SISTERS UNITED: A community based initiative to reduce infant mortality in the African American community Arkansas Department of Health Office of Minority Health & Health Disparities Family Health Branch 1 2 3 MISSION to provide leadership in improving health outcomes by advocating for health equity for at-risk populations as defined by race or ethnicity, age, education, disability, gender, geographical location, income, and sexual orientation. 4 OBJECTIVES Describe the burden of infant mortality in Arkansas’ African American communities. Describe a state health agency role in reducing infant mortality. Describe key components of an initiative aimed at reducing infant mortality. 5 MINORITIES IN ARKANSAS Consist of 670,689 (23%) of the population: African-American (15.4%) Latino (6.4%) Asian (1.2%) American Indian/Alaskan Native (0.8%) Native Hawaiian/Pacific Islander (0.2%)* Multiple Races (2.0%) Other (3.4%) Source: www.2010.census.gov 6 Age-Adjusted Mortality Rates by Cause, Race and Ethnicity Arkansas 2008-2012 – Based on Level of Disparity Total African American White Disparity Ranking HIV 2.2 7.6 1.2 6.3 Homicide 7.5 21.1 4.8 4.4 Diabetes 26.2 57.6 22.9 2.5 Asthma 1.3 2.6 1.2 2.2 Cervical cancer 3.3 5.9 3.0 2.0 Infant mortality* 7.3 11.8 6.4 1.8 Colorectal cancer 18.5 24.9 18.0 1.4 Cerebrovascular disease 51.7 69.47 50.09 1.4 Cause of Mortality 7 Infant Mortality Rate by Maternal Race, Arkansas Resident Births 20 15.7 Per 1,000 Live Births 16 14.7 13.7 12.0 12.7 12.8 12.8 12.4 12.3 11.3 12 8.2 8 12.3 7.6 7.3 6.4 8.3 7.2 8.8 7.7 9.4 8.1 8.0 7.1 6.3 8.3 6.8 7.5 7.1 7.3 6.9 7.0 6.4 6.0 6.4 6.3 5.9 2007 2008 2009 2010 2011 4 Total White Black 0 2000 2001 2002 2003 2004 2005 2006 Source: Linked Birth/Infant Death Files, Health Statistics Branch, Arkansas Department of Health 8 ARKANSAS RISK FACTORS Infants: birth weights less than 3.3 pounds born at gestational ages less than 32 weeks birth defects mothers had no prenatal care mothers who smoked ≥ pack of cigarettes per day mothers had at least one medical complication African American 9 ADDRESSING THE PROBLEM Our office was asked by the Branch Chief of the Family Health Branch to assist with addressing these disparities. We suggested mobilizing graduate sorority chapters. Met with key partners to determine the major focus areas of this new project. 10 POTENTIAL FOCUS AREAS Low birth weight Birth defects Immunization rates SIDS Breastfeeding Tobacco use 11 Low Birth Weight Prematurity is the leading cause of African American death in the 1st year of life African Americans have 3X s the rate of 28 week babies as other races Preterm deliveries account for the vast majority of racial disparity 12 Birth Defects 2nd life leading cause of death in the 1st year of About 1 in every 33 babies is born with a birth defect. Most occur in the first 3 months of pregnancy. 13 Flu Immunization During Pregnancy Flu Shot can: • decrease the chance of mother and baby dying from the flu by 50% • decrease the chance of mother and baby getting the flu and premature delivery by 70% Pregnant women that received a flu shot Latino------------69% White----------------66% African Americans ----40% 14 SIDS Always putting a baby to sleep on their back decreases SIDS by 50% Only 1 out of 3 Black Moms always put their babies to sleep on their backs 2 out of 3 White Moms always put their babies to sleep on their backs 15 Breastfeeding Rates in Arkansas Women Who Ever Breastfed by Race/Ethnicity: Arkansas, 2008-2010 100 90.6 90 80 Percent 70 69.1 72.7 60 50 41.4 40 30 20 10 0 Total White, NH Black,NH Source: Arkansas PRAMS Hispanic 16 Tobacco Use Smoking African American Moms have low smoking rates • AR pregnant smoking average--------------------24% • AA AR Moms--------------12% FOCUS AREAS 1 2 3 • Folic Acid • Flu Shot • Breastfeeding • Safe Sleep 17 18 Why Sororities? 19 History of Fraternities and Sororities AA fraternities and sororities have roots in Masonry. Inclusion was not welcoming to African Americans so a “black version” was created in the late 1700s. The first white fraternity was established in 1776. The first white was formed in 1867. 