Housing Investigations Involving Marginalized Populations Report March 22, 2018 Authors Suzanne Lemieux, PhD, Public Health Sudbury & Districts Phyllis Montgomery, RN, MScN, PhD, School of Nursing, Laurentian University Sherry Price, MSW, Public Health Sudbury & Districts Acknowledgements Many people provided invaluable contributions to this study: Public Health Sudbury & Districts staff, in particular, Burgess Hawkins, Jonathon Groulx, Ryland Yade, and Marissa Perrella as well as participating Public Health Sudbury & Districts clients, community partners, and community members as well as Laurentian University nursing students, Emily Crowe, Paul Lauzon and Mia Pandolf. Funding Louise Picard Public Health Research Grant, 2015-2017 Contact for More Information Suzanne Lemieux Manager, Knowledge and Strategic Services Public Health Sudbury & Districts 1300 Paris Street Sudbury, ON P3E 3A3 Phone: 705.522.9200, ext. 400 lemieuxs@phsd.ca Citation Lemieux, S., P. Montgomery, and S. Price (2018). Housing Investigations Involving Marginalized Populations: Report. Sudbury, ON: Public Health Sudbury & Districts. Copyright This resource may be reproduced, for educational purposes, on the condition that full credit is given to the Public Health Sudbury & Districts and Phyllis Montgomery. This resource may not be reproduced or used for revenue generation purposes. © Public Health Sudbury & Districts, 2018 Table of Contents Executive Summary 1 Background 2 Purpose of study 3 Literature Review 4 Theoretical Review 10 Methods 10 Design 10 Setting 11 Sampling 11 Data collection and analysis 12 Results Documents Vignettes based on interviews and field notes 14 14 21 The Visit 21 Hospital 22 Family 23 More 23 Networks 24 Forums 28 ■ iii Conclusion 29 References 30 Appendix A 34 Appendix B 36 Appendix C 38 iv Executive Summary Public health inspectors [inspectors] at Public Health Sudbury & Districts are responding to inspections involving vulnerable individuals living in potentially adverse housing situations and also have a policy and procedure in place for responding to such calls. However, some cases are time and resource intensive; some cases often require services that are outside inspectors’ scope of practice; some inspectors want to improve living conditions of vulnerable persons but are challenged when the client refuses voluntary resources in the community and responding to vulnerable clients’ needs is a challenge for other service providers as well. The purpose of this case study is to investigate Public Health Sudbury & Districts Environmental Health Division’s response to housing health hazards involving individuals who are vulnerable. In consultation with the Environmental Health Division and the greater community, the goal is to propose recommendations for improving such responses. We sought to understand what a response to adverse housing involving vulnerable individuals entails. Specifically, its associated challenges, facilitators and ideas for improving such responses from the perspective of all involved in these situations (Environmental Health Division staff, clients, citizens, and other service providers). A case study approach was used to investigate five situations of housing health hazards involving vulnerable people. Since 2015, the researchers have been conducting a case study to provide knowledge about inspector’s involvement in referrals about vulnerable individuals living in hazardous housing situations. This involved the collection of various types of data including document analysis, field observations, individual and group interviews with clients, citizens, Environmental Health Division staff and other service providers, and two knowledge translation activity involving Environmental Health Division staff and their community partners. Findings highlighted resources that facilitated inspectors’ involvement in addressing housing environmental hazards. These included public health inspectors and service providers’ expertise, collaboration between service providers, certain client attributes, solution-focused public health inspectors and service providers and housing resources for clients. Findings also underscored circumstances challenging inspectors’ involvement in addressing housing environmental hazards. These include certain client attributes, poor housing and high cost of housing, some landlord ways of doing, limits within mandates and systematic issues such as stigma. Proposed solutions were also identified. Overall, the top ranked proposed solutions are: 1 Improve interagency collaboration and cooperation. Create and continually update a list of agencies, a contact person, the populations they serve, and what service they provide. Be able to provide seamless connections to mental health supports for clients. Create a specialized group to respond to housing health hazard calls within vulnerable populations. Designate a community navigator who will triage and delegate cases to appropriate agencies. Advocate for a streamlined procedure for placement of individuals living in hazardous situations into long term care where appropriate. Background There’s a growing body of national and provincial evidence about the relationship between home environment and health, a public health concern documented in Europe in the 19th century. According to 2006 census data, one third of Canadians live in substandard living conditions or are in 'housing need' as defined by the Canadian Mortgage and Housing Corporation. The highest level of housing need is in the territories and in the provinces of British Columbia, Ontario, Newfoundland and Labrador (Canadian Mortgage and Housing Corporation, 2009). Rideout and Oickle (2016) argue that health inequalities contribute to "differences in environmental exposures, vulnerabilities to and outcomes from those exposures (p. 216)”; a position well supported by a body of evidence demonstrating the cumulative effects of environmental hazards on poor health in several at-risk populations (Canadian Population Health Initiative, 2004; Clarke, 2002; Environmental Health Services BC Centre for Disease Control, n.d.; Toronto Central Local Health Integration Network, 2015; Wellesley Institute, 2012; White et al., 2014). The strongest private dwelling evidence for causal relationships exists for a variety of biological, chemical and physical exposures (Moloughney, 2004). In addition, the address of private dwellings and neighbourhood-level features influence health outcomes of residents. Researchers report that Ontarians living in deprived neighbourhoods have higher mortality and suicide rates (Mikkonen and Raphael, 2010; O'Campo et al, 2015). The governing legislation of the public health inspector, the Health Protection and Promotion Act (2016), does not specifically outline a role for the inspector with respect to responding to a potential health hazard in a private residence. Although the regulations are often subject to interpretation, there is growing consensus among environmental public health practices that housing