Integrating MOLST into a Community-wide Approach to Advance Care Planning Patricia Bomba, MD, FACP Vice President and Medical Director, Geriatrics Chair, MOLST Statewide Implementation Team & eMOLST Program Director Leader, Community-wide End-of-life/Palliative Care Initiative Chair, National Healthcare Decisions Day New York State Coalition Patricia.Bomba@lifethc.com CompassionAndSupport.org 1 A nonprofit independent licensee of the BlueCross BlueShield Association Objectives Discuss the nuts and bolts of the MOLST Program as part of an evidence-based, two-step approach to advance care planning Describe effective, shared, informed patient/family medical decision-making Demonstrate the process for patient centered, goals-based communication Identify where MOLST fits into palliative care and new NYSPHL: FHCDA, PCIA and PCAA Prepare for MOLST and palliative care implementation and quality improvement activities to improve care at the end of life Explain how eMOLST improves outcomes, quality, patient safety; reduces patient harm and achieves the triple aim 2 Recognizing MOLST as a Key Pillar of Palliative Care New Legislative Changes Patricia Bomba, MD, FACP Vice President and Medical Director, Geriatrics Chair, MOLST Statewide Implementation Team & eMOLST Program Director Leader, Community-wide End-of-life/Palliative Care Initiative Chair, National Healthcare Decisions Day New York State Coalition Patricia.Bomba@lifethc.com CompassionAndSupport.org 3 A nonprofit independent licensee of the BlueCross BlueShield Association Why This Discussion is Important Approximately 2.5 million annual US deaths Three-quarters are age 65 or over Covered by the federal Medicare program Medicare recipients double as baby boomers age • 69 million in 2030 (estimate) • 35 million in 2000 Approximately 25 percent of Medicare spending occurs in the last year of life most of it by inpatient hospital care 4 Improve quality and patient safety Reduce unwanted readmissions and costs Thoughtful EOLC Discussions Benefits Improve quality; reduce cost * Only 31% of patients with advanced cancer at EOL had had discussions with physicians about EOLC * Patients who had EOL conversations had significantly lower costs in their final week of life, over $1,000 less * “Higher costs were associated with worse quality of death” * "End-of-life discussions are associated with less aggressive medical care near death and earlier hospice referrals.” ** “Aggressive care is associated with worse patient quality of life and worse bereavement adjustment.” ** **Arch 5 Intern Med. 2009;169(5):480-488 **Associations Between End-of-Life Discussions, Patient Mental Health, Medical Care Near Death, and Caregiver Bereavement Adjustment JAMA. 2008;300(14):1665-1673 Palliative Care Interdisciplinary care aims to relieve suffering and improve quality of life for patients with advanced illness and their families offered simultaneously with all other appropriate medical treatment from the time of diagnosis KEY: focuses on quality of life and provides an extra layer of support for patients and families Three Key Pillars with Psychosocial/Spiritual Support Advance Care Planning and Goals for Care Step 1: Community Conversations on Compassionate Care* Step 2: Medical Orders for Life-Sustaining Treatment (MOLST)* Pain and Symptom Management Caregiver Support 6 *A Project of the Community-Wide End-of-life/Palliative Care Initiative Continuum of Care Model for Patients with Serious Illness Medical Management of Chronic Disease Integrated with Palliative Care Goals for Care shift 12 mo Diagnosis Palliative Care (PC): Advance care planning & goals for care, pain and symptom control, caregiver support Death Hospice Progression of Serious Illness 7 6mo Bereavement Palliative Care and Community Perspective Provides What Patients Want at End-of-life Quality end-of-life care 8 receiving adequate pain & symptom management* ** avoiding inappropriate prolongation of dying* ** achieving a sense of control* ** relieving the burden on loved ones* ** strengthening the relationship with loved ones* ** respect uniqueness of individual** provide appropriate environment** address spiritual issues** recognize cultural diversity** communication integral between dying person, family and professionals** *Singer, et.al. JAMA 1999; 281: 163-8 **McGraw, et.al. Conn Med 2002; 66 (11); 655-64 Palliative Care Information Act (PCIA) Attending health care practitioner must offer patients with a terminal condition information and counseling about palliative care range of options appropriate to the patient, including other appropriate treatment options prognosis; risks and benefits of various options patient’s “legal rights to comprehensive pain and symptom management at the end of life” obligation to refer if not willing, or does not feel qualified 9 Effective February 9, 2011; Amended 2012 Palliative Care Access Act (PCAA) Hospitals, nursing homes, home care agencies and two types of assisted living residences (enhanced and special needs) establish policies and procedures regarding palliative care, including access to information and counseling shall facilitate access to appropriate palliative care consultations and services Effective September 27, 2011 10 Family Health Care Decisions Act (FHCDA) NYSPHL Article 29-CC and Article 29-CCC FHCDA is Public Health Law (PHL) Article 29-CC Part of Laws of 2010, Chapter 8 Applies to all health care decisions in general hospitals and residents of nursing homes, including MOLST orders effective June 1, 2010 Part of Laws of 2010, Chapter 8 repealed PHL § 2977 (Nonhospital orders not to resuscitate) created a new PHL Article 29-CCC (Nonhospital