20 History of AA Sororities 1908 1913 1920 1922 21 Notable Members AΦА ΔΣΘ Alpha Phi Alpha Fraternity Founded in 1906 at Cornell University Rev. Martin Luther King, Jr Civil Rights Activist Delta Sigma Theta Sorority Founded in 1913 at Howard University Dr. Joycelyn Elders Former US Surgeon General AKА ΦBΣ Alpha Kappa Alpha Sorority Founded in 1908 at Howard University Phylicia Rashad Actor Phi Beta Sigma Fraternity Founded in 1914 at Howard University Rep. John Lewis US Congressman KАΨ ZΦB Kappa Alpha Psi Fraternity Founded in 1911 at Indiana University Johnnie Cochran Attorney Zeta Phi Beta Sorority Founded in 1920 at Howard University Zora Neal Hurston Author ΩΨΦ ΣΓΡ Omega Psi Phi Fraternity Founded in 1911 at Howard University Ronald McNair Challenger Astronaut Sigma Gamma Rho Sorority Founded in 1922 at Butler University Victoria Rowell Actor 22 Honorary Members Former US President Bill Clinton Phi Beta Sigma Fraternity Former First Lady Eleanor Roosevelt Alpha Kappa Alpha Sorority Arkansas African American Sorority Graduate Chapters (2012) AKA CHAPTER’S Beta Phi Omega Chi Eta Omega Chi Nu Omega Delta Omega Omega Eta Sigma Omega Kappa Nu Omega Lambda Sigma Omega Mu Chi Omega Phi Alpha Omega Phi Zeta Omega Pi Chi Omega Sigma Beta Omega ZETA CHAPTER’S Tjuana Byrd Philis L. Nichols-Anderson Laura M. Hunter Cynthia L. Bennett Jacqueline E.H. Young Genee' L. Gaines Bobbie Trible-Diamond Donna Faye Ross Ella Donnell Lambey Patricia Doss Glover Angela Marie Davis Sheryl Hamilton Sherwood LR, Faulkner Malvern Pine Bluff Marianna Jonesboro Blytheville Helena Bentonville Magnolia West Memphis Camden Alpha Mu Zeta Chapter Beverly Cook Eta Sigma Zeta Kathy Tatum Epsilon Zeta Zeta Juanita Cook Nu Omega Zeta Sabreana Hytche Sigma Gamma Zeta Aja Osler Upsilon Pi Zeta Treva Sanders Xi Sigma Zeta Sandra Taylor Psi Iota Zeta Carolyn Saterfield Pi Psi Zeta Shonta Williams Pi Chi Zeta Nashanda Brown Theta Gamma Zeta U. Jean Williams Iota Beta Zeta Marva Washington Little Rock No. Little Rock Pine Bluff Arkadelphia Jonesboro West Memphis Forrest City Camden Stamps Lowell West Helena Osceola DELTA CHAPTER’S Central Arkansas Alumnae Northwest Area Alumnae Blytheville Alumnae Forrest City Alumnae Fort Smith Alumnae Helena Alumnae Hot Springs Alumnae Jonesboro Alumnae Little Rock Alumnae Magnolia Alumnae Marianna Alumnae Pine Bluff Alumnae Southeast Arkansas Alumnae West Memphis Area Alumnae Texarkana Alumnae Claudette Barbee Kimberly McGee Floyd Jean Moore Kristen Haynes Tiffinee C. Baker Tanya Greenberry Amanda Snowdan Kim McCray Angela Doyne Cheryl Stuart Janis Waddy Charlene Kelley Rhonda Rigell Sheri Lowe Patricia Anthony Little Rock Fayetteville Blytheville Forrest City Fort Smith West Helena Arkadelphia State University Little Rock Magnolia Marianna Pine Bluff Monticello West Memphis Texarkana SIGMA GAMMA RHO CHAPTER’S Little Rock -Theta Sigma Conway -Kappa Xi Sigma Pine Bluff- Kappa Psi Sigma Carroll Brown Monika Miller Dorothy Penix Little Rock Maumelle Pine Bluff Data source: State Coordinators of African American Sorority Graduate Chapters Arkansas African American Sorority Graduate Chapters Data source: State Coordinators of African American Sorority Graduate Chapters Alpha Kappa Alpha (1908) “Service to All Mankind” 12 chapters Oldest Chartered Chapter: Beta Pi Omega (1937) 699 combined members 6 websites 4 Facebook accounts Over 800 combined Facebook contacts 1 Chapter has past experience in infant mortality Delta Sigma Theta (1913) “Intelligence is the torch of wisdom” 15 chapters Oldest Chartered Chapter: Pine Bluff Alumnae (1944) 860 combined members 6 websites 2 Facebook accounts 203 combined FB contacts 1 chapter has past experience in infant mortality Zeta Phi Beta (1920) “A community conscious, action-oriented organization” 12 Chapters (9 responses) Oldest Chartered Chapter: Alpha Mu Zeta (1940) 203 combined members 2 websites 1 Facebook account 128 combined FB contacts 5 chapters have past experience in infant mortality Sigma Gamma Rho (1922) “Greater Service, Greater Progress” 3 Chapters Oldest Chartered Chapter: Theta Sigma (1932) 29 combined membership 0 Facebook account 0 Combined FB contacts 0 websites 1 Chapter has past experience in infant mortality SISTERS UNITED POTENTIAL IMPACT 42 Chapters 1,762 combined members 7 Chapters have past experience in Infant Mortality 23 counties 315,986 AA’s in counties Over 1,100 combined FB contacts 14 websites / 7 Facebook accounts 30 SISTERS UNITED Invited presidents of African American Sorority graduate chapters to attend leadership meeting. Asked for their help by joining SISTERS UNITED. 