APRIL 18, 2023 EMPLOYMENT AND DOWN SYNDROME CPSL34 KEZIA PILLAY (221069547) AMAHLE TSHABALALA (221062887) TABLE OF CONTENTS Section Introduction Articles 1 – 3: Employment in Down syndrome: the experiences of individuals with Down syndrome, their employers, and families in KwaZulu-Natal Contributions of speech-language therapy to the integration of individuals with Down syndrome in the workplace Relationship between family quality of life and day occupations of young people with Down syndrome. Page Author 1 Kezia Pillay 2 Kezia Pillay *Amahle Tshabalala Articles 4 – 6: 8 Adaptive behaviour, executive function, and employment in adults with down syndrome Challenges to employment – Perception and barriers as seen by people with Down syndrome and their parents. Does Employment Complexity Promote Healthy Cognitive Aging in Down Syndrome? Amahle Tshabalala Conclusion 16 References 17 Rubric 19 Kezia Pillay *Amahle Tshabalala Amahle Tshabalala & Kezia Pillay - Introduction A person with Down syndrome is born with an extra copy of chromosome 21, which is a genetic disorder. As a result, they have 47 chromosomes overall rather than 46. This may have an impact on how their body and brain develop. Besides physical features, a noticeable trait of people with Down syndrome is their behaviour and social skills. Every individual is different, so they will present differently but there is a general notion that people with Down syndrome interact and socialise differently. Down syndrome also brings about comorbidities that can impair a person’s ability to participate in certain activities. Taking all of this into consideration, individuals with Down syndrome can still have successful employment experiences with the right support and accommodations. Many organizations have recognized the value of hiring individuals with Down syndrome and have developed programs to support their employment. It is important to focus on an individual's strengths and abilities when considering employment opportunities. We will now be looking at what employment is like for people with Down syndrome, how speech-language therapy can impact their experience and how employing youth with Down syndrome impacts their family life. * We will be looking at Adaptive behaviours, which are defined as the conceptual, practical, and social skills performed by individuals in their everyday lives (Schalock et al. 2010)and Executive Function and how it has an impact on the percentage of employment for young people with Down syndrome. We are also going to look more at the barriers and challenges that young people with Down Syndrome experience when it comes to finding jobs. Last but not least we are going to go through the effect of employment complexity on young people with Down syndrome. 1 of 18 ARTICLE ONE Title of article Name of journal Authors and their Country research in italics; profession and is done in; volume, number, affiliation description in year; pages, age relation to S.A. of article Employment in A research report Tod C J South Africa Down Syndrome: presented to the At the time of The experiences discipline of writing this research of individuals speech-language report, Tod was a with Down pathology. Master of speechSyndrome, their school of health language pathology employers, and sciences; 2014; student at University families in pp 97-122; 9 of KwaZulu-Natal KwaZulu-Natal years Critical evaluation of each of the above aspects of biographical information The title lets us The research The author at the Since this research know that this report is around time was a student has been done in research paper is 9 years old and in and this report relied South Africa. It is based more on that time much mainly on personal readily available to the personal has happened accounts as well as use without having experiences of within the the author’s ability to adjust for the individuals with country which to draw meaningful South African Down syndrome means a lot may conclusions from context. However, rather than a have changed these experiences. there is still room case study in socially, This means some of for comparison as which solid facts economically, the information can the report is 9 and figures are and politically. be seen as years old. meant to be the subjective. outcome. Type of Study Postgraduate dissertation While educational and subject to review and editing before publishing, dissertations are not considered to be peer-reviewed materials since they do not go through the peerreviewing process. This could mean questionable credibility as a source. Summary of the study results People with Down syndrome have to complete a trial period of employment in various job settings before becoming officially accepted. In the workplace, all of the workers had disabilities and their jobs were done at a slower pace. The workshop organisers observed that participants with a variety of disabilities and communication abilities could understand one another very easily. Due to this, individuals with Down syndrome were able to make acquaintances and relationships at the 2 of 18 workplace. However, all workplaces are not the same so not every person with Down syndrome may have the same experiences. People with Down syndrome's employment provided the family with financial benefits, mental tranquilly, inspiration, and pride. The workplace offered several opportunities for reading, math, and technical skill development. Family members claim that the individual is an inspiration to both other members of their own family and people with Down syndrome or other