A YEAR OF DIRECT SERVICE AND
ONLINE PROGRAM DEVELOPMENT
ANNUAL REPORT 2014-2015
“As a person with MS for 39 years, I want to thank
all of the artists [from MSAA’s Art Showcase] for
adding such beauty and inspiration to the world.
Your creations are so much appreciated.”
— S.L. from Madison, WI
“This is a note of thanks for
the wonderful [educational]
programs you are offering in
the Miami area. The program
this week was excellent. I am
grateful once again for the
time and resources offered
to me by your association.”
— G.R. from Miami, FL
“Thank you, thank
you, thank you! The
temperature today is
105 degrees and
they predict it to be
111 degrees by
this weekend. The
cooling vest is a life
saver for me!”
— S.N. from
Las Vegas, NV
“I can’t thank you enough for your help
[equipment program]! It’s like an early
Christmas for me. God Bless You.”
— L.H. from Chula Vista, CA
MSAA
ANNUAL REPORT
2014-2015
The Multiple Sclerosis Association of America was founded in 1970 and is a leading
resource for the entire MS community, improving lives today through vital services
and support. MSAA provides direct services and ongoing support to individuals, their
families, and their care partners. MSAA provides many types of free programs and
services – including equipment distribution, MRI assistance, consultation, education,
and much more – all of which are detailed on the following pages of our annual report.
Multiple sclerosis (MS) is a disease of the central nervous system (CNS), which consists
of the brain, optic nerves, and spinal cord. MS damages or destroys the protective
covering (known as myelin) surrounding the nerves of the CNS, and can potentially
injure the nerves as well. This damage causes reduced communication between
the brain and nerve pathways. Common MS symptoms include visual problems,
overwhelming fatigue, difficulty with balance and coordination, and various levels
of impaired mobility. Many experts estimate that 2.5 million people worldwide have
been diagnosed with this disease, and most people with MS are diagnosed between
the ages of 15 and 50. MS is not contagious and researchers continue to look for both
a cause and a cure.
MSAA strives to provide useful, up-to-date information on matters of concern to MS patients and their families.
This material is intended for general informational purposes only, and it does not constitute medical advice. You
should not use the information presented as a means of diagnosis or for determining treatment. For diagnosis and
treatment options, you are urged to consult your physician. Those affiliated with this publication and MSAA cannot
be held responsible for any unintentional errors in the writing of this publication, or changes in information that
may occur, possibly affecting certain details of an explanation, assumption, or treatment.
Copyright © Multiple Sclerosis Association of America, 2016. All rights reserved. This publication is protected by
copyright. No part of it may be reproduced, stored in a retrieval system, or transmitted in any form or by any
means, electronic, mechanical, photocopying, recording, or otherwise, without prior written permission
from MSAA.
(800) 532-7667 / mymsaa.org / 1
Doug Franklin stands happily by the window in his
office at MSAA’s new headquarters. One of his
primary initiatives before leaving MSAA was to
orchestrate the sale of the former building – which
was no longer a fit for MSAA’s needs – along with the
purchase of a renovated, more appropriate home office,
where efficiency and cost savings could be maximized.
Accrediting organizations have
recognized our work as well. To
follow are some of the awards and
acknowledgements we have
received during this fiscal year:
w Gold Status with GuideStar, a public
charity providing information to
advance transparency and
enable donors to make better
charitable-giving decisions
wS
wim for MS “Why I Swim”
videos received a Silver Telly Award
wW
hat You Need To Know About The
Affordable Care Act video received
a Bronze Telly Award
wM
S Conversations blog named Best
Blog of 2015 by Healthline.com
ANOTHER SUCCESSFUL
YEAR AT MSAA
“As a patient with
MS, it becomes very
apparent when an
organization truly cares
about all aspects of daily
life. I thank you for all you
do for making our lives
better.”
­— C.D. from
Pottstown, PA
2 / MSAA 2014-2015 Annual Report
The 2014-2015 fiscal year has seen many great successes at MSAA – from
providing an array of vital services to tens of thousands of individuals with
MS – to securing a newly renovated and much-needed headquarters for our
home-office staff. This has been a very exciting time for everyone at MSAA
and for all of our clients!
