Understanding the System:
Agency for Persons with Disabilities
(APD)
For those on the Waiting List
http://apd.myflorida.com
386-238-4607
Values and Philosophies of the Agency
for Persons with Disabilities
• Inclusion
• Self-Determination
– Freedom, Authority, Support, Responsibility,
Personal Information Sharing
• Person Centered Approach and Planning
• Personal Outcomes
• Chapter 393 of Florida Statutes
Agency for Persons with Disabilities
(APD)
– Defines eligibility criteria
•
•
•
•
•
Mental Retardation
Cerebral Palsy
Spina Bifida
Autism
Prader-Willi
• Florida Administrative Codes
– Provide clarification pertaining to Florida Statutes
– Due Process
• Policies and Procedures
• 14 area offices
Preparing Yourself and Others
•
•
•
•
•
•
•
•
Family-Centered approach
Type of care and supervision needed
Who will help/ make necessary decisions
Type of home, neighborhood
Type of employment/ daily activities
Quality of life/ leisure time activities
How all needs will be provided/ financed
Transition
Your TEAM
•
•
•
•
•
•
YOU
Your family
Your friends
Your school or community agency personnel
Human Service Counselor (APD)
Privately paid support person
Benefits/ Benefits Planners
• Social Security Administration (SSA)
–
–
–
–
–
1-800-772-1213
Retirement
Disability benefits (SSDI and SSI)
Dependents
Survivor
• See Red Book pages 14-15
Health Insurance
• Medicaid 1-800-273-5880
– Provider Directory
• Medicare (Eligibility not based on age)
– Hospital Insurance Part A
– Medical Insurance Part B
– Prescriptions
Part D
IMPORTANT!
• The eligibility criteria for Social Security
Benefits, Supplemental Security Income,
Medicare, and Medicaid are ALL DIFFERENT.
• You do NOT have to choose one or the other.
You may be eligible for only one, or two, or all
four.
• The Social Security Office can advise you which
you are eligible to receive.
Other Programs Serving Persons
with Developmental Disabilities
• Clearinghouse on Disability Information
– (877) 232-4968 Toll Free
• Department of Children and Families; District 12
–
–
–
–
–
Volusia and Flagler Counties
www.state.fl.us/cf_web/
386-238-4750Adult Services
A.C.C.E.S.S.
• (Automated Community Connection to Economic Self-Sufficiency)
• Food Stamps / OSS (Optional State Supplementation) / Medicaid
– Substance Abuse and Mental Health
– Housing assistance
Other Programs Serving Persons
with Developmental Disabilities
• Department of Elder Affairs
– http://elderaffairs.state.fl.us/
– 210 N. Palmetto Ave Suite 408
Daytona Beach FL 32114
– 386-238-4946
– CAReS Unit
• (Comprehensive Assessment and Review for Long-term Care Services)
– Ombudsman - Suite 403
• (386) 226-7846
• Local office for complaints regarding Nursing Home, ALF, etc.
Other Programs Serving Persons
with Developmental Disabilities
• Department of Health
– www.doh.state.fl.us
– Volusia County Health Department
•
•
•
•
•
www.volusiahealth.com
Daytona
(386) 274-0676
New Smyrna Beach
(386) 424-2074
DeLand
(386) 822-6223
Deltona
(386) 575-0373
Other Programs Serving Persons
with Developmental Disabilities
• Volusia and Flagler County Human Services
– -(386) 736-5956 ext 2980 (West Volusia
- (386) 254-4648 ext.2980 (Daytona Beach)
-(386) 423-3375 ext 2980 (New Smyrna Beach)
- (386)775-5204 ext 2980 (Orange City)
-(386) 437-7350 (Flagler County)
Other Programs Serving Persons
with Developmental Disabilities
• Department of Education
- www.fldoe.org
- Volusia County School System
• DeLand
(386) 734-7190
• Daytona
• New Smyrna Beach
• Osteen
(386) 255-6475 or (386) 258)4660
(386) 427-5223
(386) 860-3322 x20000
- Flagler County School System
(386) 437-7526
- Division of Blind Services
(386) 254-3800
- Daytona Beach Community College
• Student Disability Services
(386) 255-8131 x 3807
• Adult Basic Education
• Vocational Rehabilitation
(386) 506-3468
- www.rehabworks.org
- DeLand
- Daytona /Flagler
(386) 736-5360
(386) 756-7408
Individual Support Plan:
Short Version
• Direct and participate in decision making
• Short Version of Support Plan is used while on the
waiting list
–
–
–
–
What services are needed to achieve quality of life?
Who will take the lead in obtaining services?
Updated annually
Written by APD Human Services Counselor
Individual Support Plan Full
Version
•
•
•
•
•
•
Develop with your entire team
Home
Work, School, Daily Activities
Personal and Social
Health
Desired Goals and Outcomes
Supports for Persons with
Developmental Disabilities
• Home and Community-Based Services Waiver
– DS/HCBS Waiver or “Big waiver”
• Family and Supported Living Waiver
– FSL Waiver or “Little waiver”
• Consumer-Directed Care Plus (CDC+)
– Florida Freedom Initiative
What services does APD provide?
