Green Paper: Children and Young People with Special Educational Needs and Disabilities - Call For Views October 2010 About Skill Skill: National Bureau for Students with Disabilities is a national charity that promotes opportunities to empower young people and adults with any kind of disability to realise their potential in further, continuing and higher education, training and employment throughout the UK. Skill works by providing information and advice to individuals, promoting good practice and influencing policy in partnership with disabled people, service providers and policy makers. Skill is a registered charity and a company limited by guarantee. As a member of the Department for Education Learners with Learning Difficulties and/or Disabilities (LLDD) Advisory group Skill has contributed to the group’s advice on the SEN Green Paper which has been sent to the Minister and the Department for Education. Skill fully endorses the Advice Paper submitted by the DfE LLDD Advisory Group and we would like to take the opportunity to contribute our own response. Skill works with disabled young people and their families from transition from school to further education, training, Apprenticeships, Higher Education, volunteering and into employment through adult life. We have therefore concentrated on questions 4, 5 and 6, with a focus on issues concerning post-16 transition. Experiences of disabled young people – the learner voice Skill works in partnership with disabled people through membership, a free Helpline, e-mail enquiry service, Ambassador Programme and in partnership with professionals and organisations representing disabled people. Specifically our Youth Working Party, made up of disabled young people, has informed the content of this paper. When asked about their personal experiences in transition from school to adult life, as young people with special educational needs (SEN) and disabilities, members of our Youth Working Party made the following recommendations: Planning must start well in advance of leaving school, so that the young person’s needs and choices are fully explored 1 Planning must be individualised and centred around the young person’s voice. Too often decisions are still being made for young people More timely, effective and impartial information, advice and guidance (IAG) is needed so that disabled young people can make an informed choice. Taster sessions at colleges are important particularly, as there is a big difference between Special Schools and FE. Agencies need to work more closely together to make the process smoother - in particular the funding agencies and local authorities (LAs). Question 4 (4) How can we ensure all schools and colleges have high expectations for children and young people with special educational needs and disabilities, and help young people to develop the skills for employment and their future potential and contribution to society? The importance of focussing on what students with SEN and disabilities can do rather than what they cannot Skill believes the aspirations of disabled learners and their parents can be increased if schools and colleges have higher expectations for learners with SEN and disabilities and that they focus on what learners with SEN and disabilities can do rather than what they cannot. When learners reach transition age and consider the options post compulsory education it is important that schools and colleges positively promote further education and the wide range of qualifications and subjects that young people can work towards - whether that is Entry Level Certificates or Awards, GCSEs, AS and A Levels, or higher education. Further Education (FE) colleges can offer disabled young people the chance to take courses that help them develop independent living skills as well as vocational work-related skills. Most subjects can be made accessible with the appropriate support. It should not be assumed that learners cannot do something because of their impairment. Deaf people can study music and young people with dyslexia can train to be journalists. Promoting employment and work based learning opportunities It is important that employment/work is the key outcome throughout the curriculum and provision and that learners with SEN and disabilities are encouraged to work towards meaningful employment. Employability needs to be embedded in the curriculum and be a strong common theme. Schools and colleges can raise expectations for children and young people with special educational needs and disabilities, and help them to develop skills for employment through promoting volunteering and work based learning opportunities. Volunteering as a route into 2 employment has been highlighted by the Department for Work and Pensions (DWP) and other qualitative research in the area suggests benefits include learning new skills, increasing confidence and developing or maintaining work habits1. Skill is currently working with over 250 disabled young people, some with severe learning difficulties, to develop their employability skills, find volunteering opportunities in the community and to support them in the workplace. Skill would be pleased to inform the development of the work–related curriculum for disabled young people as a stepping stone to employment. Understanding of support available and reasonable adjustments Schools and colleges can raise the aspirations of learners with SEN and disabilities by promoting the range of support available to disabled people in education, employment and training, for example through reasonable adjustments. Under the Equality Act 2010 education providers and employers have a duty to provide reasonable adjustments2 to make sure that a disabled person has the same access to everything as a non-disabled person, as far as is reasonable. The duty contains three requirements that apply in situations where a disabled person would otherwise be placed at a substantial disadvantage compared with people who are