HSHS St. Nicholas Hospital cancer program annual report 2015 “We are all instruments in the Master’s hands” — Larry Wieberdink, cancer survivor HSHS St. Nicholas Hospital was one of 74 hospitals across the United States and one of three hospitals in Wisconsin to receive the Outstanding Achievement Award. Outstanding Achievement Award When the Cancer Program at HSHS St. Nicholas Hospital was last surveyed by the American College of Surgeons Commission on Cancer, it was one of 74 hospitals across the United States and one of three hospitals in Wisconsin to receive the Outstanding Achievement Award. The award recognizes cancer programs that achieve excellence in providing quality care to cancer patients. “These 74 cancer programs currently represent the best of the best when it comes to cancer care,” said Daniel P. McKellar, MD, FACS, and Chair of the Commission on Cancer. “Each of these facilities is not just meeting nationally recognized standards, they are exceeding them.” HSHS St. Nicholas Hospital’s cancer program was evaluated on 34 program standards in five areas: cancer committee leadership, cancer data management, cancer conferences, clinical services and quality improvement. The statistic is sobering. Yet there are also very promising statistics, such as: •Over 14 million people are living in the U.S. with a previous diagnosis of cancer •The overall cancer death rate (for all types of cancer combined) has declined since the early 1990’s Through advances in detection and treatment we are creating more cancer survivors. That means more holidays and special moments with loved ones, more opportunities to contribute to our society, and more people helping us learn how to fight back against their disease through clinical research studies. In past decades, most of the focus was on treating the cancer — winning the battle. What we learned as a result of that success is that patients are often left with ‘battle scars’ that impact the quality of their lives after treatment. Today, in addition to the continued focus on beating the disease, there is more and more focus placed on the residual effects of cancer and its treatment. We want to not only help people survive their cancer, but to enjoy their life after treatment has ended. At HSHS St. Nicholas Hospital, our cancer program has implemented the AnewSM Cancer Survivorship Program, focused on helping people with cancer regain energy, mobility and spirit. As many as 90 percent of people treated for cancer have some residual effect that can benefit from our AnewSM services. Whether it is lingering fatigue, lack of flexibility, emotional concerns, or ‘chemo brain’, there are AnewSM services to help. In the spirit of celebrating cancer survivorship and quality of life, we created this year’s annual report as a calendar with a focus on some of our patients who are enjoying life as a cancer survivor — day after day, month after month. We are extremely grateful for their willingness to be a part of this report and we hope you will enjoy the information provided. If you have any questions, please feel free to contact me directly. Sincerely, — S. Mark Bettag, MD S. Mark Bettag, MD Sheboygan Physicians Group, SC Sheboygan Cancer & Blood Specialists Sally Luehring, MSL Executive Director, Cancer Services HSHS Division - Eastern Wisconsin Sally.Luehring@hshs.org 2 | Cancer program annual report 2015 “We are proud to have received this award because it recognizes the quality of cancer care provided at HSHS St. Nicholas Hospital and demonstrates our commitment to delivering exceptional, quality care and service to our community on a daily basis.” 1 in 2 Men; 1 in 3 Women will be diagnosed with cancer. The HSHS St. Nicholas Cancer Program is improving cancer care for Sheboygan and its surrounding communities. This cancer program encompasses the full continuum of services including prevention, early detection, treatment, supportive services, surveillance and follow-up. This report demonstrates our commitment to enhance the quality of care and value of services for our patients. HSHS St. Nicholas Hospital Cancer Program Services 59 Breast 32 Prostate Blood & Lymphoma 29 Urinary 25 Respiratory 25 23 Other 20 Colorectal Other Digestive 17 14 Gynecologic Brain & Central Nervous System 8 Head & Neck 8 Other Male Genital 2 0 10 20 30 40 50 Total Cases = 262 60 70 3 | Cancer program annual report 2015 Diagnostic Testing Inpatient/Outpatient Oncology Nurse Navigator Imaging Services •Chemotherapy administration •Answer questions and provide education about cancer care •Digital mammography •Blood and platelet transfusions and diagnosis •Stereotactic breast biopsy •Blood draws for laboratory •Identify & connect you with testing •Needle localization resources •Computerized tomography (CT) •Clinical trials •Guide & empower you as you •Access/flushing of PICC lines •Ultrasound make decisions & ports •Magnetic resonance imaging •Streamline care transitions; •Infusions & injections of (MRI) follow through the cancer supportive medications •Positron emission tomography continuum •Therapeutic phlebotomy (PET) •Provide support & advocate •Nuclear medicine Radiation Oncology during treatment •PICC (peripherally inserted •3-dimensional conformal Support Services central catheter) insertions therapy •Home health care •Thoracentesis, paracentesis, •Brachytherapy & aspirations •Image guided radiation therapy •Hospice •Intrathecal Chemotherapy •Palliative care (IGRT) •AnewSM Cancer Survivorship •Intensity modulated radiation Pathology Program (See the article in the therapy (IMRT) •Laboratory back of the calendar.) •Superficial skin cancer radiation •Specialized staining for •Nutritional counseling treatment cancer diagnosis •Social work services •Therapeutic radioisotopes Center for Digestive Health •Spiritual support Surgery •Colonoscopy •Health & wellness programs •Inpatient surgery •Upper Endoscopy •Loan cupboard for wigs/ •Minimally invasive surgery headwear •Outpatient surgery •Sentinel node biopsy HSHS St. Nicholas Hospital 2014 Incidence of Cancer by Primary Site Doris Gartman “Beyond the science, technology and care, I owe my survival to my upbringing, faith, family, friends and the Lord. Our family was wonderful in making sure we were okay, bringing meals, support and smiles. I am also thankful for Dr. Bettag, his team of nurses and HSHS St. Nicholas Hospital. Fighting cancer was tough and required support from many people. Each time I announced my progress in church, the congregation applauded. They really held me up! After church one Sunday during my treatment, my interim pastor asked me to pray with him. I will never forget it. ‘Lord,’ he said, ‘I am praying for a miracle.’ Now, nearly six years later, I realize, I am that miracle!” 4 | Cancer program annual report 2015 January 2016 onal i t a N S M W T lth T a e H l a c i v r Ce Awareness Month 3 4 5 6 7 Guidelines for Early Detection of Cervical cancer F S 1 2 8 9 •Women between the ages of 21 and 29 should have a Pap test every 3 years. Human Papilloma Virus (HPV) testing should not be used in this age group unless it is needed after an abnormal Pap test result. •Women between the ages of 30 and 65 should have a Pap test and an HPV test every 5 years. This is the preferred approach, but it is OK to have a Pap test alone every 3 years. •Women over age 65 who have had regular cervical cancer testing in the past 10 years with normal results should not be tested for cervical cancer. Source: American Cancer Society: September 2015 10 17 11 18 12 13 19TLC 20 14 21 Survivorship Session 6 p.m. 24 26 22 Play for PinK 16 23 Sheboygan North High School 27 28 29 30 Cervical cancer mortality rates declined rapidly in the past decades due to prevention and early detection as a result of screening with the Pap test. Together We Live with Cancer (TLC) TLC is a supportive community and welcomes all area cancer patients/survivors and co-survivors. Dr. H. Marshall Matthews (Matthews Oncology Associates) and Dr. S. Mark Bettag (Sheboygan Cancer & Blood Specialists) sponsor TLC, which includes: TLC Monthly “Survivorship Sessions” are open to anyone experiencing cancer who is looking for or willing to offer cancer-related support, encouragement, information and guidance. The TLC Quarterly Supportive Newsletter is a FREE supportive newsletter sent to area cancer survivors. TLC “Survivorship Can Be Fun” Gatherings offer cancer survivors the opportunity to meet and connect with other cancer survivors in fun, casual settings that focuses on life beyond a cancer diagnosis. To learn more, contact Tim E. Renzelmann, MOA/SCBS, Patient Advocate at 920-458-7433 or trenzelmann@physhealthnet.com. 5 | Cancer program annual report 2015 31 25 15 Patricia Carroll “Two months after I moved to Sheboygan from North Carolina to join my son, Roderick, I was diagnosed with breast cancer. Roderick was always there for me. He took a Family and Medical Leave of Absence (FMLA) from work and drove me to my appointments and chemotherapy treatments. However, after nearly five months, his leave ran out and he was not able to take me to radiation therapy treatments. That is when we learned about the American Cancer Society’s (ACS) Road to Recovery program and met volunteer drivers, John Pierce and Susan Prater. Roderick, John, Susan, the people at Dr. Bettag’s office and HSHS St. Nicholas Hospital gave me the encouragement I needed. I could not ask for better support or care. Today, I no longer feel alone, like a stranger in a new place. I’m enjoying my new friends, John and Susan, and am grateful for the care I received. I am most appreciative of my son, Roderick. He is my rock.” 6 | Cancer program annual report 2015 February 2016 S M T W T F S In 2015, HSHS St. Nicholas Hospital Cancer Program colleagues reached out to more than 2,500 community members at local health fairs and awareness events. 1 2 3 4 5 6 During these presentations, colleagues discussed six lifestyle changes for preventing cancer: LooK Good.. Feel Better 2 p.m. 7 8 World Cancer Day 9 10 11 1. Avoid tobacco. 2.Eat a healthy diet. 12 13 21 22 29 6.Take early detection seriously. 16TL 17 19 20 Survivorship Session 6 p.m. Eating Well During Cancer Treatment 4 p.m. 18 23 24 25 26 27 C Nationa Cancer l Prevent i Month on American Cancer Society Trained Cancer Information Specialists are available 24 hours a day, every day of the year to help you learn about the six lifestyle changes above as well as other services/programs. Call 1 (800) 227-2345, or visit www.cancer.org John Pierce and Susan Prater are volunteer drivers for the American Cancer Society’s Road to Recovery, which is a program that provides transportation to and from treatment for people with cancer who do not have a ride or are unable to drive themselves. The HSHS St. Nicholas Hospital AnewSM Cancer Survivorship Program nurses help connect patients to community resources like this one. 7 | Cancer program annual report 2015 28 15 4.Protect yourself from the sun. 5.Limit consumption of alcohol. Living Beyond Prostate Cancer 7 p.m. 14 3.Maintain a healthy weight and include physical activity in your daily routine. Carol Molinaro “Dr. Bettag tells me that I am a miracle! There is no doubt that I would not be here if it were not for Dr. Bettag and Dr. Matthews’ care, Dr. Heili’s surgical expertise and the staff at HSHS St. Nicholas Hospital’s Chemotherapy and Radiation Therapy Departments. However, I believe the power of prayer got me through my survival journey. Family and friends were also supportive especially when I started to feel sorry for myself, or was thinking about giving up. I remember getting a pep talk from my brother when I was feeling especially low. He said, ‘You need to do what they tell you. Fight it because we need you.’ Today I am five years cancer free. I am a survivor who knows how precious life is. Prayer is still an important part of my life as are the love and support from my family and friends. My life is blessed and I give thanks every day for what the Lord provides.” 8 | Cancer program annual report 2015 Myths & Facts about colon cancer screening March 2016 S M T W T F S 1 2 3 4 5 Cancers of the colon and rectum are the third most common cancer in U.S. women and men. Thanks to testing, the good news is that rates of this disease have been falling steadily over the past 20 years. Testing helps find the disease at an earlier stage when it is highly treatable, or can even prevent the disease by finding and removing precancerous polyps. Talk to your doctor about which test is best for you. Testing 6 7 8 9 10 11 12 16 17 18 19 International Women’s Day 13 14 15TL C Survivorship Session 6 p.m. 20 21 22 23 24 25 26 Starting at age 50, both men and women should follow one of these testing plans: Tests that find polyps and cancer •Flexible sigmoidoscopy every 5 years*, or •Colonoscopy every 10 years, or •Double-contrast barium enema every 5 years*, or •CT colonography (virtual colonoscopy) every 5 years* Tests that mostly find cancer •Yearly guaiac-based fecal occult blood test (gFOBT)**, or •Yearly fecal immunochemical test (FIT)**, or •Stool DNA test (sDNA), every 3 years* *If the test is positive, a colonoscopy should be done. **The multiple stool take-home test should be used. One test done in the office is not enough. A colonoscopy should be done if the test is positive. Source: American Cancer Society: Guidelines for the Early Detection of Cancer, September 2015 29 30 31 Number of Patients Easter 28 10 8 6 4 2 0 9 4 4 2 Stage 0 Stage I 1 Stage II Stage III AJCC Stage * American Joint Committee on Cancer Stage IV 9 | Cancer program annual report 2015 27 ancer C l a t c e r lo o C Awareness Month HSHS St. Nicholas Hospital 2014 Colorectal Cases by AJCC* Stage at Diagnosis Neng Yang When Neng Yang heard the word cancer, he was scared. “All I could think about was my wife and four children — they still needed me.” Neng is a refugee from Laos. He moved to the United States in 1988 and arrived in Sheboygan by the time he turned 13. Of all the things he endured, a diagnosis of cancer was the most frightening. “I am thankful for the doctors and nurses who gave me the medical care and reassurance I needed. I am fortunate to live in America where medicine and technology is so advanced. Most of all, I am here today because of the love and support of my family. I now have the time I wanted with my family; I could not have hoped for more!” 10 | Cancer program annual report 2015 Clinical Research April 2016 cer National Caonnth S T W T rol M ContM ticular National Tweasreness Cancer A th M on 3 4 5 6 LooK Good.. Feel Better 2 p.m. 10 11 25 1 2 Since the beginning of the program at HSHS St. Nicholas Hospital, 50 patients have participated in a clinical trial. One of those patients who participated in a clinical trial was Neng Yang. 7 8 9 12 13 14 15 16 National Oral, Head and NecK Cancer Awareness WeeK 19 TLC Survivorship Session 6 p.m. 26 20 27 21 28 SKin Cancer Screening 4 p.m., call (920) 433-8488 for appointment 22 29 23 30 During his treatment at HSHS St. Nicholas Hospital Cancer Center, Yang participated in a clinical trial created to determine whether a drug named sulfasalazine would help prevent or reduce symptoms commonly associated with radiation treatment to the pelvic area. The clinical trial required him to take the drug every day throughout his radiation treatment and complete weekly questionnaires to determine whether the medication was managing his symptoms. Final results of this clinical trial will be published soon. The National Cancer Institute Community Oncology Research Program The National Cancer Institute (NCI) Community Oncology Research Program (NCORP) has a grant program that allows community cancer care teams to offer clinical trials at their institutions. The Cancer Research Institute at HSHS St. Vincent Hospital Regional Cancer Center in partnership with Marshfield Clinic and Gunderson Lutheran is one of 34 sites nation-wide to participate in this NCORP grant program. “This partnership allows us, at HSHS St. Nicholas Hospital, to participate in this network and offer progressive clinical trials to our patients, in our own community,” said Brenda Davies, Clinical Research Associate. 11 | Cancer program annual report 2015 24 18 S World Health Day Living Beyond Prostate Cancer 7 p.m. 17 F Cancer clinical trials are medical research studies designed to find better ways to test new methods of prevention, screening, diagnosis, symptom management and treatment of cancer. Trials often compare the most accepted cancer treatment with new treatment modalities that doctors believe may be better. Terry Kohler “I was not worried when I learned about my diagnosis. I believe the good Lord has a plan for me and when my work here is finished, He will take me. I also knew I was in good hands at HSHS St. Nicholas Hospital.” Terry is a man known by many — sailors, aviators, entrepreneurs and leaders of industry, politics and economics. As a man of wealth traveling in these circles of influence, he is able to follow God’s plan for him as a philanthropist. “My purpose is to share my wealth by taking an economic role in helping others less fortunate or in need.” Terry is fortunate to have so much, but he is also accountable. “He has given me so much and all God asks is, ‘What will you do with it?’ I try to live my life faithfully, quietly doing the job the Lord assigned me. I am not worried or afraid of dying because I am just an instrument. I will be here until my work for HIM is finished.” 