impairments. Families of people with Down syndrome are proud of their loved ones' jobs, and they see someone's career as successful if they are happy in it. The Down syndrome study participants receive compensation of some type, whether they labour in open employment or a workshop setting. It benefits society for people with Down syndrome to work. Due to their vibrant personalities, desire to please others, and ability to fill a role in the workplace. People with Down syndrome have been found to exhibit high levels of drive and devotion to their careers. There was no specialised training provided to the employers participating in the employment workshop to educate them on working with people who have Down syndrome. Although their knowledge stemmed from experience working with individuals who have Down syndrome, they were aware of possible places where delays can happen. Even though there is no regulation in South Africa mandating employers to undergo training, it may be necessary to raise awareness of the disability and any co-occurring disorders. Employers must be able to evaluate employees with Down syndrome favourably, express encouragement and gratitude when a worker excels in their job and be sensitive to the sentiments of their team. Employers must guide workers through language or higher-order concepts to help them learn and adapt to new tasks or routines. Application to the South African Context These are the personal experiences of South Africans and so it is very easy to take what they have said and figure out what works and what doesn't. One of the shortcomings that were mentioned in the 3 of 18 research paper was that not many employers are educated on Down syndrome and how to interact with individuals who have Down syndrome. This lack of education and information can lead to fewer individuals with Down syndrome being employed so it is something that we, South Africa, need to work on. Although we do have limited resources due to the rise of social media I think we will still be able to raise more awareness about Down syndrome and dispel any negative stereotypes people may have. The Internet may be an easy and accessible place to educate not just employers but the public however, it is also very easy to spread misinformation and so this is something that has to be monitored. Even if this may take a lot of time, effort, and resources; it will benefit South Africa’s population affected by Down syndrome and provide them and employers more opportunities. =========================================================================== ARTICLE TWO Title of article Name of journal; volume, number, year; pages, age of article Authors and their profession and affiliation Contributions of speech-language therapy to the integration of individuals with Down syndrome in the workplace Country research done in; description in relation to S.A. Type of Study In CoDAS; Vol, 30; Barbosa, T. M. M.Brazil: Brazil is a Research 2018 Researcher larger country with programme Departamento de a greater Fonoaudiologia, population that is Universidade Federal under a federal da Paraíba presidency. Lima, F.- Speech and Although they have Language Therapist, more political Universidade Federal unrest, it is said do Rio Grande do that they have Norte. better access to G. Â. D. S.- PhD healthcare and Universidade Federal lower da Paraíba, & unemployment Delgado, I. C.rates. Professor Universidade Federal da Paraíba Critical evaluation of each of the above aspects of biographical information 4 of 18 The title of this article is very specific in letting us know that this piece will contain information about individuals with Down syndrome in the workplace but more especially how a language therapist can affect their experiences. This article was published in 2018 which is only five years ago but it is still prepandemic which means some of the information may be different because how speech-language therapists are able to interact with their clients has changed. The authors of this article are professors at various universities and most of them teach different things, for example, occupational therapy and speechlanguage therapy. This allows them to go about holistically writing this article when looking at how Down syndrome may affect those in the workplace and the impact of speech-language therapists in this context. Not only is there a difference in that this article was written in Brazil so it is more suited to the Brazilian context, but it also had to be translated from Portuguese to English. This research programme aimed to identify how speechlanguage therapy can affect a person with Down syndrome’s ability to communicate in the workplace as well as if that would make them more viable for jobs in general. Summary of the study results This study found that speech-language therapy can help people with Down syndrome (DS) in overcoming their communication obstacles. Professional rehabilitation, which offers programmes for further education or professional requalification, is usually provided to help people find employment. Speech-language therapy can help people with developmental disabilities (DS) at different stages of life. The results showed that the trainers' language skills were adequate for placing young people with DS in the workforce, but the other participants claimed that they did not think these skills were adequate. It is important to give these people opportunities for stimulation and training to get them ready for workplace involvement and help them obtain employment. While parents, industry employees, and