symbolizes a small fraction of an equity problem. During a home environment visit, inspectors observe: “an open and honest view of that person’s life.” As Patricia Vernon, a PHI with Alberta Health Services put it: Housing is the glue that holds a person’s world together.” When that house is falling apart, whether due to a landlord’s neglect, a mental health issue … hoarding, or a simple lack of resources, most PHIs cannot walk away. (Health Equity and Environmental Public Health, 2017, p. 14) 2 The Environmental Health Division at Public Health Sudbury & Districts is committed to effective practices to optimize a healthy living environmental for all. Public Health becomes involved when the situation reaches the point where a citizen or service provider is concerned enough to make a referral. Often, the health of the resident(s) and possibility the immediate neighbours is perceived as threatened as a result of a combination of health and social factors affecting the living conditions. Inspectors at Public Health Sudbury & Districts have policies and procedures in place and are responding to calls for inspections involving individuals who are vulnerable and living in potentially adverse housing situations. Such referrals for inspector involvement are time and resource intensive. The multiple challenges that these residences face, make it difficult to remedy the situations. Inspectors often engage other community partners, such as by-law enforcement, fire, building, or health authorities to resolve immediate hazards. Further, inspectors are concerned additional supports may be necessary to support individuals' well-being in their home environment once the file is closed. Findings from a 2012 study conducted by Public Health Sudbury & Districts, outlined inspectors’ uncertainty surrounding their role with vulnerable populations, fearing lack of legislation would support whatever intervention they recommended (Lefebvre et al., 2012). Inspectors outlined the importance of partnerships with referral agencies to resolve complaints and collaborations between community agencies to assist vulnerable clients. However, there were fewer potential partnerships when it came to housing hazards in unorganized townships and other rural areas because of fewer services available. Frustrated with all this, they reported going “above and beyond” their job descriptions to help clients connect with agencies. Nine recommendations were presented including developing public health guidance documents to clarify the role of public health inspectors in relation to housing issues. Purpose of study The study purpose is to examine Public Health Sudbury & Districts Environmental Health Division’s response to housing health hazards of adults made vulnerable by an interplay of health and social determinants. Above all, the purpose is to identify the challenges and facilitators associated with their involvement as well as recommendations for improvement. The goal is to provide the Environmental Health Division and the greater community with a priority list of recommendations for consideration to further the community’s response to adverse housing situations involving vulnerable people. 3 Literature Review The following is a systematic review of evidence about public health inspectors or environmental public health practitioners’ involvement in protecting and promoting the health of residents from housing hazards. As earlier as 1999, Stewart provides a commentary about the growing role of environmental health officers in ‘healthful housing’ for disadvantaged populations. For healthy home environments, this author emphasizes the need for proactive policies, strategies, and training in response to multiple biological, chemical, physical, economic and social hazards which limit individual and community health. The academic databases MEDLINE and Cumulative Index to Nursing and Allied Health Literature (CINAHL) were searched for current evidence concerning the involvement of inspectors in response to housing hazards. The search parameters were: peer-reviewed reports; available electronically; full-text reports; published in English from 2007 to 2017. In consultation with a health librarian, the list of search terms and combinations shown in Appendix A were used to locate published reports in MEDLINE. Using the identified search parameters, and removing duplications, 307 reports were identified. Titles and abstracts were read for topical relevancy. A total of 31 reports were deemed as potentially relevant for inclusion in the literature review based on the initial reading of each abstract and in some cases, the full manuscript. The primary reasons for exclusion of 276 reports were a treatment-specific intervention in underdeveloped countries or a focus on the association between housing and health. The full-text of each of the initially accepted 31 reports were retrieved, printed, and read to ascertain the authors’ stated purposes specific to inspectors' involvement with housing hazards. An additional 13 reports were excluded from the review where the practical implications of inspectors were not identified. Of the remaining 18 reports, information was extracted and tabulated from each report (Table 1). This table is a summary of key features of the selected studies. 4 Table 1 Selected Inspector literature Lead author (year), Location Dhesi (2016) United Kingdom Purpose Describe inspectors role given the relationship between environmental health and health inequalities Data collection Case study Holtzen (2016) United States Describe the Individual interviews perceptions of tenants and property managers in regards to housing quality issues that affect tenants' health. Rideout, Kosatsky et al. (2016) Canada Illustrate Canadian and American inspectors’ efforts to promote healthy built environments. Not applicable Key findings These authors found that the role of inspectors is often unrecognized secondary to: • narrowing of public health agenda; • loss of a holistic health orientation during training; • a general misconception that are statutory 'doers' rather than critical thinkers tailored to specific contexts; and • limited budgets in this division of public health. They recommend the need to further assess their role given contemporary public health issues and measure their contribution to public health outcomes. Health Impact Assessments involve structured, policy informed processes to determine housing quality and safety. The majority of property managers followed a preventive maintenance schedule to minimize the risk of an accommodation being deemed by inspects as ‘unsatisfactory.’ In contrast, tenants valued input about housing quality issues even though coordinating a time for the inspection was challenging. Inspectors are mandated to protect people from infectious or toxic agents in food, water and other environmental sources. Some environmental agencies have adopted built environment protocols in regards to inspections and or permitting (oversight of land use planning, health hazards legislation, and collaboration / advocacy). These practices shift from safeguarding health by controlling immediate hazards / infectious agents to protecting vulnerable persons in at-risk environments. 