The right to health in the Netherlands: a case study (draft, April 2004) Brigit Toebes1 In my presentation I will discuss a few issues relating to the right to health in the Netherlands. I will map out some of the key issues surrounding compliance with the right to health by the Netherlands authorities. While recognising that the right to health embraces not only access to health care services but also a right to underlying preconditions for health, the focus of this presentation will mainly be on access to health care services. In addition, I will say something about the justiciability of the right to health in the Netherlands and before international bodies. In other words, I will address the question of the extent to which one can bring a claim before a Dutch court and before international bodies on the basis of the right to health. 1. Outline of the right to health in the Netherlands As a framework for my presentation, I will use General Comment 14 of the UN Committee on Economic, Social and Cultural Rights, which addresses the right to health in Article 12 ICESCR.2 I will in particular use the principles that are mentioned in paragraph 12 of the General Comment: availability, accessibility, acceptability, and quality. Before I start, I should say something in general about the Dutch health situation and its system. Dutch health care expenditures are almost 9% of GDP. Life expectancy at birth is 76 for men and 81 for women. The child mortality rate is 5-6 per 1000 inhabitants. As to the organisation of the health care system, there is a distinction between the National Health Service3, which covers more than 60% of the population, and private insurance, covering the remainder of the population.4 Availability. According to the General Comment, availability requires that health facilities, goods and services are available in sufficient quantity within the State party. The nature of the facilities, goods and services will vary depending on numerous factors, including the State party’s development level. Given that the Netherlands is a highly developed country, one may expect to find sufficient availability of good quality medical services there. And, indeed, generally speaking the Dutch health care system fulfils this requirement, as preventive, primary, secundary and tertiary health care facilities are most of the time available in sufficient quantity. Author of ‘The right to health as a human right in international law’, Antwerp/Oxford: Intersentia/Hart, 1999, and a Legal Advisor at the Council of State of the Netherlands (b.toebes@raadvanstate.nl). The Council of State provides the national government with independent advice on bills before they are introduced in Parliament. The author wishes to thank Maria Green (Brandeis University, Boston, United States) and Ms. J.H.B. van der Meer (Council of State, the Netherlands) for their comments and advice. 2 http://www.unhchr.ch 3 This ‘ sickness fund’ is financed by a general fund that generates half its revenues from employees and the other half from employers, retirement funds, and unemployment funds, thereby assisting with health insurance for retirees and the unemployed. All sickness fund applicants must be accepted. See http://www.sma.org/smj/96jun3.htm . 4 World Health Organization (WHO), at http://www.who.org. 1 Nevertheless, in terms of availability, there are certain shortfalls. For many treatments there are long waiting lists. These waiting lists are caused by large shortfalls in personnel and a lack of financial resources in combination with an increase in the demand for healthcare. This increase is among other things the result of medical-technical advancements and the ageing population.5 With the proportional increase of the ageing population, the government needs to invest increasing amounts in health care services and nursing homes for the elderly. In this respect, it should be noted that unlike many other countries, the Netherlands has no culture of taking care of aged parents. As for the waiting lists, their existence is as such acceptable, but only depending on the required treatment. And in this respect, it must be said that waiting lists in the Netherlands are sometimes unacceptably long. For example, there are huge shortfalls in appropriate care for children with mental and behavioural disorders, which is a growing problem in the Netherlands. Moreover, many elderly people spend a long time on waiting lists for a place in a nursery home. And there are often long waiting lists for fertility treatment, but even for necessary surgery. On occasion, the length of the waiting list has led to a situation where people have died because they could not get the treatment they needed on time. As I mentioned earlier, the waiting lists are partly caused by shortfalls in personnel. There is a particular shortage of general medical practitioners, GPs in short. Although in the Netherlands everyone is supposed to have access to a GP, which is a worthwhile objective, a fair amount of people are still without recourse to this type of general medical care. The shortage is most visible in areas where it is less attractive for GPs to set up their practice. The waiting lists reached a peak at the beginning of the new century. Since then, the government and medical institutions have taken measures to reduce the waiting lists. More funding has been made available and measures have been taken to make the system more efficient. As a result of the waiting lists, people are increasingly seeking medical care across the border, especially in Germany and Belgium. Although this takes the pressure off, the government fears that this practice will endanger the return on its investments in the national health care sector. The Netherlands is, however, based on the principle of the free movement of services within Europe, only allowed to protect its own health care sector to a limited extent. There is an extensive body of case-law of the European Court of Justice in Luxembourg prohibiting the Netherlands and other Member States from taking too many protectionist measures. 