Using local evidence in service design – Oxfordshire County Council’s “Prevention Project” Rachel Taylor, Research Officer Sara Livadeas, Assistant Head of Service, Strategy & Transformation Summary of presentation • • • • • Rationale for the project Methods Results Service redesign Questions and discussion Rationale for undertaking the project • Promoting independence agenda – preventing ill health and avoiding or delaying the need for costly services. • Residential/nursing care per annum – 46m • 58% spent on over 85s • Predicted increase in 85+ - 2006-2031 143% • Avoidance of unnecessary care home admissions • Evidence of what works required to justify investment in preventative approaches Methods 1 • Worked with Institute of Public Care, Brookes University • Literature review including past studies eg. Northamptonshire’s work • File audit of care home admissions in Oxfordshire 2008-9 (25% of admissions) • Interviews with 21 people – 7 older people, 8 carers and 8 care managers Methods 2: Issues to do with file audit • Electronic files very difficult to read • People auditing did not have social work background • Only looked back 12 months • Documents were the viewpoint of the care staff • Weighting of condition/circumstance difficult to determine • Health records not available Methods 3: Issues to do with interviews • Gave us the older person, carers and staff perspective • Recruitment was challenging • Mental capacity issues – learning curve • Difficult to get a clear sense of when events occurred • Perceived reluctance on part of older person or carer to think that admission may have been avoidable Results - literature • Falls: half of all older people who have had one fall will go on to have further falls. • Continence: Incontinence affects 25% of the older population, In care homes these figures are considerably higher being 30-60%. Incontinence may contribute to premature referral for care home admission, as either the older person or their carers reach the point of no longer being able to manage the situation. Evidence shows that incontinence is often treatable in older people. • Stroke: Approximately 110,000 people in England suffer from a stroke each year. Caring for people who have had a stroke uses a significant proportion of inpatient hospital beds and nursing homes places. At present only around half of individuals who have experienced a stroke receive the rehabilitation to meet their needs in the first six months following discharge from hospital, • Dementia: Carer capacity and skills to care have a strong influence on the likelihood of someone being admitted to a care home early. Results file audit 1 Variable Oxfordshire Northamptonshire • Incontinence 39% 34.5% • Dementia 40% 52% • Depression 25% 23% • Falls 40% 52% • Hospital admissions -in last 12/6m (OCC/NCC) 1 in 5 • Admitted from hospital 61% Over half Over half Results file audit 2 • • • • • Bereavement (not always in last year) Living alone (64%) Female (71%) Inappropriate housing (1 in 4-low estimate) Carer death or breakdown (10% - low estimate) • Multiple health conditions (56%-under recorded) Interview findings 1 • • • • • • • • Complexity of conditions/circumstances Reflected the file audit Mainstream services – mixed picture Night care – importance in relation to continence Isolation – key factor conveyed in interviews Telecare – benefits unclear Voluntary sector – very little involvement Importance of carer – vital importance not shown in the file audit Interview findings 2- complexity of conditions and circumstances Eg: Living with consequences of health condition from many years ago • “He had the stroke in ’95. But that limited his movement on his right side and you know I suppose getting older as well, he struggled getting around a bit more, then he got diagnosed with prostate cancer…And he had to have a catheter fitted and he gets quite prone to infection and he had falls and things” Carer Interview findings 3 – mainstream services • Varied picture – Social workers, PCT, hospitals • Problems with service rather than needs-led provision: • “Yes, that was all I wanted, just come in, concentrate on mum and had a 45 minute slot, but what would happen is if they came in with her and talk to her and that was as good as anything else. But then we had a letter saying they were cutting down her time because she didn’t need any help with anything and they cut her down to a 15 minute slot” Carer Interview findings 4 - incontinence • In a lot of cases, when clients come from hospital to nursing homes, they come with catheters and all sorts of things that they quite possibly don’t really need, but quite often they are given them at hospital because it’s easier. Maybe I shouldn’t say that but the general feeling is that it’s easier to manage so they are given catheters and all sorts of things that take away their independence, take away their dignity and most of them don’t want and don’t actually need. Care Manager 7 Interview findings 5 - isolation • The other big one that I find that people tend to go into long-term care that aren’t hospital admissions, a lot of it is isolation, is loneliness, is feeling vulnerable and at risk and especially during the winter months. Care Manager • ‘He wouldn’t go out. He was frightened and so he got very isolated and although they had a community room at [sheltered housing scheme], because of the dark nights and that, he wasn’t going to go; you know he didn’t go so most days the only person he saw would be the warden, the lady who came to put him to bed, the one who came in the morning. So that was the only people he ever spoke to.’ Carer of ES Service design • Continence • “Turnaround” – what it is and where we are at with it. • Support for carers of people with dementia Continence redesign • DH funding for joint PCT/SCS project to redesign project • Aiming for a fully integrated service which will move towards prevention and rehabilitation and away management / containment of the problem to include: – Pathway redesign – A Workforce Strategy to deliver an appropriately led, trained workforce in bladder and bowel dysfunction – Great emphasis on educational awareness for self care, drawing on user experience and involvement, to promote universal bladder and bowel. “Turnaround” 1 Health and Well Death of a spouse First fall Being Increasing age 17 “Turnaround” 2 Health and Well Being Reablement or restorative interventions Increasing age 18 The “Turnaround” approach Interventions need to be: Health and Well Being •Focussed on most opportune moment for change. •Open ended in terms of time commitment . •Delivered on the basis of evidence based outcomes. Increasing age 19 Key factors in making it happen Local, national and anecdotal evidence all coming together Good partnership working already in place Right people willing to engage Opportunity with TASC money …… Still a long way to go Key messages • Use of evidence to provide knowledge based commissioning. • Literature review indicated what the issues were. • Used our own data to see what was really happening in Oxfordshire. • Strong relationship between the literature and our own findings. • Service response based on 2 or 3 factors that would make a difference. • Needs ongoing evaluation.