12 | Cancer program annual report 2015 Skin Cancer Prevention May 2016 In the United States, more skin cancers are diagnosed each year than all other cancers combined. S M T W T F S 1 2 3 4 5 6 7 Melanoma Monday If you are going to be in the sun, follow the American Cancer Society’s advice: •Slip on a shirt. •Slop on sunscreen. •Slap on a hat. •Wrap on sunglasses to protect the eyes and skin around them. Mary Hendrickson Johnson (MHJ) Foundation 10 13 14 Number of Skin Cancer Screening Participants 17Eating 18 Well During Cancer 19 20 21 Treatment 3 pm TLC Survivorship Session 6 p.m. 22 30 24 31 World No Tobacco Day 110 26 27 99 90 90 2012 2013 2014 2015 Percentage of First Time Attending 28 S Kin C a Detecti ncer Prevent on and ion Mo nth Cancer Re Monthsearch 104 100 80 25 105 80 75 70 65 60 78.9 76.3 72 67.4 2012 2013 2014 2015 Suspected Malignancies 40 30 20 10 0 34 26 2012 21 2013 26 2014 2015 13 | Cancer program annual report 2015 29 23 The MHJ Foundation supports annual spring Skin Cancer Screenings in northeastern Wisconsin in collaboration with the American Cancer Society and HSHS St. Nicholas Hospital. Number of Participants 16 12 National Women’s Health WeeK National Women’s ChecKup Day 15 11 Percentage 9 Number 8 Mary A. Hughes Mary’s cancer diagnosis was not her first, but her treatment was more difficult due to the location of her cancer and the lymphedema that developed, leaving her in pain and unable to walk great distances without the aid of a wheelchair. Today, thanks to the AnewSM program’s physical and occupational therapists, Mary is nearly pain-free and doing things that mean so much — walking and playing the piano again. “It is hard to believe that I could barely move my fingers and now I can play the piano! There are still things I cannot do, but I am lucky to have a great husband, adult children, grandchildren and great grandchildren who help in so many ways. It is not always easy, but I realize there are many people fighting out there. Some are in life-long battles, so if it takes me a little longer to get back on my feet that is okay. My survival is a journey made easier by my family, the wonderful people at the hospital, Dr. Bettag’s team, self-determination and music.” 14 | Cancer program annual report 2015 Men’s S HeaM lth/Cancer T Awareness Month 5 6 June 2016 7 13 W T F S 1 2 3 4 8 14 15 20 22 11 16 17 18 Space is limited. Watch for an invitation for you and a guest to join us for this special event, or call (920) 433-8488 to register. 25 National Cancer Survivors Day 2015: To celebrate the 125th anniversary of HSHS St. Nicholas Hospital, more than 100 cancer survivors and their guests gathered at a Red Carpet event at Pine Hills Country Club for National Cancer Survivors Day 2015. 23 24 30 14.5 million people living in America are cancer survivors. The HSHS St. Nicholas Hospital Cancer Registry is currently following nearly 2,000 individuals who have been diagnosed with cancer since 1991. 28 29 15 | Cancer program annual report 2015 27 Fascinated by the human spirit and a collector of stories, Brenda interacts with the audience and delivers new ways of thinking about courageous conversations on humor, health and happiness. She understands first-hand the struggles of not enough hours in the day, parenting, owning a business, cancer, weight loss, weight gain and the havoc all these challenges can create with self-esteem, health, serenity and mismatched socks! 10 Survivorship Session 6 p.m. Men’s Health WeeK 26 21TLC Announcing National Cancer Survivors Day Celebration 2016 June 8, 2016 The Bull at Pinehurst Farms, Sheboygan Falls, WI Keynote speaker: Brenda Elsagher Topic: “Celebrate Life with Laughter” 9 Men’s Health WeeK Living Beyond Prostate Cancer 7 p.m. 19 Annually, HSHS St. Nicholas Hospital celebrates National Cancer Survivors Day with a special event. Celebration of National Cancer Survivors Day at The Bull LooK Good.. National Cancer Feel Better Survivors Day 2 p.m. 12 National Cancer Survivors Day Celebration Larry Wieberdink When Larry learned he had cancer, he did something ‘guys’ don’t do. He joined the Living Beyond Prostate Cancer Support Group. “I realized I was not alone and there was tremendous benefit in talking about my concerns.” Larry is an active man. He paddles canoes and kayaks, hikes and backpacks with his outdoor enthusiast buddies. When he began experiencing inconvenient symptoms, he tried Eastern medicine — acupuncture and Tai Chi. “The Tai Chi helped reduce my stress and the ability to center my thoughts, but neither offered relief from the problem. Then, I realized I should be grateful for who and what I am now, rather than who and what I was. That is when I placed myself in the Lord’s hands.” Survival is a tremendous gift and Larry celebrates every time he paddles, hikes, meets his bible study group, or attends a support group meeting. “I am guided by the hand of the Lord; I am grateful for and celebrate each day!” 16 | Cancer program annual report 2015 S UVMSaf Monthety July 2016 F S 1 2 3 8 9 10 4 11 T 5 12 W 6 13 T Imaging Services 7 14 15 16 Imaging Services at HSHS St. Nicholas Hospital provides complete radiologic testing. In the detection and diagnosis of cancer, the role of Radiology has grown significantly over the years. Today, radiologists are able to take tissue biopsies using CT, ultrasound, X-rays and mammogram technologies. “We have multiple modalities we can use for obtaining tissue samples,” said Meghan Hanson, MD, Diagnostic Radiologist, Green Bay Radiology, HSHS St. Nicholas Hospital Imaging Services. For example, to biopsy a lung mass, the CT scanner is used to guide a needle to the concerning area. To biopsy a liver mass, the radiologist uses ultrasound for guiding the needle. “In the past, for some biopsies, patients had to be put to sleep and have surgery. Now, in many cases, we can perform the biopsy more simply