31 out of 42 chapters joined and committed to send representatives to attend an 8 hour training. 31 WORK GROUP MEMBERS 3 members from each chapter Prefer MDs, PhDs, Nurses, Public Health professionals Able to attend meetings during work hours At least one member > 50 (grandmother) 32 SISTERS UNITED GOAL To increase awareness among African Americans about infant mortality and share prevention methods to disseminate throughout the community. 33 SOCIAL MEDIA 34 FACEBOOK 35 36 37 EVALUATION 2 - flu shot 1- folic acid 1- breastfeeding 2 - safe sleep 38 TRAINING 58 sorority members from the 31 chapters attended a train-the-trainer conference The attendees received name badges with the title SISTERS UNITED TRAINER Session included mock interviews to learn how to deliver effective media messages. Participants received a binder with handouts, flash drive, evaluation forms, talking points when scheduling media interviews and youtube videos. BRANDING 39 MINI-GRANTS NICHD released RFA to conduct community outreach and education aimed at reducing the risk of SIDS within the AfricanAmerican community. Our office encouraged each SU chapter to apply for these funds. A total of 29 organizations awarded grants and 21 of those were SISTERS UNITED chapters. 41 45 46 PORTRAIT UNVEILING “The artwork entitled, Sisters United, is a representation of African-American Greek sororities united on a campaign to address the community on information to help reduce the infant mortality rate in the state of Arkansas. The globe in the artwork represents the future of our world as these sororities come together to ensure the safety and future potential that our children have in making this world a better place. By reducing the infant mortality rate, our children will thrive to become educated individuals destined to change this world.” 47 48 Total = 970 2013 Community Survey RESPONSE SUMMARY PRE TEST POST TEST 1. The illness caused by the flu virus is worse in a pregnant woman 79% 76% 2. The flu can cause a very mild illness in a pregnant woman 32% 30% 3. It is harmful for the baby if the mother receives a flu shot during pregnancy* 24% 9% 4. A flu shot taken during pregnancy can be harmful for the baby* 27% 7% 5. A flu shot during pregnancy can protect an unborn baby* 63% 88% 6. A flu shot during pregnancy can protect the baby after birth* 39% 57% 7. A flu shot can protect a pregnant woman's life* 50% 63% 8. A flu shot can put a pregnant woman's life in danger* 12% 4% 9. Folic acid intake is harmful for a pregnant* 12% 3% 10. Folic acid intake helps prevent some birth defects in the baby only if mom takes it for at least 3 months before getting pregnant* 56% 73% 11. Folic acid should be taken by a pregnant woman before/during pregnancy 74% 76% * Statistically significant; Two Sample z-test 49 2013 Community Survey Results RESPONSE SUMMARY PRE TEST POST TEST 12. Breastfeeding increases the risk of chronic disease in the baby 7.4% 8.5% 13. Breastfeeding is harmful to the mother's health 14.1% 13.0% 14. Breastfeeding is the beginning of healthy eating for the baby 88.2% 86.7% 15. Breastfeeding builds a loving relationship between mom and the baby 69.4% 71.3% 16. Breastfeeding is important for moms who cannot afford formula* 44.1% 53.8% 17. Breastfeeding reduces the chance of SIDS by 50%* 49.1% 68.0% 18. A baby should be laid down on his/her side to sleep* 17.2% 3.2% 19. A baby should be laid down on his/her stomach to sleep* 14.4% 4.4% 20. A baby should be laid down on his/her back to sleep* 77.0% 94.1% 21. It is safer for a baby to sleep in the same bed as the parents 2.7% 2.3% 22. It is safer for a baby to be wrapped in several blankets for sleep 4.1% 2.1% 23. It is safer for a baby to sleep in their own crib# 97.1% 97.9% * Statistically Significant; Two Sample z-test 50 51 52 WORK PLANS (Level 1) Goal: Increase awareness among the African American community