Early Intervention Strategies for individuals with Autism Sue E. McMillan, MClSc, SLP(C) Introductions Speech-Language Pathologist=Speech-Language Therapist Bachelor or Master’s degree in Human Communication Disorders “Speech-Language Pathologists screen, assess, identify and treat speech, language, voice, fluency (stuttering), swallowing and feeding problems for all age groups in addition to advocating for the prevention of these disorders.” Source: Speech-Language Audiology Canada Role of SLP in AX & TX of Autism Early identification of red flags for Autism SLP frequently the earliest to identify red flags in children who demonstrate delayed communication, play and social skills development Member of a multidisciplinary team (i.e., Developmental Paediatrician, SLP, OT, Behaviour Therapist, Early Childhood Educator, Art Therapist, etc.) to assess and/or treat children with Autism RED FLAGS FOR AUTISM UNUSUAL WAYS OF PLAYING WITH TOYS Turning toy cars upside down and spinning the wheels Lying on the floor and staring at the wheels of toy cars as they roll Spinning jars or lids of jars Lining up toys RED FLAGS FOR AUTISM SENSORY SEEKING OR SENSORY AVOIDANT BEHAVIOURS Avoids eye contact with communicative partners Frequently walking on tip toe Flicking fingers in front of eyes or at side of eyes Rocking Spinning Squeezing into tight spaces (e.g., between couch and wall) Covering ears in response to loud noises RED FLAGS FOR AUTISM UNUSUAL WAYS OF COMMUNICATING Does not respond to own name Leading a partner’s hand to an object/using a partner as a “tool” Difficulty initiating conversation with others Getting stuck on one toy or topic of conversation (e.g., only plays with or talks about Thomas the Tank Engine) Does not notice where others are looking Imitates exactly what others say RED FLAGS FOR AUTISM CHALLENGING BEHAVIOURS Has difficulty with making transitions from one activity to another Gets very upset and cannot calm self or be calmed by familiar adult Upset by small changes in routine like driving a different route or furniture location being changed in a familiar room What is your role? TRUST YOUR “GUT”! REMEMBER THAT YOU ARE THE EXPERT IN YOUR CHILD! ADVOCATE FOR SERVICES: CONTACT OR MAKE REFERRALS TO PAEDIATRICIANS, NEUROLOGISTS, SLP’S, PSYCHOLOGISTS CONTACT THE BARBADOS COUNCIL FOR THE DISABLED EDUCATE THE BARBADIAN PUBLIC ABOUT AUTISM TO INCREASE AWARENESS AND TOLERANCE What does “Autism” mean to me? DEFINING AUTISM My child has Autism. Autism is a complex disorder of brain development. It makes it difficult for my child to understand what is said to them, express their wants and needs, play with others, and tolerate certain sensations. Sometimes my child becomes upset and has difficulty calming down. It is NOT because my child is “badly behaved”. It IS because he/she does not understand how to ask for help from others. Sometimes my child does things that you think are “strange”. My child simply sees the world in different ways than you and I. My child IS affectionate with people he/she knows. My child WANTS to communicate with others and is working hard to learn how. What can YOU do to help my child? BE PATIENT. BE TOLERANT. TELL OTHERS ABOUT AUTISM. Statistics Current Canadian statistics: 1/94 individuals have a diagnosis of Autism 100,000 in my home province of Ontario, Canada If we use comparable statistics for Barbados: Approximately 2,900 individuals with Autism WHAT IS THE MORAL OF THE STATISTICAL STORY? WE NEED TO… BE PATIENT ACCEPT INDIVIDUALS WITH AUTISM IN OUR COMMUNITY LEARN HOW WE CAN HELP SUPPORT INDIVIDUALS IN OUR COMMUNITY WHO ARE AFFECTED BY AUTISM Common Myths MYTH: Individuals with Autism DO NOT WANT TO INTERACT with others TRUTH: Individuals with Autism often don’t know HOW to interact MYTH: Children with Autism have no interest in toys TRUTH: Children with Autism have difficulty exploring toys to learn what to do with them Common Myths MYTH: Individuals with Autism are not affectionate TRUTH: Individuals with Autism are just as individual as you and I. Some like physical contact, others don’t MYTH: Individuals with Autism are all like “Rainman” TRUTH: Individuals with Autism have a range of individual cognitive abilities EARLY INTERVENTION Dr. Amy Wetherby, SLP, Director, Autism Institute