instructors concurred that people with DS had "good" communication skills, they disagreed as to whether or not they were appropriate for the job. However, the trainees experienced more pleasant social interactions and improved communication after being placed in a professional setting. These changes facilitated their empowerment and the role of speech-language therapists in 5 of 18 these individuals' career rehabilitation. When these people are employed, communication performance improves. Application to the South African Context Although this article was written in Brazil, its conclusion can be adapted to any country as it focused on the role of the speech-language therapist in the employment of individuals with Down syndrome. The results were mixed but in general, it was seen that speech-language therapy can have an overall positive impact on the communication skills of people with Down syndrome. Within the South African context, I think it would be gainful for speech-language therapy to be made more widely available to individuals with Down syndrome. If a company employs people with Down syndrome it may be of benefit to them to have a speech-language therapist in their team, who may be a part of the HR department. The SLT can work with individuals who need therapy as well as educate the employees that work with them. This may be expensive for a business, but it will be favourable and could minutely increase employment rates in the country. =========================================================================== ARTICLE THREE Title of article Name of journal; volume, number, year; pages, age of article Authors and their profession and affiliation Country research done in; description in relation to S.A. Relationship between family quality of life and day occupations of young people with Down syndrome Social psychiatry and psychiatric epidemiology; Vol, 49; 2014; pp 1455-1465 Foley, K.-R.; Girdler, S.- Professors School of Exercise and Health Sciences, Downs, J.Researcher School of Physiotherapy and Exercise Science, Curtin University Lennox, N.-Professor Australia: Australia Research is a larger country programme with a smaller population that is governed by parliamentary democracy under the constitutional monarchy. Compared to South Africa, Australia has better political 6 of 18 Type of Study School of Medicine, Queensland Centre for Intellectual and Developmental Disability, University of Queensland Einfeld, S.- Professor Faculty of Health Sciences, University of Sydney stability and access to healthcare. Critical evaluation of each of the above aspects of biographical information The focus of this This article is 9 Although the case There is a lot to article is on the years old and study took place in consider here since employment that written and Australia, the Australia has a helps young published before professors who smaller population people with the pandemic contributed to this and in general a Down syndrome however, I don't article are from better employment more specifically think the different countries, rate than South in “regular” jobs outcome will which allowed them Africa. Although and the effect change because to bring their unique the results could that this will have it is still a widely perspectives to the be considered a on their families. agreed statement information they global truth, how that the more were given. The they plan to use income and article is a product of this information is working all these professors’ not something members of a agreed opinion on South Africa may family, the better the data they be able to replicate their quality of received. as quickly. life is together. This article specifically stated that it had built on the research of a previous study and looks forward to future research as the answers they got from this study have raised more questions for them. this research programme aims to identify what can increase a family's quality of life concerning employment and income. Summary of the study results This study shows the relationship between open employment engagement for young people with intellectual impairments and family quality of life, which is vital information for support providers for children and adults with Down syndrome and their families. Families of young people who participated in open employment reported improved family quality of life than those who participated in sheltered employment, regardless of personal factors; however, the availability of family supports diminished this influence. Because those adolescents scored better in terms of self-care, community involvement, and communication skills, their families were more likely to report a higher family quality of life. This article 7 of 18 underlines the connection between young people with intellectual impairments working in the community and family quality of life. It also provides vital information for those who help families and carers of people with Down syndrome, both children and adults. Future research must look at the longterm, data-based factors that affect the family’s quality of life. Measuring family quality of life is important because it is a major downstream goal for the services needed to place and support the young person in a job that best utilises his or her skills and to assess any family assistance chosen. Application to the South African Context In South Africa, young people are forced into the workplace (wherever jobs are available) due to the general financial instability of the country so there are many young people in the workplace. South