“A Year of Direct Service and Online Program Development,” is the theme
for this year’s Annual Report, emphasizing the variety of services provided
by MSAA to fulfill our urgent mission of “Improving Lives Today!” Some of
the highlights of our many program accomplishments during the 2014-2015
fiscal year include nearly 10,000 people being assisted by MSAA’s Helpline
Specialists, more than 1,000 individuals receiving financial support for MRI
scans, and more than 4,000 assistive and cooling equipment items being
provided. This is in addition to more than 250,000 publications being distributed
and more than 1.2 million visits to MSAA’s website at mymsaa.org!
Many of those receiving these free, vital services during this fiscal year have
written to MSAA to express their gratitude. Throughout this report, you will
find excerpts from their letters and email.
But while the impact of our programs
and services continue to be extremely
positive, the upcoming fiscal year
will also be a little bittersweet. For
both MSAA’s President & CEO
Doug Franklin and Board Chair Sue
Rehmus, their tenure at MSAA is
sadly coming to an end. After 16
years of leadership at MSAA, Doug’s
long-range plans of retirement are
finally coming to fruition. For Sue,
whose service to MSAA included the
positions of Board Member, Program
Committee Chair, Secretary, Vice
Chair, and Chair, her maximum
nine-year term limit has been met.
In addition, MSAA Chief Operating
Officer (COO) Robert Rapp is also
retiring, after 16 years of devoted
service. All three of these dedicated
individuals will leave MSAA during
the upcoming fiscal year.
In a recent issue of MSAA’s
magazine, The Motivator, Doug
explains, “As I close my chapter
here at MSAA, fulfilling 41 years
of nonprofit management work, I can
look back on my charity career as well
as my time at MSAA as something
that was nothing short of a blessing to
serve. MSAA has improved so many
lives during my 16-year tenure and
we have enjoyed the dedication
“This morning Robert received his manual
wheelchair. With tears in my eyes, I thank you so
very much for this gift. The old wheelchair has
bungie cords to hold it together. God bless you.
I will keep you in my prayers forever.”
­– R.B. from Yelm, WA
and professionalism of so many
hard-working employees and
volunteers. It has truly been a team
effort in every sense and I am so very
proud and so very fortunate to have
had the privilege of leading this
dynamic group of professionals.”
Sue concurs, “MSAA provides so
many wonderful programs and services
designed to improve lives today for
those who are affected by MS. It has
been among the greatest privileges of
my life to have been a part of the
governing Board of Directors for so
many years. My dedication to serving
the MS community goes well beyond
a professional level, as I am personally
aware of the devastating effects that
MS can have on family members. I
have devoted much of my work – both
before and during my time at MSAA –
to helping children and parents
understand the urgent needs of family
Douglas G. Franklin
MSAA President &
Chief Executive Officer
members when someone is diagnosed
with this challenging disease. My
deepest and most heartfelt gratitude
is held for the staff of MSAA who
believed in the value of my ideas and
efforts and helped give me a platform
to uniquely contribute to improving
lives today.”
In summary, the 2014-2015 fiscal year
was very successful for MSAA, both
in terms of providing direct services
to the MS community and online
program development. While our
current President & CEO, Board Chair,
and Chief Operating Officer will all be
greatly missed, we look forward to the
vital programs and services still ahead
in MSAA’s future, as we continue to
focus on our urgent mission of
“Improving Lives Today!”
Sue Rehmus
MSAA Board Chair
(800) 532-7667 / mymsaa.org / 3
MSAA’S DIRECT SERVICES ARE IMPROVING LIVES TODAY!
SERVICES PROVIDED DURING THE 2014-2015 FISCAL YEAR
HELPLINE:
9,785 PEOPLE ASSISTED
Our Client Services Helpline allows individuals with
MS, family members, care partners, and friends, to
connect directly with one of MSAA’s experienced
Client Services Specialists – via phone, email, or our
online Chat feature – to receive valuable information,
guidance, and support.
MRI ACCESS FUND:
1,032 INDIVIDUALS RECEIVED
FINANCIAL SUPPORT FOR MRI SCANS
MSAA’s Magnetic Resonance Imaging (MRI) Access Fund
assists individuals who are uninsured, under-insured, or
financially unable to pay for this important exam. MRI scans
are vital to the diagnosis of MS, as well as the follow-up
evaluation to track the progression of the disease. It is also
used to help determine the effectiveness of long-term
treatment with a disease-modifying therapy.
