STRATEGIC PLAN The Interdisciplinary Collaborative on Healthcare and Education Transition (ICHET) 2013-2015 ORGANIZATION: The Interdisciplinary Collaborative on Healthcare and Education Transition (ICHET) – a collaboration between the University of Florida’s Colleges of Medicine and Eduction. PURPOSE: ICHET’s mission is to enhance service, provide training and conduct research supporting the successful, comprehensive transition of youth and young adults with special healthcare needs from pediatric to adult oriented healthcare; from school to higher education and employment and from adolescence to adulthood and the ongoing pursuit of dreams and ambitions. EXECUTIVE BOARD: Co-Chairs and Founding Members: Jeanne B. Repetto, Ph.D., is an Associate Professor in the School of Special Education, School Psychology, and Early Childhood at the University of Florida. Her current interests include, health care transition, students at risk and online learning, and transition. Susan Chauncey Horky, LCSW is Co-director of and Social Work Faculty in the Pediatric Pulmonary Center (PPC) Interdisciplinary Leadership Training Program. She conducts research on topics related to healthcare transition, cultural competence, and family centered care and physician-patient communication. Founding Members: Jenna Gonzalez, Ed.S. is a staff member at the University of Florida in the College of Education. Both her Masters and Specialist degree is in Special Education. After graduating, she taught in both public and private sector high schools. Jenna is now a member of the ICHET group and is working on the Education Health Care Transition Graduate Online Certificate. Angela Miney, BA, is the Family Partner in the University of Florida Pediatric Pulmonary Center. As the parent of a child with a chronic illness she is interested in Patient and Family Centered Care, specifically in holistic approaches to the patient that build lasting and effective partnerships. John Reiss, PhD, is an Associate Professor of Pediatrics at University of Florida. His work has focused on facilitating collaborative action among public and private sector organizations at the federal, regional, and state and between families and professionals to improve the organization, financing and delivery of health care for CYSHCN; and to promote full partnership with families. Arwa Saidi, MB. BCh is a Professor at the University of Florida, College of Medicine. Her current interests are transition of the pediatric patient with chronic health care needs to adult care and educating medical providers about how to incorporate transition into their clinical practice. STRUCTURE: Executive Board Members meet bi-weekly to plan and implement collaborative activities and to explore the communication challenges inherent in bringing education and healthcare together. To date we have developed an online graduate course, published articles, conducted research and been involved in a range of activities including conferences and on line learning activities. Other interested professionals regularly attend ICHET meetings. Susan Chauncey Horky - chauncey@ufl.edu Jenna Gonzalez – jgonzalez@coe.ufl.edu Angela Miney - aminey@peds.ufl.edu John Reiss - jgreiss@ufl.edu Jeanne Repetto - jrepetto@coe.ufl.edu Arwa Saidi - asaidi@pedcard.ufl.edu Advisory Board Board members meet by conference call twice a year to review current work and provide guidance on future initiatives. In addition, email correspondence is used as needed throughout the year to assist in idea generation and program promotion. Kate Gonsalves 7200 Lawton Chiles Ln. Tallahassee, FL 32312 Gonsalvesk@leonschools.net Paula Kohler, Ph.D. Associate Vice President for Research Co-Director, National Secondary Transition Technical Assistance Center Walwood Hall 1903 West Michigan Avenue 481Western Michigan University Kalamazoo, MI 49008 paula.kohler@wmich.edu Don Lollar, Ed.D. Oregon Institute on Disability and Development Oregon Health & Science University 707 SW Gaines Street Portland, OR 97239 lollar@ohsu.edu Pablo Saldana, Ph.D., LCSW, CRC Nemours Children’s Clinic 807 Children’s Way Jacksonville, FL 32207 Pablo.Saldana@nemours.org Judy L. Shanley, Ph.D. Director, Student Engagement & Mobility Management Co-Director, National Center for Mobility Management Easter Seals Transportation Group 1425 K Street, NW, Suite 200 Washington, DC 20005 jshanley@easterseals.com Patience White, MD, MA Co-director Got Transition: Center for Health Care Transition Improvement Professor of Medicine and Pediatrics George Washington University School of Medicine and Health Sciences pwhite@thenationalalliance.org David Wood, MD, MPH Professor, UF College of Medicine – Jacksonville 580 W. 8th St., Room 6015 Jacksonville, FL 32209 david.wood@jax.ufl.edu CORE VALUES: • • • • Integration of Healthcare Transition (HCT) and Education Transition (ET) will enhance, and make more effective, the transition experience for teens, their families and professionals from both disciplines. HCT and ET should be integrated, depending on the individual teen’s unique needs and in collaboration with the teen and his/her family. Systems should be developed to facilitate this integration and collaboration. Each profession has much to offer the other. Coordination and collaboration within a patient and family centered philosophy of care will result in better outcomes for the teen and family. Good health leads to increased ability to work and play: better preparation of students for their futures, less frustration for teachers, less administrative/system time spent on helping students make up missed days/work, so both fields will benefit. CURRENT WORK: Official University of Florida EdHCT Certificate Program o http://education.ufl.edu/education-healthcare-transition/ o First cohort graduated May 2013 (6 members) Publications Repetto, J., Jaress, J., Lindsey, J., & Bae, J. (in press). Investigation of health care components in Transition IEPs. Career Development and Transition for Exceptional Individuals. Repetto, J., Horky, S., Miney, A., Reiss, J., Saidi, A., Wolcott, L., Saldana, P., & Jaress, J. (2012). Expanding transition to address the needs of students with invisible chronic illness. Career Development and Transition for Exceptional Individuals. 