The National College Depression Project: The Journey Thus Far Eleanor W Davidson MD Susan Kimmel MD May 20 2014 Background: What’s the rationale for this project? Depressive disorders are highly prevalent, enormously costly, and a leading cause of disability and reduced quality of life* Depressed adolescents are at increased risk for impaired academic performance and attainment** Among college students stress-related symptoms are major impediments to academic performance*** *Langlieb, et al: JOEM 2005;47:1099-1109 **Asarnow, et al: J Adolesc Health 2005;37(6):477-83 ***ACHA data American College Health Association - National College Health Assessment (ACHA-NCHA) Web Summary. Updated April 2006. http://www.acha.org/projects_programs/ncha_sampledata.cfm. 2006. ACHA data JED Foundation Report 2006 Approx 90% of those who die by suicide at any age: have a diagnosable mental illness, most often depression, Hence identification & treatment of students with emotional disorders is critical to suicide prevention efforts. ACHA, ACPA, AUCCCD, NASPA JED report 2006 Counseling service directors report # of students seeking help for serious emotional problems has been rising, but… The majority of students who die by suicide have never been to their counseling center! National data The vast majority of individuals who suicide have never seen a behavioral health professional. Have they been to primary care? Visit to primary care % of suicides Within 3 months of death 45% Within 12 months of death 77%** AFSP website Guidelines US Preventative Services Task Force Recommendation: Adult primary care practice settings should screen for depression—but only within the context of a “prepared practice.” http://www.uspreventiveservicestaskforce.org/ College Breakthrough Series-Depression: 2006-07 NYU, Princeton, Cornell, CUNY (Hunter & Baruch), CWRU, St Lawrence Gap Strategy Under-detection of students Maximize existing medical with depression & suicidal & mental health resources ideation to identify and treat depression All studies show that follow up after initiation of treatment (in any setting) is a critical factor for successful outcomes Create a safety net for identified depressed students including systematic planned follow up, treatment monitoring & coordinated referrals to community links. Quality Improvement in NCDP “Trying harder will not work. Changing systems of care will.” Don Berwick MD Institute for Healthcare Improvement Phase I: challenges ● How would students react to depression screening in the health service? ● Could the health service achieve an 80% rate of screening all patients once during a school year? ● How would clinicians react to screening for depression in primary care? -Use of Plan-Do-Study-Act cycles -Start small and grow. Some of us imagined that our biggest challenge was identification of depressed students who would then be referred to the counseling service for treatment. Next step: implement depression screening Changing our systems of care Which patients will be screened for depression? What tool will be used for screening? How will the screening be done? • When? • By whom? • Where will results of screen be recorded? What will be the plan for follow-up of patients after depression screening? PHQ-2 During the past two weeks, have you been bothered by: Little interest or pleasure in doing things? Feeling down, depressed or hopeless? □ No □ Yes □ No □ Yes Change process : start small and grow 1. Paper PHQ2 10 students tried it No resistance 2. Screen 1/2 day of my patients. 3. Add more of my patients. 4. Bring on another provider to screen 5. Screen in allergy clinic Medical assistants: “Just as we screen you for high blood pressure, we also screen for depression.” Evaluate each change: PDSA cycles PHQ-9 Over the last 2 weeks, how often have you been bothered by the following problems? Not At All Several days Nearly every day (1) More than half the days (2) (0) 1. Little interest or pleasure in doing things □ □ □ □ 2. Feeling down, depressed, or hopeless □ □ □ □ 3. Trouble falling or staying asleep, or sleeping too much □ □ □ □ 4. Feeling tired or having little energy □ □ □ □ 5. Poor appetite or overeating □ □ □ □ 6. Feeling bad about yourself - or that you are a failure or have let yourself or your family down □ □ □ □ 7. Trouble concentrating on things, such as reading the newspaper or watching television □ □ □ □ 8. Moving or speaking so slowly that other people could have noticed. Or the