PE591 Rheumatology

Patient and Family Education
Web Sites
Web sites with
resources on a variety
of topics and
conditions related to
Arthritis Foundation
The web site for the Arthritis Foundation has all the basic information
about the disease, plus links to information about juvenile arthritis.
Part of the Arthritis Foundation web site that has sections especially for
kids, tweens and teens.
Lupus Foundation of America
The web site for the Lupus Foundation of America is a resource for all of
your questions about Lupus.
Spondylitis Association of America
The Spondylitis Association of America provides information about
complications, medications, research and exercise.
American Behçet’s Disease Association
The American Behçet’s Disease Association provides resources including
basic information on treatments, research and what you can do to help others
with the disease.
Myositis Association
The Myositis Association has information about treatments and research
for families coping with Juvenile Myositis and related conditions.
Sjorgren’s Syndrome Foundation
The Sjögren’s Syndrome Foundation web site provides information about
treatments, research and resources available for primary and secondary
Sjögren’s syndrome.
National Ankylosing Spondylitis Society of Britain
This web site for the National Ankylosing Spondylitis Society of Britain
provides new patients with Ankylosing Spondylitis with advice, answers to
questions and information about how to lead a normal life with the disease.
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Rheumatology-Related Web Sites
To Learn More
• Rheumatology
• Ask your child’s
healthcare provider
Free Interpreter
• In the hospital, ask
your child’s nurse.
• From outside the
hospital, call the
toll-free Family
Interpreting Line
1-866-583-1527. Tell
the interpreter the
name or extension you
Scleroderma Foundation
The Scleroderma Foundation web site has information about advocacy,
support groups and conferences.
International Scleroderma Network
This web site, maintained by the International Scleroderma Network,
provides facts about treatments, causes, current news and support groups.
University of Washington Orthopedics
The University of Washington’s Orthopedics web site has some
information about arthritis and surgical interventions.
Pediatric Rheumatology International Trials Organization
In this web site you will find information on diseases and treatments for a
variety of rheumatology diagnoses. This site is a collaboration between the
Pediatric Rheumatology International Trials Organization and the Pediatric
Rheumatology European Society.
Childhood Arthritis and Rheumatology Research Alliance
This web site provides information from the Childhood Arthritis and
Rheumatology Research Alliance.
American College of Rheumatology
The American College of Rheumatology has a patient education tab as well
as a listing of rheumatologists worldwide.
Seattle Children’s offers interpreter services for Deaf, hard of hearing or non-English speaking patients, family members and
legal representatives free of charge. Seattle Children’s will make this information available in alternate formats upon request.
Call the Family Resource Center at 206-987-2201.
This handout has been reviewed by clinical staff at Seattle Children’s. However, your child’s needs are unique. Before you act
or rely upon this information, please talk with your child’s healthcare provider.
© 2006, 2008, 2009 2011, 2014, 2015 Seattle Children’s, Seattle, Washington. All rights reserved.
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