Features Recent international agreements call for the transformation of familyplanningprogrammes from a focus on demographic goals to the promotion ofhealth and rights objectives. But thepractical implications of this agenda for current and future programmes remain uncJear. Public health resources are devoted to preventing illness and reducing the prevalence and incidence of disease across a population. Human rights methodologies focus on protecting the rights ofindividuals, and on the right to health and health care. Both of these approaches need to be re-thought and reconciled on a practical level to promote rights-based health programmes. AppJying a rights framework to reproductive health programmes means, among other things, focusing as much on the process as on the outcome, incorporating efforts to address the gender and power dimensions ofreproductive and sexual decision-makinginto every level ofprogramme, and focusing on building a sense of entitJement among both the seekers and the providers of services. It also means movingbeyond a focus only on the technical quality of clinic-based services to incorporate the ethos of a rightsperspective at everylevel. Political, institutional, and technical barriers to the realisation of the reproductive health and rights agenda include national level politics, Jack of capacity within civil society, and Jack of transparency ofinstitutional actors. Keywords: public health, human rights, reproductive health programmes NE of the central challenges posed by recent international agreements and women’s advocacy movements is the application of both public health and human rights principles to reproductive health programmes. The Programme of Action of the 1994 International Conference on Population and Development (ICPD), for example, calls on governments and international donor agencies to expand and transform existing programmes, and to offer services that are comprehensive, integrated, universally accessible and delivered in a manner consistent with health and rights objectives. rights, family planning, reproductive Clearly, the implications of these changes for services alone are enormous, and even in the best of circumstances, reflect goals that will require many years to realise. Yet even given the obvious challenges, evidence suggests that in practice, the application to existing programmes of reproductive rights principles lags far behind the theory. This article explores these issues and argues that reproductive health programmes have a pivotal but unfulfilled role to play in the promotion of rights, health, and gender equity. Despite the proliferation of the term ‘reproductive rights’ in the international mandates and 21 national policies of the past decade, the transformative nature of the rights framework for existing programmes remains relatively unexplored. Therefore, the article examines the political, institutional and ideological barriers to the transformation of existing family planning programmes and, by extension, the promotion and protection of rights. Obviously, health programmes alone are insufficient to achieve these goals. Multi-sectoral policies aimed at closing the gender gap in access to education, employment, and other productive resources are essential to the fulfillment of the rights agenda, and to the achievement of other objectives, such as slowing the spread of HIV and achieving population stabilisation. The conclusion of this article suggests the parameters of a framework intended to be used simultaneously to provide guidance to governments and donor agencies on the practical implications for programmes of the health and rights agenda, as well as to evaluate the degree to which specific programmes promote health, rights and equity, and thereby promote accountability of institutional actors. For the purposes of this analysis, programmes are defined as the sum total of efforts aimed at changing social norms and health behaviours and providing health services, including research, public education and advocacy, behaviour change interventions, social marketing, clinical services and community-based distribution. (This definition recognises both the importance and limitations of client-provider interactions in promoting reproductive health and rights.) Reproductive rights include the right of individuals to bodily integrity and security of person, the rights of couples and individuals to decide on the number and spacing of their children and to have access to the information, education and means necessary to do so; the right to attain the highest standard of sexual and reproductive health; and the right to make decisions concerning reproduction free of discrimination, coercion, and violence. The rights and health agenda The transformation of conventional family planning programmes has been a major goal of women’s health and rights movements for well over a decade. The historical limitations and critiques of such programmes are well-known and have been extensively documented elsewhere.l These programmes have generally been characterised by poor quality of care, limited choice of methods offered, and lack of attention to critical issues such as sexual coercion and the risk of sexually transmitted infections that are fundamental to women’s health and rights.* Many governments and donors traditionally viewed contraceptive delivery as a shortcut through the demographic transition. Family planning programmes were created in a vacuum, isolated from broader efforts to change the cultural and economic conditions that contribute to the subordination of women and keep birth rates high. Such programmes have unquestionably filled a latent need among women for methods of fertility control, but generally in a manner that was or is instrumental to the goals of reduced fertility and not in the interest of promoting rights, equity and empowerment. While the rhetorical emphasis has been on the depth of ‘unmet need’ for fertility regulation, in reality, programmes have exhibited a tendency to be selective in offering clients, and especially women, information and methods, and have used various degrees of persuasion and coercion as the means to reduce both unwanted and wanted fertility.2,3 In the last two decades, the global women’s health movement fundamentally changed the discourse of the population and health fields by asserting that social justice and individual rights must be central concerns of policy and programme. Redefined along these lines, ‘population policies’ are the aggregate of multi-sectoral strategies aimed at achieving, among