opposite - being so fidgety or restless that you have been moving around a lot more than usual □ □ □ □ 9. Thoughts that you would be better off dead, or of hurting yourself in some way □ □ □ □ Subtotals (add columns) Total Score If you checked off any problems, how difficult have these problems made it for you to do your work, study, go to class or get along with other people? __ Not difficult at all (0) __ Somewhat difficult (1) __ Very difficult (2) __ Extremely difficult (3) (3) Design multiple options for administering PHQ9 1. Clinician can do the PHQ9 right then (or bring the patient back for the PHQ9) 2. Nurse care manager can do PHQ9 3. Clinician can refer for a PHQ9 (Women’s Health Advocate) 4. Nurse could refer directly to counseling You can individualize the model to suit your own circumstances; you have to have the elements but not a single solution. You’re creating the “prepared practice.” Additional benefits of the PHQ9 Turned out to be a great teaching tool: for patients (what is depression) for clinicians Leads clinicians from the easier questions (typical for a primary care setting) into the more difficult ones— gives them a script to follow. Next step: score the PHQ9 Minimal depression 0-4 Mild depression Moderate depression 5-9 10-14 Moderately severe Severe 15-19 20-27 Positive # 9 always needs to be addressed (written emergency information provided & documented). 1. Discuss results with student. 2. High score does not equal depression. 3. Other primary disorders ruled out. 4. Initiate evidence-based treatment for depression (counseling, medication, selfmanagement). Other elements Design clinical information system (registry): Track more highly affected students using enhanced care management. Use registry to plan next visits & achieve process measures (check PHQ9 scores for evidence of improvement). Change treatment if no improvement. Assign care manager who reaches out to students who haven’t followed up Monitor progress in screening Weekly lists of students screened Finding when we missed an opportunity to screen. Figure out why & redesign system. Depression Screening in Primary Care Aggregate CBS-D Depression Screening Totals for 2007 (N = 58,759 as December 31, 2007) 70,000 60,000 55,489 50,000 58,759 48,903 42,504 40,000 35,705 32,012 30,000 28,643 24,920 20,000 20,489 15,146 10,000 9,759 4,492 Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec - A stretch goal of 80% for primary care screening was set for the 6 sites that committed to implement standardized depression screening - The collaborative achieved an aggregate screening rate of 65% by the end of 2007. Depression Registry Growth in the CBS-D Depression Registry Size (N = 801 as of December 31, 2007) 900 801 800 700 768 710 623 600 561 545 500 471 400 412 371 304 300 240 200 161 100 0 Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec CWRU experience We could achieve 80-90% screening throughout the Health Service (we excelled at using it through all visit types). Screening was well-received by students. CWRU experience The team embraced the PHQ9: - routine measurement - routine documentation in EHR - communication tool between services CWRU experience Certain populations disproportionately accessed care in the Health Service: 1. Non majority students 2. Men So we did appear to be expanding access to care. A Pyati PhD Next phases of NCDP • More partners, more diversity of schools • Connections to Healthy Minds (Daniel Eisenberg PhD) • Other measures (anxiety, alcohol, mental health flourishing) • Expanded self-management focus 42 Partnering Institutions Since 2006 • • • • • • • • • • • • • • • • • • • • • Baruch College Boston University Bowling Green State University Case Western Reserve University Colorado State University Columbia University Cornell University Evergreen State College Finger Lakes Community College Hunter College/CUNY Lewis-Clark State College Louisiana State University McMaster University Michigan State University Montana State University The New School Northeastern University New York University Penn State – Altoona Princeton University Rensselaer Polytechnic Institute • • • • • • • • • • • • • • • • • • • • • Rio Hondo College Rutgers University Sarah Lawrence College School of the Art Institute of Chicago St. Lawrence University Skidmore College Texas A&M University Texas Christian University Tufts University University of Arizona University of California, Los Angeles University of Central