Early Hearing Detection and Intervention (EHDI) Data Sets
The following standards and vocabulary sets were identified for EHDI initial public health reporting:
LOINC Logical Observation Identifiers, Names and Codes
SNOMED Systemized Nomenclature for Medicine
HL7 HQMF Health Quality Measures Format
Uniform Bill (UB-04) US National Extension: Current UB Data Specification Manual FL-14
QRDA Quality Reporting Document Architecture
CCD ASTM/HL7 Continuity of Care Document
CDAR2 HL7 CDA Release 2.0
EHDI data sets that are likely common for multiple initial public health reporting include, but are not
limited to the following:

General Information – Infant
Name (First, Middle, Last, Suffix)
Unique identifier (e.g., medical record number)
Date of birth
Gender
State of birth
Zip code of birth
Infant transfer (to another facility)
Newborn information (e.g., birthweight, plurality, NICU admission, congenital anomalies)

General Information – Mother
Mother’s current legal name (First, Middle, Last, Suffix)
Mother’s place of residence (State)
Mother’s place of residence (Street address)
Mother’s place of residence (City)
Mother’s Zip Code (of residence)
Mother’s phone number
Mother’s date of birth (age)
Mother’s birthplace (state, territory, or foreign country)
Mother’s education
Mother of Hispanic origin
Mother’s race
Mother’s language

Encounter Data
Facility ID (NPI)
Date of screen
Specific data sets identified or developed for EHDI initial public health reporting include but are not
limited to the following:

EHDI Newborn Hearing Screening Method
LOINC Code: 54106-0
LOINC Value Set:
Sequence LOINC Answer Code Description
1
2
3
4
LA10387-1
LA10388-9
LA10389-7
LA10390-5
Automated auditory brainstem response
Auditory brain stem response
Otoacoustic emissions
Distortion product otoacoustic emisions
5
6


LA10391-3
LA12406-7
Transient otoacoustic emissions
Methodology unknown
EHDI Newborn Hearing Screen Result – Left Ear
LOINC code: 54108-6
EHDI Newborn Hearing Screen Result – Right Ear
LOINC code: 54109-4
LOINC Value Set:
Sequence
1
2
LOINC
Answer Code
LA10392-1
LA10393-9
Description
Pass
Refer
SNOMED-CT Value Set:
Sequence
1
2