in the College of Medicine, Florida State University Estimated lifetime societal cost of $3.2 million dollars per child with Autism Her research has come up with a list of “red flags” that can be seen between 12-24 months of age Why Early Intervention DR. WETHERBY’S RESEARCH HAS DEMONSTRATED Intervention has the greatest impact before 3 years of age because this is the time of greatest “brain plasticity”. Believes early “symptoms” of Autism, difficulty in communication and social interaction, lead to behaviour problems which are actually secondary to these early symptoms So, treating early symptoms can reduce severity of secondary “behaviour problems”, which are actually communication. Why Early Intervention Research proves that the brain is most “plastic” before the age of 5 years EI can prevent restricted interests from becoming so deeply ingrained Help children with Autism develop social relationships that they would not otherwise develop Help child develop core skills in communication, play, behaviour and social interaction that are needed for school success INTERVENTIONS FOR AUTISM MANY DIFFERENT INTERVENTIONS PROVIDED BY DIFFERENT PROFESSIONALS WIDE VARIETY OF THEORETICAL BACKGROUNDS DIRECT THERAPIES WITH CHILD PARENT TRAINING EDUCATOR TRAINING BIOMEDICAL INTERVENTIONS OCCUPATIONAL THERAPY GROSS AND FINE MOTOR SKILLS SENSORY INTEGRATION PLAY COGNITIVE SKILLS ACTIVITIES OF DAILY LIVING FEEDING BEHAVIOURAL THERAPIES APPLIED BEHAVIOUR ANALYSIS Based on work of Dr. O. Ivar Lovaas Focuses on principles that explain how learning takes place such as “Positive reinforcement”: When a behavior is followed by some sort of reward, the behavior is more likely to be repeated. Team supervised by Psychologist specializing in behaviour Direct intervention provided by Behaviour Therapists/Behaviour Analysts (sometimes SLP’s) BCBA (Board Certified Behaviour Analyst) BEHAVIOURAL THERAPIES VERBAL BEHAVIOUR Uses principles of ABA and theories of B.F. Skinner Usually delivered by Behaviour Therapists/Analysts Focuses on WHY we use words Motivate individual with Autism to learn language by connecting language with its purpose: imitating, requesting, commenting, communicating ideas Goal to help individual to learn that words can obtain desired objects, attention, etc. BEHAVIOURAL THERAPIES PIVOTAL RESPONSE TREATMENT Developed by Dr.’s Robert and Lynn Koegel. Derived from ABA. Delivered by SLP’s, Psychologists, Special Education Teachers Play based and child initiated Significant parent training and involvement in delivery of intervention Goals to develop communication, language and positive social behaviours as well as relief from disruptive self-stimulatory behaviours Targets “pivotal” areas of child development: motivation, response to multiple cues, self-management and the initiation of social interactions. TEACCH BASED ON WORK OF DR. ERIC SCHOPLER A FRAMEWORK FOR TEACHING THAT INCLUDES THE INDIVIDUAL’S STRENGTHS IN VISUAL INFORMATION PROCESSING AND DIFFICULTY IN SOCIAL, COMMUNICATION, ATTENTION AND EXECUTIVE FUNCTION INCLUDES: EXTERNAL ORGANIZATIONAL SUPPORTS TO SUPPORT CHALLENGES WITH ATTENTION AND EXECUTIVE FUNCTION VISUAL AND/OR WRITTEN INFORMATION TO SUPPLEMENT VERBAL COMMUNICATION STRUCTURED SUPPORT FOR SOCIAL COMMUNICATION RELATIONSHIP DEVELOPMENT INTERVENTION DEVELOPED BY PSYCHOLOGIST, DR. STEVEN GUTSTEIN BEHAVIOURAL TREATMENT PARENTS TRAINED IN RDI AND PROVIDE INTERVENTION UNDER GUIDANCE OF AN RDI CERTIFIED PROFESSIONAL GOAL TO TEACH INDIVIDUALS WITH AUTISM TO BE “FLEXIBLE THINKERS” KEY SKILLS TAUGHT INCLUDE: APPRECIATION FOR DIFFERENT PERSPECTIVES COPING WITH CHANGE INTEGRATION OF INFORMATION FROM MULTIPLE SOURCES (E.G. SIGHTS AND SOUNDS) FORM PERSONAL RELATIONSHIPS THE GREENSPAN FLOORTIME APPROACH™ CREATED BY DR. STANLEY GREENSPAN FOLLOW CHILD’S LEAD AND USE THEIR INTERESTS BUILD RELATIONSHIP WITH THE CHILD HELP CHILD PRACTICE BASIC THINKING SKILLS: ENGAGEMENT, INTERACTION, SYMBOLIC THINKING AND LOGICAL THINKING DELIVERED BY VARIETY OF PROFESSIONALS TRAINING PARENTS PICTURE EXCHANGE COMMUNICATION SYSTEM PECS: A PICTURE-BASED COMMUNICATION SYSTEM TO PROVIDE NON-VERBAL CHILDREN WITH A MEANS TO COMMUNICATE AND SUPPORT CHILDREN WHO HAVE LIMITED VERBAL COMMUNICATION TRAINING CAREGIVERS TO USE IT WITH CHILDREN WITH AUTISM ANYONE