IBM Healthcare Roadshow Eithne Reichert , RN, MN, PMP Lorraine Fernandes, RHIA President, RWI Informatics Informatics Consultant, Saskatchewan, Canada Email: rwi@sasktel.net Global Healthcare Ambassador IBM Software Group San Francisco,, USA Email: lfernand@us.ibm.com Building a smarter planet Agenda Australian Health Reform – Challenges and Opportunities Comparison to Canadian approach for national EHR services Starting on the Path – Building Blocks – Technical & Business Architecture & Standards – Identification requirements to support Integration of Records – The Canadian experiences and lessons learned Continuing on the Path – Access to More Information, Chronic Disease Management, Integration to Point of Service – Opportunities for future Questions / Discussion 2 © 2009 IBM Corporation Global Health Care State: Inefficiencies from Fragmented Data Building a smarter planet Registration systems are not connected …re-entering patient demographic information is time consuming & error prone Clinicians don't have access to all information … lack of complete information affects decision making, treatment & outcomes Family History Exam Records Patient Symptoms Costs continue to increase …simply implementing new systems does not solve the problem System adoption is slow …clinicians continue to ‘hunt & peck’ for information, waste 20-40% of their time Patient Healthcare Data Treatment Records Admission History Ambulatory Data Prescription History Clinicians Health information systems unable to recognise clinicians …multiple sources & contact information is outdated …communication is not timely or consistent as a result A unified view of patients & providers improves processes & increases efficiencies 33 © 2009 IBM Corporation Building a smarter planet Strategies are similar Australia The future health system is to be powered by the smart use of data and enabled by the electronic flow of essential information between individuals and the health professionals from whom they seek care and advice. There should be a passionate commitment to measure and improve health and performance outcomes. PCEHR is the core infrastructure element to enable the quick and seamless exchange of patient-controlled, high priority healthcare information. Canada A high quality, sustainable and effective Canadian health care system supported by an infrastructure that provides residents of Canada and their health care providers timely, appropriate and secure access to the right information when and where they enter into the health care system. Respect for privacy is fundamental to this vision. 4 © 2009 IBM Corporation Building a smarter planet How Does Canada & Australia Compare? Canada Australia Year Started 2001 2005 when NEHTA formed Priorities Common architecture and core services Foundation infrastructure. Health Identifier, Standards and Snomed Privacy Provincial and Federal Privacy commissioners with well established policy Currently no privacy bill for PCEHR. Health Identifier has clauses to prevent privacy commissions prior to PCEHR Architecture Defined with HIAL, standards To be defined by NEHTA and finalised with PCEHR at a national level. High level architecture released. State level – working on architecture Certification Started in 2010 Certification for accessing Health Identifier Funding $CAN 1.6B to date flow through to Provinces and Projects $467 Million over 2 years for PCEHR National infrastructure and Community based infrastructure has been funded. No funding at state levels to date. Outcomes Clinical adoption and outcomes impact now being addressed Citizens and Providers have a Health Identifier. National Authentication Service and Snomed available. Adoption levels currently low Weaknesses Later emphasis on adoption and impact on clinical outcomes. Slow movement towards eHealth – 6 years building. Lack of roadmap to achieve integration. 5 © 2009 IBM Corporation Building a smarter planet Canada – Health Care Governance • Health care is delivered locally by health authorities (multiple hospitals) and community physicians and providers • Health care is mostly funded by each province (state) to the delivery organisations • Standards & directions are developed nationally. EHR projects funded nationally if fit within the standards and directions Source: Canada Health Infoway 6 © 2009 IBM Corporation Linking Information across Jurisdictions implementations Building a smarter planet EHR INFOSTRUCTURE (EHRi) Ancillary Data & Services Health Information Data Warehouse EHR SOLUTIONLongitudinal (EHRS) EHR INFOSTRUCTURE (EHRi) Registries Data & Services EHR Data & Services