Mental Health Information Development Expert Advisory Panels Secretariat: Australian Mental Health Outcomes and Classification Network NSW Institute of Psychiatry Locked Bag 7118 Parramatta BC NSW 2124 Tel: 02 9840 3833 Correspondence to: rosemary.dickson@nswiop.nsw.edu.au Response to the Independent Hospital Pricing Authority (IHPA) Consultation Paper for the Definition and Cost Drivers for Mental Health Services Project The Mental Health Information Development Expert Advisory Panels were established by the Department of Health and Ageing (DOHA) in late 2009 to provide clinical and technical advice to the Mental Health Information Strategy SubCommittee (MHISS) on issues and priorities that guide the development of the national mental health information agenda. The Expert Panels comprise: the National Mental Health Information Development Expert Advisory Panel (NMHIDEAP) and four population specific Panels - Child and Adolescent Mental Health Information Development Expert Advisory Panel (CAMHIDEAP), Adult Mental Health Information Development Expert Advisory Panel (AMHIDEAP), Older Persons Mental Health Information Development Expert Advisory Panel (OPMHIDEAP), and Forensic Mental Health Information Development Expert Advisory Panel (FMHIDEAP). The primary function of the National Panel and Advisory Panels is to provide advice on the continued implementation, use and modification of routine outcome measurement in Australia’s specialist mental health services, particularly in regard to training, service and workforce development issues and advice on analysis and reporting of National Outcomes and Casemix Collection data to advance the understanding and application of outcomes and casemix concepts. The Expert Panels are also tasked with providing advice on emerging issues pertaining to the information development agenda in mental health, including activities that enhance the capacity of the mental health sector to improve service delivery. The following response is provided by the National Panel on behalf of that Panel and the population specific Advisory Panels. Some particular issues have been identified by CAMHIDEAP as they relate to child and adolescent mental health services and these are separately noted where appropriate. Dr Rod McKay Chair National Mental Health Information Development Expert Advisory Panel 5 December 2012 1 Consultation Question 1: Is a Mental Health Care Type the best way of encompassing those admitted services that should form part of a new national mental health classification? If not, what alternative would you propose? The Expert Panels agree with the establishment of a national Mental Health Care Type. Consultation Question 2: What should be the criterion, or criteria, for the definition of services within a national Mental Health Care Type? The Expert Panels note that a criterion would be patients with a primary diagnosis of a mental health disorder receiving specialist mental health care. This must be evidenced by evidence in the clinical record of specialist mental health assessment and care planning, and by collection of a minimum set of data required for assessing and monitoring the patients care, such as the National Outcomes and Casemix Collection (NOCC). It should be noted that there are a significant proportion of clients seen by child and adolescent mental health services that are categorised by the ICD-10, Chapter XXI, z codes that should also be considered for funding purposes. This should include people with a primary cognitive or developmental disorder or substance abuse disorder with a secondary mental health diagnosis present. Guidelines along with training will be required for clinicians to appropriately code principal mental health disorder in the presence of a cognitive, developmental or substance abuse disorder e.g. a person with Alzheimer type dementia, who is admitted due to aggression and psychosis, should have a principal diagnosis of an organic psychotic disorder as the principal reason for admission, rather than dementia. Note that such a definition should NOT be limited to care from within formal Mental Health Organisations, but should be provided by services with a designated program providing mental health services. Such care could potentially be provided by clinicians with appropriate skills and resources outside such mental health organisations. This is particularly important within both aged and child and adolescent mental health. Consultation liaison provides a particular challenge to the rule set. Solutions for funding consultation-liaison activity should be consistent with decisions made in this regard within subacute classification systems. Mental health has significant investment in consultation liaison services and if this not specifically costed and funded historical trends suggest that this will not return to the services providing the mental health care. Consultation liaison may be provided where the mental health diagnosis is primary or secondary or sometimes absent. 2 Consultation Question 3: What community-based mental health services should be defined as mental health services for casemix classification purposes? Community-based mental health services that should be defined as mental health services for casemix classification purposes are those that provide primarily specialist psycho-social and clinical interventions with diagnoses that meet the definitions above. Episodes of mental health care received by people from those mental health services that contribute to the Community Mental Health Care National Minimum Data Set should be considered within scope for casemix classification purposes. The Expert Panels wish to note concerns about significant specialist mental health activities that could be inadequately funded if not considered as part of the ABF model. These activities include evidence-based preventive interventions, suicide prevention (e.g. work with