TEACHING CLINICAL ETHICS and PROFESSIONALISM: WHY and HOW Prof. Alan Rubinow M.D. Hadassah-Hebrew University Medical School 29th February, 2012 “Doctors are men who prescribe medicines of which they know little, for diseases about which they understand even less, for people about whom they know nothing” Voltaire Medicine in the 21st Century: Patient, Physician and Society Advances in technology Health care economics Public awareness of health care issues Patients’ advocate groups/media Negative elements: greed, arrogance, deception, coercion Transfer of decision-making to patient Professionalism Student/Profession Student/Physician Student/Patient(strangers) Student/Patient/Family Student/Health and Disease Student/Health and Disability Student/Personal and Professional life The Moral Context of the Doctor-Patient Relationship Honesty and integrity Mutual respect Trust Empathy Mutual goals Professionalism Introduction of student Medical student? Young doctor? Soon to be doctor? Student doctor? What difference does it make? Professionalism Altruism- best interests of patient: not self-interests Accountability- patient, society, profession Excellence- exceed ordinary expectations Duty- acceptance of a commitment to service Honor and integrity- highest standards of behavior, be fair, truthful, keep promises, meet commitments Respect for persons- humanism, collegiality, dignity Confidentiality-communications are private Teaching Ethics and Professionalism Can the concepts of ethics, values and professionalism be taught? Autonomy Beneficence PHYSICIAN Do no harm Justice Teaching Clinical Ethics Why? Why Teach Ethics? Much debated: “ if you can’t evaluate it, don’t teach it” Teaching Clinical Ethics Justification Practice of medicine moral issue Clinical medicine more than technical skills Ethics has its own content and method Ethics is as teachable as any discipline Make ethically defensible decisions Goals of Teaching Ethics Philosophy of medicine/principles Sensitize students to value issues Teach moral reasoning Highlight the uniqueness of patientdoctor relationship Place medicine in broader, social, professional perspective Not to teach students to be ethical Teaching Clinical Ethics What? Teaching Ethics and Professionalism What concepts should be highlighted in a course designed to foster empathy, respect, responsibility and commitment? “… initiatives for teaching medical humanities and bioethics have the goal of turning high-tech medical performance into a high-touch one in which the human essence is revalued” Prof Donatella Lippi Bull.Med.Ethics (2005) Topics in Clinical Ethics Philosophy and medicine Informed Consent Truth-telling Confidentiality Justice, resource allocation: macro/micro Transplantation Ethics Ethical issues in HIV/AIDS Maternal-fetal conflicts Family-dispute resolution Ethical issues in surgery Theories and principles Brain death, dying, DNR Advance directives Disclosing mistakes Ethical issues in pediatrics Ethical issues in psychiatry Ethical issues in intensive care Patients who refuse food/water Research on human subjects Ethics in geriatric care Ethics in stem-cell research Teaching Clinical Ethics When? Clinical Ethics Throughout the Medical Curriculum and Clinical Practice Pre-clinical - intellectual tools - interpersonal skills Clinical - teaching essential in clinical years - ethics only relevant in resolving practical questions - integrated into medical curriculum Teaching Clinical Ethics Who? Clinical Ethics Physicians vs non-physicians Consensus : physicians with adequate ethics training Benefits of clinician teaching ethics - credibility with students - serve as role models - bring relevant experience/ cases Teaching Clinical Ethics How? How to Teach Ethics? Frontal lectures Seminars (small groups) Programmed, simulated patients Role - playing Video interviews Case studies Teaching Ethics and Professionalism Ethics Course Prior to first clinical clerkship in medicine Frontal lecture course 30-35 hours Handbook- papers, stories, case studies Booklet - Patient’s Rights Law Entire class +/- 100 students/year Lecturers- senior faculty only Focus- ethics, law, economics, doctor/patient relationship, professionalism Teaching Medical Ethics “ ability to present a conceptual framework that students (and young physicians) can grasp and build on and to create a teaching milieu which fosters selfcriticism and personal development ” S. Benatar. 1991 Teaching Ethics and Professionalism Clerkship Internal Medicine Seminar Small groups 6-7 students Ethical principles – case studies Ethical issues that impact on medical students Project assignment Ethics and Professionalism Project in Clinical Ethics Personal encounter with one patient clerked by student Describe pertinent medical facts Define principal ethical issue Discuss/balance conflicting ethical principles Suggest how dilemma may be resolved Prepared 8 weeks into the rotation Ethics and Professionalism Project in Clinical Ethics Assignment submitted in two copies Include up to 5 relevant references Each student receives individual written feedback on his/her work Presents his/her patient to group of peers (6-20 students) Since 2008 compulsory: 10% of grade Ethics and Professionalism Project in Clinical Ethics Observations 640 students in clinical rotation (2001-2011) Majority found exercise rewarding Few (2-3%) unable to find case without help 24 (3.5%) were unable to suggest a way of resolving the conflict Ethics and Professionalism Project in Clinical Ethics 256 students (40%) presented an ETHICAL dilemma Autonomy Informed consent Withholding/withdrawing life support End of life: death, dying, sanctity of life, Restraining patients Resource allocation Ageism Decision-making capacity Futility Ethics and Professionalism Project in Clinical Ethics 224 students(35%) submitted a PROFESSNAL issue Truth-telling Confidentiality Keeping promises Disrespect for patients Whistle-blowing Surrogate/caregiver/family interactions Maintaining contact after discharge (intimacy) Disclosing mistakes Ethics and Professionalism Project in Clinical Ethics 160 students (25%) emphasized a dilemma specific to STUDENT STATUS Terms of introduction to patients Power of the “white coat” Disclosure of information Practicing skills (blood drawing) Presumed consent Intimate physical examination Duty to learn/teach conflicting with patient autonomy Examples A 92 year old man, with metastatic cancer of