5 Rideout & Oickle (2016) Canada Cushing (2015) United States Knechtges (2015) United States Assess how health equity and the social determinants of health (SDH) intersect with the scope of inspectors’ practices Compare the distribution of environmental hazards and vulnerable populations Describe educational preparation of environmental health professionals requires 'knowing how' and 'knowing why' in view of emerging health problems Group interviews Inspectors identified socioeconomic status, culture, education and geographic barriers to compliance with environmental health regulatory practices. To address such challenges, inspectors rely on unique combinations of communication, relationship, progressive enforcement and community collaborative strategies. Environmental Justice Screening Tool (CalEnviroScreen 1.1) yields a cumulative score based on 11 indicators of pollution burden and 6 indicators of population vulnerability Not applicable The purpose of the tool is to measure the impact of environmental exposures and population vulnerabilities; useful information for addressing health disabilities in communities disproportionately influenced by multiple environmental health hazards. Results showed higher cumulative scores in non-Caucasian compare to Caucasian communities. In communities with higher levels of poverty, the pollution scores were significant higher as a result of pesticide use and toxic release from cleanup sites, hazardous waste and diesel. Several academic environmental health educators identify the need to promote ‘environmental public health’ knowledge in the credentialing of inspectors. As compared to the US, there is an agency referred to the Institute of inspectors in Canada. It is responsible for professional certification, program accreditation, and standardization of competencies and policies. Evolving academic and increasingly complex public health issues demand novel innovation in the educational preparation of the future workforce. 6 Rideout, Oickle, Scarpino et al. (2015) Canada Explore how inspectors can respond to health inequities and take action on the social determinants of health (SDH) Pilkington (2013) United Kingdom Describe a project of Not applicable involving a public health officer in an architecture educational program Describe the Not applicable contemporary role of housing environmental health practitioners since the introduction of the 2004 Housing Act Stewart & Bourn (2013) United Kingdom Lefebvre (2012) Canada Explore inspectors' experiences in response to requests for investigating private housing hazards Summary of inspectors response to findings about SDH influencing the implementation of their role Interviews No single agency has sufficient capacity to identify all vulnerable situations or address all health hazards. Effective collaborations and inter-sector partnerships are essential to addressing complex situations in private individual and residential dwellings. At a system level, a referral process or centralized 'health equity lead' may assist inspectors to identify and facilitate a team response in health inequity situations. Respectful working partnerships with First Nations communities are possible when inspectors are viewed as educators rather than government employees. The officer delivered workshops, tutorials and one-to-one guidance on individual students' design projects to promote environmental health features. This 'in residence model' was positively evaluated by students. Based on a growing body of literature, there is a recognized need to mitigate housing risks for optimal health. Private-sector housing services are becoming focused on the public health aspect of housing and involved in advocating for vulnerable residents living in health, economic and fuel poverty. These authors anticipate an increasing number of public concerns about poor housing conditions and the need for inspectors’ involvement. Inspectors described being confronted with a dilemma about the imposition of sanitation standards and an individual’s right for privacy in response to referrals involving persons residing in private dwellings. 7 Campbell (2011) Canada Explore inspectors experiences in health promotion practices Interviews and field notes Jacobs (2011) United States Review of effectiveness of control biological, chemical, structural and communitybased housing interventions Review DiGuiseppi (2010) United States Review of evidence on the effectiveness of housing interventions that affect safety outcomes associated with structural housing deficiencies Review of housing interventions for health Review Jacobs (2010) United States Systematic review Inspectors viewed health promotion as an aspect of enforcement. Interventions aimed at building healthy public policy, developing personal skills, and creating healthy environments support promotion. To this end, resources such as practical training, clear expectations, accountability, resources, and relationships with various community partners facilitated implementation. Eleven interventions had sufficient evidence to support effectiveness to improve particular health outcomes. Many of these interventions were related to biological and chemical risk management. Green Community Standards project and the Health Impact Assessment show promise. Yet, there is a need for more housing disparity health research in order to focus remediation and prevention practices. Studies found that falls, fire-related, scalding-related, drowning, carbon monoxide poisoning, heat-related mortality and poor self-rated health are associated with structural problems in homes. A total of 17 interventions by professionals were examined; three of them were linked to positive health outcomes. These included installation of smoke alarms, fencing around pools and pre-set temperature on hot water heaters. Four panel members reviewed literature about interior biological agents, interior chemical agents, structural deficiencies and community-level housing risks. The two broad sources of evidence were labeled clinical interventions and environmental measurement. Overall, interventions in the areas of biological and chemical agents have sufficient evidence. Structural interventions (smoke alarms, fencing and safe temperature hot water heaters) also yield positive health outcomes. 