families), health promotion, capacity building of non-health and other health services, training and evaluation research, telepsychiatry, forensic mental health providing consultation, children and adolescent accessing two types of care at once (e.g., patients with eating disorders accessing medical as well as specialist mental health care concurrently), evidence-based group programs, and work with special populations (e.g. forensics, Koori, homeless, refugees and out of home care children). The National Benchmarking Project, facilitated by the Australian Mental Health Outcomes and Classification Network (AMHOCN) in 2006-08 and examining six child and adolescent mental health services (CAMHS) across Australia, found that just over 26% of CAMHS clinical staff time was directed towards non-clinical activities including mental health promotion, community development, supervision, teaching and training, research, professional development and related travel.1 Consultation Question 4: Are there any services that are provided by specialised mental health units or programs that can be considered primary mental health? The Expert Panels support the following definition as provided in the “Definition and Cost Drivers for Mental Health Services: Consultation Paper”, p. 12: The first level of response or point of contact in a stepped care model, provided mainly by generalist health practitioners or other primary health professionals (but often with specialised support) to provide front line assessment, care planning, early intervention and, where appropriate, ongoing management. This applies to the full spectrum of mental health conditions but will in practice be focused more on the higher prevalence, lower severity illnesses. (Victorian Government). 1 "WHERE DID MY DAY GO?" SURVEY 2 – 2007 Summary Results, Child & Adolescent Mental Health Services Forum, Version 1.0, http://amhocn.org/static/files/assets/a0e244d6/camhs_staff_activity_survey_distribution.pdf, last accessed 04/12/2012. 3 Consultation Question 5: Should the mental health classification include alcohol and drug-related disorders? If so, is it the diagnosis or specialised treatment setting that is used as the decisive criterion for inclusion in the definition? The mental health classification should include alcohol and drug-related disorders, but in an initial scheme, this should be confined to those treated in a mental health setting, or meeting other criteria laid out for Mental Health Care Type above. As noted previously, guidelines along with training will be required for clinicians to appropriately code principal mental health disorder in the presence of a substance abuse disorder. Consultation Question 6: Should long-term non-acute bed-based clinically-staffed mental health public hospital services be classed as residential, admitted mental health or admitted maintenance care? Long-term non-acute bed-based clinically-staffed mental health public hospital services should be classed as admitted mental health care; noting that classification may need to consider type of location. Consultation Question 7: Should the Psychogeriatric Care Type continue to exist or should all of the mental health care of older people be defined as Mental Health for classification purposes? The concepts of the types of care outlined within the current definition of the psychogeriatric care type are important and there is an ongoing need for this care to be appropriately classified, counted and costed. However this should occur within Mental Health for classification purposes. This is required to overcome major difficulties that otherwise occur in delineating ‘acute’ and ‘subacute’ mental health care for older people for classifications purposes. There are no feasible reliable strategies that the Panel can advise to overcome these difficulties. The Panel would like to note that there are particular difficulties dealing with the issues of mental health care provided to people with dementia that are very difficult to identify, classify and cost. The mental health classification should be informed by the current psychogeriatric classification system. One of the main issues relates to determination of the principal diagnosis. As mentioned previously, a person with Alzheimer type dementia, who is admitted due to aggression and psychosis, should have a principal diagnosis of an organic psychotic disorder as the principal reason for admission, rather than dementia. It should be noted that coding and clinical practice regarding primary diagnosis show marked variability, and there is no widely accepted practice for coding Behavioural and Psychological 4 Symptoms of Dementia (BPSD). There is no ability to create a reliably interpretable definition of (subacute) psychogeriatric care that is distinguishable from mental health care of older people. However, psychogeriatric care, as currently defined, excludes significant mental health care required by older people within the scope of ABF. Consultation Question 8: Should mental health care in the emergency department (ED) be defined as ED or Mental Health for classification purposes? If mental health encompasses emergency department care services, how should these services be classified (e.g., diagnosis based on MDCs?) The underlying episode should be costed under ED, but with mental health input treated as consultation; and solutions for funding consultation-liaison activity should be consistent with decisions made in this regard within subacute classification systems. It should be noted that that there is no current classification system adapted for mental health in ED. The Expert Panels note that a collection system needs the flexibility to enable a change of type to reflect the predominant care required by the client at different stage of ED presentation. For example, the Care Type may change from Acute to Mental Health once the patient is medically stable and the predominant care