35, 4-13. Collins, S., Reiss, J., & Saidi, A. (April, 2012). Transition of care: what is the pediatric hospitalist's role? An exploratory survey of current attitudes. Hospital Medicine, 7(4). 277-81. Saidi A., Reiss, J., Breitinger, P., Black, E., Paolillo, J., & Collins, S. (2011). Web-based learning: Is it an effective method for educating pediatric residents about transition to adult subspecialty congenital heart disease care? International Journal Child Adolescent Health, 3 (4) .585-593 Meadows, A.K., Bosco, V.,Tong, E.,Fernandes, S., & Saidi, A. (July, 2009). Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease. Current Cardiology Reports. 11 (4). Repetto, J., Gibson, R., Lubbers, J., Gritz, S., & Reiss, J. (2008). A statewide study of knowledge and attitudes regarding health care transition. Career Development for Exceptional Individuals. 31 (1), 5 – 13. Repetto, J., Gibson, R., Lubbers, J., Gritz, S., & Reiss, J. (2008). Practical applications of confidentiality rules to health care transition instruction. Remedial and Special Education. 29 (2), 118-126. Presentations Horky, S. (October, 2013). Bipartisan Agreement: Education and Healthcare Transition, Shall the Twain Ever Meet? Presented at the North American Cystic Fibrosis Conference, Salt Lake City, UT. Repetto, J., Horky, S., Saidi, A., Miney, A. & Gonzalez, J. (July, 2013). The Education and Transition (EDHCT) Certificate: An On-Line Graduate Program Supporting Systems Change for Young Adults with Invisible Chronic Illness (ICI). EDULearn: 5th International Conference on Education and New Learning Technologies, Barcelona, Spain. Repetto, J., Horky, S., Saidi, A., Miney, A. & Gonzalez, J. (June, 2013). The Education and Heathcare Transition (Ed-HCT) Model: Supporting Bright Futures for Young Adults with Invisible Chronic Illness. International Conference: Life Design and Career Counseling Building Hope and Resilience, Padova, Italy. Repetto, J., Horky, S., Miney, A., Reiss, J., Saidi, A. & Lindsey, J. (April, 2013). Improving postsecondary outcome for youth with special health care needs. Council for Exceptional Children Convention, San Antonio, TX. Repetto, J., Lindsey, J., Horky, S., Reiss, J., Miney, A., & Saidi, A. (May, 2012). Improving postsecondary outcome for youth with special health care needs. Division in Career Development and Transition 2012 Visions Conference, Tampa, FL Horky, S. & Repetto, J. (May, 2012). Improving postsecondary outcomes for youth with special health care needs. Annual Capacity Building Institute, Charlotte, NC. Repetto, J., Horky, S., Miney, A., Reiss, J., Saidi, A. & Lindsey, J. (May, 2012). Improving postsecondary outcome for youth with special health care needs. National Transition Conference, Washington, DC. Horky, S., (February, 2011). The interdisciplinary collaborative on healthcare and education transition (ICHET): An integrative approach. Association of Maternal and Child Health Programs, Washington, DC. Repetto, J., Horky, S., Miney,A., Reiss, J., & Saidi, A. (November, 2010). Expanding transition to serve students with special health needs. TED Conference in St. Louis, MO. Horky, S., Repetto, J., Reiss, J., & Saidi, A. (October, 2010). The interdisciplinary collaborative on healthcare and education transition (ICHET): An integrative approach. The North American Cystic Fibrosis Conference, Baltimore, MD. Saidi, A., Reiss, J., Breitinger, P., Black, E., Paolillo, J., & Collins, S. (October, 2010). Web based learning: is it an effective method for educating pediatric and family practice residents about transition to adult subspecialty congenital Heart Disease care? American Academy of Pediatrics, National Conference and Exhibition. San Francisco, CA. Collins, S., Reiss, J., & Saidi, A. (October, 2010). Transition of Care: What is the Hospitalists Role? A Survey of Current Attitudes. American Academy of Pediatrics, National Conference and Exhibition. San Francisco, CA. Repetto, J., Horkey, S., Saidi, A., Modica, R., Reiss, J., & Gibson, R., (2009). Health Care Personnel and Educators: Friends or Foes in Health Care Transition, Presented at the International Division on Career Education and Transition, Savannah, GA. Research o Cystic Fibrosis Providers Awareness of Education Transition. Online Survey 2012 o Investigation of health care components in Transition IEPs. Document review 2010 o A statewide study of knowledge and attitudes regarding health care transition. 2007 Survey Technical assistance and consultation o Horky, S. & Repetto, J. (June 28, 2013). The Role of Schools in Health Care Transition. FloridaHATS Webinar. o Repetto, J. (2010). Medical and family partnerships for transition. Grand Rounds, Shands UF, Gainesville. FL. (invited speaker)