orders not to resuscitate) Decisions regarding hospice care, including the withdrawal or withholding of life-sustaining treatment effective September 19, 2011 11 Family Health Care Decisions Act, Laws of New York, Chapter 8. Effective June 1, 2010 Family Health Care Decisions Act (FHCDA) Public Health Law (PHL) Article 29-CC Allows surrogates to make medical decisions Routine medical treatment Major medical treatment (2nd MD must concur) Decisions to WH/WD LST, including DNR • Higher clinical and surrogate standards and special requirements apply Includes patient safeguards to ensure sound medical treatment decisions are consistent with the patient's wishes or in the best interest, if wishes are unknown 12 Family Health Care Decisions Act, Laws of New York, Chapter 8. Effective June 1, 2010 Family Health Care Decisions Act DOES NOT eliminate the need for open and honest conversations with loved ones about your wishes and desires for medical care. DOES NOT eliminate the need for advance care planning or to have advance directives on file with your doctors, your attorney and your family members. 13 14 Advance Care Planning Compassion, Support and Education along the Health-Illness Continuum Advancing chronic illness Multiple comorbidities, with increasing frailty Chronic disease or functional decline Healthy and independent Maintain & maximize health and independence 15 © Patricia A. Bomba, M.D., F.A.C.P. Death with dignity Advance Directives and Actionable Medical Orders Traditional ADs Actionable Medical Orders For All Adults For Those Who Are Seriously Ill or Near the End of Their Lives Community Conversations on Compassionate Care (CCCC) New York Health Care Proxy Living Will Organ Donation State-specific forms: e.g. Durable POA for Healthcare 16 Medical Orders for Life-Sustaining Treatment (MOLST) Program Do Not Resuscitate (DNR) Order Medical Orders for Life Sustaining Treatment (MOLST) Physician Orders for Life Sustaining Treatment (POLST) Paradigm Programs CompassionAndSupport.org CaringInfo.org © Patricia A. Bomba, M.D., F.A.C.P. CompassionAndSupport.org POLST.org Health Care Proxy / Living Will vs. MOLST Health Care Proxy / Living Will completed ahead of time applies only when decision-making capacity is lost MOLST applies right now not conditional on losing decision-making capacity set of actionable medical orders approved by NYSDOH for use in ALL settings, including the community 17 Differences Between POLST/MOLST and Advance Directives Characteristics 18 POLST Advance Directives Population For the seriously ill All adults Timeframe Current care Future care Who completes the form Health Care Professionals Patients Resulting form Medical Orders (POLST) Advance Directives Health Care Agent or Surrogate role Can engage in discussion if patient lacks capacity Cannot complete Portability Provider responsibility Patient/family responsibility Periodic review Provider responsibility Patient/family responsibility Bomba PA, Black J. The POLST: An improvement over traditional advance directives. Cleveland Clinic Journal of Medicine. July 2012; V 79, No.7: 457-464. Community Conversations on Compassionate Care Five Easy Steps 1. Learn about advance directives 2. 3. Remove barriers Motivate yourself 4. View CCCC videos Complete your Health Care Proxy and Living Will 5. NYS Health Care Proxy NYS Living Will Advance Directives from Other States Have a conversation with your family Choose the right Health Care Agent Discuss what is important to you Understand life-sustaining treatment Share copies of your directives Review and Update A Project of the Community-Wide End-of-life/Palliative Care Initiative Medical Orders for Life-Sustaining Treatment (MOLST) Program Improve the quality of care people receive at the end of life effective communication of patient wishes documentation of medical orders on a brightly colored pink form promise by health care professionals to honor these wishes Complements the use of traditional advance directives 20 A Project of the Community-Wide End-of-life/Palliative Care Initiative MOLST: End-of-life Care Transitions Program Hospital LTC Office 21 A Project of the Community-Wide End-of-life/Palliative Care Initiative History of MOLST Program Work initiated Fall 2001 Created November 2003 Adapted from Oregon’s POLST Combines DNR, DNI, and other LST Incorporates NYS law Collaboration with NYSDOH – 3/04 Revised 10/05; Approved Inpatient DNR form Legislation passed 2005;Community Pilot launched Chapter Amendment passed 2006 Gov. Paterson signed bill 7/8/08 MOLST consistent with PHL§2977(3) Permanent change in EMS scope of practice MOLST permanent and statewide HEAL 5 grant includes eMOLST, 2008 DOH-5003 NYSDOH MOLST form, 6/10 FHCDA, effective June 1, 2010 eMOLST Preview: October 19, 2010 PCIA, effective February 9, 2011 PCAA, effective September 27, 2011 Hospice added to FHCDA, September 19, 2011 22 © Patricia A. Bomba, M.D., F.A.C.P. National POLST Paradigm Programs *As of 2006 National POLST Paradigm Programs *As of November 2013 Mature Programs Endorsed Programs Developing Programs POLST-Like Programs No Program (Contacts) Reciprocity Are advance directives and POLST Paradigm forms recognized? New York recognizes advance directives and POLST Paradigm forms from other states Border states and POLST* Vermont: Yes New Jersey: Yes Pennsylvania: No statute or regulation Massachusetts: Unclear Connecticut: no POLST paradigm Program Other states Varies: check POLST.org 25 *Sabatino, C.P., Karp, N. Improving Advanced Illness Care: The Evolution of State POLST Programs. AARP Public Policy Institute. Copyright 2011, AARP; updated 2012 Questions? Thank You for Attending! 26