Florida University of Louisville University of Maryland University of Missouri - Columbia University of Nevada, Las Vegas University of Pennsylvania University of Vermont University of Wisconsin - Madison Wagner College West Valley College The information presented herein may not be distributed without express permission from New York University as coordinating center of the National College Depression Partnership. Population perspective: Healthy minds study Permission to use next set of slides from Daniel Eisenberg PhD Director, Healthy Minds Network Healthymindsnetwork.org Data from the Healthy Minds Network: Prevalence and Treatment of Depression among College Students Daniel Eisenberg, Ph.D. Director, Healthy Minds Network University of Michigan School of Public Health Healthy Minds Study Began in 2005 Fielded at approximately 100 campuses ~100,000 survey respondents Main measures Mental health (depression, anxiety, self-injury, suicidality, disordered eating, positive mental health) Lifestyle and health behaviors (substance use, exercise, sleep, etc.) Attitudes and awareness about services Service utilization Academic and social environment 29 HMN Survey Research Healthy Minds Study (nearly 100 schools, 2005-present); Healthy Bodies Study (beginning 2013) 28 Main Findings from Healthy Minds “Treatment gap” of >50% in college populations Stigma low and knowledge high for many untreated students Help-seeking interventions require new approaches Mental health predicts academic success GPA & retention Economic case for mental health services/programs 31 Prevalence of MH problems 50 40 34% 30 17.9% 20 10 15.7% 9.9% 9.8% 7.2% 0 Major dep. (PHQ-9) Any dep. (PHQ-9) Anxiety (PHQ) Suicidal Ideation Data source: HMS, 2007-2013 Self-injury Any Past-year Treatment for MH problems (Medication or counseling/therapy) 100 90 80 70 60 50 40 30 20 10 0 53% 45% Major dep. (PHQ-9) 52% 38% Any dep. (PHQ-9) Anxiety (PHQ) Suicidal Ideation Data source: HMS, 2007-2013 41% 39% Self-injury Any Past-year Treatment, among students with past-year PHQ-2 score ≥3 50 40 37% 32% 30 20 19% 10 0 Antidepressant Counseling/therapy Data source: HMS, 2009-2013 Either modality Duration of Antidepressant Use, among students with antidepressant use and PHQ-2 score ≥3 100 90 79% 80 70 60 50 40 30 20 10 9% 12% 0 <1 month 1-2 months Data source: HMS, 2009-2013 >2 months Prescriber Types, among students with antidepressant use and PHQ-2 score ≥3 100 90 80 70 60 50 49% 54% 40 30 20 10 3% 0.4% Other Don't know 3.5% 0 General Practitioner Psychiatrist Data source: HMS, 2007-2013 Took w/o RX Number of Counseling/Therapy Visits, among students w/ counseling/therapy use and PHQ-2 score ≥3 50 40 30 31% 30% 23% 20 16% 10 0 1 to 3 4 to 6 7 to 9 Data source: HMS, 2007-2013 10 or more Problem and Opportunity PROBLEM: “Minimally adequate depression care” (Wang et al, 2005 Arch Gen Psych): 8+ psychotherapy visits, or 2+ months of antidepressant use with 4+ discussions with provider Only 20% of students with past-year depression (Healthy Minds 2009-2013) OPPORTUNITY: 80% of students report visiting a health professional at least once in the past year Extrapolating Numbers to Typical Campus of 10,000 Students 2,630 students with past-year depression 530 with minimally adequate care 2,100 without minimally adequate care 1,120 no mental health care, but contact with health care 435 no contact at all with health care Gap between perceived need and use of mental health services Percentage 100 90 80 70 60 50 40 30 20 10 0 100% 77% 77% 60% 43% 35% 25% Asian 28% Black Latino Perceived Need Service Use White Among students with depression based on current positive PHQ-9 screen [n = 971]. Healthy Minds Study, 2007 Models of care : each has challenges Some with integrated health & counseling: Stanford, Cornell, Princeton, Wash U, NYU, Penn State Altoona Some with mostly counseling: SAIC, Baruch Some with both elements, parallel reporting: Shared EHR Non shared records (both electronic & paper) CWRU model: assets & challenges • Vast majority of students entered into depression registry from Health Service (early adopters more on Health Service side). • Robust, open access counseling service on campus, no charge for visits • We originally thought our task was to identify depressed students and refer to UCS for care • We found that most students wanted to return to the place they originally came for help. Identification was the easy part. Our challenge was what to do when