other things, the equitable distribution of power between social groups and between women and men. Health services, including but not limited to contraceptive deliver?, are essential assets that people use to meet a broad range of needs. The rights movement recognises that the ability of women and men to fully exercise their reproductive and sexual rights, to negotiate decisions about whether and when to have children, and to enjoy the highest attainable levels of reproductive health is not a function of reproductive health programmes, or of access to services per se, but is contingent upon the social environment in which people live. Following from this, the I&PD calls for integrated efforts to Reproductive Health Matters, Vol. 8, No. 15, May 2000 increase women’s economic and political clout, challenge prevailing social norms around reproduction and sexuality, and combat gender violence - to create the ‘enabling conditions’ essential to the realisation of reproductive and sexual rights4 In sum, the promotion of reproductive rights and health depends fundamentally and simultaneously on the conditions in which people live, and on the tools - such as health services-that are at their disposal. Health programmes often reflect, replicate and reinforce the social climate in which they exist, and will therefore also independently either contribute to or detract from the fulfilment of individual rights. Applying a rights lens to reproductive health programmes means such programmes must be evaluated on the extent to which they: adopt effective means or measures to promote and fulfill the reproductive health and rights of women and men, and address gender inequities directly relevant to decisions about sex, pregnancy, childbirth, contraception, and infection prevention; protect individuals from and immediately respond to violations by institutional actors or their surrogates. Transforming discourse and practice The integration of reproductive rights and health objectives presents a number of conceptual challenges that need to be considered at the outset. Traditional public health and human rights approaches are based on different conceptual frameworks and use different methodologies, with seemingly different implications for programmes. Each of these approaches has to be rethought and reconciled on a practical level to promote rights-based health programmes. The field of public health is concerned with improving the health status of populations. Success is measured in terms of outcomes births averted, lives saved - and the goal is to achieve the greatest good for the greatest number. Public health resources are allocated according to priorities that reflect the ability to prevent illness and death on a large scale, and to reduce the prevalence and incidence of disease across a population. Public health theory weighs relative risks and recognises that in the quest to improve the health of populations, some individ- uals will continue to face risks due to individual behaviour, environment, economic conditions, and lack of access to health care, among other things. It is understood that resources are finite, and that decisions need to be made to ensure that investments yield the greatest possible return. Human rights concepts and methodologies focus on protecting the rights of individuals. Human rights standards are universal, indivisible and inalienable. Rights language refers to a ‘right to health’ and a ‘right to health care’ which, in the context of limited resources, can leave the public health official at a loss. Although a rights framework theoretically seeks to promote rights as well as to protect individuals from violations, the focus for much of the past several decades has in fact been on the documenting of violations. During most of the 20th century, the human rights community focused on abuses of individual civil and political rights by public actors - the state and its representatives. Only in the last two decades have rights advocates and legal scholars established the basis for women’s human rights, and following from this, reproductive and sexual rights. These rights are now recognised in. a number of conference documents, including the 1993 World Conference on Human Rights and the 1995 Fourth World Conference on Women, as well as the ICPD. Violations of women’s rights by governments are now documented through a variety of formal means, e.g. through the Convention on the Elimination of All Forms of Discrimination Against Women (CEDAW) and the US State Department’s Country Reports on Human Rights Practices. Non-governmental human rights organisations, including women’s rights groups, have also successfully used this foundation to document violations of women’s reproductive rights by states and states’ parties. Traditional human rights documentation relies on reports from and interviews with key informants in a given setting. By its nature, such reporting is often based on small numbers of discrete cases which frequently raise a red flag about problems that affect larger numbers, but do not prove that a given problem exists on a large scale. As a result, human rights findings often are not persuasive to public health practitioners who, in the absence of populationbased data, often remain unconvinced that these 23 findings represent more than a few isolated cases, or a new priority to be addressed. For this reason, proof of a small number of cases of sterilisations without consent, for example, may be viewed by public health institutions and programme managers - especially those with a vested interest in the reputation of a programme _ as being more an aberration or an exception than a rule, and therefore remedied through palliative measures focused merely on the individual case rather than the systemic problem. In Mexico, for example, evidence gathered by human rights organisations of government doctors performing sterilisations without the client’s consent was largely dismissed by both the government and international donor agencies until large-scale surveys conducted in the 1980s and 1990s by the government with the support of donors showed the problem to be significant and pervasive.5 On the other hand, by focusing only on blatant violations, again, such as sterilisation without consent, human rights methodologies can also miss subtler, but more widespread and persistent violations of rights. In Mexico, for example, a 1996 United Nations Population Fund analysis of service delivery points throughout the country revealed that only a limited number of contraceptive methods were