8 Kangsen Scammell (2010) United States Review of the qualitative evidence published between 1991-2008 concerning the relationship between environmental exposures and human health Review Kuholski (2010) United States Describe a 'onetouch' approach to support vulnerable citizens facing disproportionate impacts of housing hazards Examine the effectiveness of housing interventions that affect health outcomes. Not applicable Describe housing and health trends over 30 years Re-analysis of national surveys Sandel (2010) United States Jacobs (2009) United States Review This included 91 studies involved diverse samples' exposure to risk by detailing their experiences and perceptions influenced by various social, economic, cultural and political contexts. Nearly half of the reviewed evidence described negative health outcomes (respiratory, infestations, hygiene, injuries, increased stress). A few studies appraised interventions aimed at mitigating environmental risks. A shared recommendation across this body of evidence was the need to address wider macrostructural factors for environmental health. 'One-touch' integrates public health and energy efficiency strategies to yield improved health and service outcomes in vulnerable families and older persons. This approach supports a person’s capacity to overcome barriers for change. Four of the 14 interventions with sufficient evidence were use of active soil depressurization systems, integrated pest management, smoke-free home policies and residential lead hazard control. The authors concluded that housing improvements have the potential to decrease certain illnesses and injury. The review supports the relationship between health status and housing quality. With time, research supports a direct relationship between childhood lead poisoning and exposure to lead-based paints. 9 Theoretical Review Rideout and the National Collaborating Centre for Determinants of Health (2014) emphasize that inspectors play a key role in the promotion of health equity, regardless if there are inspecting facilities, conducting an environmental health risk assessment, enforcing public health regulations, promoting actions to reduce risk exposure, or advocating for healthy build environment policies. To this end, Linder and Sexton (2011) proposed a model, entitled Cumulative Risk Assessment, to achieve health equity. It combines the distinguishing features of social determinants, health disparities and multiple stressors models. The dynamic among these three components, although complex and contextualized, offers a more comprehensive understanding of implemented practices by environmental agencies and health outcomes. The creators of the model wanted it to be used as a pragmatic guide for the assessment “health risks from human exposure to a combination of chemical and nonchemical stressors” (Linder & Sexton, p. S80) and ultimately, assist in the identification, analysis and interpretation of risk to protect the vulnerably housed. Appendix B offers a summary of the model prepared by the United States Environmental Protection Agency (2003). Methods The study methods were ethically approved by two separate ethic boards in 2015. During the same year, the researchers created a Study Advisory Committee. This forum offered opportunities for researchers and staff from the Environmental Health Division to discuss ideas, information and possibilities and to acquire an understanding of the study context: Public Health Sudbury & Districts’ Environmental Health Division. Design The study design was a qualitative case study design (Figure 1). It allows for a concentrated examination of a specific, complex, dynamic phenomenon or integrated system over time through the collection of multiple sources of information (Creswell, 2009; Sandelowski, 2011; Stake, 1995). Combining sources of data yields a contextually rich, interpretive description of ‘the case.’ The case in this study was Environmental Health Division of Public Health Sudbury & Districts. Its distinct activities, processes and people (inclusive of inspectors, clients, and community partners) characterize the department. Case study has been used in numerous other public health studies. For example, Brand and associates (2016) argued that it allows for the identification and understanding of environmental, social, and behavioural dynamics contributing to health disparities of subgroups of persons living in hazardous housing. 10 Setting This agency services a population 196,448 people residing in 18 municipalities located within a geography of approximately 46,550 square kilometers (Public Health Sudbury & Districts, 2017). Sampling The sampling method was information-orientated sampling (Flyvbjerg, 2006; Stake, 1995). This approach is defined as the involvement of key sources of context-dependent knowledge and experience in relation to the Environmental Health Division. Figure 1. Stages of the research study in consultation with Advisory Committee 11 Data collection and analysis The two sources of data were, documents and interviews with accompanying field notes for the purpose of keeping a narrative account of observations and reflections following discussions with participants. Knowledge translation forums concluded this stage of the study. Documents: Anonymized inspectors’ records specific to involvement with a vulnerably housed citizen were provided to one researcher. She reviewed and further redacted any identifying information. The 94 records were dated between 2013 and 2015. The standardized record includes details about the referral source and presented concern, and the inspectors’ response. The response is typically structured by the assessment, implementation and evaluation process. Data was extracted, coded and underwent content analysis. Field Observations: Field observations were conducted where a researcher accompanied an Inspector as he responded to housing cases involving vulnerable people. These observations were documented by the researcher. Notes were taken to describe the interactions between inspector and clients and other service providers. Notes were also taken to describe the nature of the complaint and the housing condition. This information was coded and underwent content analysis. Interviews: Audio-recorded conversational interviews with identified stakeholders within and outside of the environmental department were conducted. These interviews were in person. Some clients were interviewed on more than one occasion for the purpose of exploring emerging variables and being respectful of their communication style. The use of conversational interviews allowed the interviewer to get to know the other in relation to his/her concerns and actions (Liamputtong, 2007), an approach particularly suitable as there is no ‘one size fits all’ concerning data collection with vulnerable adults. At the beginning of an interview, the participant received a verbal explanation and a written consent form outlining the study purpose and his/her rights. Examples of questions, depending on the type of participant (service user or service provider), were: What is the nature of inspector’s service request involving persons living in potential adverse housing? What types of factors influence inspector's response? What are the outcomes of the exchange between service seekers, inspector and community partners? How do community partners describe their involvement with inspectors? How do service seekers perceive their home environment? 