PUBLICATIONS:
MORE THAN 250,000 PUBLICATIONS DISTRIBUTED
MSAA publishes a national magazine, The Motivator, twice per year and the widely acclaimed MS Research
Update, annually. During this fiscal year, MSAA also published a completely updated programs guide titled,
Improving Lives Today! A Guide to MSAA’s Programs and Services, as well as a brochure titled,
Medicare Planning and Multiple Sclerosis.
“Thank you so much [to MSAA’s Helpline] for all of this helpful
information. We just learned about MSAA and your services and we are
very impressed by all that you do and how responsive you’ve been.”
— D.F. from Albuquerque, NM
ASSISTIVE EQUIPMENT DISTRIBUTION:
1,656 ITEMS PROVIDED
COOLING EQUIPMENT DISTRIBUTION:
2,365 ITEMS PROVIDED
Offering products designed to improve safety, dignity,
mobility, and independence, MSAA provides this equipment
at no charge and ships directly to the client. Items distributed
include a variety of products such as shower chairs, grab
bars, and hand rails, as well as mobility devices including
canes, walkers, and wheelchairs.
MSAA offers cooling vests and accessories at no charge
and ships them directly to both adults and children diagnosed
with MS. These cooling items help reduce the negative effects
of heat, which can temporarily worsen MS symptoms.
Individuals with MS using this type of technology may
experience less fatigue and a reduction in other debilitating
symptoms, allowing them to perform better in warm
environments and take part in outdoor activities.
4 / MSAA 2014-2015 Annual Report
EDUCATIONAL EVENTS:
3,726 PEOPLE ATTENDED
106 NATIONWIDE PROGRAMS
MSAA’s educational events are held in various cities across
the United States and are free of charge to members of the
MS community. Covering topics such as the latest advances
in disease and symptom-management treatments, along with
other wellness strategies, these programs provide an
excellent opportunity for our clients to connect with many
of the country’s leading MS-healthcare professionals.
LENDING LIBRARY:
DISTRIBUTED 1,035 BOOKS
MSAA’s Lending Library program offers a comprehensive
selection of books and a variety of DVDs that address disease
and symptom management, wellness, personal stories from
people living with MS, care partner issues, and many other
important topics. With more than 120 titles and 1,000 book
copies, this program loans books at no charge, along with free
shipping to the borrower and back to MSAA.
(800) 532-7667 / mymsaa.org / 5
ONLINE/DIGITAL PROGRAMS ARE IMPROVING LIVES TODAY!
SERVICES PROVIDED DURING THE 2014-2015 FISCAL YEAR
MSAA’S WEBSITE AT MYMSAA.ORG:
1,222,477 VISITORS
MSAA’s comprehensive website provides a wealth of targeted
information addressing all aspects of the disease, including
currently approved treatments, symptom-management
techniques, and resources to help individuals adjust to the
illness. Many of our online and digital programs that were
launched or updated during this fiscal year are featured
on these two pages. Additional online programs are noted
in the bullet points to follow.
w The MSAA Art Showcase features
annual collections of beautiful artwork
created by individuals with MS, along
with personal stories from each artist to
tell about his or her artistic inspiration.
“Male Hummingbird and
Flower” by Jeffrey Waldron
w MSAA’s S.E.A.R.C.H.™ Program assists individuals
in making treatment decisions by exploring important
topics to consider and questions to ask when beginning
or switching disease-modifying therapies.
w My MS Resource Locator® is a program designed to
make the search for MS-related information and resources
as easy as possible.
w MSAA’s MS Relapse Resource Center is a section of our
website, providing detailed information on relapses and
treatment options.
w MSAA’s Networking Program is an online community of
individuals with MS and their care partners who connect
through email exchange.
MY HEALTH INSURANCE GUIDE:
DETAILS ON HEALTH INSURANCE OPTIONS
MY MS JOURNEY:
CUSTOMIZED INFORMATION
Originally launched in an earlier fiscal year and covering only
information on the Affordable Care Act (ACA), this special
section of MSAA’s website was re-launched in October 2014.
The expanded section was renamed My Health Insurance Guide
and is aimed at assisting the MS community with understanding
the many details surrounding today’s health insurance options.
My Health Insurance Guide covers a range of important topics,
including the Affordable Care Act (ACA), non-Medicare
insurance, and Medicare insurance programs.