the lungs, signs a living will in the presence of his sons: when and if a situation occurs that he cannot make decisions for himself, he will not be artificially ventilated or kept alive by heroic means. He does want to have his pain well controlled. Several months later his sons bring him to emergency room in severe pain and respiratory distress. Team is aware of his request and try control his pain and breathing with small doses of morphine. His situation gets worse and he implores the doctors to ”DO SOMETHING!” Ethics and Professionalism Project in Clinical Ethics 79 year old woman with Alzheimer disease. Egg size tumor 1 cm from anus. Teacher: wants each (7) students to examine patient. “if you know how to palpate a tumor like this you will definitely save lives” Patient: unable to give consent Student: “learning to palpate a tumor in order to help some yet undefined individuals in the future does not override autonomy and consent of patient” Ethics and Professionalism Project in Clinical Ethics 72 y/o man signing consent form. “I cannot read without reading glasses” (oral consent and forms) 44 y/o woman “not opposed to heart surgery but will do only what what my Rabbi advises” (substituted autonomy) 38 year-old male who has had two heart transplants for dilated cardiomyopathy. Wants/demands third heart! (resource allocation-scarce vs. expensive) Professionalism, Ethics, Intimacy and Boundaries Can your friend be your patient? Can your patient be your friend? Ethics and Professionalism Project in Clinical Ethics 78 year-old man lives alone with foreign caregiver. On discharge he invites student (female) to his home Ethics and Professionalism 25 year-old male with genetic muscle disease requests student’s cellular phone number Professionalism Confidentiality “ Whatsoever things I see or hear, concerning the life of men, in my attendance on the sick ... I will keep silence thereon, counting such things to be as sacred secrets.“ Hypocratic Oath Ethics and Professionalism Confidentiality Can students be prepared for the responsibility implicit in obtaining sensitive, private information from strangers? Ethics and Professionalism Confidentiality ( 29 students- 14%) Truth-telling Keeping promises Disrespect for patients Whistle-blowing Surrogate/caregiver/family/ interactions Maintaining contact after discharge (intimacy) Disclosing mistakes Ethics and Professionalism 30 y/o woman with recurrent asthma tells student her husband beats her. Fakes asthma attacks to escape him. “Don’t tell!” Ethics and Professionalism Confidentiality 38 y/o man with acute hepatitis B tells only student that he suspects source is extramarital sexual contact Doesn’t want information in hospital record Ethics and Professionalism 17 year-old boy, ultra-orthodox, studies in all boys school, is referred by army physician. He has a micro-penis, un-descended testes and evaluation reveals an XX karyotype Ethics and Professionalism 44 year-old man with Wilson’s disease is admitted to evaluate his suitability for a liver transplant. Record states previous alcohol abuse, strongly denied by patient. Student develops good rapport with patient. Fourth hospital day sees patient angry and agitated. Student:” What happened? Why are you so upset?” Patient: “Someone stole my cell-phone. What I did was go down to the second floor and take a cell-phone from a patient on the orthopedic floor!” Student: Is this information confidential? Ethics and Professionalism Student argued: On one hand, patient committed a felony (stealing) and it is my civil duty to report him. On the other hand, by such an action I may indirectly kill him. The committee responsible for allocating organs (scarce resource) may deny him a liver on the basis of him being unreliable, inferior social worth etc. Professionalism: Truth-telling Lying:Making false statement, intentionally misleading listener Deception: Facts may be true or partially true- intention to mislead, jargon Non-Disclosure: Deliberately not providing information Truth dumping: Overwhelming patient with detailed medical data: patient provided with data he cannot use Misrepresentation: Intentional/unintentional quotation of own experience or medical literature Coercion: Badgering patient to accept treatment option Professionalism The medical student accompanies a patient who is going to have an endoscopy for evaluation of abdominal pain. During the procedure the gastroenterologist shows you, the student, a large tumor that is highly suspicious of being malignant, in the stomach. On your back to the ward the patient asks you, “What did you see? Ethics and Professionalism Deception intended to mislead patient 74 y/o man with cancer of prostate on chemotherapy. Oblivious of diagnosis. “he doesn’t ask, we don’t tell” 42 y/o man with HBV cirrhosis. Has prolonged fever. Tested for HIV/AIDS among other tests. No permission requested. Ethics and Professionalism Lying to patients 44 y/o woman has had 3 kidney transplants. Recently HCV terminal liver failure. Not candidate for fourth transplant. Told with student present that she is on the list - alleviate anxiety 73 y/o woman has a malignant pleural effusion. Patient wants to know. Family not allow data to get to patient. Student knows. Patient asks. Told infection The great enemy of the truth is very often not the lie -- deliberate, contrived and dishonest -- but the myth -- persistent, persuasive and unrealistic John F. Kennedy Interaction with Patients Professionalism and Conduct Always wear your identification badge Always introduce yourself Never call a patient by first name (without permission) Never sit on a patient’s bed Never discuss patients in the elevator or coffee shop (even if they cannot be identified) Clinical Ethics: Conclusions The 5 C’s of Teaching Clinical Ethics Teaching should be Clinically based Real patient Cases should serve as teaching focus Teaching Continuous throughout the curriculum Teaching Coordinated with other objectives Clinicians should be active instructors and role models Ethics and Professionalism Project in Clinical Ethics Summary Case finding useful and challenging Allow demonstration/development of insight, observational and reflective skills Learn language of ethical argument Apply bioethical concepts at the bedside Identify and analyze problematic issues Fosters empathy, maturity “Every case has its lesson which is often, but not always, learnt” Sir William Osler (1902)