12 Following the conversations, the interviewer wrote descriptive field notes as a record of their observations (Swanborn, 2010; Amba & Stake, 2014) and discussions during client visits with inspectors. This accounting facilitated the researcher's understanding of the inspector's assessment of health risks and resultant plan of action. With time in the project, the nature of the notes became increasingly detailed rendering vignettes that explained the what, where, why as seen by involved persons. The interviewers were transcribed and coded. The interview transcripts and the field notes were thematically analysis guided by Guest and associates (2012). According to these authors, data is segmented, coded and categorized to reveal themes - labels or phrases representative of described or interpreted data sets. Two core questions continually posed by the researchers during data analysis were, What is this data an expression of? What is the interviewee’s experiences and perceptions in view of study purpose? (Guest, MacQueen & Namey) Forums: The results of the document and interview data were presented in two forums for the purpose of knowledge translation. The first forum involved inspectors and the participants of the second forum were various community partners of the Environmental Health Division. These forums provided an opportunity for researchers to dialogue with key stakeholders about their interpretations of the “happenings” in the field. Mutual, purposeful interactions fosters a richer understanding of 'the case' as well as contributes to the credibility and utility of the research generated knowledge (Flyvjerg, 2013). Each forum was less than two hours. One activity of the forum involved inviting participants to prioritize practices to address the vulnerably housed. The list of practices were extracted from the document and verbal data. This was strategic as it moves the case study focus from description to action. As a department, what are next steps? (Abma & Stake, 2014) At the beginning of each forum, participants received a verbal explanation and a written consent form about its purpose and their rights. They were not required to submit their list of priorities for further descriptive analysis. Rankings were tallied to determine the most favoured proposed solutions in each of the two groups of participants. 13 Results Documents In the area served by the Environmental Division between January 2013 and December 2015, a total of 94 documents involving persons who were vulnerable living in potentially adverse housing conditions were opened by inspectors. The records addressed the needs of 87 separate individuals; nine individuals had a previous environmental health record. All of these records were identified as “housing health hazards” in “marginalized populations.” All of the inspections except for one were completed within the City of Greater Sudbury. The postal code indicated on the records was in the district of Wanup (Figure 2). Figure 2. Identified geographic area of potential housing health hazard. 14 The most common source of referral for inspector involvement was a health care provider associated either with hospital or community health services (Table 2). Over three quarters of the referrals were categorized as "house disrepair /sanitation" (Table 3). The lapse of time between date of referral and onset of action was often under 50 minutes (Table 4). Most records (Table 5) contained less than five separate entries detailing activities. The lifecycle of a record was typically one month (Table 6). Table 2 The source of the referral for inspector involvement Not identified Health provider Police Fire Sudbury Housing Building Manager Property Manager Landlord Neigbhour Family Client 0 5 10 15 20 25 30 35 40 % (N = 94) 15 Table 3 Types of reported problems at initial contact with environmental services Rodents Infestation Flooding Garbage Mould Odors/Animal Excrement House disrepair/Sanitation 0 10 20 30 40 50 60 70 80 90 Frequency 16 Table 4 Minutes from time of referral to action initiated by inspector 60 50 40 30 20 10 0 < 10 11 to 20 21 to 30 31 to 40 41 to 50 51 to 60 61 to 70 71 to 80 81 to 90 91 to 100 101 to 110111 to 120 > 121 Minutes Table 5 Number of entries per record (N = 94) > 26 21 to 25 16 to 20 11 to 15 6 to 10 <5 0 10 20 30 40 50 60 70 80 % 17 Table 6 Duration of clients' record in days (n = 93) 40 35 30 25 20 15 10 5 0 <5 6 to 20 21 to 35 36 to 50 51 to 65 66 to 80 81 to 100 101 to 115 116 to 130 131 to 145 > 146 The reviewed records involved 16 individual inspectors who averaged 7.4 contacts per record. Many of the entries (82%) indicated inspectors' engaging other community partners in the delivery of environmental practices. The average number of agencies involved with inspectors was 1.7 per file. These included property managers; building inspectors; by-law officers; fire, police and pest control officers; social and health care workers; family members; neighbours; and workers from private companies for cleanup and plumbing. When age of resident was recorded, most of them were over 60 years of age (Table 7). The range of age was 16 to 91 years. The majority of residents lived alone (72%) and self-reported several health problems (66%). In nearly 70 % of the records, the residents' described their support network as limited or non-existent. 18 Table 7 Age of clients at time of referral (n = 54) 90 to 99 80 to 89 70 to 79 60 to 69 50 to 59 40 to 49 30 to 39 20 to 29 10 to 19 0 5 10 15 20 25 30 % All the records were closed with the exception of one in the two year period. Satisfactory resolution was documented in nearly one third of the cases. In 27% of the files, the notation indicated lack of resolution. Table 8 presents a summary of the assessment and resultant actions documented in the 94 records. The cumulative effects of multiple health disparities were reflected in the majority of the records. 19 Table 8 The assessment and resultant actions of inspectors Who involved in assessment Content of assessment • Hazardous agents • Property owner • Property manager • Environmental (availability of water, quality of air, physical • Fire services safety, plumbing, waste / garbage • Family and nonmanagement, functional fridge / family members stove, mould] • Other inspectors • Infestation [insects or rodents] • Police • Effects on • Building a) health [morbidity, potential of inspectors injuries / accidents, confounding • Landlords factors] • By-law officers b) future generations [adult • Power-ofattorney parents and their children] • Exterminators • Hospital and c) health care services [denied community access by tenant or service health care provide refuse to access or unable providers to access with stretcher] • Social services • Structural issues [leaking pipes] • Temperature [room] • Sanitation • Egress • Pets Context of assessment Actions taken Determinants of health • Gaining access • Observing • Physical environment [passageway, clutter in- and out- • Screening of potential hazards • Prioritizing risks side of dwelling, use of space] • Monitoring of actual impacts • Physical and