Whether someone is newly diagnosed or has been living with
MS for many years, each person’s journey with MS is unique
and ever changing. Launched in November 2014, MSAA’s
My MS Journey is designed to provide a clear and direct path
to the information that someone may need right away. This
section of our website organizes MS-specific content and
information into three distinct channels: Just Starting Out,
Staying On Course, and The Seasoned Traveler.
6 / MSAA 2014-2015 Annual Report
MSI VIDEOS:
MS CONVERSATIONS
109,911 CUMULATIVE VIEWS OF OUR
39 ON-DEMAND VIDEO PROGRAMS
18,231 SESSIONS
AND MORE THAN 150 BLOG POSTS
This growing library of award-winning, on-demand video
programming and archived webinars provides the latest
advances in MS research, disease and symptom management,
wellness strategies, and more. Among other awards, the
What You Need to Know about the Affordable Care Act
won a Bronze Telly award in February 2015.
MSAA’s blog features timely, interactive discussions on
topics important to the entire MS community, from symptom
management and the impact of MS on everyday life, to
reminders and resources about recent health insurance
changes. MSAA’s MS Conversations blog was named Best
Blog of 2015 by Healthline.com in May 2015.
“I use the app (My MS Manager). I think it’s great. It really helps organize
information. It also helps when you see your doctor. No more, ‘I forgot
to say…’”
— M.T. from New Orleans, LA
MY MS MANAGER™:
6,954 DOWNLOADS
DURING THE FISCAL YEAR
DIGITAL EDITION OF THE MOTIVATOR:
FOR EASY ONLINE
VIEWING!
Relaunched in March 2015 with added features, MSAA’s
mobile phone application is provided free of charge to
individuals with MS or their care partner to use on their
iPhone, iPad, iPod touch or Android mobile phone device.
My MS Manager allows people to track disease activity,
store medical information, generate charts and reports, and
share information with their healthcare team.
In addition to the print version, MSAA introduced a new
digital edition of The Motivator in April 2015. This
technology allows for easy, interactive online viewing, with
access right from one’s desktop, tablet, or mobile device.
Special features include a search field, font size preferences,
and an option to add notes.
(800) 532-7667 / mymsaa.org / 7
SWIM FOR MS AND MSAA’S ONLINE AQUATIC CENTER
Swim for MS: MSAA’s signature fundraiser is making a splash all across the country! People of all ages and skill
levels are swimming to raise awareness about MS while recruiting online donations to help the MS community.
Individuals may create their own Swim for MS fundraising event while MSAA guides them through the process.
Volunteers may hold an event at home or at the swim club, individually or as part of a team, and set any type of
goal – from swimming laps or a specific distance… to cannonball-jumping contests, birthday parties, and college
swim-team competitions! This is why we say, “Any Pool, Any Time!”
Getting started is as easy as 1-2-3! Please visit SwimForMS.org.
Create your
own swim
activity
Set a
challenge
goal
Recruit
family &
friends to
donate
SwimForMS.org
o
(Ph
it: Temp
l
e
U
to cred
nive
rsi
ty)
Mary Carls has been living
with MS for over 30 years
and still maintains an active
lifestyle as an avid lap
swimmer. In October 2014,
Mary pledged to swim 10
miles and raised $1,250 for
MSAA and to show
her support for the
MS community. “Swim for
MS is a great way for me to
stay healthy and raise money
for a good cause.”
In November 2014, Chloe
Cohen dedicated her bat
mitzvah to raising awareness
for MS. She had a lot of fun
and raised more than $5,000
in vital funds for MSAA and
the MS community.
“My name is Olivia and
I am 7 years old. I love to
swim. My mom was
diagnosed with MS in
March. My mom loves
swimming too. I am
swimming for MS for my
mom. My mom is brave
and I love her so much.”
In June 2015, with family
and friends cheering her on,
Olivia swam one mile and
raised more than $7,700!
Ann Rejrat hosted a Swim
for MS event at the Temple
University Campus
Recreation Center inviting
all students, staff, and faculty
to dive into action to show
support for the MS community.
Held during March in honor
of MS Awareness Month, the
event was a huge success
raising $2,771 for MSAA’s
vital programs and services.
“Swim for MS provided a positive outlet for our daughter. We were
all amazed by her swim. It turned her sadness into joy. Thank you,
for all that you do!”
