Introduction to the Summary Care Record (SCR) • Upload Module SCR Concept Training Upload Module Presentation v0.01 05-08-14 Contents Introduction to the SCR Content of the SCR Informing Patients Patient Choice Consent Model Recording Consent Security Practice Activities Viewing SCRs How the SCR looks Further Information What is the SCR? The SCR is: • • • • An electronic patient summary containing key clinical information Accessible by authorised healthcare staff treating patients in urgent or emergency care settings Optional - a patient can choose to have or not have an SCR Only accessible with permission from the patient (except for exceptional circumstances e.g. emergency access if the patient is unconscious) Home Purpose of the Summary Care Record • • To improve the safety and quality of patient care by providing key clinical information to healthcare staff in urgent and emergency situations. For example, when a patient needs care at an Emergency Department or Out of Hours service Home Benefits of Summary Care Records • Improving Patient Safety - supporting safer and more informed prescribing by providing timely access to accurate information • Improving the Efficiency of Patient Care reducing the time, effort and resources required to obtain this information from the patient’s GP surgery • Improving the Effectiveness of Patient Care supporting the delivery of appropriate care to patients • Improving Patient Experience - reducing the requirement on the patient to recall / repeat their medication information and supporting people with difficulties communicating Home Content of the SCR SCR Content – Core Data • • The SCR is generated with clinical information provided by the patient’s registered GP practice The SCR consists of the following core data items: 1. Allergies 2. Adverse Reactions • 3. Medication (Repeat, Acute and Discontinued Repeats) as per the patients prescription(s) When a GP practice is live with SCR any changes made to these core data items will be updated in the SCR automatically Home SCR Content – Additional Information • Additional clinical information over and above the core data items can be added to the SCR by the patients GP with express patient permission • Examples of information added to the SCR include: • Significant diagnoses • Care plan information (e.g. end of life, long term conditions) • Any other information that is considered relevant by the patient and GP, such as patient preferences Patients are in control of their SCR and must provide consent for additional information to be added. Home SCR content GP Summary Update GP Summary containing: Containing: • Medication •Core Data or • Allergies • Adverse reactions •Core Data & Additional Information GP Practice Home Informing Patients Public Information Programme • The Public Information Programme (PIP) was an information campaign co-ordinated by the Health Organisation to inform patients, the public and NHS staff about the SCR and the choices available. The PIP lasted a minimum of 12 weeks Home PIP in GP Practices In addition to the patient information pack sent to all patients over 16 years of age registered with a GP and to ensure that patients are adequately informed about SCR, the practices should have: • • • • • Informed patients that the SCR is available Made posters available Made opt out forms available Answered patient queries Have a New Patient registration process Home Patient Choice Patient Choice • Creation of an SCR – – • Patients can choose whether or not to have an SCR Patients can change their mind at any time by informing their GP practice Content of the SCR – – Patients can choose if they want additional information added to their SCR Patients can choose which additional information they want adding to their SCR Home Patient Choice - continued • Viewing an SCR – – – Home Patients are asked for their permission every time healthcare staff need to view their record Permission to view can be asked and granted for a group of healthcare staff e.g. an Emergency Department clinical team If a patient is unable to grant permission to view e.g. they are unconscious, a clinician may choose to use emergency access to view the SCR if they believe it to be in the patient’s best interests SCR Consent Model Creating the Record: Do you want a Summary Care Record? YES NO Do nothing and a record will be created for you. Inform your GP Practice of your choice and no record will be created. Viewing the Record: Can I/we look at your Summary Care Record? When you present for care, you will be asked* if your record can be viewed. Home *In an emergency where you are unable to be asked, or certain medical/legal circumstances (such as Court Order) the clinicians involved in your care may access the record without asking. All such actions will be recorded for investigation. Informed implied consent: Do you want to have a Summary Care Record? YES Do nothing and a record will be created for you. Home NO Inform your GP Practice of your choice and no record will be created. Yes • Following the Public Information Programme, where a patient has decided that they want an SCR and have not opted out, a record was created containing a GP summary with the patient’s core clinical details of medication, allergies and adverse reactions. Home Yes (additional information) • • Once a patient has an SCR, additional information can be added to the SCR. This is only with the explicit consent of the patient A discussion will take place between the patient and the practice before any additional information is added Home No (patient informs GP Practice) • • Patient has decided they do NOT want an SCR to be created and has returned an opt out form to their practice A patient can change their mind at any time Home Recording SCR Consent Recording Consent Consent preferences can be recorded in two ways: 1. By adding the relevant code manually to a patient’s record 2. By using the GP practice systems’ SCR consent management screens In each case, only the latest value will be referenced to control the flow of information to the SCR Home Codes for patient preferences SCR Patient Consent Preference CTV3 Read Code Term Effect on content of SCR code Code Implied consent for medication, XaXbX 9Ndl allergies, and adverse reactions only Implied consent The SCR will ONLY for core SCR contain: medication, dataset upload allergies and adverse reactions Express consent for medication, XaXbY 9Ndm allergies, and adverse reactions only Express consent for core SCR dataset upload The SCR will ONLY contain: medication, allergies and adverse reactions Express consent for medication, XaXbZ 9Ndn allergies, adverse reactions, and additional information Express consent for core and additional SCR dataset upload The SCR will contain; medication, allergies and adverse reactions plus any additional information Express dissent (opted out) Patient does not want a Summary Care Record Express dissent No SCR exists for SCR dataset upload Home XaXj6 9Ndo Security of the SCR Security of the SCR • • In order to maintain the security of the SCR security measures are in place to control access These can be grouped into three categories: 1. Technology – controls embedded in the systems 2. Organisational – controls embedded in the NHS 3. Individual user – appropriate staff conduct Home Technology Security Measures • • • • • Secure NHS Network (N3) Smartcards - are needed to view and update SCRs Role Based Access Controls (RBAC) - ensures that only appropriate staff can view and create records Legitimate Relationships – ensure that only healthcare staff involved in the patient’s care can view their record Permission to View - gives patients control of access to their record at the point of care Every action that a user takes is audited Home Organisational Security Measures • • • • • • Legislation e.g. Data Protection Act Caldicott Principles Care Record Guarantee Local Information Governance policies and procedures Contractual measures e.g. confidentiality clauses in employment contracts Training Existing organisational security measures apply to the access of SCRs Home Individual user based Security Measures • • • • • • • Adherence to Smartcard usage policy Existence of legitimate relationships Asking for permission to view (where applicable) NHS duty to patient confidentiality Professional codes of conduct Contractual requirements Adherence to organisational security measures Home Security Measures Organisational measures Contracts Policies Procedures Legislation Training Technology measures Legitimate Relationships Permission to View RBAC Smartcards Home Individual behaviours Smartcard Usage Confidentiality Professional standards Contracts Permission to View Policies Creating an SCR When will my Practice start creating SCRs? A Practice will only start creating SCRs (go live) when: • • • There is agreement between the Practice and the Health Organisation to take part Once the practice and the Health Organisation agree that patients have been adequately informed about the process and properly enabled to opt out should they wish They have a GP system that is compliant with SCR Home What happens before we go live? Within your Health Organisation there should be an SCR lead who will work with your site to ensure: • • • • • • All of the appropriate technical checks are carried out All of the staff within the practice are trained All of the staff within the practice have received the information to enable them to deal with any queries patients may have about SCR All staff are compliant with local best practice e.g. Patient Demographic (PDS) information management The appropriate data quality standard is reached The new patient process is operational Home What happens when we go live? • There will be an “initial upload” of the three key core • • data items (allergies, adverse reactions & current medications) for each eligible patient who has not opted out of having an SCR This is a one off event How this upload happens is different but in all circumstances: • The upload will be scheduled at a time convenient for the practice • You will be consulted about all activities being carried out at the site and who will be undertaking them • You will be supported by your system supplier and/or Health Organisation Home What happens after we go live? • Staff must follow all of the processes that were • • • explained during the training e.g. using smartcards If staff believe that the system is not working as it should be then they should follow normal escalation processes Always ensure that there are patient packs with opt outs, on site to give to patients that register with the practice Should practice staff receive a query that they cannot answer they should contact the Health Organisation Home How are SCRs updated? After the initial upload, SCRs are updated every time: • • a change is made to the core data set an additional data item is marked to be included or excluded from the patient’s SCR e.g. a diagnosis (This only results in an SCR update if the patient is set to explicit consent) Updates are only made if the user is authenticated with their smartcard and the patient’s local demographic details are matched to the PDS The SCR is date and time stamped so that anyone viewing the SCR knows the date and time it was last updated Home Creating the Record: Do you want a Summary Care Record? YES NO Do nothing and a record will be created for you. Inform your GP Practice of your choice and no record will be created. Viewing the Record: Can I/we look at your Summary Care Record? When you present for care, you will be asked* if your record can be viewed. *In an emergency where you are unable to be asked, or certain medical/legal circumstances (such as Court Order) the clinicians involved in your care may access the record without asking. All such actions will be recorded for investigation. Yes • Following the Public Information Programme, where a patient has decided that they want an SCR and have not opted out, a record will be created containing a GP summary with the patient’s core clinical details of medication, allergies and adverse reactions. Home Yes (additional information) • • Once a patient has an SCR, additional information can be added to the SCR only with the explicit consent of the patient A discussion will take place between the patient and the practice before any additional information is added Home No (patient informs GP Practice) • • Patient has decided they do NOT want an SCR to be created and has returned an opt out form to their practice A patient can change their mind at any time Home Practice Activities Practice Activities The following activities need to be considered when implementing the SCR: • • • • • • • • • Nominating a Practice Expert Managing Data Quality Managing PDS Information Consistent use of Smartcards Managing Patients Preferences Supporting Children & Vulnerable Adults Viewing SCR for Temporary Resident Patients Dealing with SCR Deletion Requests New Patient Registration Home Nominating a Practice Expert • Some practices have found benefit in