Sumithra VELUPILLAI, Omran IBRAHIM, Maria KVIST
SHI, Copenhagen, August 20 2013
Clinical Text Mining Group, Dept. of Computer and Systems Sciences
(DSV)

Introduction & Background
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Ongoing shift in health policy
•
Focus on patient empowerment
•
Patients’ access to their medical records
•
Different models for personal health records
(PHR) are suggested.
•
“ Which PHR functions are preferred by patients living in Sweden ?”
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Hypertoni o DM, brtsm och St lyft anteriort,
PCI mot ockluderad proximal LAD med 2 stent. Cirk stabil.

Material & Methods
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Structured interviews (5 patients) à themes à
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Online survey
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5 demographic questions, 18 statements
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Free-text comments
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5-point Likert scale
•
2 months during summer 2012
•
201 respondents
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Results
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5 Themes:
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Content overview
•
Help to understand content
•
Help to understand screening results
•
Communication/interaction with health care
•
Additional functions
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Results (survey)
•
Typical respondent:
•
Middle-aged female with health problems and good computer skills
•
All categories deemed important, almost all answers at the level of ”agree” or ”strongly agree”
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Results
EHR
PHR
De parenkymatösa organen i buken
är utan fokala förändringar, liksom mesenterium och tarmar.
Inga organ i magen har ovanliga förändringar.
Overview image from http://www.eptin.net/medical.html

Results: Communication
EHR
PHR

Free-text comments
•
(Almost) All automated support welcomed, but a general worry that this would decrease face-toface contact
•
Clearer, understandable language requested
•
Security issues big concern
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Thank you for your attention
Experiences from other countries?
Ideas and comments welcome! sumithra@dsv.su.se