CAN ACCESS TRAINING FREQUENTLY INTRODUCED BY SLP’S AND BEHAVIOUR THERAPISTS MORE THAN WORDS® HANEN® PROGRAM FOR PARENTS OF CHILDREN WITH AUTISM SPECTRUM DISORDERS CREATED BY SLP’s FERN SUSSMAN AND SUSAN HONEYMAN DELIVERED BY HANEN® CERTIFIED SLP TEACHES PARENTS AND CAREGIVERS TO USE DAILY ACTIVITES TO HELP CHILDREN: IMPROVE SOCIAL SKILLS ENGAGE IN BACK-AND-FORTH INTERACTIONS USING VERBAL AND NONVERBAL COMMUNICATION IMPROVE UNDERSTANDING OF LANGUAGE MORE THAN WORDS® TEACHES PARENTS AND CAREGIVERS: How your child learns best and what motivates him to communicate Why your child behaves in certain ways, and what you can do to increase or reduce those behaviours How to use knowledge about your child to set realistic goals How to make interactions with your child longer and more meaningful Tips for using pictures and print to help your child understand Tips on how to talk so that your child understands you Strategies for developing play skills and making friends MORE THAN WORDS® PARTICIPANT COMMENTS “Every aspect of the training was extremely helpful.“ “I would recommend MTW to any parent who has a child with Autism.” “He is able to communicate a lot more because he is speaking and interacting.” “I am now more confident and equipped to work with the children in my class.” “Allowing time for R. to respond or initiate has helped enormously.” “I found that with M. he is speaking a lot more and seems a lot more settled when it comes to working.” So, how do I “do” early intervention USE EVERYDAY ACTIVITIES IN EVERYDAY ENVIRONMENTS TO CREATE LEARNING OPPORTUNITIES MEALTIME GETTING READY FOR SCHOOL RIDING THE BUS NAPTIME BATHTIME BEDTIME So, how do I “do” early intervention FAMILY CHORES GROCERY STORE PLAYGROUND STORYTIME HOMEWORK TIME So, how do I “do” early intervention MAKE LANGUAGE “COME ALIVE” TALK ABOUT WHAT YOU DO AS YOU DO IT LABEL OBJECTS, ACTIONS, USE DESCRIPTORS So, how do I “do” early intervention COMMUNICATIVE MEANS: THE “HOW’S” OF COMMUNICATION Watch the child and observe how they communicate Looks at objects Looks at a communicative partner Leads a communicative partner by the hand Gives objects to a partner Combines any of these So, how do I “do” early intervention COMMUNICATIVE FUNCTIONS: THE “WHY’S” OF COMMUNICATION Watch the child and observe why they communicate: To request To protest To ask for help To establish joint attention so they can share information with a partner To comment To initiate play So, how do I “do” early intervention 3 L’s LOOK AT YOUR CHILD LISTEN TO YOUR CHILD LEARN TO LOVE WHAT YOUR CHILD LOVES So, how do I “do” early intervention “3 L’S” ALLOWS YOU TO MAKE A CONNECTION WITH THE CHILD CONNECTION IS KEY TO BUILDING A BRIDGE TO COMMUNICATION MEET THE CHILD WHERE THEY ARE VIDEO CLIP OF LEARNING TO LOVE WHAT YOUR CHILD LOVES So, how do I “do” early intervention CREATE OPPORTUNITIES FOR THE CHILD TO COMMUNICATE BE “THE KEEPER” OF THE GOODIES: INTRUDE A BIT WAIT FOR THE CHILD TO INITIATE BE FACE-TO-FACE USE THE 3 L’s So, how do I “do” early intervention HOW CAN I HELP MY CHILD UNDERSTAND Use JUST ENOUGH words: children with Autism frequently have difficulty processing oral language so we need to keep it simple for them Be ANIMATED when you speak: children with Autism frequently have difficulty sorting out what information they need to pay attention to so we need to make the important information STAND OUT for them Go SLOW: remember that your child is like a foreign language learner and will benefit from extra time to process information Use VISUAL INFORMATION such as GESTURES, OBJECTS and PICTURES Children with Autism learn best through their VISUAL CHANNEL So, how do I “do” early intervention VISUAL COMMUNICATION AIDS GESTURES 3D OBJECTS PICTURES OF REAL OBJECTS PRODUCT WRAPPERS/LOGOS PCS SYMBOLS/BOARDMAKER SYMBOLS So, how do I “do” early intervention VISUAL COMMUNICATION AIDS FIRST-THEN BOARD CHOICE BOARD VISUAL SCHEDULE SOCIAL STORY PECS RESOURCES The Hanen Centre www.hanen.org Autism Speaks www.autismspeaks.org Autism Navigator www.autismnavigator.com Geneva Centre for Autism www.autism.net Speech-Language and Audiology Canada www.sac-oac.ca Friend2Friend Learning Society www.friend2friendsociety.org Barbados Council for the Disabled 427-8136 Sue McMillan, SLP encouragingexpressionslp@gmail.com