Friends In-Person-Meeting: The Whole is Greater than the Parts-Friends Together
Wednesday, November 12, 2014, 12pm-4pm
Renaissance Hotel, 999-9th Street, NW, Washington, DC
Meeting Room 12, 13, 14
Twitter hash tag: #FriendsNCBDDD
AGENDA
12:00pm-12:30pm Lunch: Welcome, Overview and Recognition

Adriane Griffen, Chair, Friends of NCBDDD

Coleen Boyle, Director, National Center on Birth Defects and Developmental Disabilities
12:30pm-1:10pm: Overview of the Center Thematic Areas: Accomplishments and Future Directions

Coleen Boyle
o Why NCBDDD matters?, Thematic area priorities, Strategic Health Initiatives
1:10pm-1:15pm: Strategic Health Initiatives: Your Feedback

Betsy Mitchell, Associate Director for Communication Science
1:15pm-2:00pm Friends Strategy Update Panel:
Moderator: Adriane Griffen

Communication Committee – Beverly Robertson, March of Dimes

Advocacy Coalition, Annie Acosta, the ARC

Family Outreach, Lynda Honberg, Family Voices
2:00pm-3:45pm Work Groups by Thematic Area --Working meeting with Champions and Center leadership
1. Saving babies through birth defects prevention and research

Champions: Diane Wilkinson; Kerri Wade; Communications Committee Rep: Beverly Robertson
2. Helping children live to the fullest by understanding autism and other developmental disabilities

Champions: Pat Johnson, Adriane Griffen; Communications Committee Rep: Beth Walker
3. Protecting people and preventing complications of blood disorders

Champions: Katie Verb, Randy Fenninger; Communications Committee Rep: Keith Hudson
4. Improving the health of people with disabilities

Champions: Sara Struwe, Roberta Carlin; Communications Committee Rep: Amy Rauworth
3:45pm-4:00pm Next Steps, Adjourn