— L.M. from Aurora, IL
8/ MSAA 2014-2015 Annual Report
The unique buoyancy and other properties of water, combined with its cool temperature, can create an ideal exercise
environment for many people with MS. As part of the Swim for MS initiative, MSAA offers a comprehensive online
Aquatic Center, providing information and resources to help people with MS begin a program and enjoy the benefits
of water-based exercise.
In the spring of 2015, MSAA released a new educational video designed specifically for the MS community. Titled
Introduction to MS Aquatic Fitness, this instructional video showcases numerous shallow-water exercises aimed at
improving function, performance of daily activities, and general health and wellness.
To make the instruction as inclusive as possible, activities are performed at various impact levels offering options to
personalize the workout. The video is available to view online or to order as a free DVD. Released at the end of the
fiscal year, this instructional DVD quickly generated hundreds of requests from interested MS clients.
The online Aquatic Center offers an array
of resources, including booklets, tip sheets,
webinars, inspirational videos, and more.
At the start of this fiscal year, MSAA had
just learned that its inspirational Why I
Swim videos had received a prestigious
Silver Telly Award. To visit MSAA’s
online Aquatic Center, please go to
SwimForMS.org.
(800) 532-7667 / mymsaa.org / 9
OUR GENEROUS SUPPORTERS ARE IMPROVING LIVES TODAY!
GUARANTORS
($500,000 AND UP)
LAUREATES/MOTIVATORS
($10,000 to $49,999)
Biogen
Sanofi Genzyme
Teva Pharmaceuticals USA
The Allergan Foundation
Band Against MS, Inc.
Estate of Vernon Blank
Catholic Human Services Foundation
Virginia T. Dashiell Charitable Foundation
The Foster Family Private Foundation Inc.
Douglas and Asako Franklin
Give with Liberty
IBM Employee Services Center
Richard and Carole Jenkins
Rita Kernen
Kessler Foundation
John and Cheryl Korth
Barbara Kouris
The Ladd J. and Jarmilla R. Vosahlik Charitable Trust
Estate of Herbert and Selma Weisz
CHAMPIONS
($100,000 to $499,999)
Anonymous
EMD Serono, Inc. and Pfizer Inc.
Novartis Pharmaceuticals Corp.
VISIONARIES
($50,000 to $99,999)
Acorda Therapeutics, Inc.
Anonymous
Bayer HealthCare Pharmaceuticals
Genentech
Mallinckrodt Pharmaceuticals (including Questcor)
“Thank you for the quick response to my
application for financial assistance on the
MRI. You are truly my guardian angel
today and I can’t thank you enough.”
— D.B. from Leary, GA
10 / MSAA 2014-2015 Annual Report
“I cannot thank you enough for the recent cognitive issues article
in the Winter/Spring 2015 issue of The Motivator. I spent most of
the article saying to myself, “no wonder!” I have shared it with my
caregiver, my family, and friends. It has really helped to explain a
lot of things in my life. Thank you again and again.”
— J. M. from Saco, ME
Additional Donor Listing
$5,000 - $9,999
Craig and Darla Albert
Kate Andrew
AT&T Employee Giving Campaign
The Arnold F. Baggins Foundation, Inc.
The Bartlett Family Trust
Janet A. Barzoff
The Margaret A. Darrin Foundation
Grand Lodge Daughters of Scotia
James A. Hixon
Richard E. Leonardon
Lipman-Gordon Trust
Jerome and Faith Pearlman Foundation
Thomas and Kathy Raffa
Santo Petroleum
The School Board of Polk County
Schwab Charitable Fund
Susan B. Stearns
Davena Steward
Estate of Esther Wenrich
Williams Rural Water District
$2,500 - $4,999
$1,000 - $2,499
Anonymous
Axis Global Systems, LLC
(Thomas Vassallo)
Jennifer A. Burroughs
Richard and Carol Chadakoff
Elyria License Bureau
Michael and Debra Ewing
Richard M. Fisher Living Trust
Timothy Garrett
Monica Gibson
Laddie Gribick
Sulabha Hardikar
Heath Eagles #3723
Annette M. Howard
International Union of Operating Engineers Local 825
Jill’s Gentlemen’s Club
North Central Neurology Associates, P.C.
