Health Literacy: a Panacea or Killer? Health Literacy: The Innovative Panacea for Pasifikans’ Health A relatively new concept! Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 1 Nursing With No Innovation: Is Routine Care Without Passion ‘Eseta Fifita-Finau, ONZM Community Liaison Officer Pasifika Medical Association (eseta.finau@xtra.co.nz) Sitaleki ‘A Finau, MNZM CEO Masilamea Press & Manager Division of Research, Information and Innovation, Tongan Community Development (masilameapress@xtra.co.nz ) Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 2 Contents of this session: Introduction Define literacy and health literacy Importance of Health literacy Discuss the uses of health Literacy Measurement of health literacy Health literacy and Immunization Useful resources for Health literacy Conclusion We are many NOT one! Pasifikans are : Multi-cultural Multi-religious Multi-ethnic Multi-linguistic Multi-ply Life is ‘unity in diversity’ 4 What is ? UNESCO defines literacy: as the "ability to: identify, understand, interpret, create, communicate, compute, and use printed and written materials associated with varying contexts, e.g. health For Pasifikans, literacy, and thus health literacy is : multi-ply, etc., not homogenous! What is Literacy ? Literacy involves a continuum of learning, enabling individuals to: achieve their goals; Develop their knowledge, & potential; and Participate fully in their community & wider society. 6 What is Health Literacy ? ‘Health literacy is the degree to which individuals have the capacity to: obtain, process, & understand basic health information & services; in order to make appropriate health decisions’ Health Literacy is one of the many functional literacies necessary to navigate complex systems and new environments/societies. H There are Many Functional Literacies Visual Literacy Computer Literacy Cultural Literacy Media Literacy Scientific Literacy Spatial Literacy Information Literacy Mathematical Literacy Historical Literacy Importance of Health Literacy Health literacy comes from a convergence of education, cultural & social factors, and health services. Health literacy is fundamental to the objectives of health promotion There is no health promotion and thus no health without health literacy Poor health literacy create health disparities and the NZ Inverse Care Law Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 9 Examples of the Uses of Health Literacy You are using health literacy skills when you: follow instructions on how to take a medication; read a brochure to determine your medical benefits; use information on food or product labels to calculate nutritional content; see a notice & determine whether to screen or immunize; fill out a benefit application or patient history form read an article about nutrition read a letter on medical test results Health Literacy & education Health literacy is not only about education. While reading, writing, & math skills make up part of the basis of health literacy, many other skills & abilities are also important:, such as: Speaking, listening, Having adequate background information, & ability and courage to advocate for oneself in the health system. Educators and researchers must add health literacy into educational & research plans Ref: Report Brief: Health Literacy: A Prescription to End Confusion (2010) 11 Measuring Health Literacy Health literacy: measures how well you can understand & use health information. Materials included in this measure are judged to be related to one of 5 activities associated with where & why people take health actions. These 5 activities involve: health promotion; health protection; disease prevention; health care & maintenance; & accessing services or navigating the health system. Transmission of information = {Health promotion} is inadequate Health literacy enhance informed action Ways to Measure Health Literacy Functional measurements: ALLS – Adult Literacy and Life Skills Survey TOFHLA – Test of Functional Health Literacy in Adults Tests reading, comprehension, and numeracy in English Broadly corresponds with education (in English language) Holistic assessment which includes: Cultural understandings, Attitudes to wellness, Expectations of health, & recognises different kinds of health literacies Pasifikans and Health Literacy in NZ In NZ, majority of Pasifika adults have low level one or two LLN skills – of a possible 5 levels (Lawes, 2009) 1.62 million (50%) adult New Zealanders have poor ‘health literacy’ skills (Ministry of Health, 2010) Compared to the total NZ population, Pasifikans have poorer health outcomes over a wide variety of measures References: Lawes, E. (2009). Literacy and life skills for Pasifika adults: Results from the Adult Literacy and Life Skills (ALL) Survey. www.educationcounts.govt.nz/publications/assessment/54836/1 Ministry of Health. (2010). Korero Mārama: Health literacy and Maori. Ministry of Health: Wellington, NZ. The Need for Health Literacy in the Pacific: According to a recent Micronesian survey, 80% want more information on health: 22% said that health information was ‘very’ or ‘sort’ of hard to understand. Other studies found patients with high blood pressure, diabetes, asthma, & HIV/AIDS; have limited health literacy (have poor knowledge of their illness & management) Another study found those with low health literacy skills, report: a sense of shame about their skill level. Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 15 1. ACCESS AND UTLIZATION OF HEALTH CARE •Occupation •Employment •Income •Social Support •Culture •Language Age SYSTEMS FACTORS Navigation Skills Complexity Self-Efficacy Acute Care Orientation Perceived Barriers Tiered Delivery Model 2.PROVIDER-PATIENT INTERACTION Race/Ethnicity Education PATIENT FACTORS Health Status •Vision •Hearing •Verbal Ability •Memory •Reasoning PATIENT FACTORS PROVIDER FACTORS Knowledge Communication Skills Beliefs Teaching Ability Participation in Decision Making Time Patient-Centered Care 3. SELF-CARE PATIENT FACTORS EXTRINSIC FACTORS Motivation Support Technologies Problem Solving Mass Media Self-Efficacy Health Education Knowledge Skills Resources 16 Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) Health Outcome Why look at Health Literacy? Health literacy is the basis of health promotion There is no health without health literacy; Lack of access to needed: hardware, software & human ware; Without health literacy: Poor Health Outcomes: high noncompliance; Low use and acceptability of Services & patient dissatisfaction, leading to decreased compliance, and poorer health; Disparities: inequity, inequality, & discrimination NZ Inverse Care Law persistence Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) Practical Outcomes of Health Literacy: Healthful diet lead to better academic performance in children. (Better) School health programs improve academic outcomes for children. (Davis) Promoting students' health lead to higher academic scores & higher rates of high school completion (Vinciullo) Health literacy help students maintain & improve their health, prevent disease, & reduce health risk behaviors. (Kann) Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 18 Health Literacy & Health Care Services Improves navigation of Systems; Improve use health service, e.g., better compliance; Improve self-care and choices of care; Improve helping others; Improve health prevention & protection; Improve systems management; Reduce health risk behaviors; and Primary healthcare without health literacy is a dangerous joke Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 19 Health literacy and preschool health programs. Assessments of early interventions show short term benefits for the child: enhanced achievement, improved health, increased noncognitive skills, & social competence. In the medium term society benefits from: greater school system efficiency; reduction in special education; reduction of grade repetition; higher learning; reduction in abuse & neglect; & lower reliance on health care. In the long term, children benefit from: higher likelihood of graduation and college enrollment; higher wages & employment; lower teen pregnancy; less delinquency. Society benefits from: sound education; increased tax revenues; lower welfare dependence; and reduction in delinquency & crime. (Patrinos) How to Build Health Literacy? Nurses can help improve patients’ health literacy by: taking time to understand the health literacy demands faced by their patients; building patients’ health literacy; knowledge and skills over time; ensuring patients understand the information or instructions they have been given (simply asking “do you understand?” is not enough); participating in health literacy professional development; and encouraging their organisation to develop and implement a health literacy action plan. Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 21 “Improving Health Literacy To get the best health outcomes, health decisions must be based on clear & correct understanding of relevant health information & services; People with cultures different from mainstream society may have attitudes, customs, languages at odds with normal health practices; There are many challenges to educate, prepare, & assist people in obtaining the resources they need to make good health decisions; Clear communication, in ethnic languages, about health information & services help create & promote health literacy; and Value traditional medicine & local wisdom. Ref: http://www.plainlanguage.gov/populartopics/ Health literacy/ Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 22 Pasifkans’ preferences for Health Materials Pictures of real people, children and parents Information provided within the context of a trusted relationship Information needed to come across in conversations and also be in written form so points could be clarified Information needed in different languages. Wanted resources that were ‘age appropriate’ and ‘not middle class’. Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 23 Conclusion & Summary Ethnic specific Health literacy services Essential; Health Literacy is protective from diseases and social ills; Health Literacy will solve the Inverse Care Law and Disparities; There is no Health without Health Literacy; Health Literacy essential for improved health access, utilization, & outcomes; and Health Literacy must be part of any health service Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 24 Health Literacy: A Prescription to End Confusion (2004) Health Literacy is the most common cause of death among Pasifikans in NZ Free: http://www.nap.edu/openbook.php?isbn=0309091179 Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 25 For Health Consumers: ‘10 Top’ Useful Websites particularly useful websites in alphabetical: Cancer.gov Centers for Disease Control and Prevention (CDC) www.cdc.gov familydoctor.org health finder® www.healthfinder.gov HIV InSite http://hivinsite.ucsf.edu/ Kidshealth® http://kidshealth.org/ Mayo Clinic http://www.mayoclinic.com/ MedlinePlus (English) medlineplus.gov NIH SeniorHealth http://nihseniorhealth.gov/ NOAH: New York Online Access to Health http://www.noah-health.org/ http://mlanet.org/resources/medspeak/topten.html Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 26 Quick Guide to Health Literacy: http://www.health.gov/communication/literacy/quickguide/ Health Literacy is a wicked problem Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 27 Mālō! Haere Ra! Questions ? & Answers? Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 28 Health Literacy is a Nursing ‘wicked problem’! ’Alu a koē mo ke fiemalie Finau, E & S.A. SPNF Conf. Melbourne (Nov. 2012) 29