•
•
•
•
•
•
•
•
•
•
•
•
•
•
•
Adult Day Training
Behavior Analysis
Chore
Companion
Consumable supplies
Dental
Dietitian
Durable Equipment
Environmental Adaptations
Homemaker
In-Home Supports
Medication review
Non-Residential Supports
Occupational Therapy
Personal Care Assistance
•
•
•
•
•
•
•
•
•
•
•
•
•
Personal Emergency Response Systems
Physical Therapy
Nursing (Residential, Private, and Skilled)
Psychological Assessment
Residential Habilitation
Respiratory Therapy
Respite
Speech Therapy
Support Coordination
Supported Employment
Supported Living
Therapeutic Massage
Transportation
(Underlined Services are available on FSL)
Finding the Handbook
• http://apd.myflorida.com
• Click on “Clients and Families”
• Under “Medicaid Waiver Information”
• Click on Developmental Disabilities
Coverage and Limitations Handbook
The Handbook CHAPTER 2
•
•
•
•
Requirements to receive services
Documentation Requirements
Definitions
Listing of all services:
•
•
•
•
Description
Limitations
Place of Service
Special Considerations
Additional Supports
• Natural Supports
–
–
–
–
Family
Neighbors
Friends
Etc
• Community Supports
–
–
–
–
Church
Parks and Recreation
Shelters
Etc
CHAMPS
• C.H.A.M.P.S.
– Citizens Helping Assess Maintain and Provide Supports
• Network of community members helping
people to live safe, healthy, and selfsufficient lives
• Feedback may be positive or negative
Legal Protections
• Bill of Rights
• Chapter 916 of the Florida Statues
– provides protection for those who have involvement
with the Criminal Justice System and a
Developmental Disability
– Court Liaison available through APD
• (386) 238-4607
Advocating and Coordinating Care
• Support Plan
• Cost Plan
Your Support Coordinator is responsible
for the development of both.
Empowerment
• Capable of determining your own needs
• Encouraged and supported to develop your
own resources
– Not dependent on the service delivery system
– Deciding what services and supports you want
Following the Line of Authority
•
•
•
•
•
•
•
Discuss your concerns with the Support Coordinator
Gather information
Put information in writing
Write to the Agency for Persons with Disabilities
Central Office
Legislators
Advocacy Center or other legal assistance
Due Process Rights
• Administrative Hearing
– Chapter 120
• available when APD denies a service or fails to act on
a request for assistance
• request has to be made in writing in the area where
your family resides
• you have 90 days to make your request
Due Process Rights Continued
• Administrative Hearing
• Chapter 42
• only when service in question is being paid through
the Federal Medicaid program
• services denied
• services not acted on in 90 days
• services suspended, terminated or reduced
Advocacy
• Family Care Council
– www.fcc12.org
• Legislators
• FLAC- Florida Local Advocacy Council
• www.Flddresources.org
– Delmarva results on the internet
• Florida Developmental Disabilities Council
– www.fddc.org
Self-Advocacy
• Family Care Council
– www.fcc12.org
Choosing the best place to live
•
•
•
•
•
•
•
Own home
Family Home
Foster Home
Assisted Living Facility
Group Home
(Residential Habilitation Center)
Skilled Nursing Home
Work and Retirement
• WORK
–
–
–
–
–
–
–
–
Use your resources- who do you know?
Vocational Rehabilitation
Department of Education
One-Stop Career Center
PASS Plan from Social Security
Private Pay for employment services
Self Employment
Volunteering in community
Work and Retirement Continued
• RETIREMENT
–
–
–
–
–
–
–
Recreation
Volunteer
Senior Center
Nutrition Site
Clubs, Groups, Hobbies
Church Related
Council on Aging
Protecting Rights
•
•
•
•
•
Alternatives to guardianship
Family and friends
Local Review Committee (LRC)
Abuse Registry 1 800 96 ABUSE
Advance Directive
– Durable Power of Attorney
– Living Will
– Health Care Surrogate
Protecting Rights Continued
• Client Advocate
– Co-signer of bank accounts
– Representative Payee
Protecting Rights Continued
• Guardianship
–
–
–
–
–
–
–
Full (plenary)
Limited
Emergency Temporary
Voluntary Guardianship
Standby Guardianship
Foreign Guardianship
(Public Guardian- not available in Volusia or
Flagler Counties)
Guardianship
• The Process
– Seek Legal Council
Making an Estate Plan
•
•
•
•
•
•
Will
Letters of intent
Trusts
Tax Issues
Selecting an attorney
Other helpful tips
Dealing with Healthcare
Concerns
• Quality Health Care
–
–
–
–
–
–
Appropriate Communication
Person-centered Care
Continuity of Care
Comprehensiveness of Care
A community Base
Individual Empowerment
Common Effects of Aging
•
•
•
•
•
Vision Loss
Hearing Loss
Changes in Bones and Muscles
Hormonal Imbalance
Memory Loss
Coping with Changes and Loss
• Dealing with personal loss
• Grieving
• Funeral Plans
Personal Information Summary
• A Form that has helpful information about
the person located in one place and can be
utilized when working with various people
who need information about the person.
Choosing your
Waiver Support Coordinator
• Support Coordination Selection Packet
– Sent upon enrollment
– Brochures and contact information
– Delmarva Findings
• www.flddresources.org
• Interview as many as you wish
• Plan good interview questions
– Experience and resource connections relating to
a person’s goals
Transition to waiver services
•
•
•
•
Time frames for transition
Meet as often as necessary to cover all areas
Choosing the right provider
Important information
–
–
–
–
–
–
Waiver Medicaid
Personal information
Medical information
Family medical history
Financial information
Legal documents such as wills, guardianship, special needs
trusts
Resources
•
•
•
•
•
•
•
APD Quarterly Calendar of Events & Training
Florida Developmental Disabilities Council
Center for Autism and Related Disorders
Disability is Natural- website
Top Health Newsletter
One Voice for Volusia
First Call for Help/ United Way
Any Questions?
Thank you
for your time!