Knowsley Learning Disabilities Partnership Board
Health Sub Group
Draft notes of Health Sub Group Meeting
Held at North Huyton Primary Care Resource Centre
Friday 29 September 2012 – 10am – 12noon
Present:
Joyce Duckworth
Stuart Sheridan
Manager, Knowsley Disability Concern
Commissioning Manager, Knowsley
Integrated Commissioning Team
Sarah Jones
Eileen Jones
Emma Latham
Acting Health Facilitator LD Team
Community Integrated Care (CIC)
Speech Therapist, Learning Disability in
the Community (Willis House)
Disability Advisor, Aintree Hospital
Lifestyle Manager, Knowsley Day
Services
Executive Support, Knowsley Integrated
Commissioning Team
Cathy Rafferty
Kate Henneghan
Wendy Green (notes)
Apologies
Johanna Lee
Lorna Pink
Michelle Lawlor
Barry Kelly
Paula Lomas
Lisa Woods
Michelle Ablewhite
Rachel Mayner
Jan Box
Tracey Henry
Clinical Lead Nurse: LD Team, Knowsley
Integrated Provider Services (KIPS)
Service Manager / Speech & Language
Therapist, Knowsley LD Intensive
Support Team 5 Boroughs Partnership
Trust
Community LD Nurse, LD Team, KIPS
Operational Manager, Knowsley Adult
Provider Services
Development Worker: Being Involved
Group
Self advocate: Being Involved Group
Self advocate Being Involved Group
Health Facilitator/Community LD Nurse:
LD Team, KIPS
Knowsley Carers Centre
Community Integrated Care (CIC)
1. Introduction
Joyce Duckworth (JD) welcomed everyone to the meeting and introductions were
made.
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Knowsley Learning Disabilities Partnership Board
Health Sub Group
2. Notes and actions of the meeting held on 1 December 2011
Photosymbols Package - (V4) now available for Council and PCT use.
LD Health Self Assessment Framework – on agenda for discussion
Access to LD Team/Integrated Disability Team leaflet - Sarah confirmed the
leaflet has been started but not yet completed.
Epilepsy - To be included on the agenda for discussion at the next meeting
AOB – It was noted that Whiston Hospital are still progressing well with raising
the agenda on improving access for people with learning disabilities.
JD confirmed that Health is now a standard item on the LDPB agenda. It was
agreed to discuss with Deb Lawson the possibility of expanding the LD / ASDG
Strategy Group (STIG) meeting for health input.
The group agreed to continue with 3 monthly meetings and use of the North
Huyton PCRC as the venue.
Actions
By
Who?
Epilepsy Working Group Update to be included on Johanna Lee
agenda for discussion at the next meeting
Discuss with Deb Lawson the possibility of expanding Stuart Sheridan
the STIG meeting for health input
3. Terms of Reference
Due to the strategic changes currently taking place across the Borough the
Health Sub Group discussed its Terms of Reference (ToR) established
approximately 18 months ago.
It was agreed that a covering email will be sent out to all members with the
amended draft Terms of Reference.
JD highlighted the Purpose and Vision of the Health Sub Group.
It was agreed communication is important in promoting the strategic health
project and the need to invite health professionals and provider services to help
promote services and its users.
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Knowsley Learning Disabilities Partnership Board
Health Sub Group
A discussion took place as to whether there is a need to include areas of physical
disabilities and mental ill health as those attending the group are learning
disability professionals.
It was acknowledged that the Health Sub Group is accountable to all Knowsley
Partnership Boards.
Due to the ongoing changes and the capacity and commitment needed the Task
and Finish Working Groups have yet to be established. Therefore there is a need
to re-establish a strong focus with all extra curricula groups in Knowsley.
Membership
The two tier membership (core and associate) was discussed.
JD informed the group that Katie Hardaker, Development Worker from the Self
Advocacy group BIG has now left and Paula Lomas has taken over this role.
JD will contact Vicki Hornby re representation from the Autism Service
Development Group and Paula Lomas regarding Self Advocacy representatives.
It was agreed to delete the word ‘core’ and the associate members listed.
Report back from the LD Pathway Group will be included as a standard item on
future agendas.
Associated members will be invited to attend when required.
Chairpersons
The Health Sub Group Chairperson is Johanna Lee, Clinical Lead Nurse for
Learning Disabilities.
Sarah Jones informed the group that as from Monday 1 October the Learning
Disability Team will be transferring from KIPS to 5BP LD Business Stream. This
may have an impact on Johanna’s role and her availability to attend the LD
Health Sub Group.