not disabled: a requirement to change policy and criteria; a requirement to overcome barriers by physical features; and a requirement to provide auxiliary aids (additional equipment). Funding for reasonable adjustments Schools and colleges need better awareness of the financial support available to make these adjustments for students who wish to progress onto further and higher education and into employment. Currently in post 16 education Additional Learning Support (ALS) funds disability support staff and equipment vital for disabled young people in meeting their learning aims. In Higher Education Disabled Students’ Allowances (DSA) is funding made available to disabled students for reasonable adjustments and equipment. The 2010 Ofsted review into Special Educational Needs and Disability, “A Statement is not enough”, found that many of the disabled students who wanted to progress to higher education at the age of 18 had difficulties in the transition period and were uncertain whether the financial support they would require in order to be successful would be available. Arrangements to support their transition and to obtain the disabled students’ allowance (DSA) were also found to be variable. Research shows that students who receive DSA attain better class degrees; however there is disparity between those eligible and those who receive DSA. 1 Corden, A. and Sainsbury, R, 2005, Volunteering for Employment Skills: A qualitative research study Social Policy Research Unit, University of York, York. Gaskin K (2004) Volunteering and availability for work: an evaluation of the change to Jobseeker’s Allowance regulations - A report to the Department for Work and Pensions. 2 Educational providers have a duty to all disabled learners regardless of whether they have a Section 139a assessment 3 Skill believes that more needs to be done to remove the perceived barriers and promote uptake of DSA. Skill actively promotes the DSA application process to potential higher education students with the publication ‘Into Higher Education’, through the Skill Helpline and by disseminating good practice at conferences and events. Awareness of Access to Work Schools and colleges also need better understanding of the financial support available to help employers make reasonable adjustments and to ensure young people and their parents are informed. Access to Work (AtW) funding is available to support people in employment who require adjustments to work. Advisers can provide both advice and support to the employee and funding to meet any extra costs which may arise because of support needs. It is important for students with disabilities to realise that support is available when in employment and that job coaches and other initiatives can help people with learning difficulties and/or disabilities to access work. Awareness of all these options should be developed from an early age so that disabled young people can make informed decisions about their career options. Transport Effective transport provision for disabled young people is integral in enabling learning outcomes, progression and independence. Schools and colleges must inform learners that local authorities are responsible for providing transport to education, employment and training provision. and for learners with learning difficulties and/or disabilities up to the age of 25. All LAs have a statutory duty to ensure that no student is prevented from accessing or taking part in FE due to lack of transport support or services. LAs must produce a transport policy statement that identifies the transport provision available to all learners aged between 16 and 19. This must specifically include the transport support and services available to students with learning difficulties or disabilities. It is critical that LAs should provide independent travel training, which helps young people with disabilities to learn the skills to be able to travel on public transport independently. This may be appropriate at school age, but may need to take place post--16 and post–19. Without the skills and confidence to plan a journey and use public transport and taxis safely, disabled people are not able to take an active role in their community, get to work or to socialise. Those who do not have independent travel skills are more likely to become isolated at home and unable to participate in their communities or enter employment. 4 Question 6 (6) How can we improve the transition from school to adult life for young people with special educational needs and disabilities and the support provided for their families throughout? The importance of getting transition right Transition from school to Further Education is an important time in any young person’s life. Disabled young people should have the same choices available to them post sixteen as their peers. They often need a range of adjustments, from support in the classroom to transport support and services, to ensure that the young person can make the most of these opportunities. The recently published Ofsted review, ‘The special educational needs and disability review’, evaluated how well the legislative framework and arrangements served children and young people who had special educational needs and/or disabilities. Skill welcomes the review for considering education for learners with SEN and disabilities up to the age of 19, and shares concerns about some of the findings. For example that: ‘too many young people with learning difficulties and disabilities, and those with SEN find it very difficult to make the transition from school to an adult life that is as independent and purposeful as possible’. Skill is very concerned that pupils with a statement of SEN are half as likely to achieve 5 or more GCSE grades A*-C than their non-disabled peers.3 This is not because they are of lower ability but because there are significant barriers within the system. Evidence of poor transition outcomes The recently published Equality and Human Rights Commission report ‘How Fair is Britain 2010?’ states that children with SEN/disabilities are generally recognised as being particularly disadvantaged within the education system - for example, nearly three-quarters (71%) of permanent exclusions in England involved pupils with some form of SEN. The report also shows that pupils aged 16 with SEN perform less well than pupils with no identified disability and that people with disabilities are more likely to have no qualifications above Level 14. Statistics also show that disabled young people are considerably more likely than non-disabled people to not be in education, employment or training (NEET)5 . In 2008 the Youth Cohort Study found that 29 per cent of disabled 18 year olds were NEET compared to 12 per cent of non- disabled 18 year olds6. It is important that a wide range of learning opportunities are available that will re-engage this group of 3 National Pupil Database 2005/06-2008/09 http://www.officefordisability.gov.uk Hills, J., et al., 2010. An Anatomy of Economic Inequality in the UK, report of the National Equality Panel. London: Government Equalities Office. Page 103. 5 Disability Review, Leonard Cheshire Disability, 2008. 6 Youth Cohort Survey: The activities and experiences of 16 year olds: England and Wales, Department for Children, Schools and Families, 2008. 4 5 young people. With raising the participation age (RPA), education providers, delivery partners and support services must consider how to engage with young people who are NEET and how to establish good provision and support for those learners who may require extra support in staying engaged in meaningful learning up to the age of 18. Lack of choice post-16 Skill suggests that these negative trends can be reversed by providing learners with SEN and disabilities with a real choice of options when they leave school. The 2010 Ofsted report of SEN and disability found that real choice of education and training opportunities at 16 was limited for many disabled young people and those with special educational needs and that few courses are available for young people with the lowest levels of attainment. Qualifications and assessment accessible to disabled people In order for choices to be realistic qualifications need to become more accessible for example apprenticeships need to be a viable option for disabled young people. Fewer than 10% of apprentices have a disability7 and currently the proportion of apprentices declaring a learning difficulty or disability is declining, from 10.7% in 2007/08 to 8.4% in 2008/09 (age 19-24).8 This trend needs to be reversed as well as support within Apprenticeships increased and awareness raised among employers.9 Entry requirements and the existing frameworks are insufficiently flexible to allow entry to disabled people who would be able to undertake the work and develop the work skills. Similarly Foundation Learning provision for those working below Level 2 across schools and FE must be flexible and destination led to ensure that disabled young people can fulfil their potential whether that is continuing education, work, Apprenticeships, or independent living. Job coaching is an essential way of supporting disabled people into employment and the costs of job coaching should be funded for providers to facilitate progression to employment. 7 How Fair is Britain 2010? Equality and Human Rights Commission (2010) http://www.equalityhumanrights.com/uploaded_files/triennial_review/how_fair_is_britain__complete_report.pdf 8 Data taken from Individual Learner Records and First Statistical Release in December 2009 6 Personalised and Quality Careers Education Information Advice and Guidance (IAG) Effective transition for learners with SEN and disabilities is dependent upon personalised, impartial and quality careers education, information, advice and guidance (CEIAG). Between the ages of 14 to 25 young people have to make important decisions about their education. For disabled young people it can be a confusing and complicated time, as they often receive support from a number of different agencies, including health, social care services and education. Skill strongly stresses that quality and timely CEIAG helps disabled young people and their families to make informed decisions about their future progression options, not just 16-19, but 19+ and through their adult lives. Effective CEIAG helps young people to become aware of all the options available to them, without stereotyped limitations. It raises the aspirations of young people, their parents, teachers and other professionals who work with them. For learners with a learning difficulty and their parents/carers CEIAG forms the basis of a smooth or difficult transition from school to post-16/19 provision, training, independent living and employment. The first step for a learner with SEN and disabilities on transition is to explore all the options available - choices should be based on their interests and abilities, in the same way as their non-disabled peers. Skill believes that it is very important that the learner has a voice in what is done in their name and influences positively how services are delivered. Skill would like to stress the importance of early intervention and planning and that it is essential that the transition process starts at least by Year 9. Disabled young people need quality IAG from a wide range of sources to help them decide upon their future. They should be encouraged to ask friends, family, teachers and support staff questions about the options available to them and to discuss what they like and what they don’t like about learning. Visiting colleges, taster courses, speaking to support staff and current learners/employees can help these young people decide the best options for them. Specialist careers service Personal Advisers should liaise with all those involved in their transition to ensure the move from school goes as smoothly as possible. Staff training and