mental health • Facilitating communication status [appearance, mobility, among relevant stakeholders functionality] • Coordinating services • Personal health practices • Identifying solutions to manage / [medication] resolve issues • Lifestyle practices [diet] • Inquiring about subsidies • Social supports and networks • Providing literature [isolated, family, neighbours] • Networking, consulting and • Economic status referring • Employment status • Use of health services [known to • Evaluating inspector] • Geography [rural] • Access / available food • Developmental [child, seniors] 20 Vignettes based on interviews and field notes The following vignettes showcase the key patterns of the qualitative data set. To protect all participants, the voices of service users, inspectors and community partners are integrated to provide a rich description of five dynamic situations to detail the what, where and why of involved individuals. This section concludes with two tables that summarize the factors influencing inspectors' efforts to assess and mitigate housing environmental hazards. The Visit The stairs wobble and creak under the weight of William’s footsteps. Snow covers the three steps leading up to the back porch of the one-story home. The door is slightly ajar and he pushes it open, half expecting to find the elderly homeowner inside, like he has so many times before. To the left of him stands a monstrous four-foot tower of rubbish. The plywood beneath his feet is damp and littered with torn flyers and paper. Tracing the cracks along the ceiling, William walks toward the living room, lowering his head slightly to avoid cobwebs. The cool January air follows him indoors, lingering indefinitely. Beyond the entrance, sun fills the living room with light, illuminating a small path toward an office chair in the middle of the room. A small space heater sits beside the chair. Stacks of tattered phone books, empty food containers, plastic shopping bags surround the room, reaching a height of four and five-feet in some areas. Paper layered within the stacks of rubbish are shredded, perhaps by mice looking to nest, Williams imagines. William walks up to one of the towers and peers into a half empty box of cereal. He jumps when a mouse scurries across the floor in front of him. He lifts his foot to avoid pellet droppings but his boot snags on something – a series of extension cords buried beneath paper blanketing the floor. Inside the kitchen, Williams notes dirty dishes pilled in the sink and across the counter. Empty food containers are stacked at one of the counters. He writes it all in his notebook. But a noise lures William away from the kitchen and toward a doorway leading to the basement. He descends cautiously, mold and mildew framing the door and walls leading downstairs. In the basement, water is gushing from a broken pipe, flowing into a drain. A small heater located beneath the waterfall is turned on. William figures the pipe has burst because of the lack of heat in the home. The basement appears less cluttered than the main floor but is much cooler. He 21 finds a toilet filled with feces and buckets of dark coloured ice. Williams thinks to himself, this must be sewage. But since it is frozen, he can’t be certain. Walking up the stairs and then outdoors, William reaches for his cellphone and calls building control to arrange a site visit. Hospital John lays in bed, his eyes half closed, as Peter with his notepad, papers and plastic bag walks in the hospital room. Two days ago, John had asked Peter to check on the pipes in his home because the temperature had dropped to -20C. He also wanted him to pick up a computer, radio and headphone for him. John had signed a consent form to permit Peter to enter his house. Now, looking at the hardware in the plastic bag, John remembers. He opens his mouth but struggles to articulate his thoughts. Instead he jots down something on paper but to Peter, most of it is illegible. He takes a sip of water and clears his throat. John left his home on a scooter a few weeks earlier, headed for the hospital. He complained to the nurse in the emergency department he had a swollen arm. He doesn’t have a family doctor but visits a nurse at a downtown community clinic for his primary health care needs. But John is diabetic and has a heart disease, too. And while in hospital this time round, he suffered a stroke. Peter places the shopping bag with computer hardware on the side table and asks John how’s he’s doing. John says it looks like he will be relying more on his motorized scooter to get him around. But, he realizes his home isn’t accessible. He needs to build some shelves and a ramp. “I got all that wood to put shelving up around so make space as I keep a lot of stuff and I will be able to move my scooter in and out with a subsidy so I will be much better off,” he says. John says he has managed quite fine up until his recent hospital visit. “I try to stay healthy and do things for myself…” he says, adding he takes his scooter to the grocery store and laundromat. As for cleaning, he doesn’t need help. He believes the last cleaning crew that came into his home stole his metal. “Once I get the scooter in and cabinets in, there will be big improvements.” Peter nods and scribbles something in his notepad. 22 Family A knock at the door interrupts the conversation between William and Liam. The door slowly opens and a woman appears, holding what seems to be a box of chocolates. William wrinkles his brow and looks to Liam who invites the woman in. She introduces herself as Tammy, Liam’s sister. More than 20 years have passed since the siblings last saw each other. During that period Tammy received calls from the city housing department, asking if she could help convince her brother to clean up his yard. But she didn’t even know where he was living anymore and she didn’t have his phone number either She tried sending a birthday card one year but found it in her mailbox a few weeks later. Last she heard, his neighbour was helping him with some yard work and would even take him to the occasional medical appointment. Tammy walks over to Liam and awkwardly touches his hand. She thanks William for calling her – she received his voice message that Liam was in the hospital – and decided to purchase a bus ticket and make the four-hour trip to visit him. She was surprised to learn how much her brother’s health had deteriorated in the last few years. The last time she sat in the same room as him, he was employed as an electrician, managing his diabetes well, eating healthy and living an active lifestyle. She wonders whatever happened to his canine companion. More Sitting in the passenger seat, Deborah flings her wrist in an upward motion to direct the driver to continue along the gravel road. The vehicle slows when three cats emerge from a clearing up ahead. Deborah’s eyes brighten and she calls out the animals by their names. The vehicle pulls up to a weathered trailer decorated with solar panels and a web of extension cords. About six more