in Radiology and in most cases the patient goes home the same day.” — Meghan Hanson, MD 17 18 19TLC 20 21 22 23 Survivorship Session 6 p.m. 24 26 27 28 29 30 The mammography program at HSHS St. Nicholas Hospital is accredited by the American College of Radiology and Mammography Quality Standards Act, and Ultrasound Services are accredited by the American College of Radiology. A mobile PET/CT Scan is also available. “This is a nuclear medicine test that helps us stage a patient’s specific disease, along with CT and MRI,” said Dr. Hanson. PET/CT scans sometimes find tumors that other tests do not so it is complementary to CT and MRI. Radiology is also important in monitoring patients’ cancer during their treatments. “As patients move forward in their treatment, we repeat CT scans, MRIs, and PET/CTs to see if the disease is responding to the therapy and shrinking. PET/CT give us more information on follow-up than just the size of the tumor. Specifically, these scans help us determine if there is active tumor versus scarring from the patient’s therapy,” said Dr. Hanson. 17 | Cancer program annual report 2015 31 25 After a patient is diagnosed with cancer, whether by a biopsy performed by a radiologist or by another doctor, they undergo a series of imaging tests, including CT and MRI, to “stage” their cancer, or see if and where the cancer has spread. Robert and Sandy Steinbruecker Imagine learning your cancer recurred just as your wife is completing her own radiation therapy! That is the story of two remarkable survivors, Robert and Sandy Steinbruecker. When asked what helped them on their survival journey they answered in one breath, “Each other.” “I got through my surgery and radiation because of Bob’s love and understanding. He knew what I was going through,” said Sandy. “Then with an unrelated health concern, I learned my cancer was back and I needed radiation,” added Robert. If there is anything good that came from the journey both Bob and Sandy had to travel, it is that they came out of it closer than before. One of their great pastimes is riding on their Harley Davidson trike. It takes them on wonderful adventures through beautiful countryside. Without each other, their family, friends, Dr. Matthews, the amazing radiation therapists and Dr. Minehan at HSHS St. Nicholas Hospital, their ride would not have been the same. What a pair! What a ride! 18 | Cancer program annual report 2015 Pathology August 2016 Prevea Pathology at HSHS St. Nicholas Hospital has a significant role in the cancer continuum of care. S M T W T F S 1 2 3 4 5 6 LooK Good.. Feel Better 2 p.m. 7 8 9 10 11 12 13 Living Beyond Prostate Cancer 7 p.m. 14 15 16TL 17 23 24 C 18 19 20 Survivorship Session 6 p.m. 21 29 30 Eating Well During Cancer Treatment 4 p.m. 31 25 26 27 Summe Sun Sa r f Month ety Patients at the HSHS St. Nicholas Hospital Cancer Center benefit from the experience, subspecialty training, and expertise of our pathologists — doctors who specialize in interpreting laboratory tests and evaluating cells, tissues, and organs to prevent, diagnose, and treat disease. To ensure accuracy in their findings, they use state-of-the-art equipment and the most advanced techniques to analyze tissue samples. The pathologist determines the precise type and severity (stage) of the cancer and may work with other members of the patient’s care team to recommend a treatment strategy that could include observation, surgery, chemotherapy, radiation therapy, or a combination of these approaches. “Many people do not realize how many specialty areas of the hospital are on the cancer care team — all working together for one purpose — to ensure that our patients receive the best, most definitive diagnosis and treatment care plan for the best outcome possible,” said Dr. Cutlan. Genetic Counseling Genetic Counseling services, offered through our sister hospital, HSHS St. Vincent Hospital in Green Bay, help identify individuals and families at increased risk for cancer, assist in their medical management and promote awareness, risk assessment, early detection and cancer prevention. Diagnosing a hereditary cancer condition is important because it can change a patient’s medical management. The chance to develop cancer depends on many factors including age, lifestyle and personal and family history. Although most cancer is not hereditary, about 5 to 10 percent of many types of cancers are hereditary. 19 | Cancer program annual report 2015 28 22 “A complete and accurate pathology report is crucial to getting a precise diagnosis and deciding on the best treatment plan for our patients,” said Robert Cutlan, MD, Prevea Pathology, HSHS St. Nicholas Hospital. Rita Nettesheim “When I step into God’s home, leaving the noise outside, I can hear Him speak to me and I am at peace.” Rita is a sacristan for St. John the Evangelist Church in Kohler and Ss. Cyril and Methodius Church in Sheboygan. When diagnosed with cancer she was overwhelmed with the tremendous outpouring of support and prayers from her church family. “I trusted Dr. Bettag and his staff, knowing that physically I was in very good hands. But finding the strength — spiritually, mentally and emotionally — came from my faith, family and church. I am also grateful for the help I received from the Nurse Navigator at HSHS St. Nicholas Hospital. She helped me find the resources to relieve the stress of my financial burden. Today I am a survivor with a different perspective on how I live my life. I feel blessed to wake to a new day and am forever grateful.” 