Africa has a high unemployment rate as there aren't enough jobs available for the number of people seeking a job. this means the job market is very competitive and I feel like the negative stigma attached to individuals with Down syndrome puts them at a disadvantage when looking for employment. With regard to whether open or sheltered employment would be better, I do not think sheltered employment is common enough in South Africa to actually consider that as a proper option for everyone to consider. =========================================================================== ARTICLE FOUR Title of article Adaptive behaviour, executive function, and employment in adults with Down syndrome Name of journal in italics; volume, number, year; pages, age of article Journal Intellect Disability Research volume 62 PART 1 pp 41– 52, January 2018, Authors and their profession and affiliation Country research is done in; description in relation to S.A. B. Tomaszewski et al; D. Fidler; D. Talapatra & K. Riley was The USA is largely Research Program situated in North America. It is made up of 50 states, one federal district, five large unincorporated 8 of 18 Type of Study territories, nine Minor Outlying Islands, and 326 Indian reservations. This country has 1 in 772 babies born with Down syndrome and it is a common chromosomal disorder. Critical evaluation of each of the above aspects of biographical information The title tells us This article was B. Tomaszewski was The USA has a high more about the accepted on 24 a student at Frank rate of children difficulties with October 2017 Porter Graham Child born with Down aspects of the and was then Development Syndrome which is executive. published in Institute, University a common function (EF) and January 2018. of North Carolina at intellectual adaptive Chapel Hill, Chapel disability, this is behaviour across Hill, NC, USA, and he related to the the was doing Human South African lifespan. that Development and Context because in people with Family Studies at SA down syndrome Down Syndrome Colorado State is very common experience University, Fort and the percentage Collins, CO, USA of children born with it is high D. Fidler was doing Human Development and Family Studies, at Colorado State University, Fort Collins, CO, USA D. Talapatra & K. Riley was a student at Morgridge College of Education, University of Denver, Denver, CO, USA Summary of the study results 9 of 18 This study looked at the adaptive behaviour and Executive Function profiles of people with Down syndrome in their early adulthood, as well as the relationship between these areas of functioning and employment status, Adaptive Behaviour can be described as the collection of conceptual, social, and practical skills that all people learn to function in their daily lives and since the Down Syndrome affect the development of the brain of a person this lead to lack of development of adaptive behaviour skills and this will affect the rate of employment since social skill is needed in workplace one has to make a conversation with their colleague and being practical is part of many jobs. Communication, numeracy, academic skills, and self-direction are examples of conceptual skills, whereas social skills include social responsibility, self-esteem, interpersonal skills, and social problem resolution if a person suffers from the development of conceptual skills this results in many difficulties and barriers that restrict them from being employed. This results in people with this intellectual disability having low chances of being employed Application to the South African Context As much as this was written and published in the USA it has a lot of common things that people of South Africa relate to it with, This article focussed on the young people who were undergoing the school-work transition which is a hard and most difficult part of their life because now they have to have colleague around them and conversation it is a must to take place whereas to them the conversation is nor what they are used to short sentence conversation and now they are going to have to elaborate and it fears them and their parents too. This is what young people are facing in South Africa difficulties that come with employment and limitations they have for themselves when it comes to work categorises. =========================================================================== 10 of 18 ARTICLE FIVE Title of article Name of journal; volume, number, year; pages, age of article Authors and their profession and affiliation Challenges to employment – Perception and barriers as seen by people with Down syndrome and their parents. International Journal of Practical Approaches to Disability, Volume 25, 2000, No 1 Roy BrownUniversity of Victoria; University of Calgary; Flinders University Country research done in; description in relation to S.A. South Australia, SA is a state in the southern central part of Australia. This state has a service for people John Grantleywith Down Hasn’t claimed this Syndrome and research yet. their families who live in South Judy ThornleyAustralia, and it is Hasn’t claimed this called Information research yet. Service SA. This country has shown a small percentage of employment for people with Down syndrome. Critical evaluation of each of the above aspects of biographical information The title of this This article was There are 3 authors Australia has a article is telling published in 2000 found in this article smaller population us more about January but was but there’s only one and has a better the challenges