6 Accessibility. Health services have to be accessible to everyone within the jurisdiction of the State party. According to the General Comment, accessibility contains four overlapping dimensions: Non-discrimination Non-discrimination requires that health facilities, goods and services must be equally distributed and be within safe physical reach for all sections of the population, especially vulnerable or marginalised groups. On occasion, extra protection and attention needs to be given to vulnerable groups in the provision of health services. Especially the following groups are vulnerable to exclusion from health care services: immigrants, the elderly, women in certain cases, people with chronic diseases, including HIV/AIDS, and people with physical or mental disorders. 5 6 NRC Handelsblad (Dutch newspaper), Health care: mission impossible?, 7 July 2002, p. 46. ECJ cases Kohll: C-159/96, Decker: C-158/96, Müller-Fauré and Van Riet: C-385/99. In the Netherlands, these groups generally speaking have sufficient access to health care services. Earlier I mentioned the special problems faced by the elderly and children with mental disorders, but these cannot be considered to be serious to the degree where they amount to discrimination. There is, however, one group in the Netherlands that is particularly susceptible to exclusion from medical services and they are illegally residing immigrants. Due to the so-called ‘Matching Act’, only people with legal status are covered by the sickness fund. This means that illegal aliens are excluded from access to the health care package provided under the fund. In order to prevent inhumane situations from arising, the Matching Act provides that people without legal status may claim subsidised medical help in cases of ‘medical necessity’. This means that they have access to a limited health care package. What should be provided under this package has been heavily debated in the Netherlands. As part of the discussion, before the term ‘ medical necessity’ was introduced, the term ‘ emergency medical care’ was applied, which is stricter than ‘ medical necessity’. A practical implication of the system is that, in practice, people without legal status do not have access to treatment for HIV/AIDS. Physical accessibility Physical or geographic accessibility means that health facilities, goods and services are within safe physical reach for all sections of the population. It is particularly important that primary health care services are available close to where people live. I already mentioned the shortfall in GPs, in particular in disadvantaged areas, and this may give rise to the added problem of insufficient physical accessibility. In order to solve this problem, the government is experimenting with GP assistants and nurse practitioners to take over certain medical acts. It is important in this context to monitor whether such assistants have had the proper training to examine patients. As regards the accessibility of secondary care facilities, the tendency to centralise hospitals must be mentioned. Many large specialised hospitals have already been built, to the detriment of smaller, more general and, more importantly, more local, hospitals. This may eventually obstruct people’s access to medical care, in particular for the less mobile. Economic accessibility (affordability) Health facilities, goods and services must be affordable for all. I have already mentioned that in the Netherlands, there is a division between the sickness fund (covering 60 % of the population) and private insurance. Generally speaking, medical services have so far been affordable to everyone. However, our current national health system is rapidly becoming a very costly affair for many groups in society. This is caused in part by two phenomena which I have already mentioned, namely the aging population and medical-technical advancement. In order to deal with this problem, the government is taking a number of steps, of which the following two are the most marked: 1. The gradual introduction of competition between insurance companies, which will widen the customers’ range of choice and in the long run reduce prices. One possible danger in this plan is, however, that only well-informed and emancipated customers will be able to pick the health care package that is cheapest, but still adequately suited to their needs. 2. The introduction of a new basic insurance scheme governing both the national health insurance (sickness fund) and private insurance. Under the new system, each Dutch person will receive the same basic insurance cover regardless of income.7 One possible danger of this plan is that health care packages will be reduced to the extent where they only cover the most basic of needs, while additional insurance will be too expensive for most people to buy. Information accessibility Information accessibility includes a right to seek, receive and impart information and ideas. This implies that patients have a right to be informed about their health status. It does not mean, however, that personal health data need no longer be treated with confidentiality! Information accessibility also implies that the government has an obligation to provide adequate information concerning situations that may endanger people’s health, such as the incidence of an infectious disease or the dangers that may be created by living next to a pollutive factory. Generally speaking, information accessibility is adequate in the Netherlands. Patients are adequately informed of their health status and their confidentiality is safeguarded. The government also makes general health information available in an adequate manner. Acceptability All health facilities, goods and services must be respectful of medical ethics and culturally appropriate, i.e. respectful of the culture of individuals. They must also be designed to respect confidentiality and improve the health status of those concerned. In terms of acceptability, particular problems arise in the Netherlands concerning the medical treatment of the immigrant population. First of all, they are often unable to express themselves in Dutch. In addition, their health problems and medical needs are often different from those of indigenous Dutch people. The cause of this could be their, often weaker, socioeconomic