SNOMEDCT Code
164059009
183924009
Description
O/E – hearing normal
Referral needed
EHDI Reason for no Inpatient Screening Result
LOINC Value Set
Sequence
LOINC Code
Description
1
2
3
4
LA6644-4
LA12408-3
LA7304-4
LA12409-1
Parental Refusal
Attempted, but unsuccessful - technical fail
Not performed
Not performed, medical exclusion - not indicated
SNOMED-CT Value Set
Sequence
1
2
3
4
SNOMED
Code
183949008
103709008
262008008
410534003
Description
Assessment examination refused
Failed attempted procedure
Not performed
Not indicated
 EHDI Hearing Loss Diagnosis Result
EHDI Hearing Loss Diagnosis ICD Value Set:
Sequence ICD-9 CM
ICD Description
Code
1
2
389
Conductive Hearing Loss
Unspec.
3
389.1
Sensorineural Hearing Loss
Unspec.
4
389.2
Mixed: Cond. and SNHL
ICD-10 CM
Code
EHDI Concept
H90.2
Normal
Permanent Conductive
H90.5
Sensorineural
H90.8
Mixed
5
Auditory Neuropathy
Spectrum Disorder
Transient Hearing Loss
6
Newborn Hearing Loss Diagnosis (SNOMED-CT) Value Set:
Sequence SNOMED
Description
Code
1
44057004
Conductive hearing loss (disorder)
2
60700002
Sensorineural hearing loss (disorder)
3
77507001
Mixed conductive AND sensorineural
hearing loss (disorder)
4
443805006
Auditory neuropathy spectrum disorder
(disorder)
5
123123005
Transient (qualifier value)
6
17621005
Normal (qualifier value)
7
255605001
Minimal (qualifier value)
8
18647004
Mild (Severity modifier) (qualifier value)
9
6736007
Moderate (severity modifier) (qualifier
value)
10
371924009
Moderate to severe(qualifier value
11
24484000
Severe (severity modifier) (qualifier value)
12
255611003
Profound (qualifier value)
13
419465000
Unilateral right (qualifier value)
14
419161000
Unilateral left (qualifier value)
15
95819006
Unilateral hearing loss (situation)
16
95820000
Bilateral hearing loss (disorder)
EHDI Concept
Permanent Conductive
Sensorineural
Mixed
Auditory Neuropathy
Spectrum Disorder
Transient Hearing Loss
Normal
Slight
Mild
Moderate
Moderate to Severe
Severe
Profound
Unilateral loss - right ear
Unilateral loss - left ear
Unilateral loss - ear
unspecified
Bilateral loss
 EHDI Reason for no Hearing Loss Diagnosis
Value Set:
Sequence
Description
EHDI Concept
1
2
SNOMED
Code
397709008
360885002
Patient died (finding)
Change of residence status (finding)
3
184112005
Patient address unknown (finding)
4
184118009
5
183638004
Patient telephone number unknown
(finding)
Follow-up refused
6
183946001
Procedure refused-uncooperative
7
413319007
Persistent non-attender
8
399307001
Loss to follow-up
9
419984006
Inconclusive (qualifier value)
10
185332005
Appointment cancelled by patient (finding)
No diagnosis: Infant died
No diagnosis: Moved or gone
elsewhere
No diagnosis: Unable to
Contact Family
No diagnosis: Unable to
Contact Family
No diagnosis: Parents
Declined Services - Follow-up
refused
No diagnosis: Parents
Declined Services -Procedure
refused - uncooperative
No diagnosis: Unresponsive Persistent non-attender
No diagnosis: Unknown Loss to follow-up
No diagnosis: Audiologic
Diagnosis in Process
No diagnosis: Audiologic
Diagnosis in Process -
11
185333000
Appointment cancelled by doctor (finding)
12
281399006
Did not attend
 EHDI Newborn Hearing Loss Referrals
EHDI Newborn Hearing Loss Referrals Value Set
Sequence SNOMED
Description
Code
1
306210008
Referral to pediatric diagnostic
audiology service (procedure)
2
415271004
Referral to education service (procedure)
No diagnosis: Audiologic
Diagnosis in Process Rescheduled appointment
No diagnosis: Audiologic
Diagnosis in Process - Did not
attend
EHDI Concept
Referral to audiologist
Referral to Early Intervention
(Part C/non Part C)
 EHDI Risk Factors
LOINC Code: 58232-0
LOINC Value Set:
Sequence LOINC Answer Code
Description
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
None
Caregiver concern about hearing
Family Hx of hearing loss
NICU stay > 5 days
ECMO
Assisted ventilation
Ototoxic medication use
Exchange transfusion for Hyperbilirubinemia
In utero infection(s)
Craniofacial anomalies
Physical findings of syndromes that include hearing loss
Syndromes associated with hearing loss
Neurodegenerative disorders
Postnatal infections
Head trauma
Chemotherapy
LA137-2
LA12667-4
LA12668-2
LA12669-0
LA12670-8
LA12671-6
LA12672-4
LA12673-2
LA12674-0
LA12675-7
LA12681-5
LA12676-5
LA12677-3
LA12678-1
LA12679-9
LA6172-6
SNOMED-CT Hearing Loss Risk Factors Value Set
Sequence SNOMED-CT Code Description
1
2
3
4
5
6
7
8
9
10
11
12
13
439750006
441899004
276687002
281610001
281612009
281611002
206363004
206331005
206005002
80690008
178280004
312972009
161653008
Family history of hearing loss (situation)
History of therapy with ototoxic medication (situation)
Conjugated hyperbilirubinemia in infancy (disorder)
Neonatal hyperbilirubinemia (disorder)
Neonatal conjugated hyperbilirubinemia (disorder)
Neonatal unconjugated hyperbilirubinemia (disorder)
Intra-amniotic fetal infection (disorder)
Infections specific to perinatal period (disorder)
Fetus or neonate affected by maternal infection (disorder)
Degenerative disease of the central nervous system (disorder)
Postnatal infection (disorder)
Neonatal extracranial head trauma (disorder)
History of - chemotherapy (situation)