A Matter of Meaning

The Effect of Partner Support on the Intersubjective Behaviors of

Individuals with Congenital Deafblindness

Saskia Damen

In

Zicht

This study was funded by:

InZicht/ZonMW

In Zicht

Bartiméus-Sonneheerdt foundation

Bartiméus

ISBN: 978-90-367-7626-4

NUR: 773

Cover design: Proefschriftmaken.nl || Uitgeverij BOXPress

Printed & Lay Out by: Proefschriftmaken.nl || Uitgeverij BOXPress

Published by: Uitgeverij BOXPress, ’s-Hertogenbosch

Copyright @2015, Saskia Damen

All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, mechanically, by photocopy, by recording, or otherwise, without prior permission of the author.

A Matter of Meaning

The Effect of Partner Support on the Intersubjective Behaviors of

Individuals with Congenital Deafblindness

Proefschrift ter verkrijging van de graad van doctor aan de

Rijksuniversiteit Groningen op gezag van de rector magnificus prof. dr. E. Sterken en volgens besluit van het College voor Promoties.

De openbare verdediging zal plaatsvinden op donderdag 26 februari 2015 om 14.30 uur door

Saskia Damen geboren op 06 augustus 1973 te Zeist

Promotores

Prof. dr. M.J. Janssen

Prof. dr. C. Schuengel

Prof. dr. A.J.J.M. Ruijssenaars

Beoordelingscommissie

Prof. dr. S. Bruce

Prof. dr. B. Maes

Prof. dr. C. Vlaskamp

Contents

Chapter 1 Introduction

1.1 Background of the study

1.2 Challenges in developing high quality communication

with people with congenital deafblindness

1.3 State of the art and lacks in current research

1.4 Aim of the research

1.5 Outline of the dissertation

References

Chapter 2 Communication between Children with Deafness,

Blindness and Deafblindness and their Social Partners:

An Intersubjective Developmental Perspective

Abstract

2.1 Introduction

2.1.1 Intersubjective development and education

2.1.2 Measuring intersubjectivity

2.1.3 Mediating intersubjectivity

2.1.4 Theory of intersubjectivity: children with

atypical development

2.2. Method

2.2.1 Data collection process

2.2.2 Inclusion and exclusion criteria

2.2.3 Interrater reliability

2.3 Results

2.3.1 Intersubjectivity measures

2.3.2 Outcomes of intersubjectivity measures

2.3.3 Interventions and their effects

2.4 Discussion

References

Chapter 3 Stimulating Intersubjective Communication in an Adult with Deafblindness: A Single-Case Experiment

Abstract

3.1 Introduction

3.2 Method

3.2.1 Design

3.2.2 Participants

3.2.3 Setting

3.2.4 Intervention

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3.2.5 Coding and variables

3.2.6 Data analysis

3.2.7 Data reliability

3.2.8 Social validation

3.3 Results

3.3.1 Observation categories at the first layer of

intersubjective development

3.3.2 Observation categories at the second layer of

intersubjective development

3.3.3 Observation categories at the third layer of

intersubjective development

3.3.4 Communication measure

3.3.5 Social validity

3.4 Discussion

References

Chapter 4 Effects of the High Quality Communication Intervention on Intersubjective Behaviors in People with Deafblindness

Abstract

4.1 Introduction

4.2 Method

4.2.1 Participants

4.2.2 Intervention

4.2.3 Design and data collection

4.2.4 Data coding

4.2.5 Data analysis

4.2.6 Reliability

4.3 Results

4.3.1 Intervention effects at three layers of

intersubjective development

4.3.2 Effects of attunement support on the first layer of

intersubjective development

4.3.3 Effects of meaning making support on the second

layer of intersubjective development

4.3.4 Effect of meaning making support on the

third layer of intersubjective development

4.4 Discussion

References

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Chapter 5 Testing the Effect of the High Quality Communication

Intervention and its Main Assumption in People with Deafblindness

Abstract

5.1 Introduction

5.2 Method

5.2.1 Participants

5.2.2 Design

5.2.3 Intervention

5.2.4 Coding scheme

5.2.5 Reliability

5.2.6 Data analysis

5.3 Results

5.3.1 Effect of the HQC intervention on intersubjective

behaviors in communication dyads

5.3.2 Correspondence between intersubjective behaviors

5.4 Discussion

References

Chapter 6 General Discussion 143

6.1 Introduction

6.2 Main findings

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6.2.1 Describing intersubjective development in

children with sensory disabilities

6.2.2 Improving intersubjective development

6.2.3 Testing the High Quality Communication

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intervention for people with CDB across social partners 147

6.2.4 Testing the High Quality Communication

intervention in communication dyads and analyzing

their communication patterns

6.3 Strenghts and limitations

6.4 Reflections

6.5 A matter of meaning?

References

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Appendix Summary 161

Samenvatting (summary in Dutch) 167

Dankwoord

Curriculum vitae

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