Child Developmental Screening Initiative
Electronic Data Systems Workgroup
Tasks
• Investigate how existing and developing
information systems can be included in
comprehensive developmental screening
system
• Determine who should have access to an
integrated screening information system
• Determine what data should be recorded
and maintained
HOW to include existing systems
• Early Learning Information System (ELIS)
– Web-based early learning data system
– Currently in development stage at OEL
– Slated for roll-out in 2013
– Will require final state funding during 2012
Legislative Session
– Plans for eventual interface with other state
data systems, including Florida SHOTS
Florida SHOTS
• A free, statewide, centralized, online
immunization registry that helps health care
providers and schools keep track of
immunization records
• Secure and trusted web-based electronic system
• Authorized users (health care providers can
input and access data; schools and child care
providers can view data) can access up-to-date
immunization information
Proprietary Systems
• Early Steps uses the Battelle Developmental
Inventory data system to store and track data on
child screening (new data system anticipated
next year)
• Early Learning Coalitions are beginning to use
Ages and Stages Enterprise data system to
store and track data on child screening (ELIS will
eventually interface with this system)
Hillsborough Collaborative Screening
Initiative
• Screening of 60-65 children once a month
in rotating community locations
• 35 community-based partners
• Use of a locally developed web-based
referral and follow-up system
• With parent consent, copy of screening
results sent to pediatrician (electronically &
via mail)
Hillsborough Lessons Learned
• Local systems can work and can be
duplicated in other areas of the state (e.g.,
similar initiative now in Leon County)
• Importance of lead agency for planning &
accountability
• Recognition of parent choice and provider
issues - there is not always the follow
through that is recommended
CHEER
• Children’s Heath Education and Economic
Resource (CHEER) – combines electronic
health and academic records for students
in Miami-Dade County
• Stores data for 2 million children
• For use by Doctors and Teachers
• Partnership – The Children’s Trust, Health
Choice Network, Miami-Dade County
Public Schools, Ready Schools Miami and
Microsoft
Other Data Systems
• Healthy Start has its own data system for
collecting and housing maternal and child
screening information
• Infant Metabolic Screening Data (collected at
birth) is housed in a separate data system
• Florida Children and Youth Cabinet Information
Sharing System Sub-committee is continuing to
investigate the data-sharing system developed
by the court system
WHO needs access to screening
data?
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•
•
•
Health Care Professionals
Schools and early learning providers
Families
There can and should be differentiation
between those that can input data and
those that can view data
WHAT data should be recorded
and maintained?
• Individual child data to ensure
– Children are screened
– Children receive follow-up assessment and
services
– There is an assessment of the impact of
intervention
• Aggregate data for planning and
evaluation purposes
Challenges
• Ensuring compliance with HIPAA and
FERPA requirements
• Data-sharing barriers between health care
professionals and other community
partners, including child care providers,
relative to perceived credibility and
expertise
• Importance of linking to the K-12 student
identifier
Child Developmental Screening Initiative
Follow-Up Services Workgroup
About
This workgroup focuses on strategies for the large
number of children screened who could benefit
from early intervention but who do not yet qualify
for Early Steps or school system services.
Strategies such as anticipatory guidance,
developmental activities, referrals to high quality
early childhood programs like Early Head Start,
and ensuring these high risk children don't fall
through the cracks.
Members
• Dr. Mimi Graham – Florida State University (Group Leader)
• Dr. Susan Gold – University of Miami
• Amanda Moore – Office of Early Learning
• Cynthia Fuller – Office of Insurance Regulation
• Dr. Barbara Foster – Department of Economic Opportunity
• Judy Taylor-Fischer – Agency for Healthcare Administration
• Dr. Mercedes Rodriguez – Osceola County Health Department
• Dr. Sharon Hennessy – University of Florida
• Karen Wiggins – Healthy Start Coalition
• Allison M. Parish - Healthy Families Florida
• Martha Harbin – Snow Team Project Staff
Tasks
• For those children who need follow-up
services and regardless of whether they
qualify for Early Steps, how could the
electronic system:
– Include data to connect those kids and their
parents and/or caregivers to available
programmatic and informational sources.
– Help ensure there are resources available to
enable everyone in the child’s life to be
included in the process.
Approach
1) Compile a list of recommended tools and
activities for parents and caregivers to use with
their children.
2) Compile of list of local organizations (including
non-traditional) that may provide services to
these families.
3) Identify the professionals and/or organizations
who should receive the compiled resource
information.
4) Determine marketing plan elements to distribute
resources to parents and others.
#1: Potential Recommended Tools
Web-Based Resources*
*Research conducted on English-based web browser. Similar research on a Spanish- or French-based search engine
may yield additional resources not listed below.
Resource
Price
Available Languages
Florida Office of Early Learning
www.Floridaearlylearning.com/earlylearnin
g/OEL_CCRR_Networks.html
The Early Learning Community
www.earlylearningcommunity.org
Learning Games
www.learninggamesforkids.com
Free
English and Spanish materials
Free
Free
Some downloadable materials
available in Spanish
English only
Learn 4 Good
www.learn4good.com
The Early Childhood Initiative Foundation
(Teach More/Love More)
www.teachmorelovemore.org
Bright Futures (AAP)
http://brightfutures.app.org/
Text4baby
www.text4baby.org
FamilyEducation
www.familyeducation.com
PBS Kids Sprout for Parents
www.Sproutonline.com
BabyZone (Disney)
www.babyzone.com
Free
English only
Free
Site available in English, Spanish &
Creole
Limited free content for
parents
Free (No charge for the
texts)
Free
English
Free
English
Free
English
English & Spanish
English
#1: Potential Recommended Tools (Cont.)