Graham C. Lee
John McCorry and Rebecca Cox
The Merck Foundation
Jay Nakamura
Estate of Arthur F. Noskowiak
Prudential Foundation
Jack Purcell
Sue L. Rehmus
Sandoz
William and Gertrude Shelley
Family Foundation
Stuarts Petroleum
Swansea Total Fitness, LLC
Glen A. Worrell
Paul Robert Abele
Actelion Clinical Research, Inc.
Advance Abrasives
Avadhesh K. Agarwal
AirTek Construction Inc.
Drew Alexander
Allstate the Giving Campaign
American Waterworks
James Anderson
Anonymous
Susan G. Anthony
Apex Plastic Finishing
Arc Thrift Stores
E R Bane Trust
Beeville Livestock Commission
Benevity Impact / American
Endowment Foundation
Andrew Benkovich
Bess Company Inc.
The Boeing Company
Roxanne Brandt
Business Valuation Advisors
C.W.A. Local 1182
Capstone Holding Company
Harvey R. Chaplin
Michael Chavez
Marie R. Cimino
Colonial Hardware Corp
Stewart and Judith Colton
Commercial Warehouse & Cartage
Corporate Services LLC
John and Kristen Courtney
W. Carroll Coyne
D & B Conveyor Systems Inc.
(800) 532-7667 / mymsaa.org / 11
OUR GENEROUS SUPPORTERS ARE IMPROVING LIVES TODAY!
D. & S. Machine Service Inc.
Peter and Kathleen Damiri
Linda Davis
Leah Demchick
Phyllis Dennis
Deseret Trust Company
Devine Area Health & Hospice
Dick’s Pallet Works
Digital Media Group, Inc.
Donatic Givalike
Dothan Livestock Co.
Wayne and Lea Douglas
Mario Dozzo
Richard Driehaus
Lois W. Dyk
Jon Ehlinger
Elite Elevator Services LLC
Rob Engel and Karen Hancox
Evergreen Moving Systems
Douglas Eyberg
First Clearing, LLC
Stanley and Gloria Fishfader
Kathleen M. Fowler
Edwin A. Franklin, Jr.
Gaw Associates, Inc.
Bruce A. Gayeski
Getz Foundation
Mary Lou Giffels
Leanne K. Gillson
Global Insurance Specialist LLC
Grant Town Power Plant
Murray C. Greason, Jr.
Adelia Gregoire
Andrea Lynn Griffin
The Gross Living Trust
Susan Harper Hamblet
Harpole Construction Inc.
Ryan Harris
Hugh and Muriel Harris
The Heritage Company
Susan Hermann
Richard Higger
Carolyn Hildebrand
Humboldt Manufacturing Co.
Dan L. Huntzicker
ICA Group, Inc.
Information Transport Solutions, Inc.
Intellicom Inc.
Jarrard Surveying
Susan and Leander Jennings Foundation
The Kandell Fund
Kickapoo Traditional Tribe of Texas
Kirk Securities Corporation
Gary Nelson Klein
Ladd Engineering Associates Inc.
Michele Landes
Laz Films, Inc.
Lois H. Lazaro
Pamela Anne Leech Trust
Line Systems Inc.
Kathleen Louis
Jeff and Peggy Lovelady
Loretta M. Lyden
Elizabeth G. MacLean Family Trust
Mayfair Games, Inc.
McDonald’s of Barnwell
Merced MRI Medical Group
John and Kay Meyer
Arlene Meyerson
Microsoft Matching Gifts Program
Marvin Miller
Milo’s Tea Company Inc.
John and Ramona Mooney
Morcon Specialty, Inc.
Morgan Stanley
Hudson Myers, Jr.
Eric Neeper
Douglas Nelson
Gerald E. Nelson
Nesko Electric Company Inc.
John and Phyllis Newsom
James G. Osborn
Wyn O’Shea
12 / MSAA 2014-2015 Annual Report
Overhead Door of St. Joseph
P & S Machine Inc
P.R.N. Professional Registered Nursing P.C. (Robert Manley)
Parbilt Glass Inc.
William A. Parker, Jr.
David S. Petrie
Pharmacy Care Associates
Harry H. Phillips
Plateau Machinery Company
PRD Management Inc.
Waverly and Joyce Prince
Debra Rapisarda
Robert Rapp
Red Stick Armature Works, Inc.