cats appear, others crawl up from beneath the trailer. The vehicle stops and the driver walks around to the passenger side, stopping to take something out of the trunk, then opens Deborah’s door and hands her a cane. A slip on the kitchen floor landed Deborah in hospital for three days. She had called an ambulance – she didn’t have anyone else to call. The closest neighbour was about one kilometre away. And besides, she couldn’t imagine he would respond to her plea for help. The last time he called the cops on her, and it didn’t end well. Deborah had told the nurses how anxious she was to return to her cats. Now, back at home, she thanks the volunteer for the ride home. He offers his arm for support but Deborah shrugs off the gesture. Limping, she manages to get ahead. The cats purring at her arrival, follow her indoors. And so does the driver to ensure her safety. The driver’s eyes widen once he steps inside the trailer. He raises his hand to his nose, to hide the expression on his face and block the odour. He noticed barrels outside and wondered if that was the source of the odour. Or, it could be the cat urine and feces. 23 Deborah notices his reaction and begins to explain how she is able to live off of solar energy as funds are limited. She used the last of her savings after her husband passed away to purchase the piece of property. She was done with city living. There was a generator. It only lasted a year. “…and so here I am sitting with no generator and no power and then somebody told me about solar,” she says. “So, I did a little bit of research and I was really lucky, the guy who sold me solar panel was very well informed and he was willing to teach me.” Deborah pulls out a cell phone from her pocket. “I use my cell phone for everything. However, I still have WiFi and I get Netflix, that’s my entertainment.” She walks to a recliner in the corner of the room and sits down. Three cats jump into her lap and she gently rubs the belly of one of them. “I just need people to stop judging me,” she says. “Yeah my house looks like a disaster but so what? It’s my disaster but I can manage it. I am not sitting in a food bank and I am not sitting in those little apartments freezing to death. I am not on the street.” The driver forces a smile and tells Deborah to have a good day. As he walks toward his car, he takes one last look around before he reaches for his phone to call for assistance for Deborah. Networks Representatives from many community agencies and services typically respond to inspectors requests for conversations about plans to service persons living in vulnerable housing. Not all representatives have met with John, Liam, and Deborah, but they have come in contact with similar clients. And many are repeat visits. Attendees are from the city’s bylaw department, building services, mental health supports, police, fire and emergency services, and community home care supports. Inspectors share that they are not provided with training when it comes to responses to vulnerable populations. Individual inspectors have developed relationships with clients beyond the scope of their practise, connecting them with other agencies. Inspectors express their willingness to mentor other inspectors and share what they have learned along the way, but there needs to be a better coordinated response. “…I really don’t think it’s going to get any better…” one inspector says. Inspectors referred some clients to community and home care support but when it comes to mental health support, they haven't had much success in clients adopting their recommendations. Paramedics often are the first person of contact when it comes to vulnerable people. “Because paramedics are invited into people’s homes, often when they are in a state of an emergency, we see people as they truly live,” says one paramedic. To help identity high risk older adults, EMS uses the clinical tool, Paramedics assessing Elders at Risk for Independence Loss, or PERIL." But paramedics can only do so much, he says. 24 One firefighter says he has encountered some homeowners and tenants who have accumulated so much rubbish in their home that it becomes a fire hazard, putting everyone at risk, including the first responders who may have to overcome physical barriers in the event of a fire. “I really think this is a community concern,” interjected the paramedic. “I think it should be led by the public health and perhaps the fire department and the city and I really think we need to address it. You do not need to watch Discovery Channel to see hoarding.” These situations cannot be resolved by just clearing away the “stuff, says the coordinator of the drop-in centre. She had some cases where clients had more than a dozen animals in their possession. Simply removing the animals does little to resolve the problem because it will start all over again, she says. The coordinator for the drop-in centre meets with clients like John and Deborah on a daily basis, providing housing and health care support and referrals. “In these extreme situations, I would think the best thing for them would be to put them in long term facility where they would have access to help for showering, to help them with their medical needs…,” says the coordinator of the drop-in centre. She says someone needs to take the lead and find housing solutions for vulnerable population and suggests the city should appoint a liaison person like it has for the elderly. Typically, what happens, she says, is an agency will take the initiative and lead on their own. That person will “care from the bottom of their heart and will go out of the way to help that individual….and they do it on (their) own time.” Everyone in the conversation focuses on the inspectors. The following two tables provide a summary of key information shared by participants with regards to inspectors' involvement in addressing housing environmental hazards. Resources supportive of inspectors' practices are organized according to expertise, client attributes, collaboration, solution-focused and additional housing resources (Table 9). Table 10 presents multi-level challenges for inspectors to achieve positive environmental outcomes for vulnerable cohorts. 