offered, and that providers were required to strongly encourage and persuade women with more than two children to adopt IUDs or to undergo sterilisation.6 Since most women were coming for and leaving with a method, and since there appeared to be ‘consent,’ this type of practice might not be perceived as a violation of rights. According to the interpretation of a rights approach, as posed by this article, however, these are violations. A programme that offers limited methods in the interest of reducing women’s fertility, takes advantage of their already limited sense of entitlement in order to achieve externally posed goals, and fails in any way to instill a sense of broader choices and entitlement, does not meet the test of contributing to the promotion of reproductive rights. Applying a rights framework to reproductive health programmes means focusing as much on the process as on the outcome, and opens the possibility of transforming not only programmes but the essential discourse and practice of both public health and human rights. 24 From theory to practice: minimum criteria for rights-based programmes A rights approach requires a fundamentally different analysis of the content and intention of what we now call family planning programmes. To explore the practical meaning of a rightsbased framework for current and future programmes, it may be helpful to start from the act of heterosexual intercourse. In the ideal world, sexual partners decide together whether or not they want to have children, and, if not, how to protect themselves from unwanted pregnancy. They negotiate the timing and frequency of sexual encounters. If one partner suffers from a sexually transmitted infection, they work together on ways to protect the other. The real world, however, is still far from this ideal, and both women and men are at risk of the consequences of unsafe sex. Cultural and social norms may inhibit partners from talking openly with each other about sex, sexuality, contraception and infection, thereby putting them at risk of both unwanted pregnancy, and of disease. Taboos and traditional practices may prevent them from seeking health care even in dire circumstances. Women and men may know little about their bodies and how they work. Women may be particularly vulnerable because they face constraints posed by inequitable gender and power relations that undermine their ability to negotiate sexual and reproductive decisions equally with their partners. An individual woman may sometimes - and sometimes frequently -be forced to engage in non-consensual sex, or she may be raped by an intimate partner.’ Unwanted pregnancy may be a persistent concern, either because a woman cannot control the timing of intercourse, and therefore protect herself, or because she lacks access to *methods of fertility regulation that truly fit her particular needs. Access to safe abortion is likely to be limited if it is available at all. Emergency obstetric care may be equally scarce. All of these conditions contribute to high rates of reproductive morbidity and mortality, especially among women. By using contraception, women of course may be better able to control some of the outcomes of unwanted sex, such as unwanted pregnancy. They may however still be forced to have sex against their will on a regular basis, perhaps even more frequently because the likelihood of unwanted pregnancy is diminished. These conditions and Reproductive the failure of programmes to adopt effective means to address them constitute violations of reproductive and sexual rights. women’s Likewise, without simultaneous efforts or means to reduce STIs, these same women remain at risk of infection - again a violation of their rights. Similarly, under this scenario, and in the absence of efforts to change the gender dynamics of sex, encouraging men to use - or having them encourage their partners to use - contraception could yield higher rates of contraceptive use with little or no change in the prevalence of sexual coercion and with-little or no increase in positive communication between couples, changes that would nonetheless be deemed a success under conventional measures of evaluation. A rights approach starts from this reality and asks: What can and should be done programmatically to address these issues? Instead of offering a limited range of contraceptive methods because they are effective or efficient in meeting aggregate goals, a rights-based programme offers several, while constantly reaffirming at every level the right to choose between these. Instead of relying on providers to do all the work of informing and educating clients in the span of a few minutes, it offers community-based reproductive health education, builds community support for reproductive health and rights, and uses a variety of communication strategies to instill a sense of entitlement among people and establish new social norms encouraging partnership, communication and cooperation. Instead of pretending that unwanted pregnancy is the only potentially problematic outcome of sexual intercourse, it recognises that the prevention of risk of infection and coercion and efforts to deal with the consequences of these are, at a minimum, of equal importance to promoting reproductive and sexual health and are risks that many women face each and every time they engage in the act of intercourse, whether or not they face unwanted pregnancy. A rights approach puts as much emphasis on the ethical and value-oriented aspects of a programme as it does on technical skills. Finally, a rights approach acknowledges that health providers also are individuals with rights and needs, and that changing the system is as important as changing the individual. The primary test of success in the old mode1 of Health Matters, Vol. 8, NO. 1.5, May 2000 programming is contraceptive use and reduced fertility. A rights-based model, by contrast, provides a means test to measure the intention and progressive achievement of programme efforts ranging from research priorities to behaviour change communication to client-provider interactions - in advancing reproductive choice and rights while simultaneously addressing what might best be called the proximate risks of sexual relations. The rights model is based on the indivisible rights to bodily integrity, freedom of choice in childbearing, freedom from coercion, and the highest attainable standard of health. It recognises that the proximate risks of sexual relations are integral to each act of intercourse, and therefore addresses these risks programmatically in an integral, rather than an additive way. Because the proximate risks of sexual relations are indivisible - any given woman may simultaneously face the risks of sexual coercion, unwanted pregnancy, and infection - the response must be indivisible too. Concerns about sex, power, gender and rights should therefore be considered intrinsic to each aspect of programming - research, delivery, education, communication and client-provider interactions - and not be compartmentalised. In 1994, Jain and Bruce sought to provide concrete guidance on the transformation of family planning programmes to policymakers and programme managers by suggesting a shift from a focus on fertility objectives to ‘helping individuals to achieve their reproductive intentions in a healthful manner.