David N. Reed
Becky Remington
Ring & Associates
Michael Ritchie
Robert and Diana Scott Charitable Fund
Rollie’s On Texas
Amy Perrin-Ross
S. Rubenstein Family Foundation, Inc.
Gifford Rudin Foundation
Peter and Mary Ruggles
Anne M. Ryan
Salina Iron and Metal Company
Dorothy Sanford
Pamela Santacroce
William T. Saunders
Michael Schoenhaut
Schroeder Greer Appraisal Co.
Schulz-Clearwater Sanitation, Inc.
Nadia E. Sefein
Sidewater Family Foundation
Sam and Kate Sidewater
Simons-Coleman Funeral Home
Slyter Sales & Service Inc.
Margaret Small
James and Kristine Smith
Smith’s Drugs of Forest City
Glenn Snyder
“We are so grateful to you all for all you do to help us and others. We
applaud and thank the MS Association. You are Awesome!”
—E.P. from Minden, LA
Donald and Vivian Sonnenborn
Sonshine Exploration
Southeastern Hose, Inc.
Sparrow Regional Medical Supply
Mary Louise Sterge
Wilbur Strait
Sun Valley Machine Shop, Inc.
Super Sagless
Tennessee Bank & Trust
W. Touchstone
Law Office of Curtis V. Trinko
Truist, Inc.
Frank and Toni Tucker
Robert O. Tyler
William Frederick Uehlein
Richard D. Urell
Voss Industries Inc.
Daniel and Janet Wall
WAYS LLC
Wells Fargo Community Support Campaign
Theodore and Vicki Wender
Mary Alissa Willis
The Windsor Foundation, Inc.
Karen Wright
Yankee Candle
Swim for MS $1,000+
Aggies for MS
Aiken Augusta Swim League
Lexie Boor
Charles Cannaday
Mary Carls
Dawn Chambers
Chloe Cohen
Kelsey Crane
Team Eastridge
Deanna Glassman
Hampton Talbots
Hawkeyes for MS
Leman Swims for MS
John McConnell
Paul Ojakian
Olivia Moore
NCMP Aquagirls
Kristin Oswald
PBC Pirates
Phoenixville Phantoms
Francisco Suro
Sum Al & Friends
Temple University – Campus Recreation
Carley Thompson
Natalie Tse
Team Yuhaze
Third Party Events $1,000+
1A Auto Inc. Car Show
Action Research Project
Allison’s Hope Walk
Atlantic City Polar Bear Plunge
Auburn Kicks for MS
The Knights of Columbus Santa Maria
Council #1443 MS Coin Toss
Kathleen Louis’ Strike4MS
Misfits 4X4 Club Annual Truck/Car Show
MS Ghent
Nana’s Cookies
Quintiles
Riley’s Bar LLC
Robert O’Brien Family Golf Tournament
Denise Sorro-Butler’s Fundraiser
Town Pump Charity Golf Tournament
Walk N Roll 5k/1k for MS
ADDITIONAL
DONOR LISTING
(800) 532-7667 / mymsaa.org / 13
FINANCIAL PERFORMANCE
Other
Gain (Loss) on sale of
property and equipment
1%
Contributions
37%
4%
Rental Income
6%
SOURCES
OF FUNDS
MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA, INC.
CONSOLIDATED STATEMENT OF
FINANCIAL POSITION
June 30, 2015
MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA, INC.
CONSOLIDATED STATEMENT OF ACTIVITIES
FOR THE YEAR ENDED
JUNE 30, 2015
ASSETS
REVENUE AND SUPPORT
Current Assets
$
6,288,320
Contributions
$
9,761,089
Property Plant and Equipment (net)
$
6,199,357
$
13,826,043
Other
$
1,676,774
Donated Materials,
Service & Equipment
Total Assets
$
14,164,451
Rental income
$
1,640,304
Gain (Loss) on sale of property
and equipment
$
1,072,324
Other
$
174,739
Total Revenue and Support
$
26,474,499
Program Services: Patient services
$
18,325,071
Program Services: Housing
$
1,668,440
Total Program Expenses
$
19,993,511
General and administrative
$
839,407
Fundraising
$
4,436,446
Total Supporting Services Expenses
$
5,275,853
Total Expenses
$
25,269,364
Change in Net Assets
$
492,847
NET ASSETS,
BEGINNING OF YEAR
$
12,491,145
NET ASSETS, END OF YEAR
$
12,983,992
LIABILITIES AND NET ASSETS
LIABILITIES
Donated Materials,
services & equipment
Fundraising
18%
General Administration
3%
14 / MSAA 2014-2015 Annual Report
$
1,154,553
Long Term Liabilities
$
25,906
Total Liabilities
$
1,180,459
NET ASSETS
52%
USES
OF FUNDS
Current Liabilities
Unrestricted
$
3,789,889
Temporarily Restricted
$
9,194,103
Total Net Assets
$
12,983,992
Total Liabilities & Net Assets
$
14,164,451
PROGRAM EXPENSES
SUPPORTING SERVICES EXPENSES
Program Services
79%
(800) 532-7667 / mymsaa.org / 15
2014 - 2015 FY BOARD OF DIRECTORS AND HEALTHCARE ADVISORY COUNCIL
Board of Directors
Chair: Sue Rehmus
Vice Chair: James Anderson, Esq.