20 | Cancer program annual report 2015 Prostate Cancer September 2016 S te Cancer a t s o r P l a n Natio reneM T onth Awa ss M Lymphoma LeuKemia n&ess Month Aware Cancer Gynecologics Month Awarenes h eness Mont r a w A r e c n a Thyroid C W 4 5 6 T F S 1 2 3 The American Cancer Society recommends that men make an informed decision with their doctor about whether to be tested for prostate cancer. Research has not yet proven that the potential benefits of testing outweigh the harms of testing and treatment. Guidelines for the Early Detection of Prostate Cancer •Starting at age 50, men should talk to their doctor about the pros and cons of testing so they can decide whether testing is the right choice for them. 7 8 9 10 •If you are African American or have a father or brother who had prostate cancer before age 65, talk with your doctor starting at age 45. •If you decide to be tested you should get a PSA blood test with or without a rectal exam. How often you are tested will depend upon your PSA level. 18 12 19 13 20TLC 14 21 15 22 16 23 17 24 HSHS St. Nicholas Hospital 2014 Prostate Cases by Age at Diagnosis Number of Patients 11 20 10 0 50-59 60-69 70-79 Age at Diagnosis 80-89 HSHS St. Nicholas Hospital 2014 Prostate Cases by AJCC* Stage at Diagnosis 28 29 30 The relative 10 year survival rate for all stages of prostate cancer combined is 99%. Number of Patients 27 3 25 20 15 10 5 0 21 7 0 Stage I Stage II Stage III AJCC Stage * American Joint Committee on Cancer 4 Stage IV 21 | Cancer program annual report 2015 26 9 5 5 Survivorship Session 6 p.m. 25 15 15 Victoria Harmelink “I was nursing our three-month-old son when I noticed a lump. I tested positive for the BRCA1 earlier in life, so I knew the lump could be serious despite the clean mammogram I had a year prior. The lump turned out to be stage-3 aggressive breast cancer.” The smiles from her small children and the support of her husband and friends got her through it. She started a blog to record her story to help others become more aware. It was also helpful in keeping her family and friends up-to-date. “I am fortunate that my care could take place in Sheboygan and even made some friends along the way, namely Sara, Nurse Navigator and, Brenda, Clinical Research Specialist. Today is a good day, the anxiety of waiting to see how my scan went is over — it is clean! I no longer focus on family milestones, but rather celebrate each day. Smiles, hugs and simple words like ‘mommy’ are my medicine for survival.” 22 | Cancer program annual report 2015 What are BRCA1 and BRCA2 ? October 2016 Cancer t s a e r B l Nationa eness Month S T W T F Awar M r Liver CancMe onth Visit our Breast Health Video Library online at: Awareness https://www.stnicholashospital.org/Medical-Services/ S 2 3 4 5 6 7 8 9 10 11 12 13 14 15 17 18TLC 19 20 21 22 1 Imaging-Services.aspx Metastatic Breast Cancer Awareness Day Survivorship Session 6 p.m. 23 31 25 26 Schedule M ammogram HSHS St. Nichola (920) 459- s Hospital 5 17 1 27 28 HSHS St. Nicholas Hospital 2014 Breast Cases by Age at Diagnosis 29 Breast cancer, while primarily diagnosed in women, can also occur in men. In 2014, 58 women and 1 man were diagnosed with breast cancer at HSHS St. Nicholas Hospital. 20 15 10 5 0 19 12 1 10 8 6 3 0 20-29 30-39 40-49 50-59 60-69 70-79 80-89 90+ Age at Diagnosis HSHS St. Nicholas Hospital 2014 Breast Cases by AJCC* Stage at Diagnosis 35 28 21 14 7 0 29 14 12 4 Stage 0 Stage I Stage II Stage III AJCC Stage * American Joint Committee on Cancer 0 Stage IV 23 | Cancer program annual report 2015 30 24 National Mammography Day Source: American Cancer Society Guidelines for the Early Detection of Cancer, September 2015 Number of Patients Living Beyond Prostate Cancer 7 p.m. Mammography screening guidelines for average-risk women •Women ages 40 to 44 should have the choice to start annual breast cancer screening with mammograms. •Women ages 45 to 54 should get mammograms every year. •Women 55 and older should switch to mammograms every two years, or can continue yearly screening. •Screening should continue as long as a woman is in good health and expected to live 10 more years or longer. •All women should be familiar with the known benefits, limitations, and potential harms linked to breast cancer screening. They should also know how their breasts normally look and feel and report any changes to their doctor right away. Number of Patients 16 LooK Good.. Feel Better 2 p.m. BRCA1 and BRCA2 are human genes that produce tumor suppressor proteins. These proteins help repair damaged DNA and play a role in ensuring the stability of the cell’s genetic material. When either of these genes is altered, cells are more likely to develop genetic alterations that can lead to cancer. A harmful BRCA1 or BRCA2 mutation can be inherited. Xiong Lee Xiong and Pang had not even celebrated their second wedding anniversary when they learned he had cancer. Newlyweds with one thought, “how long did they have?” About a week prior to starting his chemo, doctors told Xiong that he might not be able to have children. “We had just gotten married and the thought of not being able to have children saddened me the most. Two months later, Pang learned she was pregnant. We were thrilled and chose to name her Hope! I got through it because of my wife, family and friends, but mostly my faith. If God says, it is time for me to go home, then, it is time for me to go. While it is important to know what I am fighting, I cannot allow it to consume me. Cancer taught us to appreciate the simple things in life. We are three-year survivors who take time to appreciate each other, our friends, family and Hope. We are grateful for and celebrate every day we are together!” 