Further updates will be provided upon Johanna’s return.
The importance of maintaining a strategic liaison lead for the group was also
discussed.
Stuart informed the group that Chris Bean, Integrated Commissioning Manager
for NHS Merseyside has submitted a business case shared across the five
boroughs.
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Knowsley Learning Disabilities Partnership Board
Health Sub Group
Cathy Rafferty stated she is aware of 3 similar health sub groups set up across
Merseyside (Liverpool, Sefton and Knowsley) although is not sure how they are
operating strategically.
Establishing GP representation on the Health Sub Group was also discussed and
the possible difficulties around this.
The group agreed SS/JD will draft an email to Tom Fairclough and Dawn Boyer
to formalise an invitation to the CCG.
Frequency of meetings
No change (3 monthly).
Contact details
Contacted details to be amended to include Wendy Green’s telephone number
and email address.
Actions
By
Who?
Updated Terms of Reference to be emailed to the group
for comments / approval
Vicki Hornby and Paula Lomas from KDC to be
contacted regarding ASDG/Self Advocacy (BIG)
representation
Draft email to Tom Fairclough, Dawn Boyer re GP
representation on LD Health Sub Group
Wendy Green
Joyce Duckworth
Stuart Sheridan /
Joyce Duckworth
4. Where do we go from here?
As the Health Sub Group has not met since November 2011 what impact has this
made? Is the group making a difference? What have been the task and finish
projects? Is the group just making new ones?
After a detailed discussion the group identified the following areas as future
agenda items:




Leaflet re access to LD Team (pathway of referral)
Epilepsy Working Group
Dysphagia pathway
Review of outputs from the Consultation of the Joint Health & Wellbeing
Strategy
Assessing data/information and what service users primary health care
needs are
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Knowsley Learning Disabilities Partnership Board
Health Sub Group
The group acknowledged the project establishing the Health Passport which
has been successful across all areas including mental health and is currently
working on widening this for service users with physical disabilities.
Stuart highlighted the Improving Health and Lives: Learning Disabilities
Observatory Health Profile for Knowsley 2012. This shows Knowsley’s
outcomes are poor for emergency and planned hospital admissions.
It was noted that Aintree/Whiston does have a process in place (flagging
system) highlighting those with learning disabilities.
Stuart also stated he has been working on Knowsley’s Health Self
Assessment which is to be submitted shortly.
As mentioned earlier, the biggest challenge and most important is around
communication, particularly in relation to referrals.
JD stated she would be happy to liaise with Johanna to establish a workplan
for the Health Self Assessment.
This would be supported through
workstreams identified by the Health Sub Group. Stuart will forward
template/link of the LD Health Assessment.
Actions
By
Who?
Establish a workplan to support the LD Health Self Joyce Duckworth /
Assessment
Johanna Lee
Forward template / link for the LD Health Assessment
Stuart Sheridan
5. 2012 LD Health Self Assessment
The link below was circulated to the 2012 LD Health Self Assessment which will
be submitted later today.
http://www.improvinghealthandlives.org.uk/projects/self_assessment/
The template for the assessment was only released 6 weeks ago and has proved
to be a difficult task due to the current changes taking place across the Borough.
Stuart highlighted the various information being requested which is proving
difficult to plan as the information requested changes year on year.
It was also noted that feedback from the Health and Wellbeing Strategy
Consultation event cannot be submitted or used as evidence as the assessment
does not allow free text / comments.
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Knowsley Learning Disabilities Partnership Board
Health Sub Group
Feedback from the Health Self Assessment will be available in November.
Stuart also outlined the Section 75 Agreement which will now transfer to
Knowsley CCG. The Local Authority is now the lead for Learning Disability
Health Care.
6. AOB
Mainstream funding from KCVS
JD confirmed mainstream funding is available from KCVS for those who are
working to promote various health initiatives for those aged 40 – 74. JD agreed
to find out details re criteria and deadlines.
Pathfinding at Aintree (Signage)
Work is currently taking place in partnership with Mencap re hospital signage for
those with learning disabilities and their carers. Hopefully funding will be
established once needs are identified.
Actions
By
Who?
Establish criteria and deadlines for mainstream funding Joyce Duckworth
from KCVS
7. Date and time of next meeting
It was agreed to cancel the meeting scheduled for 19 December and identify
meeting dates for 2013 (see attached)
2013 Meeting Dates
- Health Sub Group.doc
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