having a member of staff who acts as an SCR expert and/or a single point of contact. This means that they can deal with: • • • Difficult or complex queries Discuss GP Summary content Support other practice staff Home Managing Data Quality • • • National SCR Data Quality Standards exist to ensure that GP practices have reached a minimum data quality standard before going live with SCR The implementation of these data quality standards are managed locally by the Health Organisation Your Health Organisation will be able to advise what is required to meet and maintain those standards Home Managing PDS Information • • • Patient demographic information held by the GP IT system must match that held in the Patient Demographic Service (PDS) for SCRs to be updated This is known as PDS synchronisation Where discrepancies exist, they need to be resolved to enable clinical information to be sent to the SCR Home Consistent use of Smartcards • • • A Smartcard is required to: • • Trigger the initial upload Maintain/send any updates to existing SCRs When a user of a GP IT System is not logged on with a valid Smartcard, the GP system will not be able to connect to the spine, update the PDS or SCR A process is required to ensure that patient records accessed by staff who don’t have a Smartcard (e.g. new starters or locums) are then updated and sent to the SCR Home Supporting Children & Vulnerable Adults • • • • • Children DO get an SCR but do not get a letter Children and vulnerable adults can be opted out Guidance and legislation exists to support GPs decision making regarding supporting children and patients who may lack capacity For children this may include assessing their competence (known as Gillick competence) and considering their best interests For adults who may lack capacity, the Mental Capacity Act should be referenced Home Viewing SCR for Temporary Resident Patients • • A practice may feel that there is benefit in viewing SCR to support clinical care for patients that are temporarily registered with the practice Your Health Organisation will be able to assist if this is required Home Dealing with SCR Deletion Requests • • • • Once a record has been created it is possible for a patient to request that it is deleted Patients should contact their GP practice if they wish to request that their record is deleted The practice should contact the Health Organisation with this request An investigation then takes place to see if the SCR has been used • • If the record has not been used it can be deleted If the record has been used it cannot be deleted Home New Patient Registration Upon joining a new practice a patient should be given the option of opting out of the SCR. The practice should: • Record the patients consent preference • Check the existing Live SCR during the summarizing process • Enter any relevant information from the Live SCR onto the Local summary. Ensuring a record with additional information is not superseded with a core only record Home Viewing an SCR Permission to View Can I/we look at your Summary Care Record? When you present for care, you will be asked if your record can be viewed. Viewing an SCR • • The SCR can be viewed by authorised healthcare staff in urgent and emergency care settings In order to a view an SCR, a clinician must: – Use an NHS computer – Use their NHS Smartcard with their passcode – Have the appropriate Role Based Access Control (RBAC) – Have a legitimate relationship with a patient – Ask a patient for their permission to view their record Home Permission to View Principles • • • Patients are asked every time their record is accessed Designed to allow a flexible approach to asking permission e.g. clinicians or administrative staff may request permission individually or on behalf of a clinical team If a patient is unable to grant permission to view e.g. they are unconscious, a clinician can use emergency access to view the SCR if they believe it to be in the patient’s best interests Home Viewing an SCR An SCR can be viewed in the following ways: 1. Summary Care Record Application (SCRa) – a stand alone web based application 2. Through integration with their existing clinical system, for example the Adastra Out of hours system, Emis Web GP Software, TPP GP software Home Viewing the SCR May we view your SCR? YES NO Healthcare Emergency staff Care With the patient’s permission to view the healthcare staff member SUMMARY will be able toCARE viewRECORD the contents of If a patient says NO their SCR the SCR should not be accessed Patient Home How the SCR looks… Core Information in an SCR Time and date is clearly visible indicating when the GP Practice last shared this summary Medications, allergies and adverse reactions Home Additional information in an SCR Additional information added Home What does it look like if the patient is no longer registered? • When a patient leaves (deregisters) from their GP • • practice, a note is added to their SCR to indicate that the patient left the practice This disclaimer is added to the banner at the top of the SCR stating that the practice no longer has the responsibility for that patient Below is an example of the note that is added to the bottom of the SCR: Home Summary of Activities Let your GP Practice know your decision to opt out (mail back the opt freepost) Don’t doform anything and and one they will will Your name out Address opt you outfor in their Address be created you! system, Postcode ensuring an SCR is not created for you. Following the end of the Public Information Programme… The creation of SCRs will only take place when a practice and their Health Organisation agree that patients have NoYes - I don’t – I want want aI’ve aWhat Decision should made considered I do? my options. been informed andallenabled toRecord opt out Summary Care Practice meets Data Quality andshould Technical requirements and they wish. SCR CREATION HO Authorised to ‘Go Live’ FP69 GP Practice Home Patient Summary - SCR Your name Address Address Postcode Permission to View granted Patient GP Summary Update Containing: GP Summary Update Containing: •Core Data or •Core Data or •Core Data & Additional Information •Core Data & Additional Information GP Practice Min 12 weeks to decide Home Emergency Care Further Information More Information • GP Practice Support http://systems.hscic.gov.uk/scr/staff/gppracinfo • Data Quality http://systems.hscic.gov.uk/scr/staff/impguidpm/dq • Frequently Asked Questions http://systems.hscic.gov.uk/scr/staff/gppracinfo • SCR Main Site http://systems.hscic.gov.uk/scr Home