resources The Education and Skills Act (2008) placed a duty on LAs to provide a Connexions service to all young people 13-19 and to 25 for learners with a learning difficulty or disability. Skill is very concerned that the Connexions budget from Department for Education to LAs is not ring-fenced and that Connexions budgets across the country are being dramatically reduced. In order for LAs and careers services to provide quality services LAs need to invest in training for face to face Personal Advisers (PAs) to understand the support needs 7 of learners with learning difficulties and to develop the knowledge and skills to deliver quality Section 139A assessments (see below for more detail). Managers also need a thorough understanding of the work their PAs are required to deliver for young people with a learning difficulty and need to allocate resources accordingly and monitor the quality of delivery. Accountability Skill is also concerned that there is no open accountability on how Connexions budgets are spent by LAs or their performance on delivering their statutory duties, including Section 139A assessments. Skill recommends that the Department should monitor the performance of careers services, how funding is utilised and feedback from parents and users regarding transition from school to post-16 provision, including for learners with a learning difficulty. Any changes to the delivery arrangements of careers education, advice and guidance to young people must be disability equality impact assessed to ensure the needs of disabled young people can be met. In particular the training and quality standards of guidance professionals must meet national competence standards. Assessment processes Currently there are many different types of assessment a disabled young person may have, from pre-school, through to the Section 139A Learning Difficulty Assessment on leaving school at age 16 to 19. There is a need for a clear, nationally determined framework to ensure fairness for all young people, wherever they live and whatever their disability. There is also a need for assessments to be transparent, and owned by the young person and their family, and regularly reviewed. The assessments may involve medical or specialist diagnosis, but should also identify the young person’s support needs and a clear progression plan. Parents should have a named lead professional or key-worker whose job it is to co-ordinate professionals working with the family and be a reliable contact point for the family. From year 7 the progression plans should incorporate activities that will facilitate transition from school to post-school education and training. Quality Section 139a Learning Difficulty Assessments At present the Section 139A Learning Difficulty Assessment is the tool used to facilitate transition from school. Although the s139A may in time be replaced by alternative assessment models, we have commented in some detail on the s139A assessments, because they are in place and they will impact on the lives of very many disabled young people in the coming months. Skill believes that any policy changes to the way careers services in England are delivered needs to provide clear guidance on the responsibility for Section 139a Assessments. Currently the quality of assessments varies greatly across the country 8 and in some cases they are not always carried out. In both cases this leads to disadvantage in the transition process. Under Section 139a of the Education and Skills Act 2008, Local authorities have a duty to provide an assessment for young people with a statement of SEN who they believe are likely to receive further education, training or higher education. Local authorities also have the power to arrange an assessment for disabled young people without a statement of SEN where the learner appears to the authority to have a learning difficulty and is likely to receive further education, training or higher education. This is important as many disabled young people may not have a Statement of SEN for various reasons, however, may require support to continue in post-16 education and training. The assessment collates existing medical, social and educational assessments and leads to a holistic, personalised progression action plan. This identifies the young person’s preferred education and training route and support needs. Post–16 education and training providers, the young person and their parents can use this to negotiate appropriate provision and support. The LAs should also use these assessments to inform their planning to ensure appropriate education and training is available for disabled young people in the area. The s139A assessment should be an integral part of the careers education, advice and guidance process and should be reviewed to help the student’s smooth progression. Quality control Currently many learners with SEN and disabilities face difficulties receiving a quality assessment, which poses a barrier to their participation in post 16 education and training. Skill recommends that LAs comply with the statutory guidance on the s.139a assessment, which states that where a local authority believes that an assessment would benefit a learner (regardless of whether the learner has been assessed or supported before), they will arrange for an assessment to take place. In case law (Alloway v London Borough of Bromley) the judgement concluded that there needed to be tighter control on the quality and compliance of S139A assessments. Ensuring high quality of assessments is critical as they will determine the provision and support young people can access and in turn, their learning outcomes and progression. Skill recommends there should be a quality control framework that underpins the s139a assessment process. The framework must involve disabled learners, parents, and organisations representing disabled learners. Skill recommends that LAs put in place a training needs analysis for Personal Advisers (PAs) and managers and deliver appropriate training on s139A assessments. LA performance should be monitored to ensure they have sufficient numbers of staff qualified to Level 4, in line with the Apprenticeships Schools Children and Learning Act 2009. 