‘8 To achieve this goal, they argued, programmes must include the following elements: ?? ?? ?? ?? choice of contraceptive methods; safe abortion; diagnosis and treatment of reproductive tract infections and other preexisting conditions that would make the use of a particular contraceptive method unhealthful; diagnosis and treatment of unhealthful effects of contraceptives. They further note that the question of which services get priority depends on the local conditions and felt needs of clients. Taking these steps would in itself represent a major advance in what is available to the vast majority of women and men worldwide. Applying a rights framework to this constellation 25 of services, however, takes us several steps further, and at a minimum includes efforts at every level of programming to: address sexual violence and coercion, especially as it relates to restricting women’s choices, and exposes women and girls to higher risks of morbidity and mortality; incorporate multi-source reproductive health and rights education strategies, and seek to instill a sense of entitlement among people and a rights-based ethos within programmes; incorporate communication and behavior change interventions encouraging the prevention of disease, the practice of safe sex, and changes in social norms that encourage equitable partnerships; establish means of ensuring the accountability of programmes to the population and means of redress for violations of rights. Obstacles to change On the face of it, the rights agenda is now mainstream. Today, a majority of governments (and by extension other public institutions, such as donor agencies), are signatories to international agreements that recognise reproductive and sexual rights as human rights. The terms ‘health,’ ‘rights,’ and ‘gender,’ are now ubiquitous in the rhetoric and the policy statements of the population and health fields, suggesting that institutional actors at least nominally support this vision. But evidence suggests that on the whole, progress in making the fundamental changes in family planning programmes required by a rights framework is uneven at best. There are a number of obstacles to the transformation of family planning programmes, some of which are explored briefly below. Social, economic, and political conditions undermine rights and entitlement The most important obstacles to the realisation of the reproductive rights and health agenda are the continued lack of attention to enabling conditions, and the absence of institutional and political environments that support, promote, and protect rights. Poverty, lack of social investment and the dislocation caused by rapid globalisation and privatisation worldwide, among other things, continue to undermine individuals’ rights and sense of entitlement. Fundamentalist 26 religious and political movements pose particularly profound threats to women’s health and rights.g Lack of transparency of institutional actors also severely undercuts the ability of civil society to monitor progress and ensure accountability on the rights agenda. Governments and donor agencies have their own political agendas and institutional imperatives, and their internal systems often are set up to protect these, making it difficult for civil actors to gain access to information on programmes or spending. Support for a rights agenda at the national level may be weak National politics plays a pivotal role in the reproductive rights agenda. The USA, for example, remains among the leading contributors to international family planning programmes in both financial and technical terms. The strong influence of political ideologies that come from opposite ends of the spectrum around the issue of population stabilisation and reproductive rights have impeded both conceptual and practical progress toward a rights-based agenda within US international assistance. On the one hand, traditional supporters within the US Congress of international family planning programmes back these efforts largely because of their concerns with population growth and demographic threats to the environment, economy and international security. While the need to achieve population stabilisation is a legitimate concern, support for international family planning programmes has been sold to policymakers and the USA largely on the basis that such programmes ‘achieve results’ and are the ‘most effective’ route to reducing birth rates. On the other hand, a quite small but powerful counter-constituency seeks to eliminate programmes altogether. Ih the US House of Representatives, right-wing politicians have made the gutting of family planning programmes one of their main priorities. Efforts to curtail or eliminate spending on contraceptive delivery - an area in which the USA has historically played a leadership role - have taken many forms. Since the 198Os, the far right has persistently worked to diminish the capacity of organisations receiving US international assistance to work on expanding access to safe abortion overseas, even in countries where abortion is legal and even in Reproductive instances where funds for work on safe abortion were obtained from other sources. In the mid199Os, Congress imposed a harsh system of metering of funds on international family planning programmes in a failed attempt to eliminate the overall programme. More recently, Congress passed a new global gag rule, requiring USfunded organisations to sign pledges renouncing any and all work on safe abortion - including the collection of data or the dissemination of information on unsafe abortion - to continue receiving funds. It is clear that the objective of this assault is to undermine access to all means of preventing or ending unwanted pregnancies, ranging from contraception through abortion services. In recent years, the far right