Local legislation for research Retha Britz 1 Retha Britz Copyright 2013 All rights reserved for this presentation Animal Research Animals protection Act No. 71 of 1962 2 Protects animals meaning “any equine, bovine, sheep, goat, pig, fowl, ostrich, dog, cat or other domestic animal or bird or any wild animal, wild bird, or reptile which is in captivity or under the control of any person” May be an offence to kill or interfere with the wellbeing of an animal for scientific and educational purposes without justification Animal research ethics committees e.g. KZN, UP Human Research 3 Act No. 108 of 1996 The Constitution of the Republic of South Africa Act No. 61 of 2003 National Health Act Act No. 38 of 2005 The South African Children’s Act Act No. 101 of 1965 (as amended) Medicines and Related Substances Act Act No. 108 of 1996 The Constitution of the Republic of South Africa 4 Section 12(2)(b) & (c) “Everyone has the right to bodily and psychological integrity which includes the right b) to security in and control over their body and c) not to be subjected to medical or scientific experiments without their informed consent.” Only Constitution in the world that requires IC for clinical research participation Research conducted without IC amount to violation of the right to security in and control over one’s body No distinction between therapeutic (medical) and non-therapeutic (scientific) experimentation Various other rights guaranteed in the Constitution find application to research pts e.g. right to dignity, privacy, access to health care Act No. 108 of 1996 The Constitution of the Republic of South Africa (continue) Section 28(3) A person under the age of 18 is considered to be a child 5 Act No. 61 of 2003 National Health Act Sections 7 & 71(1)(b) Research or experiments on living persons may only be conducted with written consent of the person… Section 72 The Minister to establish a National Health Research Ethics Council (NHREC) 6 Section 72(6) (a) RECs mandated to follow the guidelines in the “Blue book” (b) Audit Health RECs Act No. 61 of 2003 National Health Act (continue) Section 73 Mandates Health RECs registered with the NHREC Section 90(1)(s) Regulations for health research Government Gazette of 29 May 2013: Regulations relating to research on human subjects incl – – – – – – 7 – Principles of Health Research Obligations of researchers Participation of special classes of persons in research studies Other types of research that need additional consideration Informed Consent (pts to be informed of 14 aspects) Review of research proposals by RECs Ministerial consent for non-therapeutic research Act No. 38 of 2005 The South African Children’s Act Section 17 A child becomes a major upon reaching the age of 18 years (legal majority) 8 Act No. 101 of 1965 (as amended) Medicines and Related Substances Act Section 34 Clinical researchers must abide by the GCPs GCPs official guidelines that are recognised or referred to in enacted legislation (soft law) i.e. no legal force by itself but does attain a special status due to its association with the particular statue (also DoH & “Blue Book”) Violations of soft law may have indirect legal consequences. 9 References SOUTH AFRICA. 2003. Constitution of the Republic of South Africa no. 108 of 1996. Chapter 2: Bill of Rights. http://www.info.gov.za/documents/constitution/ 1996/a108-96.pdf Date of access: 21 May 2010. SOUTH AFRICA. 2003. Medicines and Related Substances Control Act no. 101 of 1965 as amended. Government gazette, 4594:68, 2 May 2003. (Regulation gazette no. 16254.) SOUTH AFRICA. 2005a. The Children’s Act no. 38 of 2005. Government gazette, 492:38, 19 June 2006. (Regulation gazette no. 28944.) SOUTH AFRICA. 2005b. National Health Act no. 61 of 2003. Government gazette, 469:1-94, 23 July 2004. (Regulation gazette no. 26595.)