about infant mortality and share prevention methods they can use to disseminate throughout their respective communities. Objective: Increase Education and Expand Outreach. To reach 30 African Americans and provide education about the importance of folic acid, getting an annual flu shot during pregnancy, breastfeeding, and safe sleep methods. Key Action Steps: Target Outcome Measure Time Frame Promote National Birth Defects Prevention Month Post message on chapter FB page about the benefits of folic acid and share YouTube video January 7, 2014 Promote National Breastfeeding Month Post message on chapter FB page about the benefits of breastfeeding August 1, 2014 Promote Infant Mortality Awareness Month Post message on chapter FB page and encourage all members to change FB profile pic to SU logo for 24 hours. September 1, 2014 Promote SIDS Awareness Month Post message on chapter FB page about SIDS Prevention October 1, 2014 53 WORK PLANS (Level 2) Promote National Birth Defects Prevention Month Post message on chapter FB page about the benefits of folic acid and share YouTube video January 13, 2014 Conduct Folic Acid Presentation at Chapter Meeting 10 SU Pre/Post Surveys on Folic Acid, Fax forms to Cicely at 501.661.2414 February 2014 Promote National Breastfeeding Month Conduct Breastfeeding Presentation at Chapter Meeting Post message on chapter FB page about the benefits of breastfeeding 10 SU Pre/Post Surveys on Folic Acid, Fax forms to Cicely at 501.661.2414 August 1, 2014 August 2014 Promote Infant Mortality Awareness Month Post message on chapter FB page and encourage all members to change FB profile pic to SU logo for 24 hours. Post message on chapter FB page about SIDS Prevention Sept 1, 2014 Promote SIDS Awareness Month October 1, 2014 Conduct Safe Sleep Presentation 10 SU Pre/Post Surveys on Folic Acid, Fax at Chapter Meeting forms to Cicely at 501.661.2414 October 2014 Conduct Flu Shot Presentation at Chapter meeting Nov 2014 10 SU Pre/Post Surveys on Folic Acid, Fax forms to Cicely at 501.661.2414 54 WORK PLANS (Level 3) Promote National Birth Defects Prevention Month Post message on chapter FB page about the benefits of folic acid and share YouTube video January 13, 2014 Conduct Folic Acid Presentation at Chapter Meeting SIDS Walk Run 10 SU Pre/Post Surveys on Folic Acid, Fax forms to Cicely at 501.661.2414 Feb 2014 50 SIDS Grant Pre/Post Surveys on Safe Sleep. Submit forms to NICHD according to guidelines. May 2014 Promote National Breastfeeding Month Conduct Breastfeeding Presentation at Chapter Meeting Promote Infant Mortality Awareness Month Post message on chapter FB page about the benefits of breastfeeding 10 SU Pre/Post Surveys on Folic Acid, Fax forms to Cicely at 501.661.2414 Aug 1, 2014 Post message on chapter FB page and encourage all members to change FB profile pic to SU logo for 24 hours. Post message on chapter FB page about SIDS Prevention 10 SU Pre/Post Surveys on Folic Acid, Fax forms to Cicely at 501.661.2414 Sept 1, 2014 10 SU Pre/Post Surveys on Folic Acid, Fax forms to Cicely at 501.661.2414 Nov 2014 Promote SIDS Awareness Month Conduct Safe Sleep Presentation at Chapter Meeting Conduct Flu Shot Presentation at Chapter meeting August 2014 Oct 1, 2014 October 2014 55 42 African American Sorority Graduate Chapters, 2014 SISTERS UNITED Source: State Coordinators of African American Sorority Graduate Chapters 58 SUCCESSES 59 STATE REPLICATION List of chapters in your state Contact chapter presidents Convene leadership meeting Form SU action group Provide training Develop work plans Follow-up with chapters Utilize social media Evaluation tool Consider chapter sustainability 60 RESOURCES https://www.facebook.com/arsistersunited http://www.youtube.com/watch?v=c4IlmpQ54Y4 (Intro) https://www.youtube.com/watch?v=f0Nxhsx9Iok (Folic Acid) http://www.youtube.com/watch?v=MAiLaNgarb4 (Flu Shot) http://www.youtube.com/watch?v=PIAycz8DYJk&feature=plcp (Breastfeeding) http://www.youtube.com/watch?v=wfudqfhjVgs (Safe Sleep) http://vimeo.com/22659669 (Crisis in the Crib) www.aka1908.com http://www.deltasigmatheta.org/ http://www.zphib1920.org/ http://www.sgrho1922.org/home http://www.youtube.com/watch?v=kvtfJjw4_g4 (Impact Video)