also has used the human rights agenda to its own ends. In 1999, leaders of the conservative right crafted a law mandating monitoring of US-funded programmes for violations of informed consent, and requiring that funding be withdrawn from any programme in which such violations are found. This poses a critical problem for women’s right of access to services, and to meaningful choices, because instead of making a commitment to funding and improving programmes in which governments or donors are taking pro-active steps to expand choice and infuse their programmes with a rights agenda, the ultimate effect of this legislation is to diminish choices altogether. In effect, it is the wrong means test for anyone concerned with expanding women’s rights generally and reproductive rights in particular, and strongly underscores the real intentions of the far right in promulgating these rules. These efforts have had far greater success than otherwise might be the case because of the absence of an organised, vocal and truly rightsoriented constituency base in the USA. In a sense, US assistance confronts three competing paradigms - the demographic approach and the reproductive rights approach both of which seek to expand services but for different reasons and with different implications for services - and the anti-choice/anti-rights paradigm, which seeks to eliminate them altogether. These competing agendas, and the constant sense on the part of USAID that it is under siege, have paralysed the Agency. As a result of these and other constraints, including internal resistance within the Agency, changes in the Health Matters, Vol. 8, No. 15, May 2000 structure, design and evaluation of the majority of family planning programmes funded by USAID have tended to be at the margin. New indicators - such as levels of client awareness of reproductive function and measures of the number of counselling sessions held with clients and their partners - have been added in some programmes, but these remain subsidiary rather than equivalent to contraceptive prevalence and reduced fertility in their importance for programme success, and often are not viewed as critical benchmarks on which either reporting is required or decisions about disbursements are made.1° While there are notable examples of innovative projects, such as ReproSalud in Peru, these remain the exception rather than the rule. Similar situations exist in many countries. In Mexico, for example, national level reproductive health policies extol the ICPD agenda. Yet while data now confirm that problems with both informed choice and informed consent are deeply embedded in the public sector family planning programme, the government and key donor agencies have taken only superficial steps toward resolving these issues. These include the development of new forms to be signed by clients and a series of trainings for programme managers. Yet providers report that though they are told to obtain consent and promote choices of methods, they are nonetheless still subject to the same evaluation criteria for delivering methods. The efforts to promote informed choice in Mexico, therefore fall far short of addressing the fundamental barriers to choice presented by continued numerical targets for the delivery of particular methods, provider bias, and other concerns characteristic of the government’s programme. Programmes remain focused on narrow objectives Reduced fertility remains the central objective and contraceptive prevalence rates (CPR) the primary indicator used in many programmes, with limited consideration evident in most programmes of the contextual factors that influence fertility decisions or put women at risk. Indeed, USAID’s own policy documents reiterate the importance, efficiency and effectiveness of contraceptive delivery for achieving reduced fertility and population stabilisation, statements that stand in direct contrast to the spirit of the 27 Jacobson ICPD in its recognition of the critical importance of multi-sectoral approaches and its intention to de-link family planning programmes from demographic goals.ll Today, several initiatives intended to incorporate concern for gender issues into USAIDfunded family planning programmes are underway, but it remains unclear how these will advance the fundamental changes called for by a rights perspective. For example, in 1997 the Office of Population formalised an Inter-Agency Gender Working Group to explore the incorporation of gender issues into programmes funded by the Agency. The group, comprised almost entirely of USAID-funded cooperating agencies, has done important work in reviewing the Agency’s strategic objectives and exploring the practical implications of male involvement, and is now preparing guidelines for the incorporation of gender-sensitive indicators into the Agency’s ‘requests for proposal.’ The long-term impact of the IGWG is unclear, however, in view of the fact that neither the central office nor the missions are committed to incorporating the findings or recommendations of the group into actual programmes.1° Key concepts remain ill-defined Key concepts, such as ‘comprehensive’ and ‘integrated,’ on which rhetorical agreements on reproductive and sexual health programmes are based, remain ill-defined. The failure to go beyond the level of rhetoric to clearly articulate the meaning of these terms, and to demonstrate understanding of the financial and technological limitations to creating comprehensive programmes in the short run, has hampered progress on many fronts. Lacking guidance on what to do and how to do it, many in the public health community feel unclear about how to proceed toward a rightsbased reproductive health programme, or how to respond to frequently used terms like ‘comprehensive’ and ‘integrated’.12 The lack of clarity can result in institutional paralysis on the part of governments and donors who perceive that they are being asked to provide everything to everybody simultaneously. Faced with pressure to do something, some institutional actors make superficial changes in programmes; others just go on with business-as-usual. For example, the ICPD +5 objective calling for reductions in unmet need for 28 contraception implies that reproductive rights are divisible into neat categories, such as ‘access to contraception’, reinforcing the sense among those for whom contraceptive delivery is a priority that they need do no more than this.13 The oftrepeated ‘right to choose freely’ is seen by many institutional actors as being fulfilled if an individual woman with an ‘unmet need’ receives a contraceptive - irrespective of any risks of infection or sexual coercion she may have, or her lack of knowledge about reproductive functioning. The sense of being overwhelmed appears even greater among those politically or otherwise disinclined to support the overall objectives of the ICPD. Adherents of conventional family planning programmes, for example, argue that their programmes are efficient and cost-effective, and that the public health impacts are easily measured. This group, which is in many instances still represented at high levels in both governments and donor agencies, often dismisses the call for comprehensive, integrated services as grossly unrealistic, arguing that a public health approach demands priority actions in the interests of increasing general health. Many in this group view ‘gender’, ‘empowerment’ and ‘rights’ concerns as add-ons to programmes that can be costly, may dilute programme effectiveness and compromise results.14 In fact, the rights framework does allow for progressive realisation of goals. However, neither the principle of progressive realisation nor the interim steps needed to achieve priority goals in particular settings have as yet been deeply enough explored by the rights and health communities in specific settings to provide sufficient guidance to even the strongest supporters within government and donor agencies on how 1 to move forward. Realising this, women’s rights and health advocates are taking” on these issues. For example, a groundbreaking article by Alicia Ely Yamin and Deborah Maine in 1999 suggests a methodology for marrying human rights and public health standards in efforts to measure progress in reducing maternal mortality and morbidity.15 The article examines in detail how international human rights principles, concrete data collection, and measurable indicators of progress can be used simultaneously to analyse the scope of a problem, i.e. maternal mortality, set achievable,goals and mark progress. Reproductive Still, much more needs to be done to identify priority issues in particular settings and to ensure the collection and analysis of data essential to identifying and understanding the dimensions of other key reproductive health and rights concerns, such as STIs and unsafe abortion. These findings then need to be used to inform the development of reproductive health programmes and service delivery. Limitations of technology, and of technical and human resource capacity, also act as limiting factors in the transformation of programmes. For example, ICPD and other agreements call for integrated reproductive health services. O’Reilly and colleagues rightfully suggest that integration of efforts to prevent, diagnose, and treat STIs into existing programmes (at various levels) is an important first step, and crucial to addressing the proximate risks of sex. l2 Without question, much more can and must be done within existing programmes to develop and carry out ST1 prevention strategies that address the fundamental issues of gender, power and sexuality, and to offer women and men true access to existing barrier methods and the means of dual protection from pregnancy and infection. These efforts may soon receive a boost as female condoms and new technologies such as microbicides become available. What are the existing barriers to diagnosis and treatment? There are, for example, unanswered questions about whether existing ST1 diagnostics are too expensive or too technologically complex to be useful in low-resource settings. Costing studies examining the balance between the higher costs of technologies and lower labour and laboratory costs in developing countries are now underway.16 Further information is needed on the real costs of these tools so that they can be used as widely as possible as the development of lower-cost diagnostics proceeds. And work is needed at the international level to ensure that donors and governments are putting sufficient funding into the development and dissemination of these diagnostic tools, so that the pace of dissemination is accelerated. Reforms are rapidly changing of health care the face While the proximate risks of unsafe sex and the. gender dimensions of sexual and reproductive Health Matters, Vol. 8, No. 15, May 2000 negotiation are indivisible, setting priorities to address them progressively will nonetheless be necessary in light of the fact that the situation both internationally and within the majority of countries is one of limited and often static or declining expenditure on health care. Setting specific priorities and indicators of success for the progressive incorporation within programmes of a rights approach is even more urgent, given the rapid changes underway as a result of health sector reforms.17 There is very little concrete evidence on how sector reforms are affecting access to and the quality of care, whether positively or negatively. We need to know much more about the implications for reproductive health and rights in various settings of efforts to decentralise, redistribute staff resources, institute user fees, privatise services and overhaul drug management systems. And we need to actively engage in these efforts to ensure that they advance, rather than undermine the ICPD agenda. Lack of capacity and lack of transparency Finally, lack of capacity in the women’s movement and lack of transparency on the part of institutional actors are constraining factors. Over the past two decades, the capacity of the international women’s movement to influence rhetoric and policy, lobby, use the media, and use international bodies to advance women’s rights has expanded dramatically. As I have argued above, however, now that we have won globally, we have to act locally. The transformation of programmes has to occur at the national, state, and district levels. In fact, in many countries undergoing health sector reforms, decentralisation and privatisation of health care is occurring at a rapid pace. Meanwhile, the ability of civil society actors to monitor progress and ensure accountability on the rights agenda is constrained in several ways. Lack of transparency of institutional actors is a critical obstacle. Governments and donor agencies have their own political agendas and institutional imperatives, and their internal systems often are set up to protect these, making it difficult for civil actors to gain access to information on programmes or spending, or to be meaningfully engaged in developing programmes. 