Caring for Our Elders: Caregivers & Resources 3.4 NATIVE ELDER CAREGIVER CURRICULUM NECC: 3.4 CAREGIVERS & RESOURCES Caring for Our Elders: Caregivers & Resources 3.4 1 Caregivers & Resources* 2 Families are important ! Informal system (FAMILY & FRIENDS) provides the most long-term care to elderly with limitations in ADLs & IADLs Nationally, over 90 % of older people who need assistance are helped by a family member or friend ! Caregivers often give up a job or make a major change in a job to be able to help an elderly Caring for Our Elders: Caregivers & Resources Session 3.4 Importance of Care for the Caregiver 3 “Without formal services available, rural elderly must rely even more heavily on family and friends for assistance. Policymakers would do well to consider building on the informal structures already in place in rural areas by supporting family caregiver assistance programs and emphasizing the unique rural challenges for rural family caregivers” * *cited in Family Caregiver Support of the Rural Elderly National Advisory Committee on Rural Health & Human Services – 2006 http:// ruralcommittee.hrsa.gov/NAC06Report.htm Caring for Our Elders: Caregivers & Resources Session 3.4 Importance of Care for the Caregiver 4 “Informal caregiving is the backbone of the American long-term care system where the value of the service provided by informal caregivers is estimated to be $257 billion annually, two times the amount currently spent on homecare and nursing home care.” * *cited in Family Caregiver Support of the Rural Elderly National Advisory Committee on Rural Health & Human Services – 2006 http:// ruralcommittee.hrsa.gov/NAC06Report.htm Caring for Our Elders: Caregivers & Resources Session 3.4 Care for the Caregiver* 5 Commitment of Caregivers is to be respected Challenge to Caregivers is also to be appreciated ! Can take a toll on their own health over time Can become Stressful !! Causing anger, guilt, financial difficulty, depression Even elder-abuse can result Caring for Our Elders: Caregivers & Resources Session 3.4 Family Caregivers for Native Elderly 6 TRADITIONAL VALUES Deep commitment among Native families to care for their elders Deep commitment among Native Elders to care for their families Caring for Our Elders: Caregivers & Resources Session 3.4 Family Caregivers for Native Elderly 7 “Our goal as the next generation is to pay back our elders for their contributions to our families, societies, and communities by doing our best to increase or maintain their quality of life by providing them autonomy in how they wish to live” * * McDonald, et al. 2008, p.65 Caring for Our Elders: Caregivers & Resources Session 3.4 Care for the Caregiver* 8 Risk for Elderly… when Caregiver “burns out”… More likely for the elderly person to be hospitalized More likely for the elderly person to be placed in nursing home Caring for Our Elders: Caregivers & Resources Session 3.4 Care for the Caregiver* 9 Top 5 Unmet Needs of Caregivers in the U.S. * LACK OF: resources to provide range of services respite options public awareness about caregiver issues health care providers access to services in rural areas Caring for Our Elders: Caregivers & Resources Session 3.4 Care for the Caregiver* 10 Caregivers often have same kinds of difficulties as their elderly family members with: Transportation Access to health care services Housing issues Financial issues Family issues Caring for Our Elders: Caregivers & Resources Session 3.4 Care for the Caregiver* 11 What kinds of services are needed for Family Caregivers? Information Assistance Counseling Respite Supplemental Services (*references in narrative portion of curriculum) Caring for Our Elders: Caregivers & Resources Session 3.4 What would help the most? 12 Recommendations need to come from each Tribal Community to meet specific needs Each Tribe will have its specific issues However, good examples of recommendations have been made by Tribal people… Caring for Our Elders: Caregivers & Resources Session 3.4 Examples of Tribal Recommendations 13 Bring people together to talk & plan what YOUR community needs… In YOUR part of the world ! Caring for Our Elders: Caregivers & Resources Session 3.4 Recommendations 14 Identify & bring shareholders together! Tap into their knowledge & expertise Multiply the ideas! SYNERGY! Caring for Our Elders: Caregivers & Resources Session 3.4 Sharing Ideas is Important 15 Caring for Our Elders: Navigating the System 3.3 Community Discussion is Recommended with Elders & Providers 16 Caring for Our Elders: Navigating the System 3.3 Examples: Tribally Identified Needs 17 Access to Information Resources Improved Access to Health Care Resources Respite Care IN-HOME Personal Care Services Caring for Our Elders: Caregivers & Resources Session 3.4 Examples: Tribally Identified Needs 18 Chore Services Heavy cleaning, snow shoveling, yard work Temporary rehabilitation options Health education & exercise options Honoring of cultural expectations in caregiving Caring for Our Elders: Caregivers & Resources Session 3.4 Examples: Tribal Recommendations 19 Common central location to serve as : nutrition site for congregate meals caregiver resource center social resource information center “one-stop” referral & advocacy base place to socialize Caring for Our Elders: Caregivers & Resources Session 3.4 Examples: Tribal Recommendations 20 “Navigator” For each Local community district Designated person to cut through the “maze” of access issues Serve as advocate Serve as referral source Serve as “coach” Caring for Our Elders: Caregivers & Resources Session 3.4 Examples: Tribal Recommendations 21 Handicapped accessible vehicles With lifts for wheelchairs Extra garages, maintenance system for transportation of elders Available equipment for safety in the home Shower grab bars, toilet risers, etc. Supply of undergarments for those in need No funding source for incontinent products Caring for Our Elders: Caregivers & Resources Session 3.4 Examples: Tribal Recommendations 22 Community Elder Outreach Workers Home services, such as installing grabbars, railings, taking care of heavy chores & cleaning, yard work, snow removal Identify a Tribal Leader specifically assigned to advocate for elderly Diabetes specialist for eldercare Caring for Our Elders: Caregivers & Resources Session 3.4 Caregiving is Important… for all generations 23 Caring for Our Elders: Caregivers & Resources Session 3.4 Caregiving is important! 24 Working together to thank our elders… and value our caregivers! Caring for Our Elders: Caregivers & Resources Session 3.4 25 Caring for Our Elders: Caregivers & Resources Session 3.4