Table 1 Details of included qualitative studies
Authors and
Year of
Publication
Name of Study
Population and
Country
Study Type
Ashby, Kosky
et al. (1991)
An enquiry into
death and dying at
the Adelaide
Children's Hospital: a
useful model?
Empirically based
recommendations to
support parents
facing the dilemma
of paediatric cadaver
organ donation.
Parents of
children dying
in hospital
N=6
Australia
Parents who
were asked to
donate their
children’s
organs
N=22
Greece
Bereaved
parents,
children dying
of any age,
including
adulthood, of
any cause
N=137
USA
Parents of
children
(including
young adults)
dying in violent
deaths
N=11
USA
Parents of
infants dying in
the neonatal
period
N=28
USA
Parents of
children dying
on paediatric
intensive care
units (PICU)
N=12
Canada
Parents of
infants dying
on neonatal
intensive care
Interviews
with staff and
parents,
written
submissions
In-depth
interviews
with parents
Bellali,
Papazoglou et
al. (2007)
Bright, Huff et
al. (2009)
A broken heart--the
physician's role:
bereaved parents'
perceptions of
interactions with
physicians."
Kuhn (2008)
The process of
parental
bereavement
following the violent
death of a child. PhD
Thesis
Lemmer
(1991)
Parental perceptions
of caring following
perinatal
bereavement
Macdonald,
Liben et al.
(2005)
Parental
perspectives on
hospital staff
members' acts of
kindness and
commemoration
after a child's death
Follow up care of
bereaved parents
after treatment
withdrawal from
McHaffie,
Laing et al.
(2001)
Proportion
of study
results
included
Minimal
data
Minimal
data
Postal survey
with openended
question
100%
In –depth
interviews
with parents
Not
applicable
PhD Thesis
In –depth
interviews
with parents
25%
Field
ethnography
50%
In –depth
interviews
with parents
100%
newborns
Meert, Eggly
et al. (2007)
Meert, Eggly
et al. (2008)
Meert, Briller
et al. (2009)
Meyer,
Ritholz et al.
(2006)
Nordby and
Nohr (2009)
Pector (2004)
Reilly, Huws
et al. (2008)
Parents' perspectives
regarding a
physician-parent
conference after
their child's death in
the pediatric
intensive care unit
Parents' perspectives
on physician-parent
communication near
the time of a child's
death in the
pediatric intensive
care unit
Examining the needs
of bereaved parents
in the pediatric
intensive care unit: a
qualitative study.
(NICU)
N=108
United
Kingdom
Parents of
In –depth
children dying
interviews
on paediatric
with parents
intensive care
(2007)
units (PICU)
N=56
USA
Secondary analysis of data from
Meert, Eggly et al. (2007)
Parents of
children dying
on paediatric
intensive care
units (PICU)
N=46
USA
Improving the quality Parents of
of end-of-life care in children dying
the pediatric
on paediatric
intensive care unit:
intensive care
parents' priorities
units (PICU)
and
N=56
recommendations
USA
Interactive
Parents of SIDS
emergency
infants
communication
N=11
involving persons in
Norway
crisis
How bereaved
Parents of
multiple-birth
multiple birth
parents cope with
infants who die
hospitalization,
neonatally
homecoming,
N=70
disposition for
USA
deceased, and
attachment to
survivors.
‘When your child
Bereaved
dies you don't belong mothers of
in that world
children who
anymore.' had an
Experiences of
intellectual
100%
Minimal
Data
In –depth
interviews and
focus groups
with parents
75%
Open-ended
postal
questionnaire
Minimal
Data
Semistructured
interviews
with parents
Minimal
Data
Narrative
email survey
25%
In-depth
interviews
with parents
25%
mothers whose child
with an intellectual
disability has died
Schaap, Wolf
et al. (1997)
Skene (1998)
Snowdon,
Elbourne et
al. (2004)
Swanson,
Brockbank et
al. (2002)
Todd (2007)
Wisten and
Zingmark
(2007)
Long-term impact of
perinatal
bereavement.
Comparison of grief
reactions after
intrauterine versus
neonatal death
Individualised
bereavement care
disability (ID)
N=9
United
Kingdom
Parents of
infants dying
perinatally
N=38
The
Netherlands
Parents of
infants dying
neonatally
N=9
United
Kingdom
Perinatal pathology
Parents of
in the context of a
infants dying
clinical trial:
on neonatal
attitudes of
intensive care
bereaved parents
(NICU)
N=18
United
Kingdom
Panel discussion.
Mothers of
Grief and
multiple birth
bereavement with
children dying
the loss of a twin
at any time
(including
adulthood)
N=66
Australia
Silenced grief: living
Bereaved
with the death of a
parents of
child with intellectual children who
disabilities
had an
intellectual
disability (ID)
N=13
United
Kingdom
Supportive needs of
Parents of
parents confronted
children
with sudden cardiac
suffering a
death--a qualitative
sudden cardiac
study
death
(including adult
deaths)
N=28
Sweden
In-depth
interviews
with parents
Minimal
Data
Semistructured
interviews
with bereaved
mothers
Minimal
Data
Semistructured
interviews
with bereaved
mothers
Minimal
Data
Semistructured
interviews
with bereaved
mothers
Minimal
Data
In-depth
interviews
with parents
Minimal
Data
In-depth
interviews
with parents
100%