OSTEOPOROSIS IN THE COMMUNITY FINDINGS FROM A NOVEL REGISTRY IN A LARGE HEALTH ORGANIZATION IN ISRAEL Inbal Goldshtein1, Julie Chandler2, Varda Shalev 1,3, Sofia Ish –Shalom4, Allison Martin Nguyen2, Vanessa Rouach5, Gabriel Chodick 1,3 1. Maccabi Healthcare Services, Tel Aviv, Israel 2. Merck and Co, Inc, PA, USA 3. Sackler Faculty of Medicine, Tel-Aviv University, Tel-Aviv, Israel 4. Technion-Israel Institute of Technology, Haifa, Israel 5. Institute of Hypertension, Metabolism, and Endocrinology, Souraski Medical Center, Tel Aviv, Israel Objective Osteoporosis is a growing public health concern due to its rising prevalence and excess morbidity and mortality. Automated patient registries have gained great importance in health and disease management of major chronic diseases, but are rarely used in osteoporosis. The purpose of the current study was to construct a registry of osteoporosis patients using the databases of Maccabi Healthcare Services, a 2 million member health organization in Israel. Methods Included in the registry are adult patients with osteoporosis diagnosis, major osteoporotic fractures, or purchases of relevant medications, documented since 2000. In addition, we included patients with low bone density as extracted from over 140,000 measurements reports, using an automated Optical Character Recognition (OCR) system. Two-thirds of the cases were validated by more than one qualifying criteria. Results In 2013, the registry identified 118,141 patients, with a point prevalence of 19% in 2013 among members aged 50 and an annual incidence of approximately 6,100 osteoporosis cases (peak of 27 per 1000 in females aged 65-75). In 2013, the mean (SD) age at registry entry was 61(SD) and 66 (SD) years for females and males, respectively. 28% of the registry patients had no indication of treatment with prescription osteoporosis therapy. Table 1-Demographics and comorbidities of osteoporosis patients Table 2- age and sex specific prevalence rates per 1000 of osteoporosis in with age and sex standardized morbidity ratios (SMR) compared to Maccabi healthcare services, Israel, 2013 the general population in Maccabi healthcare services, 2013 OP registry Age Demography Sex, % females 85% Age, Mean ± SD 69 ± 12 SES, Mean ± SD 12 ± 5 BMI, Mean ± SD 28 ± 6 18- 45 45 – 54 55 – 64 65 – 74 75 – 84 85+ Total Total age 50+ age 18+ females, 60+ males Males 3 10 27 92 173 245 23 98 Females 7 70 239 462 600 622 117 314 T-score, Median ± SD Femur neck -1.9 ± 0.8 Total hip -1.6 ± 0.9 Vertebrae -1.8 ± 1.3 History of prolonged GC use, % 6% Registry entry year, n (%) <=2001 29,727 (31%) 2002-2004 18,529 (19%) 2005-2007 15,737 (16%) 2008-2010 18,427 (19%) 2011-2013 14,988 (15%) Table 3- age and sex specific prevalence rates per 1000 of major osteoporotic fractures in Maccabi healthcare services, Israel, 2013 Age Comorbidities 50-54 55 - 64 65 - 74 75 - 84 85+ age 50+ Males 0 1 11 19 29 6 Females 2 8 21 50 72 18 Males 0 1 6 13 23 4 Females 2 10 24 49 68 19 Males 0 1 7 21 54 6 Females 0 4 11 42 133 15 Males 0 2 11 17 25 6 Females 7 28 51 75 94 37 SMR (95% CI) Coronary heart disease, % 7.5% 1.07 (1.05-1.09) Hypertension, % 56.0% 0.99 (0.98-0.99) Diabetes, % 19.6% 0.90 (0.89-0.92) COPD, % 6.5% 1.32 (1.28-1.35) Vitamin D Insufficiency , % 25.1% 0.79 (0.78-0.80) Renal impairment, % 2.0% 0.96 (0.92-1.00) Crohn's disease, % 2.6% 1.54 (1.48-1.60) Ulcerative Colitis, % 10.3% 1.25 (1.22-1.27) Recent depression 19.0% 1.18 (1.16-1.19) Any of the Males 0 5 33 65 118 20 Obesity 25.0% 0.83 (0.82-0.84) above Females 11 48 99 186 301 78 Spine Humerus Hip Colles Figure 1- Age and sex specific all-cause mortality rates within 1 year from Table 4- distribution of inclusion criteria osteoporotic fracture event, , Maccabi healthcare services, Israel, 2000-2013 Inclusion criteria met n % of registry 1. OP diagnosis + medication + fracture 15,169 13% 2. OP diagnosis + medication or +pathologic BMD 54,345 46% 3. OP diagnosis + fracture 4,396 4% 4. Medication + fracture Or +pathologic BMD 2,766 2% 5. BMD alone 1,038 1% 6. Medication alone 14,253 12% 7. OP diagnosis alone 13,517 11% 8. Major osteoporotic fracture alone 12,657 11% 40% 35% 30% 25% 20% 15% 10% 5% 0% colles humerus spine hip colles humerus spine hip 55 - 64 0.1% 1.4% 2.6% 6.7% 65 - 74 75 - 84 Women 0.8% 3.4% 1.9% 5.5% 3.4% 6.7% 8.9% 13.9% 85+ 55 - 64 8.4% 13.2% 12.8% 22.8% 1.2% 2.3% 3.2% 7.6% 65 - 74 75 - 84 Men 1.3% 2.8% 4.6% 8.5% 9.0% 12.8% 16.9% 23.0% 85+ 12.0% 18.8% 23.0% 32.7% Conclusions To the best of our knowledge, this is one of the first real-world automated registries of osteoporosis. It reveals the immense burden of osteoporosis in the community, and can serve as a fertile ground of valuable data for real-time monitoring of trends, quality of care, and outcome research in osteoporosis and its complications.