24 | Cancer program annual report 2015 Quitting Tobacco November 2016 Quitting tobacco is hard work! Planning can help you be successful. You can: M Lung Canceronth M Awareness Cancer Pancreatics Month Awarenes T W T F S 1 2 3 4 5 6 8 14 9 15TL C 16 Survivorship Session 6 p.m. 20 28 22 29 17 11 18 12 19 Great American SmoKe Out 23 30 24 Screening guidelines for detecting lung cancer The American Cancer Society does not recommend tests to check for lung cancer in people who are at average risk. However, there are screening guidelines for those who are at high risk of lung cancer due to cigarette smoking. HSHS St. Nicholas Hospital 2014 Small Cell Carcinoma of the Lung by AJCC* Stage at Diagnosis 25 26 5 4 3 2 1 0 4 0 Stage 0 1 Stage I 0 1 Stage II Stage III AJCC Stage Stage IV HSHS St. Nicholas Hospital 2014 Non-Small Cell Carcinoma of the Lung by AJCC* Stage at Diagnosis A key turning point, National Lung Cancer Screening Trial (NLST) finds low-dose lung CT screening leads to reductions in mortality. For more information about the low-dose lung CT screening see the article in the back of this calendar. 10 8 6 4 2 0 9 3 2 0 Stage 0 Stage I 4 Stage II Stage III AJCC Stage * American Joint Committee on Cancer Stage IV 25 | Cancer program annual report 2015 27 21 10 •Consider medication. The following seven medications are approved by the FDA in combination with counseling to assist you in quitting. Some are over-the-counter; others are prescription medications: – Varenicline – Nicotine lozenge – Bupropion – Nicotine inhaler – Nicotine patch – Nicotine spray – Nicotine gum Number of Patients 13 7 Eating Well During Cancer Treatment 3 p.m. •Call the FREE Wisconsin Tobacco Quit Line at 800-QUIT-NOW (800-784-8669) or visit www.WIQuitLine.org. The Quit Line can help you create a personalized plan to quit. Number of Patients S Rose Whipple “When I learned about my diagnosis, I cried all weekend. On Monday, when I visited Dr. Edward Smith, I packed away the tears and said, ‘Okay I cried all weekend and I’m done with that now, what are we going to do to keep me alive?’ He had one answer, ‘Keep your positive attitude.’ My positive attitude was important, but without the care and support from my ten-year-old granddaughter, I would not be here. She brought me liquids and did not leave my side until I finished them. She told me, ‘Grandma you have to drink this to stay alive for grandpa and me.’ Dr. Smith saved my life; my granddaughter gave me nourishment; and my husband gave me understanding and support. Thanks to all of them, my positive attitude and God’s plan for me — I am a survivor.” 26 | Cancer program annual report 2015 December 2016 S M T F S 1 2 3 4 8 9 10 11 T 5 6 LooK Good.. Feel Better 2 p.m. Feast of St. Nicholas 12 13 W Nurse Navigator 7 14 15 16 17 Living Beyond Prostate Cancer 7 p.m. 18 19 A cancer diagnosis affects not only the patient, but also family members and friends and raises many emotions. Patients often feel a sense of numbness and can become confused trying to sort through all of the information. At HSHS St. Nicholas Hospital Cancer Center, Nurse Navigator, Sara Kaffine, RN, BSN, OCN® is a trained registered nurse who helps patients take care of their health and provide personal guidance throughout their treatment and beyond. “As a navigator, I have a thorough understanding of the many decisions cancer patients face and specialize in their care and support. I am here to listen, understand and guide them every step of the way,” said Kaffine. Our Nurse Navigator answers questions about diagnosis and treatment; assists patients in coordinating their appointments, tests, and procedures; and helps them obtain emotional support they may need. Cancer is complicated and patients, regardless of income or education level, need a person who can see that they receive the necessary care and support. 20TLC 21 22 23 24 27 28 29 30 31 Survivorship Session 6 p.m. 26 Christmas List Source: The American Cancer Society Sara Kaffine, RN, BSN, OCN® Nurse Navigator HSHS St. Nicholas Hospital Cancer Center 27 | Cancer program annual report 2015 25 New screening method detects lung cancer earlier to improve survival rates Lung cancer is one of the most common forms of cancer in the United States and the leading cause of cancer death, according to the Centers for Disease Control and Prevention. Its symptoms often appear when the cancer is advanced and more challenging to treat successfully. HSHS St. Nicholas Hospital Cancer Program offers a new screening option that works to detect lung cancer at an earlier stage when treatments are more successful. “Lung Screenings came about as a result of the National Lung Cancer Screening Trial (NLST), which demonstrated a 20 percent mortality benefit when using low-dose CT scans for screening as compared to using X-rays,” said Sally Luehring, Executive Director, Cancer Services, HSHS Division - Eastern Wisconsin. Estimated U.S. Cancer Deaths by Site, 2014 160,000 120,000 The Low-Dose CT Scan is a type of X-ray that produces detailed images of the patient’s lungs using limited radiation. The Low-Dose CT Scan is for high-risk individuals with a long history of smoking. To be eligible, individuals must be between the ages of 55 and 80 with 30 or more “pack years” of cigarette smoking. Thirty “pack years” is equivalent to smoking: •Two packs per day for 15 years •One pack per day for 30 years •Half a pack per day for 60 years A key turning point: NLST finds lung low-dose CT screening leads to reductions in mortality 20% Pancreas Percentage reduction in lung cancer mortality in participants that received low-dose CT scans as compared to participants who received standard chest x-rays Under the Affordable Care Act (ObamaCare), insurance companies are required to provide lung cancer screening to individuals who meet high-risk criteria as a preventative screening benefit without coinsurance or deductible. In addition, Medicare also provides coverage for high-risk individuals. Former smokers who meet the criteria and who quit within the last 15 years are eligible for the screening. If smokers or former smokers do not meet the criteria and are concerned about their risk for lung cancer, they should speak with their doctor. To schedule a lung cancer screening, or find out if you are eligible for a