29 Jacobson In fact, severe resource constraints, among other things, strongly limit the capacity of state and local-level civil society groups concerned with reproductive health and rights - to shape debates, conduct research, engage with institutional actors in setting priorities, monitor programmes, and engage with communities. In some cases, such as the devolution of power to district and village-level bodies under the Panchayati Raj Act in India, the authority to shape and implement health programmes is being vested in groups whose understanding of and willingness to address reproductive health and rights issues is limited at best.‘* Ironically, the urgent need to build capacity at the local level comes at a time when it appears that some of the private foundations that helped create the ICPD agenda may be reducing their overall support to the field, and others have re-focused on more traditional approaches to family planning. Towards a framework for advancing the reproductive rights agenda To ensure progress toward the goals of the reproductive rights agenda, a framework is needed that encompasses the technical aspects of quality of care, but goes beyond it in several ways. First, the framework must ask: In what ways must existing family planning programmes be transformed so that these can help ensure that women and men can engage in sexual intercourse free from the fear of unwanted pregnancy, infection and sexual coercion, and with equal negotiating power with their partners? Second, it must take a ‘systems’ approach to programme development, and provide guidance on the integration of both public health and human rights principles at each stage of programme development and execution, ranging from the conceptualisation of programmes and the conduct of research to gather baseline data, through programme execution and service delivery, and onto evaluation and measurement. It must be used to develop an overall plan for the evolution of programmes that can act simultaneously as a guidepost for institutional actors and as a means of holding them accountable for moving forward. Third, it must be universally relevant but specifically applicable. It must be used to transform existing programmes in a manner consistent with broad goals, such as integration and gender equity, but in a manner that is step-wise and progressive, based on specific and clearly articulated objectives that meet local needs -aimed at addressing a core set of priority issues and the achievement of measurable changes in a given setting over a discrete period of time. Understanding what must be done in absolute terms and what can be done relative to a given situation is crucial to recognising good faith efforts and the progressive realisation of a rights framework within programmes. Fourth, the framework must include but extend beyond the purely technical aspects of training for clinic-based service delivery and technical quality to incorporate means for infusing programmes and the people that run them with the ethos of a rights perspective at every level. This means developing approaches to problems that are integral, not additive, e.g. by taking into account in the provision of methods, the potential interplay between contraceptive use, sexual coercion, and risk of infection. It means working with providers in recognising the gender, class and other constraints that not only affect their relationships with clients, but are also likely to influence their own lives and health. It means examining the rights of providers as actors and potential agents of change within institutions as much as it does the rights of clients. The rights agenda requires a fundamentally different perspective on reproductive health programmes and service delivery, as well as fundamentally different approaches to the development of programme goals and objectives, strategies, and evaluation. While the vision of the rights agenda is broad and encompassing, the means to get there can be incremental and achievable. What is needed are long-term commitments by institutional actors to working with civil society to achieve these goals, and a reciprocal commitment by civil society actors to engage with institutions proactively, while maintaining their independence and ability to advocate for change from outside the health system. Acknowledgements The analysis presented here is based largely on work conducted by the Center for Health and Gender Equity (CHANGE) over the past several years in monitoring implementation of the health and rights agenda by international donor agencies supported by the United States government in various country settings. As such, it is inffu- Reproductive enced by m’duals, the thinking including whose unwavering health and emotional rights and those work within commitment I have drawn support. of many CHANCE, HeaJtJl Matters, indi- Correspondence from Jodi L Jacobson, Center to reproductive Equity, 6930 Carroll intellectual 20912, USA. Phone: and 270-2052. E-mail: 8, No. for Health Avenue, l-301 Vol. Takoma 270-1182. 1.5, &Jay and Gender Park, Fax: 2000 Md. l-301 jjacobson@genderhealth.org References and Notes 1. Germain A et al, 1994. Setting a new agenda: sexual and reproductive health and rights. In: Population Policies Reconsidered: Health, Empowerment, and Rights. G Sen et al (eds). Harvard School of Public Health, Cambridge MA. 2. See, for example: Bruce J, 1989. Fundamental Elements of the Quality of Care: A Simple Framework. Population Council, New York; Germain A, Ordway J, 1989. Population Control and Women’s Health: Balancing the Scales. International Women’s Health Coalition, New York. 3. Jain A, 1995. Implementing the ICPD’s message. Studies in FamilyPlanning. 26(5):296-g& 4. Correa S, Petchesky R, 1994. Reproductive and sexual rights: a feminist perspective. In: Population Policies Reconsidered: Health, Empowerment, and Rights. G Sen et al (eds). Harvard School of Public Health, Cambridge MA. 5. These observations are based on research conducted in Mexico by myself and others between 1997 and 2000 for the Center for Health and Gender Equity (CHANGE), and by our partners in Mexico, including Monica Jasis, co-director, Centro Mujeres, Baja California Sur. During this period, we have been involved in conducting research on constraints to informed choice and consent in Mexico, and in monitoring the activities of both the government and donor agencies in addressing these issues. Unpublished data collected by CONAPO and funded by several external donor agencies (presented in a meeting with CONAPO officials at which CHANGE representatives were present) reveal that problems with choice and consent are widespread in the Mexican programme, and are particularly entrenched within particular segments of the public sector programme. Qualitative research and programme analyses indicate that the problems of choice and consent are most obvious in clinical settings, but have deep roots in cultural, economic, and class-based constraints on women’s lives. These issues are to be explored more fully in a forthcoming case study of reproductive health programmes in Mexico to be published by CHANGE in 2000. United Nations Population Fund, 1996. Evaluation Repoti: Quality of Family Planning Services. No. 8. New York. Johns Hopkins University and the Center for Health and Gender Equity, 1999. Ending violence against women. Population Reports. 