Treasurer: William Saunders
Secretary: Monica Derbes Gibson, Esq.
Members:
Robert Barth, PhD
Timothy Garrett
Annette M. Howard, MD
Laura Kimball
Robert Manley
John McCorry
Christine Snyder
Bobby Soileau
W. Frederick Uehlein, Esq.
Mary Alissa Willis, MD
Healthcare Advisory Council
Mary Alissa Willis, MD - Chairperson
Jack Burks, MD - MSAA Chief Medical Officer
Donald A. Barone, DO
Robert Barth, PhD
Allen Bowling, PhD, MD
Carrie Bruce, MA, CCC-SLP, ATP
Corey C. Ford, MD, PhD, FAAN
Susan Forwell, PhD, OT (C), FCAOT
Miriam Franco, MSW, Psy.D., MSCS
June Halper, MSCN, ANP, FAAN
Annette M. Howard, MD
Marie Namey, RN, MSN, MSCN
Amy Perrin-Ross, APN, MSN, CNRN, MSCN
Dorothea C. Pfohl, RN, BS, MSCN
Randall T. Schapiro, MD, FAAN
Lisa Skutnik, PT, MA
MSAA Staff
Douglas Franklin
Robert Rapp
“I absolutely love MSAA and
all the work you do for the
MS community. I’ve used
your services numerous
times and have always been
so pleased with the
company’s caring and
warmth towards us!”
“I am overwhelmed by
the gift [cooling kit]
you have given me. You
have basically provided
me with a life outside
of my home this
spring/summer/fall.
Thank you, thank you!”
— C.C. from Atlanta, GA
— K.L. from Belgrade, MT
MSAA’S REGIONAL OFFICES
Midwest Regional Office:
1507 E. 53rd Street, Suite 284
Chicago, Illinois 60615
(800) 532-7667, extension 150
Email: midwest@mymsaa.org
Northeast Regional Office:
375 Kings Highway North
Cherry Hill, NJ 08034
(800) 532-7667, extension 144
Email: northeast@mymsaa.org
Northwest Regional Office (interim):
14902 Preston Rd., Suite 404-345
Dallas, Texas 75254
(800) 532-7667, extension 137
Email: northwest@mymsaa.org
South-Central Regional Office:
14902 Preston Road, Suite 404-345
Dallas, Texas 75254
(800) 532-7667, extension 137
Email: southcentral@mymsaa.org
Southeast Regional Office:
PMB # 196, 2870 Peachtree Road
Atlanta, Georgia 30305-2918
(800) 532-7667, extension 160
Email: southeast@mymsaa.org
Western Regional Office:
1700 7th Avenue, #116201
Seattle, Washington 98101
(800) 532-7667, extension 155
Email: western@mymsaa.org
16 / MSAA 2014-2015 Annual Report
“I have only been diagnosed for
about a year. I would like to thank
MSAA [Helpline] for all the help and
encouragement that they gave me.
They helped get me through the
toughest part of my life I’ve ever had.”
— T.S. from Pensacola, FL
375 Kings Highway North
Cherry Hill, NJ 08034
Help or assistance to MSAA in any way is truly appreciated. To inquire about
fundraising or making donations, please contact MSAA at (800) 532-7667
or visit MSAA’s website at mymsaa.org.
Please click here to
Improve a Life Today!
Copyright © Multiple Sclerosis Association of America, 2016