Ancillary Data & Services Record Services Health Information Data Warehouse EHR SOLUTIONLongitudinal (EHRS) Health Information Access Layer Point of Service Application Record Services Point of Service Application Point of Service Application Homecare Emergency Services Community Care Center Emergency Services Clients / Patients Clients / Patients Specialist Clinic Pharmacy Laboratory Source: Canada Health Infoway 7 EHR Viewer Homecare Community Care Center Diagnostic Registries Data & Services Health Information Access Layer EHR Viewer Hospital Emergency EHR Data & Services Specialist Clinic Pharmacy Hospital Emergency Laboratory Diagnostic Architecture allows some variability in implementation © 2009 IBM Corporation Building a smarter planet Canada EHR Projects © 2009 IBM Corporation Building a smarter planet Canadian Progress 9 © 2009 IBM Corporation Building a smarter planet Starting on the Path The Building Blocks: Identification of Clients, Providers Drugs Labs DI Images 10 © 2009 IBM Corporation Connecting Information - Unified Patient Record for the PCEHR Building a smarter planet Local Care Centre First: Last: City/Cntry: Treatment: Visit: Social Services Colm Heaney London, Eng Arthroscopy CCR 08/2008 Social Services General Practitioner First: Colum Last: Heaney City/Cntry: Manchester, Eng Treatment: Immunization Records Visit: 05/1980 First: Colm Last: Heaney City/Cntry: Manchester, Eng Treatment: History & Physical Visit: 09/1987 General Practitioner Record Locator Service / EMPI / Patient Registry Urgent Care Urgent Care Health Record Name: Colm Heaney Visit Date: Name: Local Care Centre First: Last: City/Cntry: Treatment: City/Country: London, Eng Treatment / Prescription: Consent: 08/2008 Colm Heaney Arthroscopy CCR Yes 06/2008 Colum Heaney Disability Approval Yes 04/2008 Colm Heanie CT Scan No 04/2008 Colm Heany Coumadin 2mg Yes 04/2008 Colm Heaney Myocardial Infarction Yes 11/1997 Colm Heany Penicillin Allergy Yes 09/1997 Colm Heaney History & Physical No 05/1980 Colum Heaney DTaP, IPV, PCV, Rota Yes Visit: Mental Health First: Last: City/Cntry: Outcome: Visit: Colum Heaney Manchester, Eng Disability Approval 06/2008 Hospital First: Last: City/Cntry: Treatment: Visit: Mental Health Colm Last: Heanie First: Coln Last: Heany City/Cntry: Manchester, Eng Prescription: Coumadin 2mg Visit: 04/2008 City/State: London, Eng Treatment: CT Scan Visit: 11 11 04/2008 Hospital Colm Heaney London, Eng Myocardial Infarction 04/2008 Pharmacy Diagnostics First: Coln Heany London, Eng Penicillin Allergy 11/1997 Diagnostics Pharmacy © 2009 IBM Corporation Building a smarter planet Sole reliance on National or State Identifiers needs to be considered…. Unique Health Identifiers don’t provide total solution Governance considerations are significant Human and business processes can affect capture and use Implementation and back-porting to legacy records costs are high Identifiers easily associated with personally identifiable health information provides increased opportunity for privacy breaches Accuracy using a UHI alone is insufficient to meet identification requirements 12 © 2009 IBM Corporation How It Works… Building a smarter planet Ancillary Data & Services Registries Data & Services Client Registry Outbreak Management EHR Data & Services PHS Reporting Shared Health Record Drug Information Data Warehouse Diagnostic Imaging Health Information Laboratory Provider Registry Location Registry Business Rules EHR Index Terminology Registry Message Structures Normalization Rules Longitudinal Record Services Security Mgmt Data Privacy Data Configuration Common Services HIAL Public Health Services I need to know what information is available Radiology Pharmacy Center for Mr. R. Smith as he is a System PACS/RIS new patient referred to me Public Health Provider Pharmacist Radiologist Patient Info Lab System (LIS) End-User Info Hospital, LTC, Physician CCC, EPR Visit History Laboratory Lab Clinician Office EMR Drug Profile EHR Viewer Diagnostic Imaging Physician/ Provider Physician/ Provider Physician/ Provider Clinical View POINT OF SERVICE Source: Canada Health Infoway 13 13 © 2009 IBM Corporation Building a smarter planet Use of the EHR Identification Registries Across Canada Eight out of nine larger provinces using IBM® Initiate® Patient as the provincial EMPI/Client Registry – Smaller provinces and territories using clinical systems Two provinces also using IBM® Initiate® Provider as the provider registry – Nova Scotia, Alberta Six of eight provinces actively integrating EHR with client registry for real time patient identification Four of eight provinces integrate