Proprietary Materials
Resource
Price
Available Languages
Baby Builders
www.babybuilders.com
DVDs: $24.95
DVD: English & Spanish
Book: English & Spanish
Pamphlet series: French
Hawaii Early Learning
Profile (Help® Birth to 3)
www.vort.com
DVD & Book: $49.95
French Series: $24.95
Infant Evaluation Forms (25 two-sided
sheets): $45
Admin & Ref. Manual: $59.95
English & Spanish
HELP® Strands Booklet: $3.25 each
2nd Edition English – 556 pages: $89.95
English & Spanish
1st Edition Spanish – 160 pages (covers
only 140 key skills of 685 HELP 0-3 skills:
$49.95
Understanding My Signals Parent booklet & User’s Guide:
English & Spanish
(UMS)
$3.95/each
www.vort.com
Pkg of 20 booklets w/ User’s Guide:
$37.95
Best Beginnings
Binder & Chart: $49.95
English only
www.vort.com
Best Beginnings Chart (pkg of 25): $24.95
Parent Questionnaires (binder of
Masters): $39.95
HELP…at Home (0-3)
www.vort.com
#2: Preliminary list of existing local
organizations that may provide services
•
L.L. Schendel Speech and Hearing Clinic at FSU
(http://commdisorders.cci.fsu.edu/speech-hearing-clinic)
•
PREVENT Program (www.jud11.flcourts.org/SCSingle.aspx?pid=26)
•
Local Early Learning Coalitions (http://spe.schoolreadiness.org/pe/)
•
Florida State University First Words Project (http://firstwords.fsu.edu)
•
Mailman Center for Child Development, University of Miami:
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•
•
•
Building Babies’ Brains (http://pediatrics.med.miami.edu/debbieschool/training/continuing-education/)
Debbie Institute (http://pediatrics.med.miami.edu/debbie-school)
Interdisciplinary Screening Program
(http://pediatrics.med.miami.edu/mailman-center/clinical-services/ideas)
Early Discovery Service Project (http://pediatrics.med.miami.edu/mailmancenter/research/demonstration-projects/early-discovery/)
•
Linda Ray Intervention Center, University of Miami
(www.lindaraycenter.miami.edu)
•
Dade County Public Schools Florida First Start
(http://beckham.dadeschools.net/Special%20Programs/even_start.htm)
#2: Preliminary list of existing local
organizations that may provide services (Cont.)
•
Easter Seals Florida
(http://fl.easterseals.com/site/PageServer?pagename=FLDR_early_interven
tion)
•
•
•
•
Pinellas County ARC (www.parc-fl.org)
•
•
•
•
Tampa Bay Early Intervention Center
Home-based Early Intervention in Tampa
Igoe-Amar Child Development Center in West Palm Beach
Family Focus – Free Screening Services
Margaret E. Dickins Children’s Technology and Multi-Sensory Room Center
Discovery Learning Center
Florida Children’s Services Council (www.floridacsc.org)
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•
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•
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CSC of Broward County
Children’s Board of Hillsborough County
Jacksonville Children’s Commission
CSC of Martin County
The Children’s Trust of Miami-Dade
CSC of Palm Beach County
JWB – CSC of Pinellas county
CSC of St. Lucie County
•
Florida Outreach Project (FOP) (www.deafblind.ufl.educ)
•
Space Coast Early Intervention Center (SCEIC (www.sceic.org)
#2: Preliminary list of existing state
organizations that may provide services (Cont.)
• United Way of Florida (www.uwof.org)
•
The Center for Autism and Related Disabilities (CARD)
(www.centerforautism.com)
•
Florida’s Head Start Collaboration Office – includes Early Head
Start (www.floridaheadstart.org)
• Florida Office of Early Learning (www.floridaearlylearning.com)
• Private insurance: “Habilitative services” (versus rehabilitative
services), such as Speech, OT and PT will be included in the
essential services to be offered by insurance companies under
Federal Affordable Care Act.
#3: Identify professionals and/or
organizations who should receive the
compiled resource information
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•
•
•
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Pediatricians
County Health Departments
Home visitors
Child care centers
Child protection investigators (DCF and
Sheriffs’ Offices)
• Community-Based Care managers
• Faith-based organizations
#4: Marketing Plan Elements
•
Interface with the Electronic System that Stacy Howard’s workgroup is
developing.
•
Suggested organizations through which to distribute information:
•
Florida Chapter, American Academy of Pediatrics (www.fcaap.org)
•
DOH (http://www.doh.state.fl.us/alternatesites/cmskids/families/early_steps/early_steps.html)
•
DCF (www.dcf.state.fl.us/children/)
•
Florida Sheriffs Association (www.flsheriffs.org)
•
Healthy Families Florida (www.healthyfamiliesfla.org)
•
Early Head Start/Head Start (www.floridaheadstart.org)
•
Whole Child Leon (www.wholechildleon.com)
•
Early learning coalitions (www.earlylearningassociation.org)
•
Parents as Teachers (www.parentsasteachers.org)
•
Family Café (www.familycafe.net)
•
Miami Safe Start Initiative (www.miamisafestartinitiative.org/safestart/)
Sponsored by United States Department of Health and
Human Services, Administration on Developmental
Disabilities and the Florida Developmental Disabilities
Council, Inc.