APPENDIX 11 Section-A Demographic Data Patient Code : Case No.: Please encircle the appropriate options for each question given below A. Age (yrs) : i. 18 - 30 ii. 31 - 45 iii. 46 - 60 iv. > 61 B. Gender : i. Male ii. Female C. Educational status : i. No formal education ii. Primary iii. Secondary iv. Graduate & Above D. Marital Status : i. Unmarried ii. Married iii. Widow/ Widower iv. Separated v. Divorced 156 E. Occupation i. Employed ii. Unemployed iii. Self-employed F. Family Income : i. < Rs.5,000/- ii. Rs.5,001/- to Rs.10,000/- iii. Rs.10,001/- to 15,000/- iv. Rs.15,001/- & above G. Type of Occupation : i. Labour work ii. Office work iii. Others, if others , specify___________________________ H. Diagnosis : __________________________________ I. Treatment Related Information : i. Name of the Protocol : a. CAPOX :________________ b. CAPIRI:________________ c. CAPE+AVASTIN :________________ d. If others, specify :___________ ii. Dose of Capacetabine ( per cycle in mg/m2 ): iii. Specify Cycle of chemotherapy protocol : _________ 157 Section – B Knowledge on Self Identification of Hand Foot Syndrome: Note : 1. 1. 2. There are eight questions. 2. There is only one right answer 2. Choose the right alternative and encircle it. 3. All questions are compulsory. Hand Foot Syndrome is 1.1 Infection of hands and feet 1.2 A Skin Reaction involving Hands and Feet. 1.3 Due to injury of hands and feet. Hand Foot Syndrome can occur on 2.1 Inner surface of hands and feet. 2.2 Outer Surface of hands and feet. 2.3 All surfaces of hands and feet. 3. Occurrence of Hand Foot Syndrome should be observed 3.1 Within 24hrs after initiation of treatment. 3.2 Within 2-4 weeks of treatment. 3.3 Within 4-8 weeks of treatment. 4. The development of Hand Foot syndrome could be best attributed to which of following causes 4.1 Overdose of drugs. 4.2 Leakage of drugs into sweat glands of palms and soles. 4.3 Allergic reactions to the drugs by the body. 158 5. Which of the following signs is evident first in a patient who begins to develop Hand Foot Syndrome 5.1 Severe Skin changes limiting self care activities of Daily Living. 5.2 Skin changes without pain. 5.3 Skin changes with pain limiting routine activities. 6. Hand and Foot Syndrome is a common side effect of drug 6.1 Cyclophosphamide 6.2 Methotrexate 6.3 Capecitabine. 7. It is important to understand the signs and symptoms of early Hand Foot Syndrome because 7.1 It can lead to deterioration in quality of life and/or treatment interruption. 8. 7.2 It has potential to spread and affect various organs of body. 7.3 It may cause permanent disability in hands and feet. What is an effective way to treat a patient who develops severe Hand Foot syndrome 8.1 Applying dressings with antibacterial ointments on advice by the doctor. 8.2 Application of medicated skin ointments on advice of doctor 8.3 Dose reduction and treatment interruption on advice of doctor 159 Section – C Knowledge on Self Management of Hand Foot Syndrome Note : 1. There are eight questions. 2. There is only one right answer 3. Choose the right alternative and encircle it. 4. All questions are compulsory. 9. Discomfort due to Hand Foot Syndrome can be prevented by 9.1 Performing regular exercises such as walking, jogging, etc., 9.2 Limiting activities involving Hands and Feet. 9.3 Massaging hands and feet with pain balm. 10. Reddness of Hands and Feet can be managed by 10.1 Wearing tight gloves or socks. 10.2 Applying Self Medicated skin creams. 10.3 Cooling of Hands and Feet with Ice packs. 11. Pain and peeling of skin in hands and feet can be managed by 11.1 Immersion of affected part in hot water. 11.2 Cleaning hands, feet and skin fold areas in luke warm water and drying gently. 11.3 Immersion of affected part in cold water. 12. Application of emollients is recommended to patient with Hand Foot Syndrome to keep skin 12.1 Soft 12.2 Dry 12.3 Moist 160 13. Long distance walking is discouraged in patients with Hand Foot Syndrome because it causes 13.1 Pressure on soles of feet leading to ulcers or blister formation. 13.2 Fatigue. 13.3 Bleeding . 14. Hand and feet skin integrity can be promoted in patients who are on oral capecitabine by which of the following measures 14.1 Cleaning of affected part in soap water repeatedly. 14.2 Avoiding contact with extreme hot water and cold water 14.3 Doing repeated jumping or gripping exercises. 15. Swelling of hands and feet can be managed by 15.1 Massaging the affected part with oil. 15.2 Avoiding wearing tight clothes and elevating hands and feet using soft cushions. 15.3 Taking Rest. 16. Which of the following is any alternative measure or treatment for severe form of Hand Foot Syndrome 16.1 Medicines, self care, emollients and dose interruption are sufficient 16.2 Surgery of hands and feet is required. 16.3 Not aware of any treatment available. THANK YOU FOR YOUR VALUABLE PARTICIPATION 161 Knowledge score will be evaluated in terms of following grades Score Obtained Grade (Maximum obtainable score=16) Greater than 14 Excellent 11-14 V.Good 7-10 Good 4-6 Fair Less than 3 Poor 162