client registry with Provincial PACS Five of eight provinces integrate client registry with provincial Lab results 14 © 2009 IBM Corporation Building a smarter planet British Columbia: The First Implementation… British Columbia is the westernmost of Canada's provinces Health services primarily delivered through six integrated networks called regional health authorities Ethnically diverse population with significant Asian and Aboriginal citizens 2009 estimated population 4,420,000 15 © 2009 IBM Corporation Building a smarter planet Current status of British Columbia: IBM® Initiate® Patient Links patient identity data from multiple sources – 3 regional health authorities and the Ministry’s legacy Client Registry System using HL7 v3.0 message – Includes 6 contributing sources and 8 million unique person records Enables data quality remediation – Manage linkages and duplicates across 12 million individual source records – Manages EHR IDs and changes across receiving systems Multiple integration points – Source of identity authentication for lab results contributed by two Health Authorities to the Provincial lab information system 16 © 2009 IBM Corporation Building a smarter planet Saskatchewan: Home of publicly funded universal health care: Province funds 90% of health care services Health services primarily delivered through 11 integrated networks called regional health authorities Multiple ethnic origins: English, Irish, French, German, Ukrainian, Russian, Middle Eastern, Oriental, and significant Aboriginal population Many communities bordering Alberta and Manitoba 2009 population 985,000 17 © 2009 IBM Corporation Building a smarter planet Current status of SCI: IBM® Initiate® Patient Links patient identity data from multiple sources – 11 regional health authorities, the Saskatchewan Cancer Agency, the provincial insurance registry – Includes 80 facilities and 2.3 million unique person records Enables data quality remediation – Manage linkages and duplicates across 5 million individual source records – Manages EHR IDs and changes across receiving systems Multiple integration points – Source of identity authentication for provincial PACS, lab results, and drug repositories – Future integration with public health surveillance and document repository 18 © 2009 IBM Corporation How IBM® Initiate® Patient Helped Address Client Identification Challenges Building a smarter planet Very good algorithm tweaked to your specific demographics Excellent recognition of duplicates – even hard to find ones Consistent data linkage matching across sources Ability to query at point of service against all records System recognises manual review & intervention when required as higher authority Ability to be flexible in the configuration settings and business requirements to manage sources uniquely Application is easy to use, easy to train users Should be Linked Should not be Linked Lowest Possible Score Don’t Link Manual Review Lowest Threshold 19 Link Highest Possible Score Upper Threshold © 2009 IBM Corporation Building a smarter planet Lessons Learned Implementations and Directions 20 © 2009 IBM Corporation Building a smarter planet Benefits of client & provider identification for EHR services Building block for EHR communication Better identification through improved search and verification from different sources and consuming systems Better understanding of health care recipients & referral patterns between sources Improved health record - both paper & electronic Better duplicate identification & less duplicate creation Information more accurate and comprehensive in real time Assistance with management of paper health records and outcome measurement An EHR starts with a solid foundation for patient identification 21 © 2009 IBM Corporation Challenges for projects and programs Building a smarter planet Technical Challenges • Older systems, limited money for replacements • Each hospital & office may be managed independently • Common practice may not be used across organisations doing the same thing • ‘Integration’ knowledge & experience is limited • Limited interoperability platforms established • Network, firewalls, infrastructure connectivity issues Organisational Challenges • Hard to influence change in other organisations and other people • Stakeholders may have to ‘choose’ to participate • Politics, opinions and vision issues • Requires large & diverse. working groups • Stakeholders are busy and involved in other needs • Who was going to manage the combined data? • It seems to be so hard – how can we make it easier/ quicker? 