The Survey of Wellbeing of Young Children

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The Survey of Well-being of Young Children

(SWYC)

Ellen C. Perrin, M.D.

R. Christopher Sheldrick, Ph.D.

We have no relevant financial relationships with the manufacturer(s) of any commercial product(s) and/or provider(s) of commercial services discussed in this CME activity.

We do not intend to discuss an unapproved/investigative use of a commercial product/device in this presentation.

Historical perspective

• Rosie D. lawsuit

• CBHI

• Available Instruments

– Lengthy

– Proprietary

– Scoring complex

– Fragmented

Our goals

• Surveillance Instrument (birth to 5)

– First level screening

– Integrate “behavior” and “development”

– Include family context/risks

– Quick to fill out, score & interpret

– “Developmental growth curve”

• Free and in public domain

• Amenable to electronic format

– Computer

– Telephone

– Internet

Behavior Development

Family Context

Preschool Pediatric

Symptom Checklist

(PPSC)

Behavior

•Internalizing

•Externalizing

Development

Baby Pediatric

Symptom

Checklist (BPSC)

Family Risk

Preschool Pediatric

Symptom Checklist

(PPSC)

Behavior

•Internalizing

•Externalizing

Baby Pediatric

Symptom

Checklist (BPSC)

Development

Family Risk

•Delays

•Autism

Milestones

Parent’s

Observations of

Social Interactions

(POSI)

Behavior Development

Family Risk

FAMILY RISK FACTORS

Depression

 PHQ-2

Substance Abuse

 Alcohol

 Tobacco

 Other drugs

Parental Discord

Hunger

Four Domains

• Social-emotional-behavioral

– BPSC (Birth to 18 months) – 12 items

– PPSC (18 months to 5 years) – 18 items

• Cognitive, Language and Motor

– Milestones (each WCV) – 10 items

• Autism

– POSI (18 to 36 months) – 7 items

• Family Risks

– Each WCV - 11 items

SWYC

Psychometrics!

• Latent variable modeling

• Comparative effectiveness

Latent variable modeling

•Reliability

•Differential Item Functioning

SES

?

PPSC bifactor model general factor

Social/ emotional problems

Item 1

Item 2

Item 3

Item 4

Item 5

Item 6

Item 7

Item 8

Item 9

Item 10

Item 11

Item 12

Item 13

Item 14

Item 15

Item 16

Item 17

Item 18 item clusters f1 f2 f3

1.0

0.8

0.6

0.4

0.2

0.0

Total

PRIMARY CARE SAMPLE

Sensitivity Specificity

1.0

0.8

0.6

0.4

0.2

PPSC

ASQ-SE

Internalizing Externalizing

CBCL 1.5-5

0.0

Total

PPSC

ASQ-SE

Internalizing Externalizing

CBCL 1.5-5

1.0

0.8

0.6

0.4

0.2

0.0

Total

CLINIC SAMPLE

Sensitivity Specificity

1.0

0.8

0.6

0.4

0.2

PPSC

ASQ-SE

Internalizing Externalizing

CBCL 1.5-5

0.0

Total

PPSC

ASQ-SE

Internalizing Externalizing

CBCL 1.5-5

Sensitivity Specificity

1.0

0.8

0.6

0.4

0.2

0.0

ADHD Anxiety Behavior or Conduct Any diagnosis

Parent report of existing diagnosis

PPSC

ASQ-SE

CBCL 1.5-5

Specificity

Other SWYC studies

• POSI v MCHAT

• Milestones v ASQ-3

• BPSC v ???

Example SWYC Forms

12-Month

Milestones

24-Month

Social/

Emotional

Behavior

12-Month

Page 2 (on the back)

Autism

24-Month

Family Risk

Questions

Summary

• Surveillance/first level screening instrument

• Includes

– Cognitive, language, motor, and socialemotional development

– Autism spectrum disorders

– Family context/risks

• Compares well with older instruments

• Free, public domain

• English and Spanish

• Convertible to computer platform

– Tailored for child’s age

– Link to follow-up questionnaires

• eperrin@tuftsmedicalcenter.org

• rsheldrick@tuftsmedicalcenter.org

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