25 Table 9 Resources facilitating inspectors' involvement in addressing housing environmental hazards Resource Expertise Collaboration Client Attributes Solution-focused Housing resources Features • Awareness of guiding mandate, legislation and policies • Opportunities for continuing professional development • Sharing of experience among providers • • • • Intra-agency sharing of resources Inter-sector sharing of information and resources Forum such as Community Mobilization Sudbury Liaise with multiple stakeholders • • • • • • • Access to family, friends, neighbour Accept support for care for self and pets Owner of property Basic needs meet Transportation available Co-partner to address housing hazards Allow entry into dwellings • • • • • • Commitment/dedication of service networks Supportive vs enforcement orientation Strength-based to uphold clients' preferences Advocate for and navigation of persons Timely response to requests Comprehensive assessments • • • • • Supportive landlords Availability of shelter services Affordable housing Home with functional appliances and services Housing subsidies 26 Table 10 Circumstances challenging inspectors' involvement in addressing housing environmental hazards Topic Client Housing environment Landlords Service providers Systematic Features • • • • • • Requires crisis interventions History of chronic and multiple illnesses Self-neglect / isolated Lack of informal supports History of insecure housing, hoarding Declines services • Unsanitary, poor air quality, lighting • Access / egress challenges • Unaffordable, poorly maintained • • • • • Offers limited information about ownership and tenants Eviction process Declines involvement to support tenant Timeliness of repairs Additional costs (e.g. financial, demanding tenants, frequent expenses) Clear protocols, most responsible agency Safety and legal implications Credibility of caller (exaggerated); repeat callers Comprehensive follow-up Challenging communication and coordination among agencies • Available resources (manpower, funds, supports for temporary removal, training) • • • • • • • • • • Stigma Social responsibility / Human Rights Health disparities Equitable access to achieve health for all Legislation 27 Forums Inspectors, other service providers, and clients proposed numerous solutions to optimize the environment health of private residents. These solutions were translated into 25 priorities for potential action (Appendix C). Each priority was typed on an individual card. Attendees were invited to rank each priority from 1 to 25, from highly possible / feasible to least possible /feasible. At the first forum, inspects top three priorities for action were: Improve interagency collaboration and cooperation. Create and continually update a list of agencies, a contact person, the populations they serve, and what service they provide. Be able to provide seamless connections to mental health supports for clients. Agency representatives who attended the second forum, identified their three priorities for action as: Create a specialized group to respond to housing health hazard calls within vulnerable populations. Designate a community navigator who will triage and delegate cases to appropriate agencies. Advocate for a streamlined procedure for placement of individuals living in hazardous situations into long term care where appropriate. Although the priorities are not the same between the two groups, collectively they suggest the need for inter-sector, coordinated, partnerships among inter-professionals to structure seamless health and social services to optimize the health of persons living in private, hazardous housing circumstances. 28 Conclusion Public health inspectors respond to housing complaints involving vulnerable individuals. Such calls may be complex and require resources outside of Public Health. The purpose of this study was to investigate response to housing health hazards involving individuals who are vulnerable. Through this study the goal was to propose recommendations for improving such responses. Findings from this study pointed to certain things that are working well. 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[mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] 4 ("environmental health" adj2 officers).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] 5 ("public health" adj2 inspector).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] 6 ("public health" adj2 inspectors).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] 7 ("public health" adj2 inspection).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] 8 "community health practitioner".mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] 9 "community health practitioners".mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] 10 1 OR 2 OR 3 OR 4 OR 6 OR 7 OR 8 OR 9 Results 6 36 15 76 19 36 75 8 48 300 34 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 Exp administrative personnel/ Professional role/ 10 OR 11 OR 12 Exp housing/ "built environment".tw "apartment*".tw Home*.tw House.tw houses.tw tenant.tw tentants.tw 14 OR 15 OR 15 OR 16 OR 18 OR OR 19 OR 20 OR 21 13 AND 22 exp public health/ exp "social determinants of health"/ exp environmental health/ exp health equity/ 24 OR 25 OR 26 OR 27 23 AND 28 37624 10009 47031 27884 1305 1698 30820 42014 7863 137 289 102539 581 6428865 786 22552 100 6433580 307 35 Appendix B 36 37 Appendix C Proposed solutions Order from most [1] feasible to least [25] feasible Improve interagency collaboration and cooperation Encourage decision makers of involved community services to attend meetings where housing health hazards in vulnerable populations are discussed so that solutions to recurring problems can be created Locate an agency or group who can support infrastructure improvements required to keep an individual in their own home Be able to provide seamless connections to mental health supports for clients Have mental health training for public health inspectors delivering services to vulnerable populations Designate an internal or external navigator who will triage and delegate cases to appropriate agencies Educate tenants on the services provided in Sudbury to assist with housing health concerns Provide training about hoarding to all front line workers Respect the wishes of clients, without judgement, who are living a lifestyle of their own choosing and who are posing no risk to others Create and continually update a list of agencies, a contact person, the populations they serve, and what service they provide Design a standardized recording form to use when investigating housing health hazards that provides sufficient detail for follow-up Be provided clarity on how an individual’s health (as in a vulnerable housing situation) fits into a public health model 38 Proposed solutions Order from most [1] feasible to least [25] feasible Advocate for a streamlined procedure for placement of individuals living in hazardous situations into long term care where appropriate Keep all cases open until an assessment can be completed and preferably until a solution can be delivered Have the support of by-law officers to enforce early clean-up of hoarding situations Create a specialized group within the health unit to respond to housing health hazard calls within vulnerable populations Be able to provide mental health assessments to clients in their own homes Have more boarding houses Encourage landlords to periodically check on high risk clients Advocate for finances to assist with hoarding clean-up Establish a process for sharing basic information about clients with the necessary community supports Raise community awareness about what a healthy housing situation is Advocate for subsidies for landlords to bring their units up to current fire code (installing sprinklers) Advocate for standards for boarding houses Adopt a scale that measures hoarding 39