uploaded by Roy who has claimed this employment rate and issues that Brown on 02 research so far and for people with young people August 2022. And he was a professor Down syndrome with Down the recent at the University of which is 34% and syndrome suffer articles in Victoria; University then in South to get jobs and Exceptionality of Calgary; Flinders Africa, 85% of how it affects Education University disabled people their parents. Canada (1999) are unemployed. seconded the Both these need for countries are application found experiencing low in this article employment rates for young people with Down Syndrome. Summary of the study results 11 of 18 Type of Study Research and practice programme The purpose of this research programme was to check and compare the perspective and opinions of young people with Down syndrome with that of their parents when it comes to the employment of people with Down Syndrome. This study shows how this school–to–work transition of young people with Down Syndrome has on them and their parents. It was found that the parents tend to be more worried about their children and how they will cope at the workplace ending up limiting the job categories for their child in the name of protecting them. , Each parent was given a questionnaire whereby they has to choose the job categories that they think their child could do and on the other side the young people were also given the same list of job categories to choose which they think they will fit and can do and the results that were found was that the young people with Down syndrome choose more categories than what their parent chose, this show restrictive the parents are when it comes to choosing job categories for their children. Two parallel questionnaires were conducted (Brown and Bayer (1992), Halpern (1994) and Renwick, Brown and Nagler (1994) Application to the South African Context This article was written and published in South Australia, but its content can be related to any other country especially developing countries like South Africa since it focuses on the challenges that young people with Down syndrome experience. The results were mixed but in general, it was seen that the percentage of young people with Down syndrome getting hired is very, very low compared to the normal people should I say do not have Down Syndrome. South Australia has a lot of common things that people of South Africa relate to it, This article focussed on the young people who were undergoing the schoolwork transition which is a hard and most difficult part of their life because now they have to have colleagues around them and conversation it is a must to take place whereas to them the conversation is nor what they are used to short sentence conversation and now they are going to have to elaborate and it fears them and their parents too. This is what young people are facing in South Africa difficulties that come with employment and limitations they have for themselves when it comes to work categorises. Within the South African context, I think it would be better if these people with Down syndrome can be 12 of 18 given more opportunities for example start by giving them volunteer work which will train them and give them the chance to be exposed to work because other than having this intellectual disability they are normal just like everyone it’s just that they have short sentences conversation, their colleagues can try to adapt to their situation by for example always ask questions to confirm that they have understood the task or instruction. When the company is hiring, they should try to have a Speech therapist or someone else who has Down Syndrome as part of the team. Creating awareness about Down Syndrome and learning programs about people with Down syndrome will help colleagues and supervisors to learn more about this disability and how to work with people who have it, which will make things much easier for everyone. =========================================================================== ARTICLE SIX Title of article Name of journal; volume, number, year; pages, age of article Authors and their profession and affiliation Country research done in; description in relation to S.A. Type of Study Critical evaluation of each of the above aspects of biographical information Does Journal Piro-Gambetti, BUnited States of Research Employment intellectual Waisman Centre, America; The USA programme Complexity Disabilities; University of is a larger country Promote Healthy Vol.0(0);2023; Wisconsin, with a greater Cognitive Aging pp1-15 Department of population that is in Human under a republican Down Syndrome? Development & Parliamentary Family Studies, presidency. Benjamin Handen Although they have Department of more political Psychiatry, unrest, it is said University of that they have Pittsburgh; better access to Glukhovskaya, Mhealthcare and Department of lower Psychiatry, unemployment University of rates. 