required becomes Mental Health – this would enable funding of the specialist mental health assessment and intervention component of that ED presentation. The provision of mental health care in ED does have significant cost implications for mental health services and mental health training and support to ED are important elements to effective functioning of the system. The Expert Panels support the notion of allowing a change of Care Type as may be required. Consultation Question 9: Are there other examples of care models or pathways that are broadly similar, but are classified differently by jurisdictions in the mental health patient-level NMDSs? Forensic mental health services are delivered variously across jurisdictions and can be difficult to separately identify from their larger organisations within current NMDSs. In older persons services, there are evolving models of longer term supported care. People may be coded as ‘community residential ‘or ‘community’, with residential care being provided by a residential aged care provider. Variability exists across services and jurisdictions in the delivery of the care. In the CAMHS, it should be noted that EPPIC services are evolving and provide a particular care pathway for young people but within a specialist mental health service. 5 However, consideration also needs to be given to organisations such as Headspace which is a primary care based model of service provision for young people, and which sits outside jurisdictional mental health services. Data for Headspace services is not captured in any National Minimum Data Set. Other examples of care models or pathways that may vary in terms of how they are classified by jurisdictions are: perinatal infant mental health programs, prevention and recovery care services, psychiatric disability rehabilitation and support services, Personal Helpers and Mentors programs, peer support programs and parenting programs (e.g., in WA these are funded by the WA Mental Health Commission). The Expert Panels note that, within mental health, the unit of service requires that the client should be present. However, for much of the assessment, treatment and consultation work undertaken by child and adolescent mental health services, the client is not present. For example, the treatment of choice for conduct disorder requires therapeutic work with parents. Parents, schools and other agencies (e.g., homelessness agencies) both support and deliver therapeutic interventions around the children, adolescents and young adults in their care. The Expert Panels recommend that the definition of ‘Patient’ for a unit of service include parents, carers, family and the wider system (e.g., school, child protection, family support agencies etc), rather than be restricted to registered client. The National Mental Health Benchmarking Project, focussing on CAMHS, found that 65% of the time provided in direct clinical work involved family, parent, or agency consultation. Only 35% of direct clinical work was client only. Given the developmental status of the children and adolescents, the evidence around assessment and treatment and the pragmatics of clinical work, this was not seen as grossly inappropriate.2 The systemic nature of contemporary clinical treatment is apparent in older persons settings and increasingly in the partnership and recovery approaches of adult mental health. The Expert Panels note that the example given in the consultation paper of Hospital in the Home from South Australia is in the process of becoming aligned with community mental health and therefore reported as non-admitted care. In adult services, the broad NMDS category of community residential is capturing a wide range of diverse services from sub-acute 1-2 week length of stay with a focus on treatment of symptoms, to 6 months+ residential with a focus on rehabilitation. Using this NMDS for any costing purpose is problematic due to this extensive variation. 2 "WHERE DID MY DAY GO?" SURVEY 2 – 2007 Summary Results, Child & Adolescent Mental Health Services Forum, Version 1.0, http://amhocn.org/static/files/assets/a0e244d6/camhs_staff_activity_survey_distribution.pdf, last accessed 04/12/2012. 6 Consultation Question 10: How should current mental health NMDSs be adapted to facilitate the implementation of a mental health service classification without adding to the data collection burden that services and clinicians currently face? The Expert Panels note the importance of ensuring that contacts with consumers can be identified within and between episodes. An episode identifier would appear to be the most feasible option to resolve this current issue. The Expert Panels note that only two secondary diagnoses can be added when recording this diagnostic information for community mental health patients. This is particularly limiting when attempting to show the complexity of a consumer’s presentation and the corresponding resources required to provide adequate levels of care. The CAMHS Panel also noted the importance of determining the source of the diagnosis. If the diagnosis at admission (especially in community settings) is used, this is likely to be provisional and not as accurate as the diagnosis following investigation. The diagnosis at discharge is likely to reflect the diagnostic status of the child/adolescent at that time. If treatment progresses as intended, many discharge diagnoses may be ‘Z86.5 – Personal History of other mental and behavioural disorders (classifiable to F00-F09, F20-F99)’. The Expert Panels note the importance of ensuring that work progresses towards integration between the community and admitted patient mental health data sets and the NOCC. This will provide data that can show demographic information about the consumer, duration of contacts etc. and the complexity of their clinical presentation including problem severity and level of function, significant drivers of the costs of their care. 7