students did not want either counseling or medication Self-management tools Phase II and III of NCDP markedly increased the role of self-management skills Tamara Lazenby MD, NYU (psychiatry) Evette Ludman PhD Group Health Research Institute What Is Self-Management? Self-management - Goal directed patient behaviors that enhance clinical & functional outcomes: – – – – – Medication management and adherence Self-monitoring of symptoms, treatment status Managing effects of illness on social role function Reducing health risks (alcohol misuse, smoking) Preventive maintenance (e.g., exercise, screening check-ups) – Working with health care professionals NCDP Operational Definition The engagement of patients in a collaborative partnership with clinicians to achieve goal-directed behavioral change and patient activation. Why self-management? • It’s evidence-based • It’s fairly simple • Focuses on student-activation • We know these work well to improve outcomes for both medical and mental health conditions • It was something we had access to (all of Student Affairs has self-management tools for students) Developmental parallels Many of the tasks of being a student center around self management skills: 1. Activities of daily living (how much to sleep, eat, study, play video games, etc) 2. How much caffeine to take in, how many energy drinks, supplements, etc 3. How much alcohol or other substances to use 4. How much to sleep Options Mindfulness tools Meditation Exercise Diet/nutrition/sleep hygiene Harm reduction Positive social supports DBT skills More recent changes We add data from: Emergency transports (Case EMS & Security) Students of Concerns committee Risk assessment discussions We routinely add these into our records FERPA v HIPAA What about sexual assault/intimate partner violence? Men and women who experienced: • Rape • Stalking • Intimate partner violence Difficulty sleeping Frequent headaches Chronic pain Activity limitations Poor physical & mental health Higher Rates of Adverse Health Outcomes Men Women Health Outcomes Asthma * * * Irritable Bowel Syndrome Diabetes Frequent Headaches Chronic Pain Difficulty Sleeping Activity Limitations Poor Physical Health Poor Mental Health http://www.cdc.gov/violenceprevention/nisvs/ * * * * * * * * * * * * Lessons & Challenges 1. Screening for depression in primary care has helped all clinicians see sooner and with more clarity the underlying reasons for visit. 2. The entire staff understands a collaborative, systems approach to quality care and why teams are more effective than individuals working alone. 3. Each school must tailor implementation of depression screening to fit its own assets and student needs. Putting the mind & body “back together” It seems to be a challenge (for students & clinicians): - continuity of care - mind-body connection - not coming to mental health issues only after every other avenue has been explored—bring these considerations up early/often & in a straightforward, transparent manner - teach the importance of knowing about all medication taken and who’s prescribing. Communicate Your primary care clinician is interested in you as a whole person—all of these elements are significant in your care. Expect us to check in with you as to how these things are going. Teach students what they can expect in the future from healthcare that values them as whole people. The journey: our current recommendations Depression screening in a university health service is feasible, well received by students, and accepted by staff. Everyone should be able to screen using the PHQ2, no matter what the resources available. We recommend screening all students (not just elective visits for primary care). Using a follow up PHQ9 is helpful for both diagnosis and measuring response to treatment. Questions? Comments? Thanks for listening. From January 1, 2007 – December 31,2007 CBS-D © New York University From January 1, 2007 – December 31,2007 CBS-D © New York University Rates of Functional Improvement Grouped by Site Process Measure Success 80% 66.5% 70% 60% 50% 31.7% 40% 30% All Process Goals Met (n = 260) Not All Process Goals Met (n = 224) 20% 10% 0% All Process Goals Met (n = 260) Not All Process Goals Met (n = 224) Sites that reported exceeding designated goals on all three process measures reported rates of functional improvement at 12 weeks more than double than those sites who did not surpass all three goals (66.5% vs. 31.7%). CBS-D © New York University