, psychiatric consultation and on-going care were given priority levels of 5, 4.5 and 4 making improved access to these services as important as access to more specialized services. These priorities were consistent with information presented by Dr Links – who emphasized: 1) specialized treatment for BPD exists, 2) there is good evidence that it works and 3) it may save money when compared to treatment as usual. Dr Links also identified the need for access to consultation for family physicians as an important component of an effective system of care. Education was also identified as a level 5 priority. The working group identified 3 key areas for training as important: Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 38 i) training in DBT for service providers (therapists and community health centre staff) ii) training for mental health clinicians who are supporting clients in DBT and iii) training for primary care teams. Dr Links echoed importance of education, both to improve the effectiveness of treatment provided and in order to change the prevailing negative attitudes about BPD. The third high priority area identified was the need for global system coordination and the ability to match services to an individual’s needs and severity of illness. This priority is in line with Dr Links’ reminder of the importance of defining levels of care for treatment of BPD. There is a wide spectrum of treatment needs in BPD – some people do well with outpatient services and follow up with their family physician, whereas others require more intensive services including intensive outpatient, case management and hospital based (ER, day hospital, inpatient) services. Additional points raised by Dr Links included the importance of identifying the needs of acute care services, such as emergency room and inpatient services, and the need to ensure that treatment programs address the functional capacity of individuals with BPD as well as treating symptoms and distress. The next steps identified were to complete the report of the meeting and to forward this to the working group participants as well as stakeholders, and finally to submit the findings of this committee to the LHIN. Respectfully submitted, Deanna Mercer MD FRCPC psychiatry Medical Director DBT pilot program, Associate Staff Department of Psychiatry, The Ottawa Hospital Assistant Professor, Department of Psychiatry University of Ottawa Helen Gottfried-Unruh Senior Manager, CMHA DBT Team Coordinator Champlain LHIN Health System Improvement Proposal Form, rev. May 2012 39