22 Business Process Challenges • Data quality & integrity is affected by processes • Differences in collection & use of records within and across sources • Data quality role(s) within the organisation is lacking • Privacy is an issue when sharing data - how much, whom to share, for how long • Best practices & processes need to be confirmed regardless of standards • Clinical use of data may be different than departments who send data © 2009 IBM Corporation Building a smarter planet Building an EHR: Lessons Learned Business Privacy concerns require education & discussion Sensitivity with diagnostic & health data, in particular with mental health and infectious diseases Real data is often required for testing and training to manage decision-making on configuration Best practice & data standards help stakeholder understanding of accountabilities and risks Need for people who know – health info professionals, knowledge leaders 23 Technical Need to understand business processes that generate data in messages so integration rules need context Integration knowledge & experience is evolving Need to work through and with standards & solutions Technically integrated environments need comprehensive testing Interoperability between systems has an overhead, regardless No single solution is going to fit all needs, technology cannot mandate business process © 2009 IBM Corporation Implementation timeframes can be fairly quick…. Building a smarter planet 2004 JUNE 2005 JULY AUG SEPT OCT NOV DEC JAN Phase I Phase I Scoping & Planning Funding Approval 2006 FEB MAR APRIL Phase II Data Analytics MAY JUNE JULY AUG SEPT OCT NOV DEC JAN Phase II Requirements/ Specifications Phase III PIII PIII Implementation Data Message Quality Testing Phase IV GO Production + LIVE 24 © 2009 IBM Corporation Know the business…. Building a smarter planet Shared Information / Shared Accountability for Quality in the EHR • Know what you are wanting to do: – Clinical quality and patient safety may be different than financial – Support the business needs of source systems – Understand the business processes that may affect shared data – Understand issues and plan for data governance program – Align the fit with community EMRs and hospital systems needs – Consider the future: – EHR identification to the clinical strategies, PACS, Lab, & Drugs, chronic disease, patient information – Understand the downstream use of data sent 25 © 2009 IBM Corporation Building a smarter planet Understand the Data Use and Reuse – Data Governance Downstream Error - Patient presents sister’s health card Referral Lab EMR Information shared broadly and instantly Drugs Original ID Data PACS Need to Audit data back to a specific point of time Portal Need consistent validation & correction Client Registry Consent © 2009 IBM Corporation Building a smarter planet Evolving Standards Data & Message Standards provide a roadmap for implementation Data integration quality is more than messaging; Business process is key to quality Continued work for integration and data quality of combined record Implementation projects can challenge & evolve the standards Accountability is imperative for data quality in the PCEHR Small steps can go a long way! Start on the path…… © 2009 IBM Corporation Implementation Words of Wisdom… Building a smarter planet 28 Never underestimate the importance of data quality at the foundation of your EHR initiatives Understand downstream impacts of data use & reuse Allow adequate time & resources to address governance & accountability Understand impact of patient & provider misidentification for shared data © 2009 IBM Corporation Building a smarter planet Opportunities and Future Directions So where to Next? 29 © 2009 IBM Corporation Collaborate: Client Care Team & Communities of Practice Building a smarter planet Physician Specialist Nurse Therapist Client & Family Nurse Practitioner Program Educator Pharmacist Source – Primary Health Care Project © 2009 IBM Corporation Building a smarter planet Manage: Chronic Disease Solutions © 2009 IBM Corporation Integrate: Tele-Health Tele-Consultation, Tele-Home Care, Tele-Triage Building a smarter planet © 2009 IBM Corporation Building a smarter planet Create Access: Patient Portals - What Canadians Say: Functions Most Likely to Use Source: Canada Health Infoway 33 © 2009 IBM Corporation Building a smarter planet Launch Public Awareness Campaign Source: Canada Health Infoway 34 © 2009 IBM Corporation Start somewhere and get going…..it is a longer path than you may imagine….. Building a smarter planet Questions /Comments??? 35 © 2009 IBM Corporation Building a smarter planet Thank you. 36 © 2009 IBM Corporation