24(4). Jain A, Bruce J, 1994. A reproductive health approach to the objectives and assessment of family planning programs. In: Population Policies Reconsidered: Health, Empowerment, andRights. G Sen et al (eds). Harvard School of Public Health, Cambridge MA. Freedman L, 1996. The challenge of fundamentalisms. Reproductive Health Matters. 4(8): 55-69. 10. Observations based on documents reviewed during meetings and participation by CHANGE in the Inter-Agency Gender Working Group, 1997 to the present. 11. United States Agency for International Development, 1999. From Commitment to Action: Meeting the Challenge of ICPD. Washington DC. 12. See, for example, O’Reilly K, Dehne K, Snow R, 1999. Should management of sexually transmitted infections be integrated into family planning services: evidence and challenges. Reproductive Health Matters 7(14):49-59. 13. Girard F, 1999. Cairo + Five: reviewing progress for women five years after the International Conference on Population and Development. Journal of Women’s Health and Law. l(l):l-14. 14. Based on experience of CHANGE staff and drawn from numerous discussions and meetings in the period 1997. 2000. 15. Yamin A, Maine D, 1999. Maternal mortality as a human rights issue: measuring compliance with international treaty obligations. Human Rights Quarterly. 21(3):565-607. 16. O’Reilly, K. Personal communication, March 2000. 17. Center for Health and Gender Equity, Population Council, 1999. The Implications ofHealth Sector Reforms for Reproductive Rights and Health. Report from a meeting of the Working Group on Reproductive Health and Family Planning. World Bank, 14-15 December, 31 Jacobson Washington DC. 18. Sethi G, 1997. Administrative decentralization as a strategy to improve the quality and responsiveness of social services: the Panchayati Raj and reproductive health in India. Paper presented at Accountability Mechanisms: Marking Progress in the R&urn6 De recents accords internationaux demandent de faire passer les programmes de planification familiale d’objectifs demographiques a la promotion d’objectifs de Sante et de droits. Les consequences pratiques de l’association de principes de Sante et de droits de l’homme dans les programmes actuels et futurs demeurent neanmoins peu claires. Les ressources de Sante publique sont allouees selon les priori& qui refletent la capacite de prevenir la maladie et de reduire sa prevalence et son incidence dans une population. Les methodologies des droits de l’homme portent sur la protection des droits des individus, et le droit a la Sante et aux soins de Sante. Les plus importants obstacles a la realisation dun programme en faveur des droits sont la pauvrete, le manque de conditions propices et d’investissement social, et l’absence d’environnements institutionnels et politiques pouvant soutenir, promouvoir et proteger les droits. Ces dernieres annees, des politiciens d’extreme droite aux USA ont utilise les programmes des droits de l’homme a leurs propres fins et ont fix6 comme l’une de leurs priorites de vider de sens les programmes de planification familiale. Appliquer un cadre de droits aux programmes de Sante genesique signifie se centrer autant sur le processus que sur le resultat, c’est-a-dire qu’en plus de proposer des methodes contraceptives, cette approche peut offrir une education en Sante genesique a assise communautaire, un appui communautaire pour la Sante et les droits genesiques, et l’emploi dune variete de strategies de communication pour transmettre un sentiment de legitimite dans la population et etablir de nouvelles normes sociales encourageant le partenariat, la communication et la cooperation. Elle doit assurer non seulement la qualite technique des services proposes en dispensaire, mais aussi introduire l’ethique dune perspective de droits a tous les niveaux. Implementation of ICPD, Working Group on Reproductive Health and Family Planning, Ford Foundation, New York, 9-10 April. Resumen Recientes acuerdos internacionales hacen un llamado a la transformacidn de 10s programas de planificacion familiar desde un enfoque en las metas demograficas a la promotion de 10s objetivos de salud y 10s derechos. Sin embargo, no estan claras las consecuencias que tendria la union de 10s principios de salud y 10s derechos humanos en 10s programas actuales y futuros. Los recursos de la salud publica son distribuidos de acuerdo con prioridades que reflejan la capacidad de prevenir enfermedades y disminuir la prevalencia e incidencia de enfermedades en la poblacibn. Las metodologias de derechos humanos estan enfocados en la protection de 10s derechos de las personas, y el derecho a la salud Los obstticulos y la atencion en salud. principales a la realization de una agenda de derechos son la pobreza, la falta de condiciones habilitantes y la inversion social, y la ausencia de institucionales y politicos que ambientes apoyan, promuevan y protegen 10s derechos. En adios recientes, 10s politicos de la ultraderecha en 10s EE.UU. han usado la agenda de derechos humanos para sus propios fines y han hecho de1 desfinanciamiento de 10s programas de planificacion familiar una de sus mayores prioridades. Aplicar un marco de derechos a 10s programas de salud reproductiva significa enfocar tanto en el proceso corn0 en 10s resultados, i.e. ademas de ofrecer metodos antieste enfoque podria tambien conceptivos, ofrecer education en salud reproductiva a nivel comunitario, construil- apoyo comunitario para la salud y 10s derechos reproductivos, y usar una variedad de estrategias comunicacionales para infundir un sentido de derecho propio entre la gente y establecer nuevas normas sociales que fomenten las asociaciones, la comunicacion y la cooperation. Debe incluir no solamente la calidad tecnica de la provision de 10s servicios clinicos sino incorporar ademas una perspectiva de derecho a todo nivel.