Independent living

Health and social care
integration: 5 asks from
disabled people
Pam Duncan, Policy Officer, ILiS
The next 15 minutes:
• Independent living and the
integration of health and social care
– Disabled people, their influence & coproduction
• Influencing the integration of health
and social care
– The 5 asks of disabled people
Independent living
“Independent living means
disabled people of all ages having
the same freedom, choice,
dignity and control as other
citizens at home, at work and in the
community. It does not mean living
by yourself or fending for yourself.
It means the right to practical
assistance and support to
participate in society and live an
ordinary life”.
History of the Independent
Living Movement (ILM)
It’s our
world too
About Scotland’s
disabled people’s
Independent Living
• It is important that the voices of
disabled people are heard and
can influence
• Disabled People’s Organisations
can support this
• Coproduction is a way of doing
Coproduction toolkit
Integration of health and social
• an opportunity to progress
independent living,
citizenship and human
• 5 ‘asks’ : the things
disabled people would like
the Government to think
about when planning the
integration of health and
social care
Joined up health and social care must have goals that
support independent living, citizenship and human
plans are too much about health and organisations and
not about Independent Living
This means all the support needed for Independent
Living is sometimes missed
health and social care services should use the values of
human rights, independent living and citizenship
This would help disabled people to stay well and would
cost less money over a long period of time
Disabled people must be supported to be equal
partners in making decisions about the joining of
health and social care
• This is coproduction
• The ILM should be involved in coproduction as the ILM
supports and represents disabled people
• They are ready, willing and able
• Community Health Partnerships should involve and support
disabled people to be involved in their work. This will help to
plan and deliver the best services that better support
Independent Living
• Disabled people must have support for coproduction
It is important that coproduction is used to
decide how the money available for joined up
health and social care services is used
• There will be some questions to think about and decisions to make,
when discussing the joining up of health and social care services,
What is health care?
What is social care?
What about services that people have to pay for?
Will saving money in one area mean more costs in another
Will changes made in one area affect services in another area?
New systems developed around these, must have the values of
independent living
They must not be used to limit how much support people get
It is important to hear the views of as many
people as possible not just the views of older
Older people often start to use health and social care
systems because they become disabled or ill
But their views and goals may be different from younger
disabled people
It is important to get the views of as many people as
possible, including younger disabled people, when
designing new services
This will mean new services and systems can be better
from the start and stay better for the future
SDS must work together with joined up health and social
care services: the new SDS Bill should be changed to
include health funded support in the community
The Scottish Government supports the principles of Independent
Living, they want more people to have SDS
They think SDS users and professionals should be equal partners –
this idea must be included in the plans for joining up health and social
The SDS Bill does not include community health care and so some
people with health needs may not be able to have community health
care using SDS
The SDS Bill should include support in the community for people who
leave hospital and need support in their home. This means they will
be able to choose how money is used to support them to live in the
community when they go back to live at home
Independent Living in Scotland
Inclusion Scotland
Scottish Disability Equality Forum
Self Directed Support Scotland