screening, call (920) 458-7433 or (920) 452-1650. For more information about the procedure, visit http://onefamilyofcare.com/Cancer/ Services/Lung/Lung-Cancer-Screening.htm. Early detection boosts cost effectiveness Compares Favorably Compared to Other Screening Types Screening Cost Effectiveness Cost Per Life-Year Saved Study in Brief: National Lung Cancer Screening Trial Breast Lung & Bronchus 40,000 Colorectal 0 Other Cancers Lung Cancer $50-75 K $31-51 K •2011 study to assess effectiveness of low-dose lung CT screening •53,454 current and former smokers were randomly assigned to be screened once a year for three years with low-dose CT or chest x-ray $11-26 K •Participants who received low-dose CT scans had a 20% lower risk of dying from lung cancer than participants who received standard chest x-rays Lung CT Screening Source: The National Lung Screening Trial Research Team, “Reduced Lung-Cancer Mortality with Low-Dose Computed Tomographic Screening,” New England Journal of Medicine, 365, 2011. Cervical Screening $18-28 K Breast Colorectal Screening Screening Source: Pyenson B et al., “An Actuarial Analysis Shows That Offering Lung Cancer Screening as An Insurance Benefit Would Save Lives at Relatively Low Cost,” Health Affairs 31(4); Oncology Roundtable interviews and analysis. 28 | Cancer program annual report 2015 80,000 AnewSM Cancer affects more than just your body. It affects who you are as a person and the lives of the people closest to you. That is why HSHS St. Nicholas Hospital developed the AnewSM Cancer Survivorship Program. While our medical team treats the cancer, our AnewSM team supports the whole person — mind, body and spirit. Studies show that up to 90 percent of cancer patients can benefit from AnewSM services. It is a revolutionary approach to cancer care and it is available here, at HSHS St. Nicholas Hospital Cancer Center. AnewSM Cancer Survivorship includes: •Cancer Rehab: – P hysical, Occupational and Speech Therapies – Behavioral Medicine •Nurse Navigator Survivorship care plan When patients come to the end of their cancer treatment it is normal for them to feel many emotions ranging from hope and happiness to uncertainty and fear. At HSHS St. Nicholas Hospital, an interdisciplinary team creates survivorship care plans to help guide patients’ follow-up care. “Because cancer is so interdisciplinary there was a risk for duplicative services in their follow-up care. Our Survivorship Care Plans allow us to identify which disciplines a patient needs, at what times and what tests will be needed,” said Sara Kaffine, Rn, BSN, OCN(R), Nurse Navigator, HSHS St. Nicholas Hospital Cancer Center. When a patient’s treatment ends, Kaffine or Stacy Miller, NP at Dr. Bettag’s office meet with him/her to review and discuss their follow-up care plan. This approach brings the full continuum of the cancer care team together in reviewing each patient’s care plan and assigning roles for carrying out the plan. “The patient is our focus and participates fully in the planning. Transitioning to survivorship care plans enforces our commitment to take responsibility in easing patients’ anxiety and ensuring they have an organized, coordinated team managing their follow-up care.” — S ara Kaffine, RN, BSN, OCN® Nurse Navigator HSHS St. Nicholas Hospital Cancer Center •Oncology Social Work •Financial Counseling •Dietitian services •Massage & Relaxation Training •Survivorship Care Plans 29 | Cancer program annual report 2015 Family donates Weerda Scope in mother’s memory When families lose a loved one, no matter the age or circumstances, the loss is heartbreaking. Sharon and Gary Pyrek grieved for Sharon’s mother, Dorothy Van Sluys, who passed away due to health issues, which included an esophageal condition that limited her ability to eat normally. As they thought about Dorothy’s life, the joy she brought to people and her dedication to volunteering with the Catholic faith community, they decided to pay it forward by donating a Weerda Diverticuloscope to HSHS St. Nicholas Hospital in Dorothy’s name. The Weerda Scope is an instrument that treats esophageal conditions. Because use of the scope is not a common procedure, HSHS St. Nicholas Hospital previously rented it from a company in California. “The Weerda Scope is used to repair a patient’s esophagus that developed a pouch that traps food when they swallow,” said Dr. Edward Smith, DO, Otolaryngology, who performs these procedures. “Patient’s frequently have difficulty swallowing and at times food enters their lungs and results in pneumonia. Now, patients no longer have to wait two to three weeks for the equipment to arrive to have their surgery. They also avoid lengthy hospital stays.” “We donated this money to HSHS St. Nicholas Hospital to acquire the Weerda Scope because it can give comfort to those suffering with the discomfort my mom suffered with. My mom would have wanted this. By donating the scope, we’re helping to make a difference for future patients.” — Sharon Pyrek The donation was made possible in part by the generous gifts of Dorothy’s family and friends to her memorial fund. HSHS St. Nicholas Hospital is the only facility with this equipment in the Sheboygan area. The Weerda Scope would not have restored Dorothy’s health, but it could have made her last days more comfortable. 30 | Cancer program annual report 2015 Sharon Pyrek and her husband, Gary, donated a Weerda Diverticuloscope, to HSHS St. Nicholas Hospital, in memory of her mother. In 2015, HSHS St. Nicholas Hospital celebrated its 125 Anniversary. During these 125 years, health care advanced phenomenally and people with many conditions, including cancer, have brighter futures than those first founding Sisters could have ever imagined. 31 | Cancer program annual report 2015 HSHS St. Nicholas Hospital 3100 Superior Ave., Sheboygan, WI stnicholashospital.org