Michelle Crozier
Associate Professor Heidi Muenchberger
Griffith Health Institute, Griffith University
Presentation Outline
• Your Life Your Choice – Queensland Government
initiative
• Industry Partnership
• Research Program Logic
• Research Aim
• Staged Action Research
• Interviews – YLYC Participants
• Focus Groups & Interviews – Host Providers
• Initial Findings
• Survey development
Your Life Your Choice
• Your Life Your Choice (YLYC) self-directed support was
launched by the Premier and Minister for Communities,
Child Safety and Disability Services in September 2012
• YLYC enables people with disability and their families to
have more choice and control over their disability
supports and services
• YLYC introduces self-direction to Queensland
• YLYC helps people with disability and their families get
ready for more choice and control under the NDIS
Industry Partnership
Your Life Your Choice
“Self-Directed support is an approach which enables
people with a disability and/or their family to have
choice and control over their disability supports and
services to achieve positive outcomes in their lives.
By using funding and other resources to plan,
purchase and select supports and services that suit
individualised needs, people with a disability and/or
their families become active participants in the
design and delivery of their disability support.”
Your Life Your Choice
• This policy direction is consistent with other jurisdictions across Australia
• Self-direction is not new
• YLYC is not new funding, it is a new option to change the way services are
delivered through increasing choice and control.
• Changes to the Disability Services Act (2006)
• Ruling from the Australian Tax Office and Department of Social Security that
where this funding is paid directly to a person or family it is not included as
income.
• The funding is paid quarterly in advance.
• Currently there are 109 approved host providers and over 1050 participants self
directing under Your Life Your Choice.
• Vision to embed people in community through purchasing services in more
typical ways.
Your Life Your Choice
Research Aim
• Develop a snap shot understanding of Your Life
Your Choice on participants who have moved
from a traditional model’s of service delivery (or
are new to services) to Your Life Your Choice
through two quarters of payments.
• It also involves developing an understanding of
the experiences of Host Providers.
Staged Action Research
Part 1
Part 2
Part 3
• Ethics
• Literature Review
• Protocol development
•Interviews & Focus Groups (Participants and host providers)
•Data Analysis
•Survey (informed by focus groups and interviews)
•Data Analysis
• Data Synthesis
• Final Report
YLYC Research Participants
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Eligible Recruitment Pool (n=261)
Random Sample (n=63)
Invitation to participate
Respondents (n=14; 22%)
Interviewed (n=12; 19%)
Mixture of participants
YLYC Research Participants
RELATIONSHIP
REGION
METHOD
Guardian
Brisbane
Host Provider
Father
South East
Host Provider
Adult Foster Parent
Brisbane
Host Provider
Mother
North Coast
Host Provider
Adult Foster Parent
Brisbane
Direct Payment
Mother
Brisbane
HP going to DP
Person
Brisbane
Host Provider
Person
Brisbane
Host Provider
Mother
North QLD
Host Provider
Person
Brisbane
HP going to DP
Mother
Mother
Brisbane
Central QLD
Host Provider
Host Provider
Research Host Providers
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Eligible Recruitment Pool (n=99)
Respondents Focus Group (n=15; n=12 orgs)
Interviewed (n=4; n = 3 orgs)
Operating across regions (n=11)
Organisations: Mamre, Staffing Options, Bespoke,
Alara, Muscular Dystrophy QLD, Uniting Care,
Autism QLD, HealthCare group, Xavier Children
Support Network, Carers QLD, Endeavour
Foundation, Horizon, Compass, Centacare & Flexi
QLD.
Key Research Themes
• The journey toward Your Life Your Choice
• Experiences of Your Life Your Choice
• Operating Your Life Your Choice
Research Survey: Participants
• Background Information
• Your Life Your Choice Experiences
• Host Provider Experiences
• Departmental Experiences
Research Survey: Host Providers
• Region/s
• Participants
• Host Provider Arrangements
• NDIS readiness
What is next?
• Distribute Host Provider Survey
• Distribute Participant Survey
• Analyse Survey Results
• Prepare Final Report
References
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Crozier, M., Muenchberger, H., Colley, J., & Ehrlich, C. (2013). 'The disability self-direction
movement: Considering the benefits and challenges for an Australian response'. Australian Journal
of Social Issues, 48 (4), 455-471
Crozier, M., & Muenchberger, H. (2013). ‘It’s your problem, not mine’: does competence have
anything to do with desire and aspiration to self-direct? Australian Health Review, 37(5), 621-623.
Dorsett, P. Chenoweth, L. Crozier, M. & Reese, K. (2014) Users experiences of self-direction:
responding to the missing evidence for the new important policy paradigm within a national
disability insurance scheme.
Department of Health and Ageing. (2012). Evaluation of the consumer-directed care initiative Appendices. KPMG.
Government of Western Australia. Model of Care Overview and guidelines: Ensuring people get the
right care, at the right time, by the right team and in the right place. WA Health Networks Retrieved
from
http://www.healthnetworks.health.wa.gov.au/publications/docs/070626_WA_Health_Model_of_C
are-overview_and_guidelines.pdf.
New South Wales Government. (2011). Living Life My Way: putting people with a disability at the
centre of decision making.
Queensland Government. (2012). Your Life Your Choice: self-directed support framework. Brisbane.
Victorian Government. Self-directed planning information sheet. Melbourne: Retrieved from
http://www.dhs.vic.gov.au/__data/assets/pdf_file/0008/596573/1_cis_self_directed_planning_info
_sheet_pdf_290609.pdf.