Care for the Dying and for Those Who Grieve CHAPTER 32 Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 1 Hospice and Palliative Care • Dr. Elisabeth Kübler-Ross • Goal is quality, compassionate care for people facing a life-limiting illness or injury • Team-oriented approach to expert medical care, pain management, and emotional and spiritual support • Tailored to patient’s needs and wishes • Support to patient's loved ones included Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 2 Hospice Care • Available to everyone regardless of age, diagnosis, or the ability to pay • Requires a physician’s best clinical judgment that the patient is terminally ill with a life expectancy of 6 months or less • Patient chooses hospice care rather than curative treatment Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 3 Nursing Goals in End-of-Life Care • Practice the art of presence • Assess for spiritual issues • Provide palliative symptom management • Become an effective communicator • Counsel about anticipatory grieving • Practice good self-care Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 4 Nursing Goals in End-of-Life Care Continued • The Four Gifts of Resolving Relationships – Forgiveness – Love – Gratitude – Farewell Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 5 Styles of Confronting the Prospect of Dying: Seven Motifs 1. Struggle – living and dying are a struggle 2. Dissonance – dying is not living 3. Endurance – triumph of inner strength 4. Incorporation – belief system accommodates death 5. Coping – working to find a new balance 6. Quest – seeking meaning in dying 7. Volatile – unresolved and unresigned Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 6 Grief Reactions, Bereavement, and Mourning • Grief – the reaction to loss – Includes depressed mood, insomnia, anxiety, poor appetite, loss of interest, guilt, dreams about the deceased, poor concentration • Bereavement – period of grieving following a death • Mourning – things people do to cope with grief Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 7 Dual-Process Model of Coping with Bereavement • Loss-oriented stressors – concentrating on the loss experience, feeling the pain of grief, remembering, and longing • Restoration-oriented stressors – overcoming loneliness, mastering skills and roles once performed by the deceased, finding a new identity, and facing practical details of life – Stroebe and Schut Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 8 Four Tasks of Mourning • Accept the reality of the loss • Experience the pain of grief • Adjust to an environment without the loved one – Externally, internally, and spiritually • Relocate and memorialize the loved one Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 9 Maladaptive Grieving • Chronic grief • Delayed grief • Exaggerated grief • Masked grief reactions Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 10 Helping People Cope with Loss • Four constructs that support personal growth – Seeing some good resulting from the death – Continuing the connection with the deceased – Invoking intrinsic spirituality to understand the death and aftermath – Going forward with life Elsevier items and derived items © 2010, 2006 by Saunders, an imprint of Elsevier Inc. 11