13 of 18 Pittsburgh; Schworer, E. K.Waisman Center, University of Wisconsin, Department of Human, Development & Family Studies, University of Wisconsin; Hartley, S. L. - Waisman Center, University of Wisconsin, Department of Human, Development & Family Studies, University of Wisconsin Summary of the study results The current study looked at the occupational complexity of persons with Down syndrome to see if higher work complexity is related to improved cognitive ageing outcomes. and the findings were that lower employment complexity involving People and Things was associated with greater dementia symptoms, according to partial correlations. Lower job complexity involving Things was also linked to memory deterioration. These findings have implications for career training and placement programs for adults with Down syndrome. Employment complexity is a changeable lifestyle characteristic that may be used to slow cognitive deterioration in persons with Down syndrome. To the best of our knowledge, this was the first study to look at employment complexity in individuals with DS and its relationship to AD-related cognitive decline. The findings show that greater work complexity may operate as a protective factor, delaying AD-related cognitive decline and dementia symptoms. These findings suggest that, despite having a genetic risk for AD, there may be strategies to adjust lifestyles in persons with DS to maintain healthy cognitive ageing for a longer period. These findings have ramifications for 14 of 18 social policy and job training and placement programs in vocational rehabilitation. Efforts to prepare, train, and put persons with DS in paid or volunteer positions Application to the South African Context In South Africa, people who do not have this type of intellectual disability tend to think that the employment complexity of people with Down syndrome is low in that way they are seen as they are not critical thinkers, and are anti-social, and this restricts their access to many job categories. And I feel like this thing of Normal people's judgements toward people with Down Syndrome happens to get to them and they even end up thinking that all these myths are true, and they start to believe that their disability restricts them. Employment complexity in South Africa has a great impact on the outcomes of people with Down Syndrome. 15 of 18 Conclusion In conclusion, people with Down syndrome are capable of working and can make valuable contributions to the workforce. However, they often face challenges when seeking employment due to a lack of understanding and support from employers. By hiring individuals with Down syndrome, employers can benefit from their positive attitudes, strong work ethic, and social skills. Additionally, creating a more diverse and inclusive workforce can have a positive impact on the workplace as a whole. Employment of youth with Down syndrome is also beneficial as it can help them build necessary social skills and increase their family’s quality of life. It's time for employers to recognize the potential of individuals with Down syndrome and provide them with the opportunities they deserve. This can only be achieved when all parties involved but more especially employers, are properly educated on Down syndrome as well as how they can accommodate these individuals in the workplace. *People with Down syndrome face challenges and barriers when it comes to having access to job opportunities and they are being restricted to certain job categories. Young people with Down Syndrome should be given more chances to show their skills in workplaces and it is about time that they are taken more seriously and they should be allowed to show off their skills. 16 of 18 References: Articles: Tod, C. J. (2013). Employment in Down syndrome: the experiences of individuals with Down syndrome, their employers, and families in KwaZulu-Natal (Doctoral dissertation). Barbosa, T. M. M. F., Lima, I. L. B., Alves, G. Â. D. S., & Delgado, I. C. (2018, March). Contributions of speech-language therapy to the integration of individuals with Down syndrome in the workplace. In CoDAS (Vol. 30). Sociedade Brasileira de Fonoaudiologia. Foley, K. R., Girdler, S., Downs, J., Jacoby, P., Bourke, J., Lennox, N., ... & Leonard, H. (2014). Relationship between family quality of life and day occupations of young people with Down syndrome. Social psychiatry and psychiatric epidemiology, 49, 1455-1465. *************************************************************************** B. Tomaszewski; D. Fidler; D. Talapatra& K. Riley (2018). Adaptive behaviour, executive function, and Employment in adult with down syndrome John Grantley, Roy Brown, and Judy Thornley (2000). Challenges to employment – Perception and barriers as seen by people with Down syndrome and their parents. Brianna Piro-Gambetti; Emily K. Schworer; Sigan L. Hartley; Benjamin Handen and Masha Glukhovskaya (2023). Does Employment Complexity Promote Healthy Cognitive Aging in Down Syndrome? 17 of 18 * Figure 1-Kezia Pillay: Article 3 * * Figure 2- Kezia Pillay: Articles 2 & 1 18 of 18 DCDA ASSIGNMENT MARKING RUBRIC Registration numbers: 1. 221069547 2. 221062887 Area: Employment and Down Syndrome. Mark:1. __________% 2. ___________% Cover Assignment module information, section allocated to you. Date Registration number/s Introduction Linking theory to this sub-area 1. /10 2. /10 Table Biographical information for 3 articles Significance of the articles’ Title of article 1. /30 2. /30 Name of the journal in italics; volume, number, year; pages (pp. xx-yy), age of the article Authors, their profession and affiliation. Country research is done in, the description in relation to SA. Type of Study: Significance of the article: Table Summary of the study results in relation to the DCD area and its application to the South African context for each article Summary of the study results in relation to the DCD area: Conclusion Drawing together all the articles and concluding the assignment 1. /30 2. /30 Application to the South African context 1. /10 2. /10 Printouts showing how you searched for the articles search engine: Reference list APA format key words: 1. /5 2. /5 lists of hits: /10 Complete General /5