9 Increasingly Local Authorities are reducing the number of young people with a Statement of Education Needs and as a result it is possible that fewer learners with SEN and disabilities will be making their transition to further education with a Section 139a Assessment. Course fees for 19-25 year olds There is evidence from our members and Helpline that increasingly colleges are charging young people the cost of their course fees from age 19, even if they have only just left school. Many families with disabled children will not be able to afford the fees for post-16 education and will drop out of education and training at 19, even when they have only left school at 19. Skill is concerned that these young people are penalised and treated less favourably than non-disabled students for taking longer to complete their education for disability related reasons. Their choices in transition are immediately reduced, and they may no longer have a way of remaining in education or training, gaining work-related skills or entering employment. Managing different packages of support from different agencies Many different individuals and organisations are involved a young person’s transition from school to adult life and it can be a very difficult experience for young disabled people who may transfer from different services at different times and have to liaise with different agencies. Research shows that disabled young people don’t always find it easy to understand the current systems that are in place to support them when leaving school. Too often systems unintentionally place barriers in the way of disabled people and their future choices. This can make it more difficult for them to progress onto further education, employment or training than for their non-disabled peers. Skill is concerned that the Ofsted review 2010 found that effective links between agencies to prepare young people to move on at age 18 and above were insufficient, particularly between education provision, adult social care, health services and Job centre Plus. Too often systems are ‘silo based’ –dealing only with their immediate concern. Local authority duty to plan appropriate provision for all young people 16-18 and to 25 for those with a learning difficulty and/or disability LAs have a strategic planning role to ensure that there is a range of education and training available to disabled young people leaving school. In order to do this effectively LAs must put in place means of collecting data not only on the number of young people in the area with different types of disability, but also an analysis of the education needs and the support needs of this cohort. In addition there needs to be a comprehensive survey of existing provision, including that offered through voluntary sector training providers and support groups, which often provide very specialist and local opportunities for disabled people not available at large colleges. LAs will then be able to identify gaps in current provision and begin 10 to work with local providers to develop capacity to offer new and appropriate programmes that meet the needs of disabled young people. Local Authorities are in a good position to engage with all the departments that support disabled people, Adult Social Services, housing, education and training. Local 14-19 partnerships have demonstrated effective multi-agency working and reflect the government’s drive for localism. They are well placed to inform strategic planning for post-16 education and training for disabled young people and to coordinate other agencies. Evaluation of transition for disabled young people. We would also like to stress the importance of evaluating the transition of learners with SEN and disabilities, as many issues at post 16 reflect poor diagnosis and advice in the early years of schooling. Skill is concerned that there is no clear responsibility for the evaluation of young people’s transition. The recent Ofsted SEN review found that the evaluation of progress made by disabled young people within post-16 provision was limited, and that there is no consistent system for tracking the outcomes across transition from previous placements. Skill believes that better cooperation and multi-agency working would enable more effective tracking and recommends that LAs should continue use the Connexions client tracking data to plan for the likely support needs of learners with SEN and disabilities to prevent them becoming NEET and to provide appropriate support and provision should they become NEET. This should include flexible start dates for programmes that will re-engage young people with a learning difficulty. Terminology Currently the school, post-school and HE sectors all use different terminology, which may also be different from that used in social care or medical services.There is a need to adopt a common terminology across all education sectors to ensure common understanding by professionals and families alike. This would improve communications and the transition process. Key worker Young people and their families need a named key worker whose job it is to coordinate staff from each agency involved in supporting the young person, including health services, social care, benefits, education and training. The 2010 Ofsted review found that ‘where educational support for children and young people was most effective, the local authority had taken a strategic and coordinating role to ensure that a wide range of needs could be met effectively, right through to post-16 education’. Skill believes that agencies have a responsibility to work together to ensure positive outcomes for learners with SEN and disabilities and a key worker would make that easier. Skill Policy Team October 2010 11