Eastfield House Surgery 308858839 YOUR MEDICAL DATA How we use your data, and who we share it with. As a part of the NHS, we need and want to share data in various ways but we also want to protect your confidential and personal information. Data about health can be used for various reasons, both internally within the practice, and externally with various services. Internally we analyse our records so that we know who has diabetes, heart disease, etc. so we can arrange regular recalls etc., and who is on which drug so we can alert you if there is a health warning etc. This is normal good medical care. Externally we share data with other NHS services, either in anonymous, aggregate form, or in a way that identifies individuals. Aggregate data might be information about numbers of patients with a stroke or vaccinations, so that the NHS can provide appropriate services. Identifiable data might be the letters we send to hospitals about you. Here we attempt to describe some of the ways data is shared with external agencies. Anonymous data relates to data that is about an individual but that any identifying data is sufficiently obscured as to make it impossible to identify them. Hospital letters (Identifiable data) Whenever we refer you to hospital or another provider, we routinely send the referral letter, but also add standard information regarding your current medication, your significant medical problems, allergies, relevant information such as height and weight, as well as your contact details, (name DoB, address etc). This is essential so that the hospital is informed of your medical background and helps reduce mistakes. Insurance Companies etc. (Identifiable data) Insurance companies ask us for reports in two formats. A general request asking for a standard and nationally agreed set of data, (medication, allergies, medical problem list, blood results etc) and then tailored reports asking about a specific condition that you maybe claiming for. We always ask for written consent from you before we consider the request to release the information and you may ask to see the report first if you wish. Insurance companies may also request a “medical examination” where we act on behalf of the company, to assess their risks. Solicitors and medical claims. (Identifiable data) We are asked by solicitors for medical information on your behalf. Increasingly this is a request for your whole notes and you need to be aware that all records will be sent. Alternatively they ask for details following a particular incident (such as a car crash) which we write specifically in response to their request and limit the information to the specific question. Both requests require your consent although solicitors are legally bound to only work on your behalf. Next Review Due: Jan 2016 Page 1of 3 Last Updated: 30.01.15 by LMMH Eastfield House Surgery 308858839 SHARING WITHIN THE NHS Data has been used for many years to assess health needs. Information of vaccination rates, disease prevalence (such as numbers of diabetics, heart disease patients, etc) are collected as well as data about age, sex, appointments. Currently there are various ways we share data to enable us to care for you better. QOF and Enhanced Services (Aggregate data) As part of the mechanism for being paid the practice has to provide data about various diseases to the government to demonstrate good care. This includes the number of patients with various diseases, (Diabetes, hypertension, smears etc) as well as care indicators like the number of patients with a BP taken and under a certain level. Again no patient identifiable data is uploaded, just numbers. However every year we might be inspected to verify these bits of information, which means an inspection team (of doctors and nurses) visits the practice to check the records of specific patients. This is not looking at you but to check we have done what we said we have done. ACG (Aggregate but potentially Identifiable data) In order to help the practice and the commissioners of services understand where demand comes from we currently upload data to a service called the ACG. This has looked again at data from the practice as well as from hospital information to assess the likely demands on the system. This can involve stratifying the population into different risk groups (those who may end up needing care in the next months and years). So far this has been aggregate data and not patient identifiable. There are plans that this might include the ability to “drill down” to individual patients so that they can be identified and in theory support given to prevent admission to hospital etc. This second part then requires patient identifiable data to be displayed. We are currently (2014) awaiting further implementation details. You may opt out of this if you wish. Eclipse (Identifiable data) The Newbury and District CCG have purchased a system called Eclipse which extracts data from the GP system of all surgeries in the area. This is uploaded to a secure database where area wide searches can be performed identifying particular hazards or situations. It is intended to develop into a platform for managing chronic diseases such as Diabetes and COPD etc. You may opt out of this if you wish. SCR (Identifiable data) This is a national database (Summary Care Record) that is intended to provide basic health information to all providers who need it. It is intended that your demographics (name DoB address etc) as well as basic medical information (initially drugs and allergies) would be stored and made accessible to anyone needing it within the NHS. You may opt out of this if you wish. Next Review Due: Jan 2016 Page 2of 3 Last Updated: 30.01.15 by LMMH Eastfield House Surgery 308858839 Connected Care (Identifiable data) This is a West Berkshire initiative enabling local medical professionals to search and read an accurate, up to date view of your data directly from the original record held at your GP practice. To ensure that any doctor, nurse or specialist viewing your medical history is able to see the most current information about you, only one copy of your record exists, and this is held by your GP. For more information please ask for a Connected Care leaflet from the surgery front desk. You may opt out of this if you wish. QResearch (Anonymous data) The University of Nottingham in conjunction with our clinical software supplier have established a research database of GP records to which we contribute. This extracts the basics of your records in a completely anonymous format to a secure database in Nottingham and has been used for many groundbreaking bits of research including heart and diabetes risk scores which we now use in practice. SHARING DATA OUTSIDE OF THE NHS care.data (under discussion) In 2013 the government announced their intention to extract large sections of data from GP practices to form a national database from which they intend to analyse health needs across the country and down to local levels. They also announced an intention to allow the onward transfer this data to interested and authorised third parties. At the current time (July 2104) we are waiting for further details. You may opt out of either or both of these options. OPTING OUT It is possible for you to opt out of each of these types of data sharing if you wish. You may opt in again at a later date. Please ask at reception for the specific opt out form. At the current time (July 2014), you will need to fill in a form to opt out of each type of data sharing. Next Review Due: Jan 2016 Page 3of 3 Last Updated: 30.01.15 by LMMH