position, but hereditary8 and cultural aspects could also play a role. As for cultural aspects, it is, for example, important to take into account that among female immigrants there is an unwillingness or inability to talk openly about any reproductive health problems. In that respect it is regrettable that a range of reproductive health centers, where anonymous and free reproductive health services were provided, have recently been closed down. Quality Health facilities, goods and services must also be scientifically and medically appropriate and of good quality: there must be skilled medical personnel, scientifically approved and unexpired drugs and hospital equipment, safe and potable water, adequate sanitation, etc. Here I would like to refer to the quality of blood products. In the Netherlands, the government has statutory responsibility for the availability, quality and safety of blood products. Despite safety requirements, the safety of these products cannot be guaranteed one hundred percent in the Netherlands. Chronic users of blood and blood products, like haemophiliacs, run the greatest risk of being contaminated.9 Hereafter I will discuss a case in which this actually occurred. 2. 7 Justiciability of the right to health in the Netherlands and before international bodies Customers will as such have access to a basic health care package (GP, physiotherapy, hospital care, obstetrics, dentistry, medicines and appliances). Anyone desiring additional insurance can purchase supplementary cover. 8 For example, it has emerged that blacks have different skin problems and that Hindustanis more often suffer from diabetes. 9 V.L. Derckx, ‘Een bloedserieus dilemma: optimale versus maximale veiligheid van de bloedvoorziening’ [A bloody serious dilemma: optimal versus maximal safety of the provision of blood products], Tijdschrift voor gezondheidsrecht, no. 8/2001, pp. 502-516, at p. 502. The Netherlands is a party to the ICESCR and the ESC. In addition, the right to health is also included in the Dutch constitution. Contrary to the international provisions, the constitutional provision only establishes a very general obligation for the government to ‘take steps to promote the health of the population’.10 The term justiciability refers to the question of whether one can rely on the right to health before a court. In general, very few cases exist in which the Dutch courts have granted direct effect to any economic, social or cultural right. As far as the right to health is concerned, Dutch courts mostly consider it injusticiable because of its broad and programmatic character. Here I will give three examples of exceptions to this general rule which may provide an opening for the future. The first case I would like to mention concerned the interpretation of the right to health in the Dutch Constitution by the Dutch National Ombudsman. The case concerned a group of people suffering from haemophilia who had been infected with HIV by HIV-contaminated blood in the 1980s. The blood in question had been imported from the United States by Dutch blood providers. Subsequently, even though the government as such had not been responsible for providing the contaminated blood, the question arose if, and if so, to what extent, the Dutch government should have protected these patients from becoming infected with HIV in these circumstances. The National Ombudsman decided that the Dutch government should have been more alert to the danger for haemophiliacs of HIV-infection through blood transfusion. In other words, the State should have intervened and protected these patients from infection by contaminated blood.11 Secondly, I would like to refer to a case involving certain provisions of two of the Conventions of the International Labour Ogranisation. The ILO Conventions contain many specific healthrelated entitlements. In a case before the Dutch Central Appeals Court, the question arose whether a patient should pay for maternity care after a hospital delivery. Reference was made to two provisions in ILO Conventions102 and 103. The Court decided that the provisions concerned were justiciable due to their ‘ imperative character’ and their ‘minimum character’. 12 There are several examples in Dutch case-law which demonstrate that the ILO Conventions can be quite compelling, even more so than the general human rights conventions. The Dutch authorities are not always happy with this: in order to avoid certain obligations resulting from the ILO Conventions, they have already denounced two or three of them. Finally, it is to be ovserved that several health-related issues have been addressed within the framework of civil and political rights, including the rights to life, privacy, family life, and the right to a fair trial. As such, the scope of these civil and political rights is enlarged in order to cover these health related issues, including access to health services, and protection from environmental health threats. A number of interesting examples can be found in the case law of the European Court of Human Rights (ECHR). An example is the case of López Ostra v. Spain. Before the ECHR the nuisance caused by a waste treatment plant and its effects on the health of one inhabitants of a nearby town was addressed. It was held that there had been a violation of the right for respect for home and family life in Article 8 ECHR. The Court ruled that the municipality of Lorca had failed to take steps to respect the applicant’s right to 10 Article 22-1 of the Dutch Constitution. The National Ombudsman, petition of the Dutch Society of Haemophiliacs in Badhoevedorp who lodged a complaint concerning the functioning of the Ministry of Wellfare, Public Health and Culture, Public Report no. 95/271, 18 July 1995. See Toebes, op. cit. note 1, p. 204. 12 Central Appeals Court, 29 May 1996, NJB, 29 November 1996, No. 3, pp. 1826-1827. Social Security (Minimum Standards) Convention, 1952, No.102. See Toebes, op. cit. note 1, p. 200. 11 respect for her home and family life under Article 8 ECHR. So the right to family life was considered to embrace a right to protection from environmental health threats.13 13 López Ostra v. Spain, 9 December 1994, A.303C (1995).